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Colleen

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Everything posted by Colleen

  1. Dear Sunflower, Welcome to this wonderful forum. As has been said, you will find a wealth of information here. You do not mention whether your SAH was due to ruptured aneurysm or other cause. Regardless, two months out is very early in the healing process. It takes time for the blood to break down within the confines of the brain and that could be a source of discomfort. It's also not unusual to be scared and worried over ever small sensation. Best to check with your neurologist regarding all the possible short and long term impacts from the SAH and chances of a repeat. In any case, you should be taking care not to stress or strain yourself to give your brain time to heal. Is help with the babies possible? If so, ask; people don't realize the impacts of SAH because you can't see them. As for being alone with the babies, is it because you're afraid you'll collapse or something? Perhaps a medical alert device would lend more confidence until you feel stronger. I know I felt scared sometimes being alone after my ruptured aneurysm, but I didnt have children to care for. I hope your family is there to lean on and that information you can glean from this site helps. Prayers for your recovery, Colleen
  2. Hi Lori, i went through a ruptured aneurysm 11 years ago. For me, it came on after a morning shower; no exertion and no history of high blood pressure, though I had been under stress at the time. MasterCard, I also had serious anxiety. I found herbal teas helpful, just the process of making them and sipping them. Some have calming herbs as well - chamomile comes to mind. I also had a sweet dog that would lay against me and keep me company when my husband was at work. I remember being pretty limited at the time regarding exercise and reading gave me wicked headaches, so it was tea, tv, and the pets. It just takes time to heal. If the anxiety is extreme, speak with your Drs. PTSD is not uncommon in SAH survivors. Best wishes, Colleen
  3. Congratulations on the five years of progress as every year gives us a bit more comfort and advancement. Super congrats on the retirement and volunteering! Colleen
  4. Congratulations on this milestone Anni-versary Louise. And I also thank you for your thoughts today and for all you have shared over the years. I can appreciate your gratefulness for Ronnie as I too have a supportive husband who has helped me get through when I needed encouragement. May you and Ronnie be blessed with many more years! Love, Colleen
  5. Hi Carolyn, Congratulations on the progress you have made, never underestimate the significance of smallest achievements. In addition to Subs explanation I would suggest that following SAH our brains may have trouble adjusting to too much stimulation. I recall after my time in the hospital experiencing similar anxiety on the ride home. In my case it was cars and buildings streaming by as we were in a city. It's almost like a bit of phobia after being kept in semi- confinement. To this day (11 yrs now) I will become anxious in the grocery store when I am very tired because of the visual overload - too many colors, shapes, labels and the other shoppers. then there is the fact that may of us has a degree of PTSD following the trauma, and rightly so. You may feel safer at home. Or , the SAH may have damaged a potion of the brain that controls fear.. You are still early on in recovery and will find things get better as you go. But, If these symptoms continue to bother you, speak with your neurologist. I waited way too long and could have alleviated much of my anxiety sooner. Best wishes, Colleen
  6. Good morning all, hard to believe, but it's been 11 years to the day of my ruptured aneurysm. BTG has been such a blessing during this time. So, I get to go out and celebrate by having a troublesome tooth pulled. I debated the appointment date but there were no other options for the tooth and I need to feel better! Have a good day all! Love, Colleen
  7. Congrats on the fourth year and here's to many more years going forward! Colleen
  8. I had an aneurysm that ruptured and was coiled immediately. During assessment, a second aneurysm was discovered and was not a candidate for coiling due to its shape. Two months following the rupture I underwent a craniotomy during which both aneurysms were clipped for good measure. Hospital stay for that surgery was two or three days and I was back to work full time within the month. I had annual check up scans for the next four years to make sure everything was holding. My neurosurgeon is well known for his research, skill, and compassion. We cannot tell you what you should or shouldn't do and the specifics of your case are unique to you.. However, I would suggest if you feel you have unanswered questions, you could seek a second opinion from another neuro specialist and go from there. Best wishes, Colleen
  9. Hi Yun, No trivial questions when it comes to brain surgery after effects. I also had clipping. The incision ran down my right side hairline. Don't want to be too graphic but scalp was pulled back and skull bone removed to get to where they needed to go. The skull pieces were repaired with "bondo", and these areas ache when the weather changes or I'm tired or stressed. As for the scalp, it was explained to me that as all the disturbed nerves heal, it would feel tingly or itchy or like something was crawling . That took a very good while to go away. Even now, 10+ years later, sometimes I get a sensation of numbness, usually associated with fatigue, stress or too much caffeine. But nothing like the early days. It does get better, slowly but surely. Colleen
  10. LOL Casey, I got pretty upset when my neurologist told me part of my brain had died and I was being stubborn trying to fight my way through on my own. The meds he prescribed have helped but I keep the dosage low. I think just coming to grips with reality was invaluable for coping. Thanks for for the video Daff, I'm sure it will help many. Colleen
  11. Have you found Pediatric Intracranial Aneurysms on mc.vanderbilt.edu? It was published in 2010 but makes an important point about the advances that have been made in recent years. Also, just in my brief perusal, it appears that UCSF is a most excellent facility. You are blessed on that score. Best wishes, Colleen
  12. Well, I hit the ten year mark today. Overall I'm doing quite well, though last week I had my first major anxiety attack in quite some time. It was bad enough to send me to the dr, who prescribed better living through pharmaceuticals. Whatever it takes to keep on keepin on! Many thanks to all of you for this site and for making so many of us all across the miles keep from feeling alone. Love, Colleen
