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  1. Well, haven’t tried the other part of the song yet 😂 am waiting for next consult to ask whether it’s okay to have alcohol (low quantity) again Think my attitude stems from past experience. My mother’s side of the family has the unfortunate hobby of dieing at a relatively young age, so already took into account that it could happen to me too. It makes you live your life differently I suppose. My gran has survived a grand child, her three children and her husband. Though each and every death devastated her thoroughly, she always found the inner strength to go on and live her
    8 points
  2. Hi, I’m a newbie, discovered the forum by chance and it’s been a great help. It’s very useful to hear other people’s experiences as it’s something the specialist can’t tell you. Before I go into my story ... if you spot spelling mistakes, I’m Belgian, so English isn’t my first language and my Ipad has the unfortunate habit of switching Words to Dutch 😂 I had my bleed on feb 18th. I’m single, so was home alone. I’m used to severe migraine attacks, but immediately realised this was something completely different. Immediately sent a chat message to some friends to bring
    7 points
  3. I’m 43 and I’m head of a tiny department (4,5 people and no, I didn’t saw one in half ... she works for another department too). Local government, a coastal town in Belgium. Closest equivalent to my job I’ve ever seen is ‘housing inspector’, that daytime program on the BBC a few years back, so declaring houses uninhabitable due to low quality or because the inhabitants are hoarders or just plain messy. I also do some local taxes, so I have a really positive job! 😂 😂 Stress level is moderate most of the time, high on occasion, but after 16 years I’ve pretty much seen and heard it
    7 points
  4. Well, did my first two days at work and .. I’m pretty much okay. Was well tired yesterday, but think that’s more because sunday’s Line of Duty’s cliffhanger left me a bit hyper and unable to sleep than due to work 😂 I work a bit slower than I used to (that speed was untenable however ... I was like the Duracell bunny on speed), but hectic mix of phone calls, huge open work space with colleagues dotted about here and there, the adoring public when they come to make a complaint, politicians badgering you, ... (it’s such a joy being a local civil servant 😜) ... so far, I’m dealing wi
    6 points
  5. Hi Rosie The best thing you've done is open up! I completely understand that you want to avoid discussing what's happened, it's personal, it's yours. I had a real problem discussing it when I had a stroke but eventually realised that talking about it was the best thing I could have done! Being totally honest Rosie , it is people like you who inspire me. You are prepared to come onto a public forum and express your true feelings; that's amazing, well done you!. The best thing we can do is talk about what's happened. I wish you the very very best and hope you take the adv
    6 points
  6. Hi everyone, just to say thank you all so much for the lovely and helpful replies. It really means so much and has made me feel much better and reassured. I will go through each one again in detail (still takes me a while to retain information!) but just wanted to say how grateful I am to read all your responses and for the lovely welcome. 😊
    6 points
  7. Hi Rosie I'm 15 years in this year and every bad headache has me in a panic. My energy levels are nowhere near what they were, but I also put this down to being 15years older. However, even in the first few years after, I tired more easily than I did before and would often need a snooze on the sofa. Trying not to worry is easier said than done, but also helps a lot. Don't compare yourself to to pre-SAH, compare yourself after it and now - only then can you see how far you have truly come xxx
    5 points
  8. I’m a 50+ French guy who suffered a ruptured SAH back in June last year followed by an emergency splenectomy 2 weeks later while still in HDU. They didn’t seem to be related but none had an identified cause. Prior to the SAH, I had suffered some massive headaches and pain at the back of my neck for about 2 weeks but thought it was muscle related (even seen a physio) . Then, one evening I collapsed in front of my wife and grown-up kids (who performed CPR while on the phone with the medics). 9 months on, and I still suffer with cognitive issues (memory problems, lack of c
    5 points
  9. Thanks, Jean. I think my 'old me' is a bit too harsh with my 'new me' at the moment. I'm trying not to compare myself with how I was before the SAH but it's not always easy. Even though it's been nearly 10 months, I suppose it is still early days for me and we all need to adapt ourselves to our new life. I'm learning a lot from this forum and it gives me some strength and hope. Thank you very much 🙂
    5 points
  10. With many thanks to Super Mario for her very kind donation. x Many thanks to all of those members who continue to donate each month....your kindness is very much appreciated. x
    4 points
  11. Just back from my eye test SMASHED IT!!!!!!!!!! Only one missed spot in the high left area which the optician said was completely irrelevant. Hopefully that means my licence will arrive soon but I'll wait until that day to celebrate properly. Thank you Johnnie and Tina for your calming words
    4 points
  12. Ilse, all I can say is "Well done girl" - believe me, that attitude and humour will be a great asset to your recovery. My husband has always said that it was stubbornness and humour that got me through the tough days. Loving you and your outlook already xx
    4 points
  13. I got my second Moderna shot a couple of days ago. Getting a bit of brain fog, fatigue, and headaches--kind of what I was already experiencing due to the NASAH! The only new thing is my arm hurts. But other than these things, all of which are to be expected, not experiencing any problems. And very relieved to be fully vaccinated.
