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Louise

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Everything posted by Louise

  1. Hi Karen Morning Yep something else off the long list I seem to have given myself!!!! How’s the head today? I hope your early night worked for you, I know there’s nothing worse. But I do find that it’s the body’s way of saying chill out!!! Although when you have more good days than bad I find you don’t want to miss out on them you want to do stuff, well that’s me anyway. Beans on toast or toasties always a good idea when you don’t have energy for anything else I do that often especially if Ronnie’s out working. Ronnie seems to work so hard I feel guilty about that but have to give my self a talking too. Well it’s dull & horrible here, & after yesterday not in the mood but have to ah well….. Bye for now Louise.x
  2. Hi there Been out got a lovely frame & a bottle of bubbly, so I'm shattered now it quite warm out & we walked home. It took me a long time before I would accept that the (as I used to say it:) 'the old Louise was gone' I used to say things like the old Louise wouldnt do this, or that, the New Louise was so different. When I accepted that that was my first step forward. So your by no means alone believe me. Karen hope the heads better sometimes when you over do it, its a way to tell you slow down, drink plenty liquid. Take car Louise.x
  3. Yep counselling session are good I think you talk to someone that's qualified. Yes its hard getting your head around what has happened I know that only too well sometimes I still have a bubble about it all it get too much but hey the biggest hurdle has already been managed........... Take care Louise.x
  4. Morning Thanks Karen for not thinking me a misery, actually I too think its time to reflect it’s got really commercialized now I think I find it too tiring now. Yep we had to down scale a few years ago as I don’t work now either the last few year I have to say have been a lot better now I think about it, the run up to it isn’t but the actual day has been its funny I’d forgotten that… Yes you do that Karen make the most of it. Sami, that’s great that Paul & your Mum cook, Ronnie cooks ours I just sit & oversee it. Make sure this year you’re not down by tea time enjoy it get someone else to tidy up & load the dishwasher. We have friends up on New Years Night its down scaled a lot since I had the Brain Haemorrhage I do a buffet the first year after SAH I thought oh yes I can do this I was wrong.. Well all for now bye. :? Louise.x
  5. Yes I agree that the brain shuts off what it dosn't want to know. The first 5 weeks I spent in hospital I dont remember, there has never been even a flash of any of it. The brain just switched off to it, & I'm glad that it did. Take care Louise.x
  6. Hi there I bet you must be thinking I’m a right old misery guts I used to love Christmas time too but it just doesn’t have the same appeal now, maybe it’s to busy for me too. My Mum used to be exactly like you two, Christmas songs playing (Bing & Nat-king-cole) while cooking Christmas dinner with tinsel slung around her shoulders like a wrap its that I miss I think. By the time it comes around I’m too knackered to enjoy it, but as time passes it has got better, thankfully. There’s nothing wrong with being a romantic Karen or Sentimental Sami, believe me its nice to find two people who obviously still enjoy the magic that Christmas brings. I might even get smitten. Mind you its not all gloom & doom when I was in the re-hab hospital I got out over Christmas & the new year, when I was waiting to get my meds people started to arrive on the ward a great big brass band they played Christmas carols it was magical now every time I hear something like that I cry buckets. Nite guys Louise.x
  7. Ugh Christmas what a thought, though this is the first year ever I have already started, I got 2 while on holiday in August my friend's son is 21 on the 27 Dec so I have his chrissy pressy still to get his birthday. I go to the shops in the morning around 10am & back about 12.30pm thats about all I can hack. That's a very good idea writing down questions because sometimes your mind just goes a total blank & you cant even think of one, well that's what happens to me. Bye for now Louise.x
  8. Hi Karen Yeh I know they just go it’s really weird though!!! I’d thought about a silver picture frame which I think they might get anyway & Ronnie suggest something a bottle of Champaign & a picture frame (maybe not silver) so that might be an idea. I’ll see how I am on Friday, evenings aren’t really my time on this but if I know about something that’s different-thanks. I haven’t always had the wahserdryer but what a difference it makes especially in the winter, & god I hope there is more to life than that!!! It’s got really cold so I’m doing hug-a-mug of (hot chocolate) yum!! Bye for now Louise.x
  9. Hi there I do that if I wake in the night for hours on end I over sleep in the morning, & that second sleep always makes me dopy all day. Its nice to have a good old natter isn’t? I still find it hard to hold a conversation for more than a few hours so you’re not alone there. Sometimes my dreams are vivid & weird especially if I eat late on at night which I don’t do now sometimes my dreams & what has happened in the day get mingled. Its misty here in Scotland, I’ve been away out trying to see what I can get for our friends Silver Wedding still got a week. So I’m knackered now yesterday I did a lot & don’t know where the day went to. Well all for now good to hear your getting a better sleep Sami. Bye for now Louise.x
