Peanut

Hi all, I was diagnosed with RCVS. Had an NA SAH 6 days following baby, vasospasm which resulted in a stroke around a week after the SAH. It took them almost 3 months to diagnose RCVS. x

Hi Lesley, I can't reply to your message for some reason. I can relate to all that you have written. I had my little boy in January and 6 days later had a thunderclap headache. I was referred back into the maternity. 5 days later was sent for CT where they discovered the SAH. I had vasospasms and an MCA stroke afterwards and was eventually diagnosed with RCVS - hormone related. I spent a week in ICU ad the whole of my little boys first month in the Neuro ward. Horrendous start to the year but glad to say I am doing well. I lost my speech and whilst I regained most of it in my first month it does still give me problems sometimes. I also get the weak hand, tingling, weirdness thing. I still get it and have been diagnosed with seizures for which I take meds - not happy like you but hey I feel lucky I have made the recovery I have. My EEG was normal too. Still sometimes have fatigue but last week started a phased return to work. Only 8 hours a week but its a start! I hope your recovery goes well. Feel free to message me again. Hopefully I can answer this time. Gail x

Hi, I was diagnosed with RCVS too Kate. You are the only person I have come across with same. I read that in a GP report following an MRI scan on discharge from hospital. I was petrified there was something they had missed initially as I couldn't understand why I had given birth to my first child with none of this happening and yet days after my second child I was admitted to ICU with a bleed. This is an old conversation so I guess you are more at ease with it now. It certainly seems that way for me 6 months post SAH x

Hi Electrogal, I had a NA SAH in January this year 6 days after giving birth to my son. My neuro said it would be best advised if I didn't have any more children. Apparently this is something to do with hormones etc post partum and the fact it was NA. I would be putting myself in danger of same happening again. I was diagnosed with reversible cerebral vasoconstriction syndrome. We have 2 beautiful and healthy children so I can't complain at all. Everyone is different though and I see here lots of mums giving birth after SAH. It is great to hear you are doing so well in yourself. I am hopefully headed the same way. I would be interested to hear if you find out anything else. X