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Colleen

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Everything posted by Colleen

  1. Welcome to the site. I'm also in the States and cannot imagine what you had to endure due to the COVID. During my time (12 yrs ago), my husband was constantly present except in ambulance and life flight. Doctors kept him constantly apprised of what was happening. These days I pray to not hurt myself or have any other reason to go to Emergency, the stories are so scary. I hate being a bearer of negative news, but recovering from SAH is not like getting over a cold or even a migraine. It takes time for the brain to settle down, heal, and feel better. As you've no doubt discover
  2. Hi Debbie, Welcome to this terrific site. You will find much of value here to support you as you recover. One thing to remember is that the brain does not care to be bathed in blood; it is irritating to tissues and it really has no where to go. The way it also seem to stress more easily. However< WE ALL ARE Different and your was explained to me is that it creates sort of a bruise. Anyway, the headaches do go on for awhile. I had a ruptured aneurysm and even after 12 years, stress will cause me a headache. I also seem to stress more easily and no dou
  3. Hello Phi;, I can't type much now due to some neurological issues (unrelated to SAH) but if you chase down these links I think you'll feel better: https://med.virginia.edu/radiology/2017/05/26/living-well-after-surviving-a-subarachnoid-hemorrhage/ https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0181006 YOU'LL FIND YOU ARE NOT ALONE FOR SURE!
  4. Hi Sallios, Your post caught my eye because we are also caring for an elderly parent (97) who displays mild dementia. She has been with us going on 3 years and with COVID we gave up hired aides and took on full time caregiving. Challenging under the best circumstances. Because I am science oriented, I couldn't help but search for peer-reviewed research on the dementia question. Like most things these days, studies have been done. One conducted using data on Danish stroke patients suggests slightly increased risk, but risk seems to decrease as years post-SAH increase. I wou
  5. I am going on 12 years out from the SAH and still have some nights where I am so fidgety I can barely tolerate myself. I really can’t say it is or isn’t related to the SAH, or some other neurological issue ( I have some pretty serious spinal arthritis). I agree with Tina that often it is related to being overtired. I use an herbal tea with Passion flower that helps. Colleen
  6. Congrats Andrea (late as usual). No pics of me in the hospital bed thank goodness, but there is a rather gruesome one taken post craniotomy. I'd much rather see your pics of the lovely scenery around your home. Rock on! Colleen
  7. Hello Vicky, So good that you found this site. Explore all the topics and you will see how many of us share similar issues and how, by sharing, we've helped each other. By all means don't wait to get counselling because PTSD and anxiety are common. Explain to loved ones that reliving the event causes massive anxiety and discomfort. Eat healthy. Drink lots of water. Be kind to yourself. Come here often to learn, to vent, to laugh, to cry. We're all in this together. Colleen
  8. Hi Iola, it is so nice to hear from you again, though I certainly wish for you to feel better. I do understand the quandary overly work. I am 11+ years on from my SAH and have been one of the incredibly blessed given the nature of the ruptured aneurysm. I was able to return to full time work, even changed jobs eventually and took more challenges. For the past year I've "planned" to retire about every other day. We took on my husbands elderly mother a couple years ago, have a menagerie of pets, and two houses to take care of. Sometimes it's just all too much. Maybe be
  9. Dearest Sarah, i had not been on in a bit and this is the first thread I came upon. I am so shocked and saddened for the loss to BTG but know it is nothing compared to what you and your family is enduring. Win has been such a bright light to us all, always ready with encouragement and so good at teaching us to laugh at and accept ourselves. She will be so sorely missed. Prayers of comfort for you and your family, including Tilly. It was so clear how very much she loved you all. Colleen
  10. Dearest Gem, it it is with such a heavy heart that I've read of your losses - first the tripping from SAH and then the final blow from this dread virus. Your poor dad an innocent victim unable to shield himself. There are just not enough words in my vocabulary to tell you how sorry I am. I so so hope you find solace in the poem Daff has shared and in good memories. I pray you will find comfort and that we all will move past these terrible times we are in. again my condolences to you and your family. With love, Colleen
  11. Thank you Daffodil. That was lovely, honest inspiration..and congrats on the eight years!, Colleen
  12. Hi Sarah, I can't imagine what you've been going through. I do not think I could be that patient waiting either. I truly hope you get the answers you need when you go in Monday and fully agree with Macca; do not let them have an inch! You are owed a full explanation of what is going on and all the options in full detail. I will keep you in prayers (belated Happy Birthday also, sorry to miss your day) Colleen
