MelB

That's interesting what's an angio negative patient? Is it a SAH with no known cause?

There was an interesting article about a GP who had a subarachnoid haemorrhage in The Guardian today. Click on the link below to take you to the article. http://www.guardian.co.uk/lifeandstyle/2011/may/31/brain-haemorrhage-mountain-climbing Mel x

Hello Luisa, Just read how your doing on the first week back to work. First I'd like to say well done and good for you getting to this stage in your recovery. I agree with everyone's replies and I'm sure things will get better in time. I returned to work on a phased return and it took me a year to get up to speed. I think someone mentioned returning to work helped their confidence and I agree it does help. I felt my work played a huge part in my recovery. I'm pleased to hear your work is understanding. Some people hear such as Liz didn't have such a good experience. (For Liz, Great to hear your still going in your job take care Melxxx) Best Wishes

Hi Nita, just read that you said you'd be on Secret Millionaire last night. Oh I'm sorry I missed it. Best wishes:frown:

Hi Bubbles Its great you found the site and logged on well done! Best wishes MelB

Hi Mita, My attendance here has been very poor but I am back again. Happy 4rth anniversary. Great you are able to participate here again. Its my 8th anniversay tomorrow but on my own this weekend so I will treat myself to a Chinese takeway tomorrow night. Take care and best wishes, MelB

You coilee folks do have a time of it don't you! Karen, good luck Monday! You said your seeing your consultant in May. It sounds like you have to wait a bit! Is that for the results or will you have been given these after the scan on Monday? When I had my follow up angiogram after clipping of a ruptured annie, I went in with the knowledge that my surgeon had trouble clipping it all. From memory, it seemed such a long wait (6months) to have the angio and then once it was done I waited a further 2/3 months to see the surgeon for the results. Did I miss something when I had the angio??? Anyway, I apologies for so much detail but it took so long to eventually get news that all was good. Have others found this? I will be thinking of you!

Hi, An excellent book! Wish I could havee had my hands on it after my SAH. I phoned up our local library and they didn't have it but they agreed to order it so I could borrow it for nothing. Good luck tracking it down... its worth the hunt. Best wishes,

Hi Kel, You sound very well prepared for your meeting and I think your phased plan sounds really good. You in the driving seat now and I wish you the very best. Let us know how it all goes...!

I heard this woman talk on the radio a while ago. Just watched the link and I think she is a very inspiring and engaging speaker. I loved her description while she attempted to call her work for help... I am still chuckling. Thanks. A really interesting discussion about right/left brain relationship. Regards

Hello Paris, You both must be feeling very anxious about this. At the time of my SAH I had 2 grand mal seizures and was on an anti epileptic medication for 6 months. That was 7 years ago. Having read others posts it sounds that anxiety about coming off the tablets and further seizures are what a lot people have experienced. I was so worried about it at the time but I spoke to a neuropsychologist and I learned that having experienced a fit at the time of SAH was because of the SAH. I know there maybe a few very unfortunate people who may have developed epilepsy but I think the risks of this is minimal. Also, what helped my confidence was that the DVLA informed me that I was fit to drive. This felt great and I believe that they wouldn't have given me my licence back if there was a risk of this recurring. Of course time helped too..... Hope you two keep well. Best wishes,

Hi Noah, Great to meet you. I know others have said it but 4months is still very early on in recovery but well done you to get here now. At 4 months, I did not believe I would ever feel better again but it has happened and yes its taken a few years. I know that we all share similar experiences of recovery but recovery is still an individual journey and our brain injuries can be quite varied. I do not see myself as the same person before SAH but I have learned to adjust to the new me. I wish you well during your recovery and I look forward to hearing how you are getting on. Best wishes