    3 points
  14. You are doing a super job, Jennifer. You made me laugh, I have MIL issues but I am so glad for you that she's there to help. 😊
    3 points
  15. Thanks so much for your comment! I'm in the US .. mom's on a 6 month waiting list for help.. I'm just doing everything possible to keep her out of a nursing home! So thankful for my mother in law for volunteering to take her every day while I work.. before this, I didn't have much good to say about her.. now, you won't catch me saying a word other than how thankful I am for her!
    3 points
  16. Thanks very much for your reply Tina. I've been lurking around the Forums for a few months and , in the main ,have taken great comfort from the experiences of others. When I surrendered my licence I knew it was the right thing to do but was under the impression that, as long as my consultant agreed, I could drive once DVLA had received my application. To be told to go for another eye test is a shock and very annoying but as you say, I should pass it anyway. I'll certainly be back with updates.
    3 points
  17. Hi Pascal Welcome to BTG, glad you found us and are finding the site useful. We aren't medically trained so can't give medical advice but we can offer support and our experiences. I am 6 years post bleed and still struggle with noise, concentration and ability to pay attention and my memory.... we best not mention that. I wonder if the sensations you are feeling may be attributed to fatigue or stress. I know if I have to concentrate hard for any prolonged period it makes my head feel a bit 'wobbly' If you are worried though try speaking to the unit where you were t
    3 points
  18. Hi Ilse, Another welcome, and so happy you found us...Love your humor, enjoyed reading what you wrote...You seem to already have what took me so much time to find...a positive attitude, That is wonderful. Your chumbawanba reference made me laugh out loud xx Jean
    3 points
  19. Hi Ilse and welcome. So glad that you've found the site helpful and realise that you aren't alone. Can you tell us a bit more about yourself - age, job etc. Don't worry about your English either - it's probably better than a lot of people's that I know whose first language is English!! You seem to have kept your sense of humour too, believe me this is a huge bonus and get me through a lot of tough days. All I can advise at the moment is to take your time going back to work full time (not sure what you do, hence the request to tell us a bit more ab
    3 points
  20. Hi my name is Adam I’m so glad I have found this page, reading topics and testimonials from people has really helped give me an insight to what has happened to me! I’m a 37 year old male from the Midlands in the UK On Monday 29th March whilst on the toilet I had the most horrendous headache and later on was extremely sick, I went to my local hospital where I had 2 CT scans and these showed I had a bleed on my brain. From there I was then taken in an ambulance to University Hospital Coventry, not knowing what was going on or what was going to happen to me!
