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Carolynusa last won the day on June 6 2016

Carolynusa had the most liked content!


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About Carolynusa

  • Birthday 27/08/1953

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    Champaign-Urbana, Illinois, usa

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  1. I loved your mom so very, very much. She was my great friend and I will miss her dearly. Love to you and your family. Carolyn
  2. Hi all! Some great responses to Jan's question! Now...it wouldn't seem right if I didn't throw my thoughts into the arena, right? ? I agree that the question/comment is something people would say just as a way of saying, "hey..I notice you and am aware you have been Ill.". I believe those people mean well but don't have a clue what to say after that unless you engage them in a deeper discussion. Mostly I find that it is easier to smile and say something like..."I'm doing pretty good...thanks for asking.". These kind of things so often awkward..for both sides. But! Regarding "where is there?".... Yes you feel like you might be getting "somewhere" ☺ as you see your scars healing, you have more energy, etc. I am a little more than two years out and, in the last few weeks, suddenly realized.....wow! It,s a miracle that I am still here! I finally see it and accept it! Took a while but I finally feel I might be getting "there"! I think that shows in your eyes at that point and people will pick up on it. Jan....you will definitely feel "there" and I feel like you are on the "fast track"! Be well all Carolyn ✌✌
  3. I do love ya Pal xxxxx

  4. Love ya my pal hope all is well and you are doing well xx


    You take care and remember to sing...  Hit it Win lol  Bette Middler eat ya heart out


    You've got to give a little, take a little
    And let your poor heart break a little
    That's the story of,
    That's the glory of love

    You've got to laugh a little, cry a little
    Before the clouds roll by a little
    That's the story of,
    That's the glory of love.

