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Showing content with the highest reputation since 21/08/19 in all areas

  1. 9 points
    I am so soo glad to share with all of you, I just finished a half marathon. I am 7 months post NASAH. Feeling very emotional right now. Thank you all for the extensive support. You guys are the first ones I am sharing this with. Thanks again.
  2. 8 points
    Some great advice already and I hope that one thing you can take to heart is you are not walking alone in this and it is ok to feel as you do as it was more than our brains that haemorrhaged , its effect is across our lives from the moment it happens. When I look back the first 12 months were all about, surviving , dealing with pain, reeling from one step forwards then back. Then the second 12 months were about taking stock of what was lost to me and with that a realisation that life had utterly changed and not just for me. Talking that through is key. I echo Louise that Headway are superb, were for me anyway as assigned me a case worked who helped me regain things I had lost confidence to even try. Go back to GP and demand they help you , advocate for what you need and if you feel you can’t can someone help put that are across. Speak to your treating hospital and ask what help they can give. There is support out but sadly you have to fight for it. Try to break things down smaller and set different standards of goals. You cannot roll back to where you where before your bleed happened but you can move from from now, in this moment and see what is possible for you today and start to celebrate that as much as you can. Write those things you achieve down at the end the end of the day, what has been good but also write down what made you sad, cross, and then let it all go for that day and start each day anew. One thing for sure is that life post SAH is never the same two days in a row. You are still you with a life to be lived I promise, but you are compromised in what your brain will allow you to do right now. If you are low energy then it is a sign your brain is requiring that energy and is healing massively. Respect and nourish that . Eat well, move as you are able and set yourself goals and rest whenever you need to without guilt and see that combination as your path to future continued healing, i wish you well. I am 7.5 yrs out. I know this version of me better now but early on, well let’s just say I did not like the upgrade much and was resentful of what I had lost. Today I celebrate each day, what I am able to do, I have regained much but move at my speed, my pace for this day and always stop to smell the roses. Go steady and be kind to yourself . Daff
  3. 7 points
    Hello everyone, Just found this site and it looks good. I had SAH nearly 5 weeks ago. Been home from hospital 10 days. Although I was warned about the fatigue it’s still worse than I thought. Just wiped out most of the time. Also been told I mustn’t fight it. I came home with a Zimmer frame but for the last five days I walk with my husband around the village just using his arm for support. No more frame 😊. I try and go a little bit further every day. When I get back after fifteen minutes or so I’m exhausted and need to sit down. Still get headache and neck ache and strangely enough earache. Still afraid it will happen again so no confidence yet to be on my own. Glad to have found this group.
  4. 7 points
    Hey Greasly 23, Guess what? You have a new set of challenges to rise to now, not better or worse, just different. 1) Is to start looking at things in a more positive light - it's amazing what impetus a different outlook can give you 2) Is to start doing things and being proactive, however small and let people see you are trying. If they see you do this they should be more willing to start helping you themselves 3) Is to start getting better - doing things will help this. You've just fallen back a bit, now you must start climbing again. 4) Is to do a little tidying up and then sit down again - then do a little more. 5) Is to lay down some ground rules for the others in your house to chip in and do a bit - you can't do it all on your own anymore. 6) Is to get some dietary advice from your doctor and stick to it and try a little exercise - even if it is only going for a short walk in the beginning - even if it is with a stick or on a treadmill if you have one - do something. You are only 20 months out. I was over 24 months out before I could do a thing. Yes it is frustrating but I started to do little things and the little things became bigger things, and then bigger things still. On Saturday I am nine years out, but I am still not what I was but my quality of life is good. My outlook is positive and yours can be too, with a little grit and determination. Life is worth living and the rewards within myself are huge. I have seen my kids embark on their lives, my grandchildren grow up and I hope to see them married and in good jobs in due course too! Life changes - it's how you deal with it that counts! Remember the song ....."I get knocked down but I get up again"....? Keep digging in and making others astounded at your progress. Good luck Greasly 23, I really mean that. Listen to what Skippy says re therapy - it really can help to get you on that recovery route. One last thing - when you get frustrated - feel free to rant - it's why we are here - we've lived the nightmare too - but we all woke up to overcome it, Best wishes, Macca