    2 points
  21. Hi Adam, and yes, a very warm welcome to the 'family'. I can't imagine what going through this alone in hospital must have been like for you, or for your family not being able to be there with and for you either. I agree with Sarah regarding the comment about yours "being a good one" - no-one can define a brain bleed as good in any way, shape or form! It might not have been "serious" but a bleed is a bleed and it has a massive impact on the patient and those around them. As for the 6 - 8 week recovery, a slightly unrealistic standard time frame given by med
    2 points
  22. Hi Adam and a warm welcome to Behind the Gray. I'm sorry to hear you had such a rough time. Not knowing what was happening and having no family around to support either would be a bad experience in anyone's book. Anyway I'm glad you're back home now where you can concentrate on your recovery. 6-8 weeks seems to be the standard that doctors tell you, or at least mine did too. I think it is very misleading give a time span like that as many survivors take considerably longer than that. As for telling you that yours was one of the good ones, well I've never heard anyth
    2 points
  23. Please do get the vaccine. Pfizer and moderna are mRNA vaccines which means they are just proteins. Drink lots of water/ fluids and take Tylenol after the shot. I have two of my patients have hives and dizziness. If you have flu like symptoms, that is just a reaction to be expected. If you don’t get the vaccine, you will probably get the virus. And there is not guarantee if it will be a mild case. We don’t have AstraZeneca here. It is a shame that Johnson is on hold due to clots. I see many people all the time with clots. Some due to sitting in plane/ car/ train, some due to immobi
    2 points
  24. Hi Rosie You should get intouch with Gp and see about councelling - Headway is a great one... And like Tina, I was told by GP 'you could walk out of here now, get hit by a bus (must be a theme they use) your clips wouldnt have moved, you wouldnt have had another bleed but the bus would have gotcha... from that moment I thought why am I worrying was a wake up call really... But do seek councelling its a great help... take care
    2 points
  25. Hi Rosie its good to see you posting, welcome back. So sorry you are feeling low and tearful, sending you big hugs. I think with all thats happened in the last year it could have also just heightened how you are feeling. I still get very tired and that has not changed in over 12 years. Have my good and bad days too. Have you been to see your GP recently? Have you tried talking to someone about the way you are feeling? My GP arranged for me to have some counselling when i was struggling. I found it very helpful to talk to someone removed from family and friends.
    2 points
  26. Welcome to BTG, Jennifer! I am sorry the doctors nor nurses don't have answers for you. As Tina have said, these things happened and we just cannot get answers as to why. My experience is very different to your Moms'. I've had two ruptured aneurysms 10 years apart at the same location and I have stopped asking why. Acceptance is hard but eventually I was able to and shifted my focus on how blessed I am to have survived both. Your Mom is truly lucky to have survived and luckier to have a caring daughter. I understand how trying this time must be for you. I am glad you h
    2 points
  27. Thank you Sami. The licence means my job. Working from home/ sat in an office just isn't me as I've found out over the last few months!
    2 points
  28. Tony Welcome to BGT. I am sorry to hear of your nervousness but you should take great comfort in the fact that you are way ahead of most 'licence losers' that come here for advice. Many/most of us have had our licences revoked rather than taking the (purely personal) decision to hand them in. I would suggest that you focus positively on the test you have to take at Specsavers (we all had to do it!) and tell yourself that it will be a positive outcome. In the 18 odd months it took me to get my licence back I never lost the idea that I would get my licence back at some p
    2 points
  29. Hi Pascal! Welcome! I don’t exaggerate when I say that this group has been a Godsend to me- especially the first year of my brain bleed. I’m coming up 5 years, and someone in this group wrote something that has always stayed with me. Let me share it, and I hope it will be as encouraging to you as it was to me. We tend to compare ourselves to what we were like prior to our bleed. The reality is our brain has gone through a change, and the comparison should really be between what we were like right after our bleed and what we are like now. I’m not like I was before my blee
    2 points
  30. Hi everyone Firstly, I want to thank everyone for sharing their experiences and personal stories. I have many a time taken comfort and hope from reading posts on here but have never felt brave enough to post before. Apologies in advance if my first attempt is too long! I had a SAH caused by a small 2mm ruptured aneurysm in 2013. Thanks to the amazing medical team and surgeon who performed the coiling I survived. It has been a long journey and my life is completely different now but I have adapted as best I can. I have been regularly monitored with scans yearly or b
