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  1. Welcome to BTG Monique, sorry to hear that a SAH spoiled your Christmas and New Year but glad to hear you are on your road to recovery. Sorry to say but it may be a longer haul than you would like but with positivity and determination you will get there. It is very hard to accept that things are not as before but you will eventually reach your new normal and it will be different but not necessarily worse. I am coming up to 6 years post bleed and it's been a rollercoaster ride, mainly regarding work. I like you was never sick and did not believe I had to be off work for
    6 points
  2. Thank you everyone for your replies, suggestions and kind words. I introduced myself first and then started to read through the forums and posts, there was so much information that was relevant to me, i found the answers I was looking for in there, not so much what I wanted to hear but I do understand things much better now. I especially loved the letter to my brain. Thank you
    5 points
  3. Welcome to BTG Mon Although we are unable to give medical advice as we are not medically qualified we can support you in your recovery journey. Try to have a nap during the day which may help you sleep at night, fatigue is a well documented after effect of an SAH. Drink plenty of water to keep you well hydrated. If you feel able, take a short walk during the day. Apart from breaking the day up and you getting some fresh air, it may also help with your sleep and boredom. It is a long road to recovery for most, your brain has had an onslaught and needs time t
    5 points
  4. Hi Gam Glad you checked out ok. Tinnitus when it comes on or ramps up is horrible and of course the more you notice it the more you notice it. It’s exhausting and we are fatigued enough. And there is the brain providing commentary ‘ what’s that’ ‘ what’s happening ‘ and of course the natural responses for the worry to creep up on us that something is wrong, that could it be another bleed, and then the fireworks really start going as this all spins together and can easily create the perfect anxiety storm. First thing to say is you are not alone o
    5 points
  5. Hi Daffodil! This is GAM. Sorry for the late reply. I appreciate your sharing so much! I was really down this past week. The tinnitus started in the other ear on and off. I felt like I was relaxing more and doing my best to get better. Your post inspired me to be patient and to continue to take care of myself. I tried "turning off all competing noise and switching of devices. Try and have some complete silence." I felt more at peace. Many blessings to you!
    4 points
  6. Hi Monique, You'll get loads of good advice here from those much more experienced than me - only just over two years in for me - but I can fully empathise with the frustration of not being the 'old you'. It's hard to accept that things that were second nature now seem so difficult, but it does get easier, just takes a while. You might find it useful to search this site for stuff on mindfulness. I confess to be being a bit cynical about the touchy feely stuff initially but I've found that using some of the meditation techniques have helped me get thought the
    4 points
  7. Hi Gam, I have some buzzing in my left ear. Hearing was impaired at first but that came back...buzzing is tolerable for me, I am thankful...I am on board with Daff's words about mindfulness and breathing...I was not, haha, really not at all but did seek out a therapist who practiced with me and now I realize there is help within myself...I just sit quiet, no TV, and breath slow taking myself to something calming, enjoyable what your special place or thing is... I realize this is not everyone's thing..My daughter likes to color, seems like a big no to me but she lov
    4 points
  8. Hey Gam, just glad it was helpful. Try and give yourself that gift of space and silence each day if you can, even if it’s just 10 minutes 15 can help , genuinely your brain will thank you for it. As a society ‘busy’ is worn as a medal but your brain is always busy, doing all this unseen work and yours is healing and trying to adjust to the damage from the bleed. So giving it some ‘quiet’ time is a great way to allow it some time off from all the other processing. Even now as far out as I am in healing if I am in busy situations I have to step away and give my brain ti
    3 points
  9. Welcome. Please take time and read many threads here. You will find them very helpful. I know things are frustrating with the way the world is today but take one day at a time. Try breathing exercises, insight meditation, hydration, no noise for a period of time etc. Suggest these books Finding peace in frantic world and Loving kindness. Good luck to you.
    3 points
  10. Hi Monique, Welcome to BTG. We are glad you joined. You will find the most helpful and compassionate people here. I'm sorry to hear you are having a hard time. All you are feeling I (most of us) have gone through. Know that it is ok to feel that way. Your SAH is so recent. Mine happened in July and the first 1 was 10 years ago. Give your self some time to adjust. I too felt isolated and still sometimes do. Thankfully I have great friends who keep me company. Having 3 boys must keep you very busy. I have 1 boy and my husband who sometimes act like a child. ha
    3 points
  11. Try insight meditation. There is Imc uk there and ims barre in Massachusetts and Imc USA in Maryland if you are interested. Try a weekend after the covid. Now I can’t take off work and quarantine to go there so I do home virtual course. No tv, work, phone, music for a week or so. You sit as a group three times a day and there is checking with a teacher via zoom daily. There are two 30 mins sessions of lectures. I did that in oct and was very good for stress level and my brain. Very rested. I m doing that again in March. It is basically in breath, out breat
    3 points
  12. Daffodil, that is wonderful you are a trainer of mindfulness.. I think the most wonderful thing about it, is it gives me (or anyone) the ability to quiet and calm ourselves...my younger son is a mental health therapist and he is taking additional training to offer this to his clients, as he sees it as very helpful...
