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Showing content with the highest reputation since 27/04/20 in all areas

  1. 12 points
    Thank you everybody for the kind sentiments, gestures and comments for my mum, our family appreciate it very much. xxx
  2. 10 points
    Devastated by this news. My SAH was almost ten years ago. It was some time before I found out about this site and when I joined Win was one of the first people to greet me and she told me about singing and having a laugh. I didn't think much of it at first but then one day she said something very profound and it has stuck with me ever since. She told me there was always someone worse off than yourself, and rather than be miserable and look on the down side of life, I should look for new opportunities as the 'new you.' It didn't dawn on me until a couple of days later what she was really saying- my flash to bang time wasn't very good after my SAH - that she was indeed talking about herself, and she was basically telling me I should count myself lucky. I could still see my kids and grandkids grow, I could still walk and talk and look forward to going back to work, albeit in a reduced capacity, and so on. The more I thought about it, I thought that's one savvy, gutsy lady, what have I got to cry about. From that realisation day on, I always tell people to look on the bright side of life, have your sad moment, but then get back on your feet and take the world on and get the most out of life. That's what Win did for me - and she told me in that most British, English way - with classic, understated brilliance and simplicity that I only had to open my eyes to see. Thanks Win, RIP Sleep tight. Macca
  3. 10 points
    Oh Sarah, I’m so sorry about your lovely mum. She leaves a huge hole at BTG and I’ll so miss her cheer and optimism that she often shared with us here. She was one of the shunt gals gals and I Loved my ‘Mrs O’ chats in the green room, she even changed her picture to Mrs O. She was a special brave lady and so proud of you, her Al and of course Tilly. take care in the coming days. Let the tears flow. Let us know if practically there is anything we can try and Help with as her community of online friends. I guess The singing just got a whole lot louder where she is now. They are blessed. Will miss you Win. 💕 Im just editing to add , this from one of Win’s posts in 2016 “Be Well, smile and sing (My answer to everything) !!”
  4. 9 points
    Thank you for the lovely flowers and card we just received, it was very kind of you all and much appreciated. My dad placed them on the table next to my mums chair. sarah xxx
  5. 9 points
    Dearest Sarah, i had not been on in a bit and this is the first thread I came upon. I am so shocked and saddened for the loss to BTG but know it is nothing compared to what you and your family is enduring. Win has been such a bright light to us all, always ready with encouragement and so good at teaching us to laugh at and accept ourselves. She will be so sorely missed. Prayers of comfort for you and your family, including Tilly. It was so clear how very much she loved you all. Colleen
  6. 8 points
    So so sad to hear of the passing of the amazing Win. Always had a cheery tale to tell and positive words for newcomers. Our loss and a new angel for heaven xxx RIP Win xxx
  7. 8 points
    The song thrush was out last night in the garden....made me think of Win. x
  8. 8 points
    Donated some money to BTG in memorium to win. We will all miss her. I thought about her this weekend when I had to dye my hair myself. she always made us smile. May she rest in peace.
  9. 8 points
    I've stuck a big heart on my window for Win .... It's next to a big basket of teddies and at 8pm ... I'm going to bang on a saucepan and rattle it, like no one has even seen! xx
  10. 8 points
    Oh no Sarah, devastated by your news. My sincere condolences to you all. Win was a member of this forum who always brought a laugh and a smile to me, and her singing, well. She will most certainly be missed on here. God bless you all.
  11. 8 points
    With many thanks to those members who are making a monthly donation towards BTG funds.....It's very much appreciated! x Also, a big thank you to Marobinson71 for a very generous donation and it will help to keep BTG up and running for a further 3 months, which is fantastic! Thank you guys! x
  12. 7 points
    I am so glad to have found this site or to be honest my wife did! I have been in touch with "HEADWAY" and they have been great but this site seems so interactive and understanding. It has been more than a year since my SAH and all the complications that I endured ie Hydrocephalus,drastic decreasing of sodium and Vasospams. I really do not remember the event happening but thank god my wife was here with me when it happened, or I would not be here talking about it. I have a shunt fitted and would love to hear from others with one implanted, as I have had problems since I have recovered. This site proves the old adage "It takes one to know to know one". Many thanks!