  10. Hi there Therese I too will be thinking about you on Thursday for the Angio I’ve got a fair few under my belt now. Hope all goes ok take care Louise.x
  11. Hi there Sami, you seemed to have a good weekend & no rest wow & doing all that. Yes if there’s something you like why stop it, 1-1 not a win but not bad or is that just me who’s not really into footie. I used to watch all the soaps (I know sad) but when I had the Brain Haemorrhage I just couldn’t understand some things they seemed to silly for words just how my brain works now I guess. Karen, dinner tonight for me is easy lots of vegetables & pasta Ronnie’s driving someone & wont be in for dinner he was only here one evening last week for dinner oh joy!!!! We were in England that weekend not on holiday visiting family it was very. Very hot too hot for me now (sadly). We have a caravan that’s our escape. Well bye for now I’m away to put my feet up I don’t know where today has gone. Take care Louise.x
  12. Hi there I cant even vaguely remeber getting mine done at all when I was in hospital, but I did have the same thing when they asumed that I knew what to expect & I didnt, I found it really funny that they think it 'strange' I could forget something like that, & it being the Neuro unit too... Yes the concent form I had to sign it the last couple of times but the first couple my husband signed them I belive. I have never driven so the DVLA has been one thing I havent had to bother about Well lets know how things go tomorrow with the pre-ass Take care. Louise.
  13. Hi there I thought that one kind of summed me up sleepy & dopy all in one. Although we’ve got a fairly large room it’s got a big German wardrobe in it dark oak so I have chosen cream with a light brown & silver splodge (only way I can explain) & terracotta sand for the ceiling which is the same colour as the splodge. I have to get someone in to fix my washing machine we’re lucky here we don’t have limescale that’s what one of the engineers told me anyway I’d been using too much powder because that’s what it said on the pack, anyway because we don’t have the limescale I use less powder. When I read this earlier I though lunch I’d been so busy I’d forgot I don’t know where today has gone, well I do I’ve been at the bottom of my wardrobe chucking out shoes I’ll never wear again……… Well bye for now Louise.
  14. Hi again I never had a pr-assesment but Karen you've explained what they did before I got the angeogram done I got that & they told me what to expect all in the same day. I'd actually had angios done when I was in but didnt remember so when I went it was like my first to me. Take care Louise.
  15. Hi Keith I wouldn’t worry about it a similar thing happened to me & there was nothing to worry about, I used to get my card to go about 3 months before which meant it was at the back of my mind all that time 5 days is a far better way I think, you can ask all your questions tomorrow at your pre-assessment I don’t know what the pre-assessment is about except that all hospitals seem to work differently as far as I can see, when I got my angiogram I was there most of the day. Yes one good week & feeling as though you’ve gone back the way remember that feeling well the brain could be saying you maybe did a bit too much last week if you were feeling good that is. Well hope that all makes sense to you. Take care Louise.
  16. Hi there Hope everyone had a nice weekend, Karen the washing machine how did it go? Sami good football match yesterday hope you weren’t tired after the housework? I was so tired yesterday & was awake at 3am I dont understand logic in that at all We started to empty the bedroom yesterday its going to be a massive task I think, however already Ronnie has 2 small wardrobes in the hall, & 2 chest in the kitchen where the table should be god knows where the beds going to go!!! Yes we have a fairly big bedroom which just means more stuff really, & my brain seems to hate clutter of that sort its so weird it just cant cope when things are out of place, I cant explain the feeling, I knew this would happen I just console myself with well its going to look nice & it’ll be fresher & hopefully it wont take long ha! but I can’t foul myself though………….. The painter said he was going to start 6th Nov but its now the 30th Oct which is sooner but quicker the better, so after yesterday I’m knackered today hey no change there for me I did do a lot yesterday & I cooked 2 meals too one for yesterday & one to freeze so suppose that didn’t help, & back and forward emptying things wiping & hovering & having to decide what’s going out & finding things that gave me memories….. My friend’s Silver Wedding is next week going for a meal on Sunday with them, so sometime this week I’m going to have to go shopping to see what I can get them I don’t have a clue so it Ugh!! Hate shopping now & believe me I was your shop-a-holic once upon a life time. We’ll had a rest got to get back to it. Will defiantly need chocolate to give me energy later – well that’s my excuse anyway. Bye just now Louise.
