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Showing content with the highest reputation since 14/09/19 in all areas

  1. 4 points
    Tomorrow is the 2 year anniversary of my husbands PASAH and we will be off to Cyprus where it happened to celebrate our Ruby wedding Anniversary something at the time I never thought would happen. He is back to his usual self working full time and we are living our usual life although we don’t take things for granted and try to be more relaxed. When it happened we expected the worse. There is life after a PASAH and you need to value it more
  2. 2 points
    Hi Teri, Just knowing you are not alone is a help in itself. On here we can tell our worries to others who understand . As for short term memory loss mine has got a bit better but I often say to hubs "Did I tell you this" and I get the look which = "Yes Win 4 times" ! But it gets better and when tired it is worse lol catch 22. Keep a smile handy for down days and I love to sing so poor hubs and Family and on here. (BTG) I have been known to feel a song coming on. My ears are echo and loud sea noises sometimes worse than others. Depends how many people are talking all at once lol xx shhhhh like waves !! Take care and look after you XXX Hope to hear from you soon Nice people on here xxxx All that the others have put also especially water xxx
  3. 2 points
    I am 4 weeks post SAH non aneurysm. I had the horrible headache, vomiting, light sensitive, motion sickness. I had a bleed into 2 cisterns. Angiogram showed no aneurysm. I have not went back to work. Having issues of poor short term memory, headaches, major fatigue and ear ringing. If I do not write things down the next day I will forget. I get lost trying to find my car if I go to shop. All a tad bit scary to me. Anyone else have these things? Thanks
  4. 2 points
    Teri, I suspect we have all been there! You are very early in your recovery. Be kind to yourself, hydrate well and get lot’s of rest. Don’t hesitate to consult with your doctor your concerns.
  5. 2 points
    Hi, I just read your post. I hope you are well over your bleed and feeling strong. I also suffered a sah with no sign of a cause. Went to my 14 week check up with a new mri scan. Still no cause evident. Apparently it was more typical of an aneurysmal bleed pattern, with complications associated with a large sah. The Neurosurgeon had no answers to what could be the cause. Just for me to get my (perfectly normal) blood pressure checked regularly and to drink no more than the recommended units of alcohol. Like you I would like a better idea of what and why. It looks like the answers aren't out there. I take great solace from the fact that rebleeds from NASAH are very, very rare. My specialist said she had only seen 1 in sixteen years. The intend to carry on as normally as I can and try not to be held prisoner by what has happened. Stay fit, be healthy and get on with a full and enjoyable life.
  6. 2 points
  7. 2 points
    Just a quick update. I saw the neurologist yesterday at my (nearly 4 months) post bleed check up. She showed me the original mri scans of my brain against the ones taken last week. Apparently it was a large SAH that was typical of an Aneurysm rupture. But because they couldn't find the cause, after two angiogram, 2 CT and 2 mri scans, it is classed as a Non aneurysmal SAH. There appears to be a bit of staining on the front left side of my brain as a result of the bleed. My neurologist seemed very pleased with my overall recovery,. She told me that I can build up my exercise regime to my previous levels. I asked about the chance of a future rebleed. She said that only 15% of SAH patients are classed as Non aneurysmal and in the 16 years she had been a neurologist, she had only had one of these patients have a rebleed. Good enough for me! I intend to get back on my bike and hit the road ASAP, might even get back to the gym. Mild Headaches and periods of tiredness will no doubt be a new part of my immediate future, but I intend to live a long and full life, without dwelling on what has happened and whether it could happen again. Regards Brian.
  8. 1 point
    I am a new member in the USA but perhaps my experience could be informative. I had my PSAH on April 29 while traveling in Italy and returned to the USA on 18 May. When released from the hospital on 19 June I was told that by state law I could not drive until six months after the event. But about 3 months after a therapist told me I was perfectly fit to drive. She asked if I had been contacted by our state DMV (Department of Motor Vehicles), and the answer was a truthful "no". So I have been driving ever since in all types of traffic with no issues at all.