  13. Congrats on your lucky 13 and thank you so much for this site. It's truly a lifesaver for so many!
  14. Good evening and welcome to this lovely site, First I want to commend you for your strong spirit and being so supportive. I always tell people that in some ways, the early days of the SAH was harder on my husband than on me. Despite a pretty serious bleed and a craniotomy two months later to fix a second aneurysm, I recovered pretty quickly. I do not have children, but I was back to work full time after three months. That said, I never have had the same level of energy and stamina that I had before the bleed. ten years later and I'm having one of those weeks where I've "hit the wall" and the least discord makes my brain hurt. And even though I've been told the chance of a bleed happening again is slim to none, I still have to deal with a certain amount of fear when my head hurts.. You mention that you' d be surprized if your wife had any "remarkable" cognitive changes. That sentiment is pretty common when one isn't bearing physical scars and is operating at a high functional level. A common directive from medical staff is to "go live your life" because after all, we are just so blessed to be here and able to walk and talk at the same time.. But as my current neurologist tells me, no one gets away free. Where there is brain bleeding there is brain damaged and that part of the brain had a function, whether it's controlling fear or anger or joy or memory or expression or attention span. And whatever that impairment may be, it's worse whenever the fatigue hits. Please continue to urge your wife to have an assessment so the best path forward can be planned for her. I stubbornly waited years before I sought help. Things still aren't perfect, but they are better. Just knowing I wasn't imagining the changes helped immensely. i can also say that I read posts on this site for a long time before I posted myself, so if your wife isn't comfortable with the idea of conversing yet that is understandable. I do hope she'll read though, to see that whatever she's experiencing isn't unusual for what she's been through and she isn't alone. Our hearts go out to you as you adjust to this new normal and we all hope you both find help and comfort here. Colleen
  15. Only your doctor can answer that for you. Each case is different. But I did find vitamins, particularly B complex, help with energy and stamina.
  16. I will echo Paul's advise and suggest you see a neurologist who can explain what area of your brain was affected by the bleed. Sometimes just knowing what area was impacted - and the activities that area controlled - will at least help you understand your actions and accept yourself. No one is worthless due to a medical event. And I can relate to having outbursts. Sometimes I just put my hand over my mouth and wait til I've thought a bit. I also take a mild antidepressant. I've talked to others who had this problem post-SAH too, so you are not alone. Colleen
  17. Hi Tara, welcome to the site. It seems no matter where we are, doctors have a tendency to just turn us loose after the SAH and repair of vessels ( if necessary). Kind of like " congratulations, you survived, go live your life". I know I had a brilliant neurosurgeon and interventional radiologist, but there was little to no discussion over what to expect after. I struggled for five years before I finally saw a neurologist who explained where my brain was damaged, what that part of the brain controlled, and why I felt like I had attention deficit disorder and memory lapses. There just aren't any freebies. Your mom has damage. She has blood that has to dissapate ( like a large bruise on the brain) and probably still has some headaches that affect her will to get up, or eat, or visit with family. My best hours after I came home were laying on the couch with my dog Annie, bless her heart. So do not delay in getting your mom to a neurologist. Most GPs simply don't have the level of training to help with this. Beat wishes to you. And remember to take care and time for yourself. You cannot help mom if you are all a frazzle.. Colleen
  18. I would be interested in the source of that quote. Thanks. Colleen
  19. Hey Darcy, So not quite two months yet since the SAH. He will steadily get better. I was back at work within three months but mostly was doing desk work and did not have complications from the bleed. And I wont lie; fatigue was an issue for a long time. Just keep his dr apprised of his recovery status and try not to stress. I'm guessing if you're mowing you are down south somewhere. Learn to use the mower, it's great relaxation! Seriously, I know it's hard but he shouldn't stress about the grass. Priorities, you know. The main thing is getting better. Prayers for you, Colleen
  20. So good to hear from you Iola and congrats on the 5 year anniversary! You've made great strides along the way. Moving on to the ten year mark myself and you are very correct- we are never the same as we were before. However, the BTG site is excellent proof that we adapt brilliantly. You go, girl!
  21. Hi Stephen, As all have said, you don't just get over an SAH like you would a bout with flu. I'm wondering if perhaps you started feeling better and then started doing more, perhaps having a set back. I know it's frustrating, but you really must allow time for healing. Stamina takes a long time to come back around and fatigue often results in headache. As others have said, see your dr about symptoms that concern you. Best wishes, Colleen
  22. Hi Darcy, I'm sorry to hear about your husband. As others have said, it takes time for the blood to break down as it has nowhere to go. The way it was explained to me is that it is like a bruise; the blood has to degrade, but while it is present it is an irritant to the brain tissue. And I know when I had the headaches, I often felt nauseous. My dr actually suggested if I normally drank coffee to go ahead and drink it since caffeine withdrawal could aggravate the headaches. That said, I drank a lot of water and herbal teas after I came home. It will take awhile but hopefully he'll feel better soon. Colleen
  23. Well I'm a bit late to this party, but I do congratulate you on your accomplishments and joyous attitude. ( and I too would love a cleaner). May you have many more journeys and adventures. Happy Trails! Colleen
  24. Congrats, Casey and so happy to hear your recovery has been so outstanding.. Always uplifting to hear when others are doing well! love, Colleen
  25. November 1 marked the nine year mark for me! I meant to post that day, but between newish responsibilities at work and a newish wild and crazy dog that gets me up way too early for walking, I have a hard time keeping my eyes open at night. I got to celebrate the day with a 4 hour conference call in the morning and a 1.5 hour meeting in the afternoon, which I had to spend an hour driving to and from! So I guess you can see I've recovered fairly well. Even so, I still find great comfort in the posts that remind me my lingering sensations and memory issues aren't just my imagination. While I dont post as often I inwardly celebrate all your victories large and small and sympathize and pray over set- backs and hardships. I am very thankful to have this family to come to. Much love to you all, Colleen
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