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paris

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Everything posted by paris

  1. Sorry for the delay,i dont get the chance to go here as often as id like to but thank you very much for all your advice,it has helped to put my mind at ease and can now hopefully look forward to the future.xxx
  2. I wonder if anyone can give me any advice on this please. My partner had his first angio since he had his SAH 12 months ago,and after an anxious 4 weeks we got the results saying that everything was satisfactory and nothing further needs to be done which is a massive relief. The letter also says that he no longer needs to be seen by the hospital and if he has any problems to go to his gp as he has a shunt fitted also. Although this is brilliant news,i cant help feeling anxious as i was told he would need regular scans throughout his life so they can keep an eye on the coiling! Was just wondering has this happened to other people and is it normal to not need further scans. I am going to phone the hospital and query this but just thought i would ask your advice first.
  3. Hiya momo i think you'll find it very helpful i know i have,everybody has been so helpful in the past 5 months that ive been on here,hope we can help you too.x
  4. thanks louise,yes its a scary time! Since the SAH ive found that he twitches quite aggressively when hes falling asleep,ive spoken to the neuro nurse and she seems to think its because of the trauma that his brains gone through and something to do with his brain shutting down and nerves twitching,but i do get paranoid that its the start of a fit! but as its never turned into a fit i think i just need to calm down a bit,i think i worry more than him sometimes,lol,cant stop myself. i do feel better having read other peoples advice though.
  5. hi karen thankyou for your advice,yes he is feeling anxious as he has just started back work on a phased return and hes nervous that something might happen whilst hes there,also he is due to get his driving licence back any time hopefully so this is another concern. hopefully all will be well and it wont turn out to be epilepsy. thankyou very much again for your help.
  6. My partner had a seizure at the time of SAH,he'd never had one before. Since then hes been on medication and has been fine. GP has weaned him off that now and says that hopefully he wont go on to have any more seizures. I would like to hear from anybody in the same situation,has anyone else carried on having seizures? im very anxious as i wouldnt know what to do if he had one,the thought terrifies me to be honest,and if he was to have one in front of our children i think it would bring it all back for them,its a very worrying time. Hes been off them a month now i keep thinking if he was going to have one he would have had one by now. Can anybody relate to this plz.
  7. Hi, my partner had an SAH 6 months ago and although he didnt seem to be affected by light he did and still does get quite bad headaches especially later on in the day,i put that down to tiredness as hes one of those that dont listen to what his body is telling him and rest when hes tired!! hes trying to hard to get back to his "normal self",therefore the headaches hit him hard at night time. Also hes suffering quite badly with anxiety so that doesnt help the headaches very much. Hopefully it will get better with time,early days yet.
  8. my partners numbness in left hand is gettin worse lately. Hes finding it hard to hold things and says its most of the time now that his feeling has gone. Hes at GP tomorrow so hopefully he will shine some light on what is going on,just cant understand why its took 6 months for this numbness to start,he was fine straight after the SAH!!
  9. we wasnt aware that he should have a card,we've never been given one anyway. Thankyou for making us aware of this hes at docs tomorrow so he can ask him about it. It does make sense to have one.
  10. Thankyou again for all your replies it has helped alot to put our minds at ease.xx:
  11. Thankyou for your replies at least we know now that it is normal to have tenderness and hopefully it will get better with time.
  12. my partner had to have a shunt fitted after the SAH,hes always complaines of it being tender down the back of his head to the point were he cant lie on it,and he gets a lot of head aches around that area. theres no infection so thats good but i was just wondering if anyone else has a shunt could you give us some advice about it as weve not really been told anything like what you can or cant do,should the shunt tube be tender. any advice would be appreciated.
  13. my partner had his SAH 6 mnths ago although he didnt get pins and needles at first,over the months hes noticed numbness in his left hand that seems to be getting worse over the last month or so,was wondering does anyone know what causes this?
  14. paris

    paris

    Just want to say thankyou to everyone for your advice it has been a big help,i dont know if this is the same for everyone but we're finding that we've got more questions every day,theres always another worry. Last night my partner was complaining of a stiff and sore neck and after reading that that is one of the symptoms of a SAH straight away we thought its happening again and we panicked!! The doctors confirmed that hes got an ear infection after all that! I know we're going to have all these worries until we start to get used to things but all sorts go through your head,at one point i wondered if he had an infection from the shunt,the worries just go on and on. He sees his consultant next wk so hopefully he can answer alot of our questions. We've been told that anneurysms can be passed down to your children but thats something we will need to discuss with the consultant but that adds to the worry also doesnt it. Anyway 1 day at a time, Thankyou again for your advice,x
  15. paris

    paris

    hi celia,what is name of anti-depressants and are they working?
  16. paris

    paris

    thank you to everyone your advice has been very helpful,at least now we know that his feelings are normal we can get on day by day,like you all say its a slow process. can anyone tell us when we should expect a follow up angio? the reason for me asking is because when he had the coils put in at first the surgeon wasnt happy with the result so a wk later he had a stent put in too,but when he had an angio they still were'nt happy with it so they put in more coils. the problem is that he never had another angio after that and im a little anxious that it might not have worked again. i understand that they wouldnt have discharged him if they were'nt happy but the niggling is still there. Its been 7 wks since his last lot of coiling when should we expect a follow up,i would appreciate any advice. Also since having the SAH he complains of feeling cold all the time but he never did before,did anyone else have this problem?
  17. paris

    paris

    my partner had an SAH 11wks ago. Physically hes doing brilliantly and his memory has not been affected either so hes been really lucky!! He came home from hospital 6wks ago and for the first couple of weeks he just slept which i was told to expect but about 3wks ago he started to get very depressed and emotional. Hes suffereing with anxiety and panic attacks which are keeping him awake at night,hes also told me hes having intrusive thoughts. His doctor has put him on antidepressants and valium and he is seeing a neuropsychologist. Is all this normal after an SAH as i am getting very worried and anxious about him. we are expecting a baby in 12wks, do u think the medication will be working by then. Also he has a fear of returning back to work but he doesnt know why,is all this normal can anybody give us some advice.x
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