  5. 6 points
    Around the time of my haemorrhage stroke (August 2018) I was exhausted and living on adrenalin for several months before it happened. My husband had been diagnosed with a brain tumour a few months earlier and had undergone his craniotomy to remove it in early July ‘18. That was a success, but he had some serious complications in the month following his surgery, which included sepsis. He was transferred back and forth between the Royal Derby Hospital where we live and QMC Nottingham where he had his surgery. In the meantime my mother (93) had had a hospital stay in June ‘18 and needed a lot of aftercare to get her on her feet again. I was her carer. Back to ‘stroke day’. It was a Saturday and I didn’t have to be anywhere until 1:30 - visiting time at the hospital. I was determined to have a bit longer in bed as my wider family would be visiting my mother that day. I woke up and about 10:30am decided to check my emails. There had been one from my husband’s neurosurgeon at QMC which I had missed the day before. He stated that he needed to transfer him back to QMC from Derby in the near future because he wasn’t happy with his progress. That was in reply to an email I had written to report I’d been worried about his progress. His reply had been delayed due to the holiday period. When I read it I began to cry, and felt a certain panic because I had missed his email earlier. I was very disappointed because at last he was in Derby, where he wanted to be. It would be less driving for me. I leapt out of bed and tried to get dressed ready for another transfer - again. I just couldn’t function with my clothes. I stared at them, not really knowing what I had to do. I presumed I was in shock because of the email. I went downstairs to make myself a cup of tea, hoping it might ‘snap me out of it’. I found spilt milk on the floor. I still have no idea how it got there as I remember nothing about it. I was alone in the house. I didn’t know it at the time but I had no use in my right arm. I had just forgotten it existed. Again I didn’t know how to mop up the milk. I just stared at it. I never got the cuppa in the end. My son had arranged to meet me for visiting time at the Royal Derby. He phoned to confirm, but I couldn’t seem to get the words out to explain about the transfer to Nottingham. Sensing that something was wrong he came straight round to see me. None of us have any experience of strokes so he thought that I had overdone it lately and was having a nervous breakdown (the most likely scenario). He drove me straight to his house where I could be cared for, then went to visit my husband. For the rest of that day, and the next day, I still could not get my words out and I could not manage to put on my clothes myself. I couldn’t hold my fork at dinner. They invited my mother and a friend of theirs who is a psychiatric nurse to Sunday lunch to see if she thought I was having a nervous breakdown. During her visit the Royal Derby phoned to say they were transferring my husband shortly to QMC. We delayed lunch to allow my son to go with him in the ambulance. Meanwhile I was left with my mum and Angie, the psychiatric nurse. Angie found it very difficult because she had never met me before, so she couldn’t really tell if I was any different from ‘normal’. She suspected I might have something neurological going on because I wasn’t using my right arm at all. When asked I just dismissed it, not having realised there was something wrong. She dialled 999. Even the paramedics didn’t realise it might be a stroke (as far as I was aware). My son, having just arrived back from one ambulance trip, found another ambulance outside his house. He escorted me to A&E in the second ambulance trip of the day. First his father, then his mother! It was only after I’d had a CT scan that anyone realised for sure that I’d had a haemorrhage stroke. That was on Sunday evening by then - some 33 hours after the stroke actually happened. I was transferred to HDU on the Stroke Ward. Whilst on the ward - some four or five days later - I had a seizure 30 minutes after being moved to a ‘normal’ ward within the Stroke Ward. I went back to the HDU for a while. I cannot praise highly enough the care and attention I received on that ward. It is a fine example of the NHS at its very best. Today most people wouldn’t know I’ve had a stroke. I occasionally suffer with fatigue and its side effects if not managed well, and ‘twinges’ in my head, like nerve pain. I’m not sure of their cause. I’ve taken redundancy recently so at age 65 I have officially hung up my hat and retired - as of yesterday. I’ve improved so much in the last 12 months that I can finally enjoy my retirement and relax. PS. A word of thanks. If I had not had such amazing support from both my daughter, my son and my daughter-in-law who immediately started caring for my mother - who all put their lives on hold to sort me and my husband out, and my long-suffering husband for his endless patience, I wouldn’t have done as well as I did with my recovery. Thanks go too to my friends from my church popping in with meals and flowers, and all the neighbours who looked out for us when we needed help with things like keeping our garden tidy, mowing lawns etc. and my colleagues from work who allowed me some slack when I was getting overwhelmed. I thank God for my stroke, without who I would not have known the wonderful support of my family, friends, neighbours, colleagues, Headway and the NHS.
