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kempse

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kempse last won the day on December 31 2016

kempse had the most liked content!

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About kempse

  • Rank
    Senior Member
  • Birthday 11/01/1962

Profile Information

  • Gender
    Female

Converted

  • Biography
    Am married with 3 children, aged 9, 15 and 17
  • Location
    Derbyshire
  • Occupation
    Bank clerk
  • SAH/Stroke Date
    08 November 2008

Recent Profile Visitors

1,005 profile views
  1. Oh Joan, I'm so sorry to hear that your op was cancelled, that's the last thing you need to happen. My second coiling was cancelled on the day I was due to go in, so I can appreciate the anxiety and frustration, etc that it causes. Hopefully you can get your blood sugars to an acceptable level before too long and then get the operation out of the way. Love, Sarah
  2. kempse

    3 years and counting....

    Congratulations Weedra on your 3rd anniversary. Lovely to have you in the BTG family and you never know, you may meet other members of the family one day! Best wishes, Sarah x
  3. kempse

    13 years post SAH today.

    Happy 13th anni-versary Karen - what more can I add that hasn't already been said. A lovely photo and inspiring words x Thank you so much for helping so many x Love n hugs, Sarah x
  4. Hi Joan, Sorry, but I missed this thread until the lovely Tina contacted me. I'm pleased you got a date through which is not too far away - hopefully you will manage to keep the nerves in check during that time. My thoughts will be with you on 2nd August. I have not heard anything from the hospital following my scan on 7th April, but on a recent visit to my GP for something else, I asked if they had had any correspondence from the hospital. They had received a report and I was informed that there were no changes since my previous scan and they would scan me again next April. I'm not overly impressed that the hospital hasn't bothered to inform me though and I only found out by chance. My Mum passed away 3 weeks ago, so I really am grateful and relieved that no more coiling is required at present as I don't think I could have coped with the stress of that as well. Looking forward to hearing from you after the procedure - sending love and best wishes in the meantime, Sarah
  5. kempse

    Kay - new member

    Congratulations Kay x
  6. kempse

    Wow where did 4 years go.

    Congratulations on reaching the 4 year mark Michelle. I know you had some testing times over the past year in particular, but you still manage to help others on here - I hope you've had a good time with Jan today, Take care, Love, Sarah
  7. Yes Joan, my second one is being watched every year and thankfully has not changed in the 9 1/2 years. The one that ruptured is also being watched and that has changed slightly in size and although there was talk 2 years ago of having more treatment, I got a letter after my scan in April 2017 saying all was stable. So I haven't had any further treatment as yet, but I am anxiously awaiting my results from this April's MRi. Sarah
  8. Welcome back Joan, lovely to see you again albeit the reason for you being here is not the best. I'm surprised it took so long to make you aware of that 2nd aneurysm. I think we spoke on the phone back in 2010 after the first one was discovered. .Hopefully you will feel more reassured when you hear the outcome of their meeting next week. I'm sure if they can coil it, it will be a relief when it's all done so you don't have that uncertainty hanging over you any more. I still go for annual check ups - to check the one that ruptured and my other one too. In fact I'm awaiting the results of the latest scan at the moment which was done on 7th April. (I hate the waiting game!) Anyway it would nice to hear how things progress for you, Take care, Sarah
  9. kempse

    1 Year Anni-versary

    Congratulations on arriving at your 1st anni-versary Kay. You have remained so positive throughout and have dealt with it all admirably - well done. Wishing you the best for the next 12 months and beyond, Sarah
  10. kempse

    Alexander64 - Recent SAH

    Hi Alex, a warm welcome to behind the gray. Sorry that you have had the misfortune to have experienced a sah, but appreciate you sharing your story which helps build a great forum for those in a similar situation. I'm not sure what the answer is to not being able to sleep but during a recent spell of this myself I was prescribed something to help me sleep which, although I only took it for a few nights, it did enable me to get some much needed sleep - and then got me back into the routine of normal(ish) sleep pattern. I agree with you, in fact I think the whole NHS system is faultless - I think me and my family have benefited from every department going, in fact I'm off there again next month for my 10th annual head MRI. I hope your recovery continues to go well, but do be prepared that it could take quite a while and next year plan something more romantic! Take care, Sarah
  11. I'm sorry to hear you are in this situation and how worrying it is for you and your daughter. Hopefully after your appointment, the options will become a little clearer for you to consider and make any decisions based on their judgement. I was wondering if this is an untreated aneurysm you have and whether your daughter has only known about it since this recent news and therefore is having to take a lot of information on board in a relatively short space of time - plus the uncertainty that goes with it. (my youngest son is 17 now) In 2015 I was in a similar situation in waiting for an appointment to discuss an aneurysm that had grown slightly and what, if any, treatment was needed. My approx 8mm aneurysm had ruptured in Nov 2008. I'm not sure to this day how me, or my family, got through that particular time. In brief, I'd had my MRI on 10th Aug, the same day as my sister had a scan which revealed bowel cancer. I got a phone call on Fri 9th October asking me to to go in and discuss my results on the Monday - that Friday my husband was having major heart surgery across the city and hadn't even been woken up after his operation when I had my appointment to discuss the aneurysm which was when I was told it had grown. Due to my circumstances they agreed for me to have a further scan in 6 months' time. After that scan I was given the options to either have an angiogram to see if it needed a stent and more coils put in, or be scanned again in a years' time to see if it had changed any further. Needless to say I chose the 2nd option. Following my scan in April of this year, I received a letter saying "stable appearances - scan in 12 months". So I'm a little confused to say the least. I'd suggest you go to your appointment armed with any questions you have and maybe take another adult with you and preferably even ask them to put whatever has been discussed in writing to you - and tell them about your daughter's concerns - not that I thought to do that with my own 3 children's concerns. Best wishes, Sarah.
  12. kempse