    As long as there's the two of you
    You've got the world and all its charms


  5. Hi Nicola! It sounds as if you are doing all of the right things to take care of yourself and to join a support group such as this. The site has helped me so much. I didn't have a clue about my Sah and what to expect after. 17 days in hospital not bad! Great news on your post sah symptoms and your seeming lack of physical disability. That is so wonderful! You are a tough little Nicola. The advice and support from above posts are great. Remember water and if you have concerns or questions, don't rule out seeing your physician. Please let us know how you are doing. Again...you sound great at such short time after event. Good job! Much best wishes to you Carolyn ✌
  6. Hello Mum of Five I have been thinking about you and wanted to check in and say hello. Hope things have improved for you and your family. I found more things we have in common! Cats, for one. Then...I have a son who is bipolar/schizo affective. He will be 30 next month. He currently lives with us and can have strong bouts of depression. Kind of changes the whole atmosphere in the home, doesn't it? I had a brother-in-law that was hurt badly at work. He was depressed for a year or so but he came back. I hope this is the same with your husband. You certainly have a lot on your shoulders but it seems you are strong enough to deal with it, even if it's hard. I know that's easy to say but try to believe it. Try telling yourself over and over each day, "I can do this...." I think you are great! I'm sure your family does too. One funny thing to help cheer you up before I go: I came into my room to write this to you..and ran into a wall ! Take care Carolyn ✌
  7. Hi mum of five: You sound a lot like me. I am older than you and my sah is also about 2 years out. I know what it's like to feel so crazy with your memory. If someone asks me to bring coffee I am more likely to show up with a potato! I have always been a very proud word person. Typing, spelling, reading, etc. Nobody could ever beat me at scrabble .now I am finding I have to ask my son how to spell a word or so. Geez! I wobble around the house also but seem to be better on a straight surface, I.e. sidewalk. Here's a difference! I hate my short term memory but love my long term. The most amazing things will pop out of my mind from years ago! I am happier alone myself. I feel more positive that way. You are not alone in that. I certainly don't believe you are a bad person OR a battleaxe. You are just a little different than you were before sah. Have you talked to a neurosurgeon about your feelings? I did and took a 3-hour test to check my memory. That would have been great except I forgot to go back for results! Take good care Try a doctor Don't beat yourself up Carolyn ✌✌
  8. Hi Jan! Funny about you needing to kick yourself in the behind. My husband would like to kick me in the behind at least once a day. Since Win described us I decided I had better tell you the "real" us Win is a great singer. Keith will vouch for that. She is also a chocolate sneak. Don't bring any around her if you value your life . Sub's is indeed a Scotty dog... Wait! I meant a Scottish man. He drinks lots of lattes, eats lots of butterys, and some other weird Scottish food . I'm from U.S. so I don't get it. Lol. He also is very, very in love with Mrs. Subs. An amazing carer. I'm perfectly normal and don't let those two tell you otherwise . There are so many other great people in Green Room. Stop by! Carolyn✌
  9. Hi Jan... Sorry to keep gabbing at you, but I thought of one other thing. Sorry if I said this before. Maybe people are looking at you differently because they can't believe that you are still alive and came out of it with most facilities intact. Yay for you! Think that when you look in the mirror. You are a miracle! Be happy please Carolyn
  10. Hi Jan - I read your poem just now and am sorry you feel sad about the "new you". I just wanted to say that the last line is the best. I think you will be also. Ignore the people you think are looking at you differently. Smile at them and bravely stand up and walk..as you have that ability! Some don't. Give yourself a break, Jan. I believe you will begin to love yourself again in due time. You said it.."I will be". Take very good care and try to remember you are still beautiful. Carolyn I was in Hosp. 7 weeks and had a lot of scars, etc. Hair shaved, shunt scar, shark bite..you know. We stopped somewhere on the way home because I had been craving Mexican food so badly and just walked right in and ate. I didn't care what people thought of me. I still feel that way with a few exceptions. I look in the mirror and don't see much difference. I am me with some glitches. Maybe it is because I can't remember who I was!
  11. Jan! A year has passed and you are still strong and moving forward! I know it hasn't been a nice walk in the park, but you did it! I'm so excited for you. Wish I could hug you. John sounds like a wonderful partner and it's a shame about his mother. But...he understands and take great care of you. I think it' a rare person that doesn't think "why me????!". Despite that you are here. Good luck with testing...and you are right! Go forward. Take good care. Follow Win's advice and have a happy anniversary. Love and best thoughts to you. Carolyn
  12. Win - Carpenters. Wow! Christmas in Illinois...how great! One thing though..Sub's can't bring any of that ****** sausage..and Win has to bring some "dark" choc..maybe with a few raisins in it? Oh Sub's! I almost forgot! I bought a new duvet and it needs a little IRONING. I'll ship it post haste. Seriously my friends ..thank you so much. See you at '3'✌ 2-year old Carolyn
  13. Thank you for your comments. I hope you don't mind but I would like to add just a little bit= I consider my survival a miracle. Sure, my body comes up with a few little weird things once in a while, but I can live with that. My short term memory annoys me at times but...my long term memory is SO wonderful! Oh..the things I have remembered! If there is a new survivor looking in, I hope this gives YOU hope. There IS hope for you also. Much love and thanks Carolyn
  14. Two years.. Thanks to all of you for helping me get through. Special thanks to my pal Win. Not a day goes by that she can't make me smile and take my mind off myself.
  15. Hi Jan - I'm so sorry that you're feeling so let down by your brain and what happened to it...the after effects. My Sah was June 2014. I had 3 aneurysms. 1 coiled, 2 clipped. Lots of post-sah testing. One day my surgeon called me into his office to show me a new, small one. I think they call those "snowmen"?? He said he wasn't worried about it but I would definitely keep up with your physician on it. My short term is also nuts . see if you now remember old things that you might have forgotten for a long time. That's kind of how balance out my memory issues. Can you get someone reliable to help with your business for a while? Sleep, hydration, etc. Very important. Don't beat yourself about any of this. I believe you will feel better and so should. Good luck with everything and keep us posted. Take good care Carolyn
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