  6. 6 points
    I feel for you Greasly 23 My husband survived an SAH in May 2019, and although his recovery has been amazing, I know that he has to work hard each day to be here and to get used to his new self. All I can say is that Skippy and Macca and all of the other amazing and loving people on Behind The Gray have helped us both through, and continue to help us through. My husband and I are both just so incredibly grateful to have more time together, each day we celebrate being here together. But life gets in the way sometimes, meals need cooking, dishes need doing, there's mundane ordinary stuff. And it can get on top of us, and feel like a burden. I guess one of the ways I look at it is, "what can I control? What do I have a choice in?" Because you don't have a choice about recovering from a SAH, and how slow the brain is to heal and rewire itself, and the other side effects from pain and medication. But there may be things that you can control, that will help you to feel a bit better? I'm really pleased you can reach out for help and support on here, and please understand that even though you may not feel like you're very good company at the moment, your family and friends will still want to be with you. I'm sure they're incredibly grateful to still have you with them. xx Veronica
  7. 5 points
    Hi there Oh goodness you survived its a hell that will ease honest - the good thing is you know there is a problem so get an appointment with your GP and talk to them about it, and get referred for councelling, you could also look at Headway site, they are brilliant. And just DITTo all Skippy has said and Macca too all positive.. We know what its like make this the start by making an appointment and ask about councelling it really, really helps... sending you all best wishes for a happier you...
  8. 5 points
    Thank you all 😊 Yes, I had tears in my eyes and it was a very emotional moment, the finish line. The first neurologist who managed me 7 months ago said I could never run in my life again, at the most, may be a 5 K, definitely not more than that. Thanks again for all the kind words.
  9. 5 points
    Hi there warm welcome to the site, glad that you found us. It's all quite normal and yep fatigue is being shattered and some, it will ease though just remember not to over do it, rest lots and keep well hydrated, and when the body says rest don't fight it listen to it... confidence will come back. take care, hope to hear more from you...
  10. 5 points
    Hi Sallios A very warm welcome to BTG, glad you found us. Well done you, on no more frame and trying to go a little bit further every day with your husband Its normal to feel very tired and wiped out, you have had a major trauma to your brain and 5 weeks is very early in your recovery. Listen to your body and rest up loads. You are doing so well It took me quite a while to get my confidence back and go out on my own. This is all part of your recovery process and you will get there. If the head, neck and earache is worrying you, always go and get checked out by your GP, even just for peace of mind. Look forward to hearing more from you. Take care Tina xx
  11. 5 points
    Hey there Firstly, yes you did survive and yes, it there is a point in it. I can tell from your post that you were the oil that helped your household run smoothly. I know how that feels, it was the same for me. I had to instruct/shout/scream at my hubby to do the stuff I should have been doing - my daughter was only 9 at the time and even then, she did what she could. The best thing I did, besides finding this website, was talk to my GP about seeing a counsellor/therapist. From the feelings you describe it sounds very much like PTSD and you do NEED to see someone to talk this over with. You're feeling guilty that you're putting your family through this, angry that this has happened to you and frustrated that you can do nothing about it. As for the weight - with you again - I put on a stone in a month as I couldn't continue my exercise regime - which was step aerobics three times a week, jogging and swimming three times a week. Acceptance at this time will be the hardest hurdle but is also your best friend. Accepting the "new" me was the only way I could move forward. Accepting that I needed to talk to someone impartial was the first step on a long, emotional journey. But remember, its a long road to recovery, but you're allowed to make as man pit stops along the way as you like. Please see your GP and ask for therapy or a counsellor - it will be a massive help to start your journey. You've stalled at the starting line but in all honesty, you really have done the hardest part of all - you HAVE survived. This life may be different and it's up to you accept and adapt to it and also ensure those around you are aware of the journey you have ahead and also how they can help you along the way. Good luck my friend xx
  12. 4 points
    Tomorrow is the 2 year anniversary of my husbands PASAH and we will be off to Cyprus where it happened to celebrate our Ruby wedding Anniversary something at the time I never thought would happen. He is back to his usual self working full time and we are living our usual life although we don’t take things for granted and try to be more relaxed. When it happened we expected the worse. There is life after a PASAH and you need to value it more
  13. 4 points
    Just a quick update. I saw the neurologist yesterday at my (nearly 4 months) post bleed check up. She showed me the original mri scans of my brain against the ones taken last week. Apparently it was a large SAH that was typical of an Aneurysm rupture. But because they couldn't find the cause, after two angiogram, 2 CT and 2 mri scans, it is classed as a Non aneurysmal SAH. There appears to be a bit of staining on the front left side of my brain as a result of the bleed. My neurologist seemed very pleased with my overall recovery,. She told me that I can build up my exercise regime to my previous levels. I asked about the chance of a future rebleed. She said that only 15% of SAH patients are classed as Non aneurysmal and in the 16 years she had been a neurologist, she had only had one of these patients have a rebleed. Good enough for me! I intend to get back on my bike and hit the road ASAP, might even get back to the gym. Mild Headaches and periods of tiredness will no doubt be a new part of my immediate future, but I intend to live a long and full life, without dwelling on what has happened and whether it could happen again. Regards Brian.