  17. Hi Varun Like Annie I’m not able to answer your questions either except to say I was kind of like that too, my husband told me long time after mine, I still have no memory at all of being in hospital, the op/recovery in 6 years I have never had even a flicker of a memory of that time. I too had spasms in my arms/leg I think it was. My memory was all over the place too, I was convinced that one of my Aunties was in the next room it wasn’t her this was due to a combination of what happened to me & the meds I was getting. Oh yeh, it takes time to recover the type of sah I had was pretty bad so my recover has taken a long time but everyone is different, the best thing family members can do is stay cool be positive because each day its getting better whither you notice it or not, at one point when I went to the rehab hospital I could actually feel the healing in the brain boy that was weird.. Take care Louise.
  18. Thanks for that I bet Ronnie has no idea what today’s date means though!! & don’t get me wrong Ronnie would have just the exact same reaction as your hubby about the washing machine but hey that’s life. Yes we live in a tenement building 3 floors up which at times kills me getting up the stairs especially if the leg is bad which is why we’d/me would love to move & have a little garden I can but dream we keep hoping the lotto will shine on us but as yet its not even twinkled. Ah!! Another fan of Ikea!! I don’t like going on a Saturday I like a walk round during the week if Ronnie’s on a day off. You can probably guess what well be doing at the weekend, Homebase, B&Q ect & I’m not relishing starting to empty the bedroom but its got to be done a good time for a clear out I don’t just have clothes I’ll never wear again I’ll never get into them again!!! Funny I’m having a baked potato same thing really comfort it must be the thought of the cold weather. Sami, you seem to have had a busy day watch & not over do it though, you make me knackered just reading what you’ve been up to. Well had another bit of a rest doing this so must finish searching for ladders done a search in B&Q site & it came back no item listed cant be!!! Well bye for now have a lovely weekend Louise.x Just noticed your posts Ugh Christmas isn’t too far away sorry girls not a big fan of Christmas now, I like getting all the catalogues its better than trudging around the shops if I know what I’m looking for.
  19. I meet Ronnie on October 13th (it was a Monday) we both started work in the same place on the same day, it was in an Ironmongery & Hardware manufacturers, funny I cant remember last week or last month but the past like that I have no trouble in remembering at all its like watching coloured TV-weird but nice. I started as an office junior & Ronnie started as apprentice Ironmonger we were both 16 Aw!!!! Got me thinking though it’s a good job we don’t know what’s in store family members that have to watch what has happened to us & adapt to suite us I say to people Ronnie is my Rock he is without him I wouldn’t be half the person I am today, he hates me saying it I don’t know why but I would be nothing without him. Those words ‘in sickness & in health’ gosh I didn’t know just how vital they were going to be for me. OK so that’s the mush for today, Karen, I know I should put the phone down I want to put it down but something inside me says No you can deal with this easy, maybe its because before I had the Brain Haemorrhage I was a telephonist/receptionist for a shipping company & dealt with all sorts its very hard to believe I did that……… Yes there are times when chocolate just isn’t good enough….. Oh what a thought winter setting in & cold weather Brrrrrr……. Sami, Glad you had a good sleep last night once I settled down after the tube did its thing after that phone call I had quite a good sleep too. We got the estimate for the painter doing the bedroom not bad £95 takes all the strain off Ronnie, last Christmas he did our livingroom we have high ceilings he wouldn’t let me help he was knackered….. Well must go had my rest doing this away to do some ironing now…. Bye for now Louise the rambler X
  20. Yikes!!! Nothing worse, that happened here earlier in the year I had to ferry my wet washing to my cousin’s who washed if for me what a star she was I hope you can do something like that. Yep I do not believe it!!!!! Comes in very handy. Yes pity they don’t colour code their envelopes to give you an idea sadly their just brown. Well I reckon the day should get better don’t you????? Louise..x
  21. Hi Yeh Friday 13th but hey it’s a number, actually it was October 13th that I meet Ronnie, we started work on the same day in the same place Years ago.Sorry to hear that you got a fright with your Mum I know how that can be believe me, I know its not the same thing at all but I can remember (yes some things do stay with me they’re usually powerful that’s why) I was Looking into the mirror in the re-hab hospital & thinking who is that & actually looking behind me (kind of thing you’d see in a movie) I didn’t recognize myself I was shocked it a horrible thing. I hope to that they start treatment so you’re Mum will feel better & you will feel more at ease. Yep keeping yourself busy is always a good thing I know that one too. Well have to go got a bathroom that won’t clean itself – sadly Take care Louise.x
