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momo

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  • Content Count

    415
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momo last won the day on June 24 2016

momo had the most liked content!

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About momo

  • Rank
    Member

Profile Information

  • Gender
    Female

Converted

  • Location
    uk
  • SAH/Stroke Date
    SAH 2008

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612 profile views
  1. Sorry to hear this Paul, thinking of you.
  2. momo

    wow!

    Bit late but congratulations Louise.. 17 years that really is Wow..
  3. Hi Verna I also had a lot of fear early in my recovery but with each day, as you get better, the fear will subside. Try to replace the fear with positive thoughts and definitely talk to someone about this if you can. You'll get through this, you have come to the right place, tell us a little bit more when you feel up to it..
  4. Hi Jen. I had extreme anxiety and restlessness when I first got out of hospital, I spent a month in hospital, a short time in rehab then attended rehab as an outpatient. It was there I was told that sleep was actually the best thing for this. But how could I sleep when my brain was racing just as you describe? A consultant then prescribed medication for me to take for a month (long time ago so don't remember what it was). Did the trick and I could sleep again and my recovery then picked up. Good luck and hope he gets some help with this.
  5. Hi Jan. I too have an untreated aneurysm that is being monitored ( I also have another blip, not an aneurysm). I had a consultation last year regarding this aneurysm and the outcome was that they put it at very low risk and that they didn't recommend treatment. It's very small in a relatively safe area(if there is such a thing!) and the risk of rupture is just 0.1%. They first discovered it when I had my original bleed eight years ago. It has been scanned several times during the years and it hasn't changed at all. But what they didn't know was that I had already decided no more surgery for me...seems strange I know but I just couldn't go through it again.. If however this aneurysm had changed drastically had become unstable and the risk of rupture had been much higher say 10 - 12% then I would have gone along with what they would have suggested. As long as there is a 99'9% chance of nothing happening I'm happy to be monitored and take those odds. (Add on to this the fact that I'm a complete coward and the thought of anymore surgery terrifies me..) So although they made the decision for me I had already decided before I even walked through the door. Good luck with it all Jan get all the facts and try to make the right decision for you..I understand completely how you feel..
  6. How are you? Such a difficult one to answer in the early days of recovery..I used to fight back the tears and couldn't really answer.. I think 'there' is where you where before you had your SAH, I didn't quite get there but I'm near enough to be happy with what I have. Always keep in mind that people don't really understand this and they struggle to say the right thing. Take your time you'll get there.
  7. I was the same Nicola and it took me a long long time to go out on my own. If you can go out with someone then have them leave you for a few minutes then perhaps build it up. I got counselling too helped a lot. There will be a reason why you are feeling like this but it all takes time to come to terms with what has happened and to realise it won't happen again. It's a good feeling though when you eventually do go out on your own...don't rush things though , all in your own time.. Good luck
  8. Hi Clare, I found my appointments with my psychologist helped me a lot. I think its good to know exactly how this has affected you and the reasons why, which part of the brain has been affected for example. My appointments were broken down into shorter visits as like you I couldn't really cope with the longer sessions. I also found this really tiring both physically and mentally. I found these sessions were in themselves quite stressful. Mine(assessment) took place about 4 or 5 years ago and my memory of it all is a bit sketchy now. I do remember getting my results and I was quite shocked as I thought I had done really well but I hadn't. Stressful situations still affect me now, its important that people around you understand this. There are coping mechanisms but sometimes these are not enough for me, we are all different though and we have all affected in different ways. You are doing really well Clare and look forward to hearing more from you. Good luck and if your psychologist is good she should be able to help you a lot.
  9. Hello Jan it's so good to get that first year over with. I think it was a defining moment for me and I finally believed I was going to be OK. Wishing you well on your continued recovery..
  10. Life is amazing Carolyn hope you do something nice to celebrate your Two years...
  11. Enjoy your day both of you..finally we have some good weather!! I don't know the story either Subs but may have forgotten..Have a good day.
  12. Hi Greg I think recovery time is dependent on the extent of your bleed, I still feel I'm improving nearly eight years after the bleed. I also had an EVD and was told I developed an infection. I don't remember any of my month in hospital. Are you thinking there may be a connection between EVD / infection and recovery? If so that's something I hadn't thought about. I would ignore any timescales they give you for recovery I think they only serve to disappoint when things don't happen fast enough. For me recovery has been ongoing.. It's always good to find out as much as you can.
  13. I truly hope that from trauma whatever shape or form that some people can find a positive, an inner strength, a better understanding of life, a greater sense of purpose..all of these things. For me though I think there are too many factors that will determine whether you have a good outcome (mentally) or not. Lets take illness for example as that is what we have all experienced. I think it all depends on how badly you have been affected, how good your recovery has been, how much you can do, how much you can't do. How much you feel you have lost and how much you have gained. Recovering from an illness such as ours is so complex for each individual someone who was outgoing and gregarious might suddenly find themselves withdrawn and quiet. A quiet person might suddenly feel they are going to take on the world just go for it. Then there is everything in between. I think its down to the individual person and how they want to change their lives now. I think some people gain some sort of inner strength but I think there are an awful lot of people who don't it might simply be down to someones personality such an individual thing. A good little article Daff but for me it might just be hokey (love that word!)... Talking of words Daff what's the 5 * word you have blanked out??
  14. 1. I went completely deaf. 2. Couldn't move my head or neck extreme pain. 3. Managed to get to reception(was at the gym) asked them to call ambulance as pain was so bad. Collapsed within 2 minutes of pain starting.
  15. Sound like you have turned a corner Gilly. Took me a long time to shake off the doom and gloom. I think I spent the first year or so saying why me? Just couldn't come to terms with this terrible thing that happened. But now I'm just grabbing this chance at life really. Staying positive is the driving force...now instead of saying 'why me' I just think Phew I've been so very very lucky!! Take care Gilly.
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