  14. 4 points
    Ben when you apply for travel insurance make sure you call them rather that doing online. Have you had an MRI since your bleed? I to had a NASAH and had one at 3 months post bleed. It found nothing and no cause for the bleed. I was given to go ahead to fly 3 months after my bleed by my neurology team and travelled to Spain soon after. Because my risk of a bleed is actually less than most other members of the public - due to a clear MRI - I have never paid anymore for insurance and have travelled far and wide since with nor problems other than fatigue. I am not saying your case will be the same but check. I think a lot of people who have had SAH with aneurysms that were clipped or coiled fall into a different category as I suppose there is always a chance theirs could rupture again. If there is nothing to rupture there is no more danger than anyone else who has never had a bleed. Or in my case less as they have looked at my brain and not seen any aneurysms. Phone around and see, I'd be interested to hear how you get on. Clare xx
  15. 4 points
    Ben, just a word of warning before you try to get travel insurance. You must get the all clear to fly from either your neurosurgeon or your doctor. I really do not want to put a dampener on your future plans but I suspect travel insurance at such an early stage in your recovery will be extortionate or not available. A good reason why insurance should be taken out as soon as a trip is booked. That way you would be able to claim the costs in the case of an unpredicted event. I travel about 5 times a year and an annual insurance for Europe only including The Canaries costs me almost £500 and that is 15 years after the event. I really hope that your trip will be able to go ahead as you are obviously looking forward to it.
  16. 4 points
    Hey Maureen. You could have been writing about me in 2016! I believe that unless there is a visual loss that precludes your husband from ever getting his licence back, then he should hopefully be able to get it back, but he will have to be patient and will need to jump through some hoops. None of them are complicated but they are, nonetheless, important. I had peripheral loss of vision (IN BOTH EYES) and still do. I got my licence back 20 months after my stroke. Some take longer so don't give up! Please also be aware that there are those who drive with vision in only one eye. It is not, in the final analysis, about how much you can see but how well you can drive with the vision that you have. That sounds counter-intuitive but unless the loss of vision is profound and more central to the eyes then a small amount of visual loss on the periphery is perhaps not a biggie. Having said that, the DVLA have the final say on whether the licence is returned, even after all the doctors reports and the driving assessment. Some things to realise; there are many here who were in the same situation and are now happily back on the road, inc me. Once I received the letter from the DVLA revoking my licence but telling me that I could re-apply after a year (subject to certain criteria) I never ever felt that I wouldn't get my licence back. My wife was less sure than I but she is not a great fan of being behind the wheel. Chauffering is not her idea of a fun time and passengering is not mine! I presume, although you do not say, that he has received such a letter from DVLA and it states that he is able to re-apply after a year, so long as he has had no recurring 'stroke event'? See attached (part) letter that I received from DVLA on that fateful day when my licence was revoked. I have highlighted the parts he needs to focus on a tried to offer a little explanation for each 'hoop' that needs to be jumped through. Let us know where you are with the matter and what letters, if any, you have received and we will be able to help. In two weeks time I shall be going out to Spain to 'hoon' around in my car with other like minded pals. It is like a dream holiday for me as there were time when I had to resign myself to the fact that I may not drive again. I never gave up and pushed through till the glorious day when I was told I would get my licence back (May 24th 2017 at 4.36 if I remember rightly. 😀). I am also going to tell you to keep posting here and giving us updates. Better still, get your husband to post here. I am always happy to spend time keeping someone's spirits up! If your husband hasn't received the above letter, or some form like it, then you must let us know where he is with the DVLA at the moment and we can then, hopefully, guide you to dealing with it. You should get your husband to read this section (not just this thread) top to bottom. There is much here to give hope and information. All the very best to you and your hubby. Also, get your husband a bike and tell him to ride to the gym. 😉 DVLA Letter.pdf
