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kempse

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kempse last won the day on December 31 2016

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About kempse

  • Rank
    Senior Member
  • Birthday 11/01/1962

Profile Information

  • Gender
    Female

Converted

  • Biography
    Am married with 3 children, aged 9, 15 and 17
  • Location
    Derbyshire
  • Occupation
    Bank clerk
  • SAH/Stroke Date
    08 November 2008

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1,411 profile views
  1. Well, I'm a small step nearer to finding out what, if anything, they plan to do with my dural arteriovenous fistula and/or aneurysms in that I had my MRI scans yesterday (14.1.21). I'd been getting anxious in the days leading up to yesterday, partly due to knowing how long I would be in the scanners and partly having to go into a hospital when covid cases are so high. (one of my employers have catergorised me as being clinically extremely vulnerable), Then to make matters worse the snow came! I went to one of my jobs yesterday morning and on the way down their untreat
  2. Hi Ann, Haha - these gong shows are becoming a common theme! On a more serious note, I hope all goes well on 5th and you're not waiting too long to get the results and hopefully some reassurance from those involved in your care. As you know I'll be having be having my MRI the week after you and whilst they are primarily looking at this davf they've found, they will also be checking on my two aneurysms. It's going to be an anxious time waiting to hear what they have to say and what they might propose to do. I'm trying to be brave about it all, but if the
  3. Hi Sallios I understand how frustrating and worrying it is for you, but as Skippy says, try not to worry too much. The vast majority of follow ups show the coiling to be successful. In my case however, the follow up showed the coils had compacted and I needed more coils inserting. When I received the letter saying they proposed to do this in the next 3 weeks I thought OMG it must be urgent and might something happen during the 3 week wait. This 3 week wait ended up being 9 months and nothing untoward happened during that time. This was back in 2008/2009 when I was ne
  4. Many thanks Ann and Jean for posting. I hadn't heard of the gong show expression Ann, but thanks to Google, I know now! That sums it up nicely! I hope you get your scan dates sorted and that it doesn't turn into a gong show! Happy Christmas to you and to everyone else who might be reading this xx Take care, Sarah xx
  5. Thank you Skippy and Tina Well, I posted that before the postman had been this morning and yes, he has delivered yet another appointment letter! Depending on which of the 8 appointment letters you look at, there is mention of MRA Head, MRI Head, MRA Head with contrast, MRI Internal auditory meatus Both. The only other thing I can remember her saying during the phone calls is that I would be in one scanner for about 15 minutes and in the other scanner for approximately 30 minutes. Whilst I might be a bit confused by it all, I trust they kno
  6. I suppose I was being optimistic when I thought I might get to the other side of Christmas before hearing about a date for the proposed MRI scan, but it was not to be. In fact, I didn't anticipate that getting such an appointment would be quite so complicated! I received an email last Thursday saying they, the radiology department, were ready to make an appointment for the scan and I was given the option to receive future correspondence by email or continue through the postal system. I chose the email option as I felt it would easier, quicker and cheaper for the NHS.
  7. Today was angiogram day. Up at 6.15am, all the usual getting ready and trying to be mentally prepared. Arrived at the hospital at 9 am. Should have allowed a bit more time for the fact that there was a limit of 3 people in the lifts at any one time. Then when a lift finally became available someone selfishly pushed in before me taking up the third position! Arrived on N Floor at the neuro day care centre. A nurse came and unlocked the door to let me in, asked my name, looked at her list and said I wasn't on it! Luckily I had my letter on me whi
  8. That is so kind of Macca's family, enabling this site, which helps so many, continue into the future. Macca will always be remembered by those who 'met' him through this site as someone who always put others first, always willing to help others with his sound advice which was gained through his own recovery from a sah. He had an amazing gift of writing his posts so eloquently, leaving the reader with knowledge and advice that came from the heart. Sarah x
  9. You've nudged my memory SM mentioning that - I signed the consent form on Monday at the assessment, then the nurse said she would go and find a doctor to come and explain it, then he would sign it. She explained in minute detail about the actual angiogram procedure, but nothing as to the reason why. She came back without a doctor, saying they were all on emergency cases, but a doctor would sign it on the day. So hopefully I'll get some answers then. Thanks, Sarah
  10. Further to my last post, I had my pre-assessment on Monday which was much longer than those I have had in the past - 2 hours in total. I was given a home Covid testing kit and told I would get a call as to when to take the test. Well I've had that call now - I've to take the test next Monday 30th and then self isolate until Thursday 3rd Dec when I will be having the angiogram. I never did get the letter telling me exactly what they're looking for, so I'm guessing that last year when they found this davf by accident whilst looking at my aneurysms, they maybe haven't go
  11. Hi Ann, I'm sorry to hear you are in this situation. I can't answer your questions unfortunately, because I've not had a stent inserted. I can empathize however, because twice in the past 12 years since my bleed, I have been in the situation of my neuro team talking to me about having such a procedure and likewise mine is in a very challenging spot. I was also told I'd be on blood thinners for life if I were to have the procedure. Last year I got to the stage of an angiogram before they decided my aneurysm was stable enough not to put a stent in, but I still have an
  12. Well it's a month since I posted saying that I should receive a letter telling me what had been discussed and decided at a MDT held on 9th October regarding my case. I still haven't received that letter, but yesterday I received a phone call from the hospital's x-ray department wanting to make a pre-assessment appointment with me in preparation for an angiogram that had been requested by my consultant. This came as a bit of a shock as I've not heard from the consultant to explain the purpose of this. He must have something up his sleeve because you don't request an
  13. Many thanks Tina, Daff, Chelle and Claudette for your love and kind words. Today is the day I am being discussed in the MDT meeting, so hopefully I will hear something in the not too distant future. It has certainly been an arduous journey Claudette and losing 6 close family members during that journey has made it so much harder. Love, Sarah x
  14. Just a quick update on this thread. To recap: incidental finding of dural arteriovenous fistula following angiogram which was to see if aneurysm needed further treatment. Due to me being asymptomatic, it was decided in January 2020 that the davf could be left alone and a follow up scan was scheduled for Oct 2021 although I was asked to report any symptoms should I get any. I was also told that, in my case, the fistula could not be treated by embolisation or via craniotomy due to it's deep location, so the only option would be stereotactic radiosurgery. Fa
  15. Hi Macca, Congratulations on both your 8th wedding anniversary and your 10 year milestone. You are an inspirational person, who not only had to contend with your own recovery from sah, but have helped so many others, me included, through your very wise words along the way. I really admire your eloquently written posts which are always positive, helpful and written from the heart💜 I hope you both enjoyed your Italian - felice anniversario ! Love, Sarah x
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