  13. I'm also in the USA. Following my SAH due to a ruptured aneurysm in 2008, I had a cerebral angiogram prior to release from the hospital. This procedure was repeated at years 1 and 2. After that, I had annual CTA scans for the next three years. I continued consultations with a neurologist until a few years ago, but had no more imaging. Colleen
  14. Dear Sunflower, Welcome to this wonderful forum. As has been said, you will find a wealth of information here. You do not mention whether your SAH was due to ruptured aneurysm or other cause. Regardless, two months out is very early in the healing process. It takes time for the blood to break down within the confines of the brain and that could be a source of discomfort. It's also not unusual to be scared and worried over ever small sensation. Best to check with your neurologist regarding all the possible short and long term impacts from the SAH and chances
  15. Hi Lori, i went through a ruptured aneurysm 11 years ago. For me, it came on after a morning shower; no exertion and no history of high blood pressure, though I had been under stress at the time. MasterCard, I also had serious anxiety. I found herbal teas helpful, just the process of making them and sipping them. Some have calming herbs as well - chamomile comes to mind. I also had a sweet dog that would lay against me and keep me company when my husband was at work. I remember being pretty limited at the time regarding exercise and reading gave me wicked headaches,
  16. Congratulations on the five years of progress as every year gives us a bit more comfort and advancement. Super congrats on the retirement and volunteering! Colleen
  17. Congratulations on this milestone Anni-versary Louise. And I also thank you for your thoughts today and for all you have shared over the years. I can appreciate your gratefulness for Ronnie as I too have a supportive husband who has helped me get through when I needed encouragement. May you and Ronnie be blessed with many more years! Love, Colleen
  18. Hi Carolyn, Congratulations on the progress you have made, never underestimate the significance of smallest achievements. In addition to Subs explanation I would suggest that following SAH our brains may have trouble adjusting to too much stimulation. I recall after my time in the hospital experiencing similar anxiety on the ride home. In my case it was cars and buildings streaming by as we were in a city. It's almost like a bit of phobia after being kept in semi- confinement. To this day (11 yrs now) I will become anxious in the grocery store when I am very tired becau
  19. Good morning all, hard to believe, but it's been 11 years to the day of my ruptured aneurysm. BTG has been such a blessing during this time. So, I get to go out and celebrate by having a troublesome tooth pulled. I debated the appointment date but there were no other options for the tooth and I need to feel better! Have a good day all! Love, Colleen
  20. Congrats on the fourth year and here's to many more years going forward! Colleen
  21. I had an aneurysm that ruptured and was coiled immediately. During assessment, a second aneurysm was discovered and was not a candidate for coiling due to its shape. Two months following the rupture I underwent a craniotomy during which both aneurysms were clipped for good measure. Hospital stay for that surgery was two or three days and I was back to work full time within the month. I had annual check up scans for the next four years to make sure everything was holding. My neurosurgeon is well known for his research, skill, and compassion. We cannot tell you what you should or sho
  22. Hi Yun, No trivial questions when it comes to brain surgery after effects. I also had clipping. The incision ran down my right side hairline. Don't want to be too graphic but scalp was pulled back and skull bone removed to get to where they needed to go. The skull pieces were repaired with "bondo", and these areas ache when the weather changes or I'm tired or stressed. As for the scalp, it was explained to me that as all the disturbed nerves heal, it would feel tingly or itchy or like something was crawling . That took a very good while to go away. Even now, 10+ years later, some
  23. LOL Casey, I got pretty upset when my neurologist told me part of my brain had died and I was being stubborn trying to fight my way through on my own. The meds he prescribed have helped but I keep the dosage low. I think just coming to grips with reality was invaluable for coping. Thanks for for the video Daff, I'm sure it will help many. Colleen
  24. Have you found Pediatric Intracranial Aneurysms on mc.vanderbilt.edu? It was published in 2010 but makes an important point about the advances that have been made in recent years. Also, just in my brief perusal, it appears that UCSF is a most excellent facility. You are blessed on that score. Best wishes, Colleen
  25. Well, I hit the ten year mark today. Overall I'm doing quite well, though last week I had my first major anxiety attack in quite some time. It was bad enough to send me to the dr, who prescribed better living through pharmaceuticals. Whatever it takes to keep on keepin on! Many thanks to all of you for this site and for making so many of us all across the miles keep from feeling alone. Love, Colleen
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