  17. 4 points
    Hi Greasly Sorry you are feeling so low at the moment. Are you still working? I note that in April this year you said the company you worked for had been taken over by a large global company. It might be worth investigating if they have an Employer Assistance Programme that gives access to 6 free counselling sessions - many do. Hope things pick up for you soon. Xx
  18. 4 points
    Thanks for welcoming me to the site. It’s good to be able to connect with people who have actually been through the whole experience x
  19. 3 points
    Hi super Mario, Sarah, Clare. Insurance quotes so far are around £100 which Is quite reasonable considering how soon it's been. This was the first company I called so may be able to get it cheaper. I had a NASAH, 2 CT scans and an Angiogram. They didn't find a cause/aneurysm but ill be liaising with my neurologist and GP to ensure thay are happy with my travel plans before going forward with further arrangements. Thanks for the advice everyone, regards Ben
  20. 3 points
    I had my NASAH at the start of December 2017 and we had a trip planned to Amsterdam in mid March, luckily I had an appointment with my neurologist just on 3 months after the event and he said I'd be fine to fly, but that if it did cause problems then the Dutch health service is excellent (he is also from Zimbabwe and made a joke that the English spoken by the Dutch was probably better than his!) he also pointed out that if flying really was terrible then you could get back to the UK overland. He also made the same point that ClareM mentions in that I'd had a recent MRI and definitely had no unknown aneurysms. The flight from Norwich to Amsterdam was only 35 minutes and I was fine on that. We had a five hour flight (with lots of turbulence and altitude changes) when I was 8 months out and that was very uncomfortable and left me with really bad head pain for a few weeks after. This year's flights were fine. I do declare everything on insurance and found the premiums were huge last year but lower this year. We're hoping to go to the States next year and I'm already dreading the insurance costs of that... Definitely talk to your doctors before travelling, and even if you can't cycle Lanzarote is at least a break from everyday life and a good place to relax, especially if you are already back at work. As for the taste buds, hopefully they will right themselves - I lost my sweet tooth initially and craved salty foods and even now on my bad days everything can taste slightly off, I use it as a warning sign I'm over doing things.
  21. 3 points
    Hi I wasn’t clipped, I was coiled but did have surgery for my Shunt and still get sudden pains around scar site still . i am just adding to this thread that I think you should ask to be referred to a neurologist who specialises in headaches...the reason for this advice is that since my SAH 7+ yrs ago I have had a number of instances of very sudden onset symptoms which have included blurred vision on one side, hearing loss on one side, and sudden head pain. Early on this meant often a trip to docs who sent me to A&E and then usual investigations( and yes I do mean LP’s as well] to rule out further bleeds or problem with my Shunt . Each time I knew I wasn’t having a bleed. Roll on to last year and I paid to see a private neurologist for an appointment , it cost me £100 but he was brilliant. He did neurological checks I have never had from my Neurosurgeon and as he explained it that ‘neurosurgeons fix inside the mass whilst his specialism try to figure out the lasting effects and the why for what a brain exhibits’ He diagnosed me as having instances of ocular migraines but that due to how my bleed damage is it now presented differently to a migraine or headache like I would have had prior to SAH. That made sense to me. When I get overloaded or over fatigued the symptoms of that effect can vary and make no sense and I have long come to think it’s just how the brain sends the signal on that day. He said when I get headaches now the messages are a bit jumbled so present in a different pathway, He recommended to my GP that they switch my low dose BP tablets to one that is known to also help with migraines. Win win, Best £100 I have ever spent.