Hello Karen, I don't tend to take the car to a drive through wash because my car radio ariel would snap off. I'm a jet wash or sponge and bucket type of person. But I do appreciate the sensation may feel weird for anyone with or without having had a SAH. If your balance part of your brain has been affected its no wonder your very sensitive to this. I tend to get car sickness now when I am a passanger in a car and I feel dizzy when I am in the lift at work. In the early days while rushing around at work I would knock into doorways and be very clumsy and uncoordinated. Its rather funny thinking about it but a little embarrassing when leaving a roomful of people. Anyway, I agree best to keep clear of machines which jolt you around. Very best wishes,

Hello Sarah, What a time you had. I couldn't believe the ambulance service and your doctor didn't send you to get scanned with your symptoms. Its a real pleasure to meet you and welcome you here. Best wishes,

Despite having a SAH over 7 years ago, I still have sensory problems and some weakness affecting the whole left side of my body. I can only describe the pain as a constant deep burning sensation with lacerating sharp pains in my left hand, arm, leg and head. If I knock myself anywhere on my left side it is very painful. The sharp pains have lessened over this time but cold weather and touch makes it worse. I still find it hard to tell the difference between hot/cold. I saw a pain specialist who tried me on a drug called gabapentin. Unfortunately it did not help so I asked to talked to a pain psychologist who introduced me to the idea of Mindfulness practice and also referred me to a physiotherapist. Over time I am no longer worrying about the pain and I am more used to being in this body of mine. I'll never forgot my neurosurgeon saying 6 weeks after my op that I would get used to the pain. Despite the fear and struggle at first I am now calmer and happier in this body and maybe he was right. I am very interested to here about others experiences of pain post SAH and what folks have found helpful. Best wishes,

For Janet, I think you have done well to be back at work 20 hours - thats a huge accomplishment. You say you have nerve pain - this itself must be difficult to manage in addition to adapting to work. Have you had any follow up about your nerve pain? Very best wishes to you,

I had a subarachnoid haemorrhage secondary to rupture of a right middle cerebral artery aneurysm at the age of 29 back in 2002. I had a craniotomy and clip and I had multiple pulmonary emboli as a complication after the op. 0+

Goodmorning Liz, Your manager sounds like an '----'. It surprises me the amount of '------' there are working in the NHS. Sorry to have to say it but its true. I am wondering if you are able to get yourself another occy health appointment and explain the pressure your manager is placing you under despite the OT's recommendations. If your not supported properly you could end up going off sick again and that will leave them short. Staff well-being is important in order to reduce staff sickness, getting people into work and keeping them there is key. Your manager sounds like she doesn't have the time to support you and this is part of her job. I am so sorry your going through this. Are you in a union? Best wishes, Keep in touch Mel

Welcome Jan, I believe this site will be of great help. I agree with Vivien's comment, once the mechanical bits have been fixed, it can feel like now your left to deal with the aftermath. Having the right support and information can be most therapeutic in helping get through the early months of recovery. I look foward to hearing from you again soon, Best Wishes,

Hello Adam, As if you haven't had enough to contend with, your now facing barriers to work. I searched the internet and came across the following website which talks about epilepsy and employment. Also, Headway maybe helpful for some free advice? It does sound iffy (discriminatory) that your work will not make adjustments to accomodate you.. If your epilpesy put you or others at risk then health and safety maybe a reason but I don't really know anything about the legal side of this. Here are the details below but you may have enough information from others. http://www.epilepsysociety.org.uk/AboutEpilepsy/Livingwithepilepsy/Employment/Employees or Headway - Free helpline 0808 800 2244. helpline@headway.org.uk Hope you get all the right information and support you need. Let us know what happens? Best wishes,

Just read your story and what a time you had. I'm new here too...and I welcome you to the BTG. Roll on better times for you in 2010... Take care

You guys are sooooo right.....

For Jess, Janet, Rod, Skippy and Perry. Thank you for reading and responding.....all very much appreciated. I am curious about others understanding and what people think about the future.

Welcome to this site, I'm new here too Hope to get to know you Anders.....? Best wishes Mx

Welcome! I'm new here too but welcome.......