    2 points
  31. Hi Dawny, A warm welcome to Behind the Gray and I'm sorry that your original post was missed and not replied to. I remember that hesitation about posting for the first time so can understand that it can take some courage to do. Hopefully your trust in posting has now been restored by the responses you have received Much of your post resonates with me although my experience was long before covid was ever heard of. I had a SAH in Nov 2008 and following my first check up they wrote to me telling me they wanted to recoil the aneurysm and they were looking at doing this wit
    2 points
  32. Hi and sorry you didn’t get any reply to your first posting. I think you hit the nail on the head when you say He also said if it was urgent they would not have let me out of the room. No doctor likes to take risks with their patients, it not only affects the patient but their reputation too. I am sure if it was that urgent you would have had the surgery already. I work in the NHS and know Covid has delayed a lot but I am also aware that if a procedure is important it goes ahead. Also from what I understand, (though I’m not medically trained) a coilin
    2 points
  33. Hi welcome to btg I was clipped so cannot really offer any advice on coiling hope it all goes ok xxx
    2 points
  34. Welcome to BTG, sorry that no one has replied to you. We do have members who have been recoiled so hopefully someone will pick this up and reply.
    2 points
  35. Hi again, I thought I would try again to see if I could perhaps get one reply. It was my first time posting and took a lot of courage for me to do so. I know that this is a friendly and welcoming place from what I have read in the past and in response to other posters so hope someone will be able to respond in some way. I have received a letter for a telephone appointment next month so hopefully I will know more then as well. Thank you for reading and hopefully replying!
    2 points
  36. Hi Pascal, Welcome ... I am coming up on 4 years from my event. My morning brain and my evening brain are very different now. I have been learning Spanish during the pandemic and it has made me aware of the differences. I make so many more mistakes when I start to get that brain fatigue feeling. ..So I try to do it more in the morning...I keep thinking to myself if I have opportunity to use the Spanish if anyone talks to me at night hahaha...let's say I will be missing a lot I have found the recovery to be slow but I will say each year I feel improveme
    2 points
  37. Welcome Ilse! What a wonderful picture. Thank you for sharing and for being so open about your experience. Perspective really do makes coping a bit easier. I admire your attitude towards it all. I love this...keep it up! 😊 Ann
    2 points
  38. Thank you everyone for replying. I had Astrazeneca and its been 2 weeks now. I had sore arm and little fever because of this I was sleepy for the whole day.
    2 points
  39. Hi there I’m based near Leeds in UK. I also had my bleed in covid times which was tough cos it means you’re alone in hospital - well done for getting through that 💪 i have found that different NHS areas have different levels of support and in my case it was non existent. I was SO relieved to find this forum. It’s so true, the bit where everyone says it’s early days - I thought I’d recover quicker but I didn’t. I’m 9 months in and tho significantly better I’m still fatigued, headachy and at times a bit low. I also still panic it might happen again but that is reduci
    2 points
  40. I agree with folks that starting with walks is a good thing to do, gradually increasing distance. You might also try some gentle yoga--I was doing an on-line chair yoga class that didn't involve my head going upside down. I'm 3 months in--the first few days I could barely walk a block, but now I can walk or cycle for miles. I'm also now doing more vigorous yoga classes. I'm not yet back to where I was pre-NASAH, but pretty close. But I don't think my case was that severe--for other cases it can all take longer. I think a bit of cardio exercise may be better for your recovery
    2 points
  41. My NASAH happened February 22nd. Thankfully my husband was home, we got good care, and I have no major physical deficits.I was in the hospital for 9 days and I believed that once the blood cleared from the CSF that I would be back to normal. Once I was home for a few days, I was getting very depressed and frustrated about the exhaustion and headaches because I thought I should be better. Thankfully I found this site and have started to form more realistic expectations for what may be a long recovery. Some days I am very sad about what happened and about my lack of energy and about
    2 points
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