  22. 2 points
    Hi Teri, Just knowing you are not alone is a help in itself. On here we can tell our worries to others who understand . As for short term memory loss mine has got a bit better but I often say to hubs "Did I tell you this" and I get the look which = "Yes Win 4 times" ! But it gets better and when tired it is worse lol catch 22. Keep a smile handy for down days and I love to sing so poor hubs and Family and on here. (BTG) I have been known to feel a song coming on. My ears are echo and loud sea noises sometimes worse than others. Depends how many people are talking all at once lol xx shhhhh like waves !! Take care and look after you XXX Hope to hear from you soon Nice people on here xxxx All that the others have put also especially water xxx
  23. 2 points
    Teri, I suspect we have all been there! You are very early in your recovery. Be kind to yourself, hydrate well and get lot’s of rest. Don’t hesitate to consult with your doctor your concerns.
  24. 2 points
    Hi, I just read your post. I hope you are well over your bleed and feeling strong. I also suffered a sah with no sign of a cause. Went to my 14 week check up with a new mri scan. Still no cause evident. Apparently it was more typical of an aneurysmal bleed pattern, with complications associated with a large sah. The Neurosurgeon had no answers to what could be the cause. Just for me to get my (perfectly normal) blood pressure checked regularly and to drink no more than the recommended units of alcohol. Like you I would like a better idea of what and why. It looks like the answers aren't out there. I take great solace from the fact that rebleeds from NASAH are very, very rare. My specialist said she had only seen 1 in sixteen years. The intend to carry on as normally as I can and try not to be held prisoner by what has happened. Stay fit, be healthy and get on with a full and enjoyable life.
  25. 2 points
  26. 2 points
    Many thanks to those members who've made a donation towards the running costs of Behind the Gray in September! It's kept the site ticking over! 😘 x
  27. 2 points
    Hi, and welcome! This is quite the journey you have embarked on! You are on the right track. I had my « episode » like I like to call it, almost 3 years ago. Still dealing with head fuzziness, memory problems and word retrieval. It can be frustrating at times, but like previously mentioned, these things happen more frequently when I am tired. I am lucky that I don’t have the terrible headaches people talk about. As a matter of fact, I can’t remember having the « thunderclap » headache 🤕 Let us know how you are getting along. Remember this is a community filled with helpful people, ready and willing to listen.. You are not alone!!! Best Wishes, Pat
  28. 2 points
    Welcome Jo-Anne, from another Canadian! I live in the West Coast, Vancouver area. My journey started almost 3 years ago (Oct 28, 2016). Recovery is a long road, be gentle with yourself. I am still feeling the effects of my brain bleed, and just realize that this is my new reality. I am lucky, in that I don’t suffer from the bad headaches that people comment on, but I certainly get « brain fog », difficult time with my short term memory and the ever present fatigue. No use fighting it, when I’m tired, I nap🤪. I needed to modify my career, but you know the saying « when a door closes..... » I’m just thankful to still be able to walk through those doors 😊 You will find some much needed support here, I find myself returning to this web site when I need that bit of confidence and encouragement. Good luck in your recovery, be kind to yourself, and remember to listen to what your body is telling you it needs! Miles of smiles, Pat
  29. 2 points
    Hi All It's great to have found this site which has so much helpful information I had quite a few unanswered questions since leaving hospital which have been addressed by reading people's experiences. Thank you to all who have took the time to post them. I experienced a perimesencephalic subarachnoid heamorrhage 3 weeks ago whilst cycling to work, initial symptoms were a rapid on-set headache and neck pain that became worse as the day went on with vomiting. A CT scan within A&E detected a bleed the following day so i was subsequently admitted and had an angiogram 2 days later and commenced a 3 weeks course of Nimodipine. Previous to the bleed I was fit and active 43 year old, cycled most days, non smoker, eat healthily etc. Since leaving hospital i've had a few minor health problems; acute pain in my glutes and lower right leg which has now resolved; severe throat infection; Tinnitus in my left ear and mild pain radiating down from the top of my head in to my left ear. My main concern at present is that food taste's strange and have a permanent salty taste in the back of my throat which initially began as a foul bitter taste. From what I can gather a few people have experienced this which may improve in time? My sense of smell has also been affected. In context to what other people have endured I feel lucky not to have experienced any major physical impairment. My hopes for the future are to get back to cycling asap as I have a mountain biking holiday planned abroad in November which was booked last year. If this is safe and whether I'll be fit enough is questionable? So far I've been on a 8km walk and a gentle 20 min swim which wasn't particularly challenging. On discharge from hospital medics advised waiting 4 to 5 weeks before recommencing strenuous exercise. They also provided me with a 6 week sick note but the thought of going back to work in a coup,e of weeks feels a bit premature so may need to get that extended by my GP I wish everyone well on their road to recovery.