    Untreated anuerysm

    Hi, Sorry I missed your introductory post but thought I'd pop in here as I too have an untreated aneurysm which was discovered after another one had ruptured. I found the news of having another one quite devastating so soon after having had a bleed and all the trauma and anxiety that went with it. I was convinced having another one would automatically mean that it too would rupture and got all the 'what ifs' etc. I too was scheduled for a scan a year later and at that point I didn't know much about aneurysms, didn't know of anyone who had them and was not a member on BTG. During that year I was also sent into turmoil when I was told I needed more coiling for the one that had ruptured. I have had scans almost every year since to check both aneurysms. The unruptured one, which is a similar size to yours, has not changed or been treated since it was discovered and that was nine years ago .Obviously everyone's circumstances are different, but what I'm trying to say is don't let it rule your life - if they thought it posed a danger they would have arranged for your next scan sooner. The general rule is that the smaller the aneurysm, the less chance it has of rupturing. I think the more time that goes by the easier it becomes to live with an untreated aneurysm - it certainly doesn't bother me as much as it did when I first found out I had one. I hope this has given you a little reassurance not to panic and carry on with a little less worry and concentrate on your recovery, Best wishes, Sarah
  13. kempse

    Hello: I am David

    Hi David and welcome to BTG. Sorry to hear you've suffered a double sah but glad you have found this site so early into your recovery. I'm sure you'll find lots of useful information on here as you read the various posts and will be able to relate to things that others have experienced during their own recoveries. I had my one and only sah on 8th November, 9 years ago - I too was delayed in getting treatment -, from ringing for an ambulance myself on 8th, I eventually had my coiling on the 18th with several missed opportunities on the way. Recovery is a very individual thing but taking one step forward and two back is quite a common occurrence during those first few weeks, months and beyond. The rest between activities that Daffodil mentions is so important - so many of us are caught out by thinking we've had a good day, felt normal, achieved a lot, then wham we feel like we've been knocked for six and within a day or two we feel so wiped out, we can hardly do anything at all. None of this is easy especially if you have others to care for, but it's well worth it in the long run. Wishing you all the best, Sarah
  14. kempse

    Nine Years who-hoo

    Nice to see you call in Colleen - congratulations on reaching this landmark with all the hard and busy work that comes with it. As you know I will be reaching the 9 year mark too - exactly 1 week after you. Despite the vast difference in miles between us, I'm sure we will have travelled a similar path to get where we are now - busy and I too shall be spending part of my annie-versary in a meeting lol. Perhaps we need more rest in our lives Colleen ...........or is that just wishful thinking Take care, Sarah
  15. Hi Zach, I am a bit surprised you are not being taken seriously when explaining your symptoms and experiences to the doctors. Whilst we are not medically trained on this forum, have any of these doctors actually carried out standard neurological tests ie checking your pupils and reflexes for example? Not all general practitioners or paramedics are clued up on bleeds to the brain and don't always connect the two with the symptoms they present. After all, similar symptoms can be caused by a whole lot of other conditions and I have read many a case where a sah had taken place yet was not initially diagnosed. In fact I was probably one such case. I too felt at the time that I was not being taken seriously and it was only through perseverance after several missed opportunities that I got to have a CT scan. ( I will mention that this was 6 days after the bleed, not years later although who knows, it could have been if it wasn't for me and my family being persistent) I will briefly explain what happened in my case although as you will appreciate, everyone's experience of a bleed on the brain is different. There can be similarities, but it all depends on the area of the bleed and the severity of it. Therefore symptoms at the outset, recovery and resultant problems can vary quite significantly amongst individuals. My subarachnoid haemorrhage was almost 9 years ago. I did not have the thunderclap headache which many sufferers describe, I did however start with a headache at the back of my head. Approximately 10/15 minutes later I experienced the sensation of liquid running under my skull. I don't recall any pops as such, but I do remember that my peripheral vision started closing in - the best way I can describe it is that it was like wearing blinkers like on a horses bridle and they were being pushed together at the front until my vision became such that I could only see a narrow vertical slit of daylight between complete darkness on either side. It was at this point I thought I was going to pass out and die. Thankfully, within a few minutes, my vision corrected itself and being in the UK I rang 999. The paramedic who arrived did not obviously suspect a sah as he left after various checks, leaving me at home. During the next few days I had the most horrendous headache, could not put my chin down to my chest, felt nauseous at times, and just slept for most of the time. I did however ring the NHS helpline, visited a doctor twice and an optician and still no one thought or suggested I needed further investigation. I knew my head was not right, but why wouldn't anybody listen, or understand my concerns and try to find out what was wrong with me - it was like banging my head against a brick wall - in more ways than one! On the 6th day after it happened my dad rang my gp surgery and demanded I get further investigation asap. That got a reaction! I had an appt made at a neuro clinic in a nearby hospital that afternoon. At 9pm, after five hours of waiting, I eventually saw two doctors who said 'before we send you home, we'd just like you so see a consultant". The consultant decided to send me for a CT scan and that hospital is where I stayed for the next 11 days. Since having my aneurysm coiled I have at times experienced numbness in my arms, double vision once, multiple episodes of aura of migraine without the headache, fatigue, brain fog, memory issues etc. I do not have headaches or nausea though. It maybe the stress and worry of it are causing some of your symptoms, but if I were you I would keep on trying to get referred - although I would check if and when you get to the stage of a referral to ask whether a CT or MRI would be more appropriate. It may be worth getting your blood pressure checked regularly if you don't already do that. Wishing you all the best, Sarah
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