    3 points
  13. Jean that is kind of you. ( I don’t do colouring either !! ) So one of my things of finding ‘new’ version Daffodil post SAH was I decided to train as a Business Trainer of Mindfulness. Gosh it was hard on the brain, I wanted to see if I could do it , I did and qualified if that’s a thing and I now do it for self reward really but it’s a way of my practising using my work day... I offer sessions each week for colleagues and it means I get to take that pause too! 8 years on I still need that and actually I’m finding lockdown hard as everyone is back home in my work space and so the
    3 points
  14. Hi! I am almost 5 months post NASAH. The ringing sound had reduced after the first month. Then one weekend after much stress (worry about being forced to return to full time work, relationship conflict, etc. the sound was loud. I consulted with my neurologist and was given continued time off from work and reduced home conflict. The sound however, increased in December to an almost unbearable level. I went to the ER out of fear that something was happening again in my head...I waited 7 hours in the ER amid patients coming in with Covid-19. CT was clear. I began to s
    2 points
  15. Kerry Thanks for posting the results. I don't think this will be acceptable to the DVLA and in normal circumstances the licence will be revoked as there are too many 'unseen' spots close to the central field of vision. The 'spin' on your case is that the 'event' which caused the loss of vision allegedly happened more than 12 months ago. I say allegedly as I am not sure how definite the medical experts can be on when the event happened and whether DVLA start the 12 month timeline from the date they were informed (if a definitive date cannot be confirmed. I im
    2 points
  16. Thanks for all your input. That covid story really sounds difficult. Your Covid experience must have been just a terrible,terrible experience. And it makes you think how many people are going through that right now?? It's interesting you mention covid because when this "China Plague" (as Trump calls it, lol) , when this virus thing started, one of the first things that went thru my head was "dont go back to ICU!!" I've been very cautious to not catch it and it's out of my desire to not relive that experience again. The week on ICU when I had my initial bleed was the
    2 points
  17. Now I am 14 months in still having severe pulsating tinnitus. Managed to exercise and do wim hof method to increase my energy levels and completed some long distance rides. Doctor has prescribed indomethacin as said the angio and bleed could of irritated the nerve around the ear which can cause tinnitus. I have found out I have slight hearing loss on that side where the tinnitus is. When I had the hemnorage what I can remember if it was a clap on the left hand side of my head and then a pumping pulsing feeling on that side. Funny how its all on the left side. The high dose of i
    1 point
  18. I m very cautious too not catching the virus because I won’t be killed by anything made in China as a friend puts it lol. Many months later, me and my staff is still covid free. It is a miracle. Lots of prayers and meditation helps I believe. I was happy to get the first vaccine on dec 31st too. Never spent a night inside the hospital so far as a patient so no thank you. Sometimes marriage is luck or it is the choice we made and sometimes we don’t know it till one is tested. We are almost 50. I try to make the most out of life by doing good things.
    1 point
  19. Hey Phil. no apology needed as we all know the fatigue fog and how heavy that can be. It is hard for others to understand really how this feels for youand the everyday hard and struggle and of course as time passes from your event people have an expectation that you are ‘better’ now...and of course in their eyes you are, back at work , able to function to an extent as before. Of course what they can’t see, know , is the toll that effort takes and actually the sacrifice of then other activities just to be able to allow you to work. Paying the bills is al
    1 point
  20. First let me apologise for this post. It isn’t a happy post, but I need somewhere to rant where people will understand. It’s been 4 1/2 years since my haemorrhage was coiled and I have been through various CBT and OT treatments, as well as a stint on the anti-depressant Sertraline (because apparently my fatigue was due to depression!!). I’m angry (and frustrated) because despite explaining to my family, employers and Doctors, they don’t truly understand the fatigue. They try and are understanding to some extent. I’m sure we all know what the fatigue is like
    1 point
  21. Hi Sallios, Your post caught my eye because we are also caring for an elderly parent (97) who displays mild dementia. She has been with us going on 3 years and with COVID we gave up hired aides and took on full time caregiving. Challenging under the best circumstances. Because I am science oriented, I couldn't help but search for peer-reviewed research on the dementia question. Like most things these days, studies have been done. One conducted using data on Danish stroke patients suggests slightly increased risk, but risk seems to decrease as years post-SAH increase. I wou
    1 point
  22. I’m grateful to be able to come her and peruse the posts and comments. It’ll be four years in March since my SAH. I STILL have headaches and a buzzing feeling in my head. But I’m ok with that to be honest. My husband is wonderful and seems to intuitively know when I’m not feeling great. I worked for a medical doctor before retiring and we chatted recently. After doing some research he found a study and told me that 16% of us will live with chronic headaches. They come and go! So I’m resigned to that but so very thankful to still be active! To hike and jog a bit with the dogs and
    1 point
  23. Hello Phil, please don`t apologise for sharing how you are feeling. As has been said so many times, we are all here for each other, and getting support and help through the `down` moments is one of the main reasons this BTG site was formed. I was just revisiting your first post when you joined BTG in March 2017. You like many have been very fortunate to survive at all. I am sure you will agree that much of the great advice given by our members back then still applies to your situation today. Working in a high powered stressful environment and taking part in the
    1 point
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