  30. 2 points
    Hello Sallios My husband had a NASAH in May 2019. It took both of us a long time to feel confident to be apart, I barely left his side the first 20 days after his bleed, and I didn't return to work for 2 days a week until 2 months after his bleed. Recovering from a brain injury is incredibly slow, others can't see what is happening inside your head. So take it very easy, stay in contact with these amazing and wonderful people on BTG who helped us through. You are making great progress, but please also allow yourself to not always go ahead, some days might be a step back, and sometimes it might feel like you're not making gains. But you are still here and writing to us so you are doing amazingly!!! All the best Veronica
  31. 2 points
    My husband, like you Ben, was a healthy person when he had his NASAH in May (non smoker, walks and cycles, very healthy diet). He doesn't have any deficits, and has been told he will make a 'full recovery'. He has been impatient to get back to his walking and cycling, but his body has told him when he's reached his limit. He has been on 20 km road rides and did a 15km bush walk two weeks ago, but that's over 3 months after his bleed. If he overdoes things, he tends to feel it in the days following (increased headaches, fatigue, his head feels woolly and thick), not on the day, so building up slowly and listening to your body and brain in the days after will help you find your limit. Like everyone says, stay hydrated. Our boys enjoy mountain bike riding, I used to but I'm not as brave as I once was. We returned from a mountain bike holiday in Derby, Tasmania, just before my husband's NASAH. Where are you headed on your long awaited trip? All the best with your recovery, it really is a long road, and our bodies and brains are amazing in their ability to keep on healing. Veronica
  32. 2 points
    Hello I am new to this site I am a 62 year old female and find I am struggling following my stroke which happened on 16th March this year (5 months ago) My discharge letter reads: CT head revealed an acute left parietal intracerebral haemorrhage. MRI showed a large left inferior parietal lobule/occipital lobe early subacutehaemorrhage, with left subdural extension. I now have right visual homonymous hemianopia. Firstly despite asking my consultant and GP to explain exactly what this means, I am still struggling to fully understand what happened. Secondly I am really struggling with my vision loss. I do not feel able to go out on my own at all, I am more comfortable if I can hold onto someone's arm (on my right), my confidence has completely gone. I cant see any light at the end of the tunnel!!! Can anyone offer any advice or guidance on how I can best help myself? I have considered using a stick or even buying a white symbol cane, just to help build my confidence then maybe I will stop walking into things/people. I do struggle with everyday tasks, can only do 1 thing at a time now, cant cook a roast dinner and have had silly labels put on my hob to assist me to turn on correct gas ring. I am very slow and still have a great deal of fatigue. I also have problems with understanding at times, I have to read things a few times and I forget easily so I have learned the answer is lists, lists, lists, they are everywhere. Prior to my stroke I was extremely confident, outgoing and completely independent. I walked almost everywhere or travelled on public transport visiting family and friends all over the country. I do feel frustrated at times when people look at me and say "you look fine now" and then follow on with " so and so had a stroke, it was a really bad one, they have lost the use of left side (or whatever)" It makes me feel that because I don't present with visual signs of stroke that they don't understand how I have been affected. Sorry for long post Von
  33. 2 points
    Hi William I had an SAH 4 and was out for a while ..I went home as hospital said I'll never be the same ..I didn't even remember a thing about it !! I knew what was going on when I awoke in hospital after shunt for hydrocephalus was fitted ..This was in 2009 fast forward to 2010 as that's when I woke up for real. as scared the next step was death for me ..meanwhile my Daughter found this site. It was a Godsend for me as I saw people on here who laughed and joked so I knew there was a life after SAH/Bleed. Now fast forward to now I am deaf in right ear also and although I laugh it is getting to me Grrrr. Echo sounding in ear been to Audiologist and he put a tight earphone on my shunt and I told him it was hurting my shunt. He had never heard of SAH or knew nothing about shunts filled me with confidence Not !! Good luck and any problem shared does help us as I know once I woke up hubby wasn't as nice as he had been lol ..But he was there for me the time I was in Deep trouble with bleed.and other problems ...Welcome Survivor xxxx We are all Survivors good and bad days xxx Can walk 800 yards then back goes but after being told I'd never walk it is all a bonus xxx Speak Up lol
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