  9. 1 point
    Hi Teri A very warm welcome to BTG Wise words above from Casey & Subs. You are very early in your recovery, things will improve, it just takes time. One step forwards and sometimes two steps backwards. Pace yourself and rest rest rest We look forward to hearing more from you. Take care Tina x
  10. 1 point
    Hello Teri … and also a warm welcome to BTG. It is very early days in you recovery and the post NASAH symptoms you describe are very common. You will find support and comfort as you read the various threads on this site. They are the personal experiences of so many survivors. It is so important to accept at the outset that your brain has been injured by the bleed. Don`t try and rush the healing process by attempting to get your life back to what it was too quickly. Recovery will take many months of patience and rest while you deal with and accept the physical and emotional circumstances you find yourself in. Heed Casey`s good advice. I do hope you have the support of family and close friends. Take time to explain to them how you feel. This is such a new situation for them too. They can`t see the internal damage caused by the bleed. To them initially you may look normal. If you have employment …. please don`t rush to get back … take advice from your consultants and phase any return so that you can gauge how your body and brain are reacting. Fatigue and tiredness will challenge you a lot. Please keep in touch regularly with us and our members will be eager to respond to any questions you may have. Take care and I wish you well on this difficult and challenging journey. Subs
  11. 1 point
  12. 1 point
    Thanks Winb for your reply. Extremely well done for proving them wrong and walking again. Keep it up 😊. Had a a rough night last night with the pain and today is one of the backward step days. Haven’t been out for a walk today. Off to see GP tomorrow x
  13. 1 point
    Hi Sallios, I was told I'd never walk again and the way they told me was abrupt like this "What makes you think you'll ever walk again" I looked at the BIT person = Brain injury Team. These people were supposed to help me !! In a way they did and I said to the man who said this to me " And what makes you think I wont?. Taken me 10 years to walk 1,000 yards to walk 1,000 yards but my aim is to do a full shop lol back still aches but I was out just under a year ...So Well done Sallios xxxx Some days I feel so tired I don't walk then I think of BIT man and it gets me up ..I also have lazy periods were I feel sad for myself but few and far between xxxx We have to keep at it xxxx She says thinking of bed !! lol
  14. 1 point
    Thanks so much for your replies. It’s such a relief to know that others have experienced this and that eventually it goes away. I shall try to keep positive and look forward to it disappearing. Thanks again x
  15. 1 point
    Sarah, it could be the changes in your neuro team that has precipitated that conclusion. Doctors often have differing opinions as what is the best treatment. Possibly the new team are being cautious. As others have said, do not make any decision until you have discussed the results of the angiogram with them.
  16. 1 point
    That's definitely something I shall be asking Daffodil, as far as I'm aware there has only been a very slight change in all these years and that was reported from my scan 3 or 4 years ago. This procedure that they are talking about now was mentioned back then and I decided not to have it done. There has been no change since then, so quite why they are putting this stressful decision to me again, I'm not sure. Thanks for the love and hugs Tina - much appreciated😀 Sarah
  17. 1 point
  18. 1 point
    Hello Katow My husband has NASAH on 20th May this year, he's a healthy, fit 57yo. I did a lot of research, and read medical journal articles in the weeks after his haemorrhage. It is confounding that something so life threatening can occur to a health focussed and fit person. The truth is, it can happen to anyone, of any age, and for reasons that cannot be explained (I witnessed people of all ages in the Neurology ICU with my husband, he was too sick to observe what happened for those people, I watched as people fought for their lives, and others lost their lives, all happening around him). Having something so life threatening occur is in itself enough to trigger anxiety and panic disorder in the best of us, if you had any pre-existing anxiety, it's not surprising that you could now find yourself struggling, especially so soon after the SAH. What I found is that the medical help kept my husband alive and aided his recovery, but once the medical crisis had passed their job was done, and no further support was forthcoming. I agree with others that counselling and mental health support are also a big part of the recovery. We know that life has changed, we are incredibly glad to have my husband still with us and because he was so healthy when the NASAH happened, his prognosis for a 'full recovery' is very good. We don't know if he will return to his job as a locomotive driver, but we know there are more important things in life. As I said to him, we can't go back , we can only go forward. Having a health crisis like NASAH is confusing and very distressing, but it clarifies what is important in life, and what the priorities are. I wish you all the best for your recovery. The stories and support I have received on this site has been incredible and a huge part of me coping and helping my husband cope. I hope you will continue to find comfort and support here, you are among friends and fellow survivors. Veronica
  19. 1 point
    Thanks Dave, Very useful and practical input. I am feeling stronger as each week passes. I have started doing exercises that keep my core strength up and will go out walking at a fair lick, without pushing it. Aware that a headache is always waiting. We are away to Spain for two weeks camping in 12 days. It will be a challenge not to do my normal hill walking and evening run, before enjoying the local Rioja. It's great to hear how other people are dealing with their own recovery, and quite uplifting to know that there is every chance I will be back to my old self in a few months. Bri.
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