  13. 7 points
    I loved your mom so very, very much. She was my great friend and I will miss her dearly. Love to you and your family. Carolyn
  14. 7 points
    Sarah, I am so very sad to hear that your lovely Mum has passed away, you must be devastated - my thoughts are with you. Reading all these tributes has brought a tear to my eye as I too will remember Win as a lady with a great heart, a fabulous sense of humour and an infectious singing voice. She was a remarkably strong person for recovering so well after her sah with all the added problems that she encountered along the way which you bravely shared with us at the time. Then we met Win on here and she became one of the family and kept us all entertained with her upbeat attitude. She will always bring a smile to my face as I remember her posts in the Green Room, she will be missed by us all. Love to you and your Dad, Sarah x
  15. 7 points
    Sarah, I’m so so sorry to hear this sad news. Over the years dear Win gave me such strength and lots of laughter, through some very difficult times. Heaven has gained a truly amazing bright star. I shall sing out loud for you lovely Win. Much love and great big gentle hugs to you all SarahLou Xx
  16. 7 points
    Sarah I am also devastated to read your news about Winnie's passing. Winnie was such a great 'online' friend to me personally since we met 5 years ago and as Karen says she is so well liked by everyone here on BTG with her own incredible sense of humour. Her encouraging words to everyone ..'Think happy thoughts and keep singing ' will never be forgotten, and her frank insights into her childhood years with her family as she grew up were lovely to read. Thoughts and sincere sympathies are with all your family especially you, Al and Tilly. Subs
  17. 6 points
    I am very sorry for your loss. Whenever I read anything from Win I though she has such a positive attitude and was always trying to help others in their recovery . I was very sad to read this news indeed. xxx
  18. 6 points
    I had a note in my diary to get a poem ready for Winnie and Al's 50th anniversary on 29th August. Subs
  19. 6 points
    Oh no Sarah, devastated by your news. My sincere condolences to you all. This will take a long time to sink in for many on BTG. R.I.P. WIN
  20. 6 points
    Oh My Sarah - so very very sad to hear this - in fact, I'm gutted. Your mum never failed to put a smile on my face with her posts, her wit, compassion and her positive attitude - and most definitely her singing. She was a huge part of BTG and she will be greatly missed. As Karen says, she was one heck of a lady. Sending you all so much love and many, many hugs.
  21. 6 points
    I don’t even have words to say. I am very sorry for your loss. I was just thinking about her this weekend. RIP😿😿😿😿😿
  22. 6 points
    I'm so sorry to hear this. Win was a real character and will be greatly missed
  23. 5 points
    Win R.I.P you will be missed by everyone who knew you thanks for coming into our lives and making them brighter. Me Garry and Shayne clapped for win aswell last night so sad xxx
  24. 5 points
    Karen I did the same, pan & wooden spoon and lots of tears too, I really hope our lovely Win heard us..... love & hugs to everyone. Xx
  25. 5 points
    I've clapped and rattled for the NHS and Win.... what an emotional day ... love and hugs to all....xx
  26. 5 points
    Sarah so sorry about your mom she was a wonderful person who will never be forgotten she was always there to make people happy when they were down she could always make me smile xxx
  27. 5 points
    Oh Sarah, such very very sad news. God bless our lovely Win, who gave so much joy and made so many smile. So sad & gutted too. She will be missed so very much by us all. Thoughts are with you, sending much love to you, Al & Tilly xx
  28. 5 points
    Oh! I am SO sorry to hear this Sarah, my thoughts are with you at such a sad time... In my down days she certanally did put a smile on my face, and loved her for that she will be so sorely missed for sure.