  22. Hi there I hope that you had a good sleep last night Sami with not napping yesterday I found just sitting nodding was much better I was resting but not actually going too deep I have to say that has & is working for me. Another man that does the ironing must tell Ronnie people think he’s strange that’s his Sunday morning job the ironing his suite, Jeans, Trousers & whatever I haven’t managed in the week he just gets something to watch on TV & he can iron for hours. I do hope that you ladies had a better night than I did last night, I got a call from the Passport Office, they were doing a survey of people that had recently re-new/got passports unfortunately my name popped up on their screen as the person to survey…… I cant remember what happened last week never mind 5 months ago, so when I realised she was getting annoyed I explained the Brain, short term memory, sorry I cant do this – & the like…..she just continued to wait for the answer to her question – she was in remote control Ronnie realised my panic & took the phone off me – thankfully its one of those things that I cant quite get to grips with is how people listen but don’t hear or hear but don’t listen I’m not sure what it is. Anyway tube gave it what for after that Ah well just something else to chalk up to think I can & cant……………….. Well all for now Take care Louise.
  23. Hi there Had to go shopping myself today too, the food kind the fridge was bare after my lazy day yesterday & truth be told Tuesday too. I know what you mean about things packing up 3 years ago just before my cousin came over from Australia (last time) our Fridge Freezer packed up, the cooker wouldn’t work & the washing machine gave up all within weeks of each other I’m sure the Insurance Co. must have thought we were at it…. I lots a lot of weight too when I was ill, (can’t remember how much now though) each afternoon my Dad would bring me some sort of chocolate bar I think he felt I needed it, & I didn’t like to disappoint him now did I…. Sami, I find that now when I nap in the afternoon I cant sleep very well at night but if I do nap in the afternoons its usually when I don’t feel very good, I reckon I had a nap each afternoon for a year or so!!! 8O Ronnie used to have to do the washing, Ironing, & housework too, I remember when I thought I was able to manage by myself (ha), Ronnie was at work & I though yeh!! no problem: I hovered right through the flat, moving things as I went, this took most of the day, then I dusted one room, (we don’t have a massive flat but boy it seemed huge), poor Ronnie when he came home had to put it all back I was knackered for days, my lesson for that day was: Do one room at a time, & if Ronnie wants to do it let him… Bye for now Louise.
  24. Hi there Yes that does sound like some sort of a ‘circus act’ doesn’t!!!! Feeling a bit better today thankfully & what helps me too is the weather is a lot brighter for me. Yes I did try the sports drinks but for me they weren’t too good my brain produces too much vitamins – seemly which is why some things really don’t agree with me. I did have a yummy binge yesterday the down side was I couldn’t have a nap in the afternoon after all the chocolate however the up side to not having a nap meant I slept most of the night not all I very rarely do that. We had a painter in last night giving us an estimate for doing the bedroom so although I’m really looking forward to it getting done (not been done for years & I mean years) my brain has a problem dealing with the up heavel, things being out of place its really a pest that part mostly because it doesn’t happen too often thankfully it a hard one to explain that, most people think I’m being crazy thankfully Ronnie doesn’t because he sees the changes in me when something like that happens. Heck it’s the rambler starting again Bye just now L
  25. Louise

    Hi

    Hello Therese My names Louise & I had my Brain Haemorrhage Nov 99 shunt put in clipped & sealed then in Feb 2000 I had to get a drain put in Ugh!!! I know exactly what you mean about being so alone I could & still be in a room full of people & I would still feel so very alone, because no-one knows what your going through unless you’ve had something similar you cant possibly know what its like people give all the usual sympathy reactions Oh I know what you mean I want to say ‘actually you have no idea what I mean’….Well that’s the way I see it at any rate. I think you’re very good being able to go back to work & full time too I hope your not overdoing it though? Employment is something that I don’t think I will be in again but hey we are all different. I hope all goes well on the 19th Oct & your appointment goes ahead ok I know they do tend to cancel at the last minute if emergencies come up, but what I hated was the long space in between the appointments to get another had that a few times. Well all for now and Take Care Louise.
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