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Paul

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Everything posted by Paul

  1. Done it cold turkey no more meds, less pain ,confusion and tiredness. I understand this is frowned upon but I had to try to take control of my life again, I was losing everything Just trying to build my relationship with my wife now............ Hope it's not too late. I seem to see life in a different light now, nothing seems to matter anymore like worrying about things, If it makes me or others happy then that's good enough. Thanks guys
  2. Ok thanks for all the responses to my dribble...... I've decided to come off my Meds as I've read a lot of bad things about them and they could be creating More problems than they solve. Hope to find my old life out there somewhere waiting for me to return to it.....! I'll let you know how I get on.
  3. Both my wife and I were self employed, and life was nice/comfortable, we were never well off, but managed by, my wife was pregnant with our son now ( 4 boys & 5 girls ) due in January 2014. I had my hemmorhage on the 02/01/2014 and our son was born 04/04/2014 with trisomy 21 ( Down's syndrome). After my illness I ballooned in weight, don't think the pills help, I joined the regional gym but I've never had the mental or physical energy to go. I Have never returned to work due to memory problems & fatigue, my wife has also given up employment and is now carer to our son and myself. We gave up the house we lived in for many years for something more manageable, so you ask how she is coping, her life is unrecognisable. We had a talk which was strange, she told me that she has needs that I can no longer for fill and doesn't except that itch to go left unscratched......I suggested toys but she needs more, I don't mind now I understand it's just the emotional aspect of it on us. I need to know viagra and my inoperable condition could it kill me or can it help rebuild neurons in the pathways of the brain as well as the other benefits, I've read about both and willing to take the chance with online pharmacies and just try them and see, but she does not want to chance it. We have no family and only a few friends.
  4. Hi, so far life has been a nightmare for me, been told initially I had a small to medium bleed. My new doc has seen my files and says I'm lucky to be here after my massive cerebral bleed which is inoperable, I still have lots of pain daily and take Meds 3-4 times a day but the Meds leave me done in, most days I'm not worth a **** I get up take pills and then sleep for like four more hours, most days I can do nothing of any use to my wife or household, even the easiest of tasks can wipe me out. Since my bleed in Jan 14 my wife thinks I'm taking the **** and just being a lazy ######, she now also thinks I no longer find her attractive as its been over 2 years since we had sex, the truth is it does not work anymore SORRY moderators but this is a major issue for me......my doc says not everything is fixable with pills hoping for viagra My marriage may not last much longer as my wife says she needs more than a lodger, she has sent me out the house just the other month, but I'm not entitled to anything ie: housing or money as I do not claim for anything and not in the system, we have been married for 20 years and I'm just not that guy anymore....... Lost with no clue Paul
  5. Well, still here no more bleeds in the head, 2 was quite enough I think. No word from the docs or the hospital......is that a good thing, they did say they would keep an eye on it, I think not. Anywhhoo still on my meds 600mg Gabapentin, 60mg codine phosphate & 1000mg paracetamol 3 times a day. That only works some days, the pain needs to get let out, which leaves me in bed unable to cope with the day until the pains gone, usually between 6-9 at night. The rest of the time I spend sleeping my life away on the living room chair, I do try to do things but I end up useless at it like I've never done it before. Ie: hanging a curtain pole, stapling a cable or painting a wall. I feel completely useless, and as for any how's yer father the misses now has a bed sharing flat mate.............any advice gratefully accepted. Ta Paul
  6. Hi Karen, yeh that would be an idea, just delete my first account for mePaul
  7. Tried that, but apparently "That name is already in use, please choose another" mmmmm some ****** ha stolen my name, oh wait a minute that's me. Lol
  8. Ok, how many of us have survived a massive bleed to the brain and are totally normal........ Or is still having pain as a reminder of what we've been through the Normal we need to deal with.......? SAH 04 Jan 14
  9. Ok Paul Cummings is me I thought I logged back in, but I'm now 2 people on here and can post on my posts That's just about the way my head sees it too lol So Paul is Paul Cummings
  10. Wow, managed to get logged back in........passwords are a nightmare, it's been 14 months since my SAH. Seen my initial scan, massif bleed from the rear of my head, which filled most of my head with blood.! Told the wife it was a small bleed lol but she was due very soon so played it down I think. I have been left with very sharp spicking pains in the head, along with constant headaches every day, memory loss and extreme tiredness Meds have been changed again, now off the Anitriptyline woo woos and now on a much less drowsy med Gabapentin 600Mg 3 times a day along with Co-Codamol 30-500Mg 3 times a day. Pain seems to be managed, but just covered up the pain still remains underneath and likes to be the boss at least once / twice a week. Not been able to drive while taking the Anitriptyline so hoping to get back to that soon. So the main problem was a huge bleed from a berry type anurysm in deep at the brain stem, a very unusual place and tricky to get to......so just been keeping an eye on me with various scans...another due soon. PIP was awarded at low rate care and low rate mobility to be reassessed September 2016 Glad to be here and trying to be calmer and enjoy family life.
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