  29. 5 points
    Oh my goodness Sarah, I'm just so shocked to hear that our lovely, funny and beautiful Win has passed away. Win was a big part of our little online family ....I'm going to miss her so very much Sarah and I just don't have the words .... I know how much she loved you, Al and Tilly and I send you all my love and sincere condolences .... she was one heck of a lady! ❤️ xxx
  30. 4 points
    Iola, It’s nice to hear from you, I’m sorry you are finding things troubling at the moment but you are doing the right thing which is to come here and talk , we will listen . stress is rubbish and doesn’t sit well with our damaged brains. yes we heal, we adapt to change and we go on to rebuild lives but our resilience to weather emotional trauma I think is never the same, we react differently, it effects us in much more vivid ways and so we have to try and notice both our triggers and our traffic lights. what do I mean? Well for me being around toxic people is a real no no. A trigger which will raise my BP and my cortisol levels , I jettison them fast these days or just exit the situation ( safer than saying what I feel) which makes me less popular that I may have been previously but I don’t want their complaining, ( I can hear Win echoing that to me from years ago to stay away from those that moan, she was right! ) . also when I do too much or am emotionally strung out my brain shows me in odd ways, stiffness in jaw, pain in phrenic nerve , and I know I need to heed that and slow or stop and take some quality quiet time. Healing space to be kind to me, my body and my brain. I dont want to run a red light, Ive run so many , it hurts too much, so I pay heed now, it’s all I can share. I wish you well.
  31. 4 points
    Hi Macca and Louise Many thanks for your replies. We had already filled in the forms ourselves but we will get advice when we do the appeal letter. Again many thanks for the advice -be safe and be well to you both.
  32. 4 points
    Dear Sarah, My deepest sympathy on your loss...Your mom was a source of smiles and comfort to so many here on this site. I could imagine her singing, and it would make me smile...I am so very sad to read this news...Although we have never met, I live in the USA....somehow some way we connected, she made my burden a little less... I hope as you read all these words above about her you can find a tiny bit of comfort in knowing she was so loved. I wish you and your family peace at this difficult time, not being able to be with her must be so difficult... Hugs to you and yours Sarah. xx Jean
  33. 4 points
    Sarah I just can't find the words to say how shocked and totally devastated I am to hear that your wonderful mum, our wonderful Win has passed away so suddenly. Win was a beautiful person both inside and out, she was always so upbeat and full of fun, she always managed to make me smile no matter what sort of day I was having, I sing all the time now ( Winnie's orders ) she was right, it does make you happy. I used to get wrong off her because when I had baked a cake and mentioned that I had, she always wanted a piece, I would have loved to have made her a cake. Win was loved so much by us all at BTG, this is really going to take some time to come to terms with. Sending love and gentle hugs to you all at this very sad time. Love Michelle xx
  34. 4 points
    I have very limited recall of the whole episode. My wife talked me through what happened though, witnessed by my teenage kids, it sounded horrific, but it has brought us closer together and made me love them even more! I know get random hugs from my 13 year old son, silver linings and all that.....
  35. 4 points
    I’ve literally just joined having had a SaH nearly three weeks ago and having been home for a few days. I’m early in my journey, but the comments on here help immeasurably. Talk about feeling like a fraud, I was in ICU during peak Covid admissions!
  36. 3 points
    Hi everyone, It has been awhile but I've been on a ride that is hard to explain. Hit my seven yr mark this year in April and that is a big accomplishment. However, I started having dizzy spells and one day I felt like either a neuron finally found its mate, in my brain, or some electrical current shorted. It was not painful but did give me a sensation of twirling quickly and then stopped. Scared me to death but I knew it was not a bleed because there was no pain. But, I was like, "what was that?" Head was heavy and hurt and kept feeling dizzy. Went to dr and had a MRI and all clear. Then I realized a few things, I was taking an abundance of vitamins, my stress level was high because of a new project I said I'd work, and my daughter has had some health issues we need to combat, not to mention she is almost 15 and sassy. I stopped taking the majority of the vitamins and started feeling better. Now, my job. I have complained throughout the years I need to stop working and I need to push away from stress but something always brings me back to my work. With the last two months, I held on tight to my job because of the unfortunate folks that have lost theirs and my heart goes out to them. The other is this sense of independence I feel when I work. I cannot say I love it but it's what I know and maybe that's the problem. As for my daughter, she is my heart and worry about her future. I just read in an article about a woman that had a SAH and she feels it is due to stress and lack of sleep. It's scary to think what stress can do to the body. It tortures the body and brain. So, I went to see a neuro psychologist and had one session with him and now cannot seem to reach him again so I guess I am seven years too late talking about what happened. So, that's done. So so here I am talking to you because, well, it makes me feel better so thank you for listening. ☺️ iola.
  37. 3 points
    Hi Daff and all! I have been for an MRI on several occasions, even the mobile one parked outside the NHNN entrace, each time I panicked and only managed to last about 5 minutes in them, so no clear result. They are organizing an 'upright' scanner for me, but it's a Harley St job and there is a waiting list, but I've been told I'll be a priority, so I'm hopeful. My shunt can be magnetically altered to different settings, mine is on 5 and I have had follow ups with the Hydrocephalus specialist nurse who was great! I still get pain down the back of the shunt side of my neck, also down my ribs to the abdomen, this the drainage tube. I had never even heard of Shunts before my SAH and thought all brain Haemhorrages were fatal, what little do we know! Thanks everyone!
  38. 3 points
    Hi there Warm welcome to the site, glad that you found us. I too have a shunt and also a tube in my brain isn't Science just wonderful.. Take care
  39. 3 points
    Welcome to BTG and very glad you found us. I don't have a shunt but there are a couple on here who do, so when they see your post they'll be sure to reply. Can you tell us a bit more about yourself - especially the circumstances surrounding your SAH? Take care and feel free to ask any questions you like - we cannot offer medical advice, but we have a wealth of knowledge and experience.
  40. 3 points
    Hi Mario Many thanks for the reply - as I said in the OP I was looking for anyone with recent experience - would never expect to get "advice" online. Saying that many thanks for the link to yourable and the information you have provided - it is certainly been helpful and will give me something to look at over the next day or so. We are aiming to call on Friday to do the MC but wanted to have a better idea on what to expect and you have certainly given me that. We realise that this is a long process and current events have made things so much longer. Stay safe, be well in the current climate and thanks for your reply.
  41. 3 points
    Thinking of you Sarah and your Dad .... more hugs from me too ... xx
  42. 3 points
    Hi Sarah So glad that you liked them - we all thought the brightness reflected your mum's warmth and personality. Lots of love and many, many hugs Sami xxx
  43. 3 points
    I'm a recent addition to the community having had a SAH on 5/4/20 caused by a rupture of a 6mm anuerysm in the MCA lateral striate, this was succesfuly coiled 6/4/20. I was then in ICU in St Georges, Tooting for a few days and came home 18/4/20. I am so glad I found his forum/communitty, it is really helping me with learning and prespective; I feel very lucky. Whilst the "event" did occur on my wife's new Peleton, bought to excercise during lockdown, I was perviously a very strong, fit guy in my late 40's; seeing a strength and conditioning coach twice a week and training for competion. This was somewhat unexpected! I also run my own business and last year was president of my trade body, so I am used to living life at 100% however have never really suffered from stress, had low blood pressure and low RHR. Hearing peoples's stories is SOOOO helpful and really helping me give myself permission to take it easy, listen to my body and take my time. Things I am struggling with are: -Double vision -Going to bed expecting to feel better in the morning and then not -Aching muscles, I am literally wasting away and have lost 7 KG! (I started at 97 though!) Luckily though, I have a geat business partner, lovely family and I can now walk around the block, so getting more active. My teeange kids have to walk the dog, then walk the dad! Love to you all and thankyou once again. Mark
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