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sallym25

Members
  • Content Count

    191
  • Joined

  • Last visited

Community Reputation

36 Excellent

About sallym25

  • Rank
    Established Member
  • Birthday 02/08/1963

Profile Information

  • Gender
    Female
  • Location
    Cumbernauld Scotland
  • Interests
    Sewing Sudoku and gardening.

Converted

  • Biography
    49 years young, mum of two teenagers.
  • Location
    Cumbernauld, Scotland
  • Interests
    Sewing, sudoku, shopping! email sallym@hotmail.co.uk
  • Occupation
    Trainee millionaire!/ part time butchers assistant.
  • SAH/Stroke Date
    19th June 2009. clipped on 22nd

Recent Profile Visitors

607 profile views
  1. Happy Birthday Sally  xxxxx

    Win xxxxx

  2. Hello again Kerry, After my SAH the opthalmologist said I had a full left side out. After getting home and actually realising I had some vision missing I "tested" myself on a regular basis. ( over and over every day ). When I eventually got my next consultation with them I immediately told them I thought this need updated to quadrantanopia. They agreed to that as soon as the field test was over. I hope this is uplifting info for you and that yours will improve in time. I should say however that now, after having been refused my licence on my last application, I have recently tried the field test Chloe sent on her link.( I admit to trying to fool them in the hospital tests ). While testing online I decided to be true to myself and not try to cheat. Unfortunately it looked like the hemianopia diagnosis may have been right after all. So great you've got your licence back though. It gives me hope for my next try. Take care Sally x
  3. That's just brilliant news Kerry. You've made me sit up and take notice. I now plan to reapply. I think I will contact a local council representative to try to have any assessments in less crowded places too. Well done you.
  4. Hi Kerry, Welcome to the forum. I too have my upper left quadrant gone. It's been almost 5 years since they took my licence from me. I was sent for a DVLA assessment which I failed miserably. I do think it was more due to cognitive issues rather than my visual loss though. That and the fact they made me do it in a city centre. I held my licence for 25 years, no accidents or points at all and I never drove in cities as they made me too nervous. I am so angry that they wouldn't let me do it elsewhere. We have two driving test centres within a 15 mile radius of our town and I find it really unfair they will allow new drivers a licence for testing in those areas but not me. Do they honestly think anyone would drive if they were uncomfortable doing so? I am very interested in hearing about this private assessment you had. How much did you have to pay for it and who would I contact to get one? thanks Sally.
  5. Hi Chloe, I have replied to your pm but forgot to mention that I asked for the results. They printed an extra copy out for me. You can see all the bits you've missed just like the the opthalmology one, but you can't tell from it how the DVLA will rule it as we don't know what their requirements are. As you know, due to your loss being homonymous, one eye won't be covering for the other. Let's hope the area is small enough to meet the criteria. Good luck All fingers crossed on that day Ladies!! Sally
  6. Hi Tricia, I'm in Cumbernauld and was clipped at the Southern 4 years ago now. I haven't heard of this place but I do know that our nearest Headway centre is also In Wishaw. Perhaps they are connected. Sorry not to be of much help to you. Sally.
  7. Hi Juliette, I lost approximately 25% from my visual field in both eyes. It's been just over four years now and I still have lots of trouble managing with it. Only last week I had an 'episode'. I was on holiday and had to have four attempts at crossing a road. If my husband hadn't shouted to me each time I tried ( I did look both ways lots.. I thought ) I would possibly not be here now. People don't seem able to grasp the fact I can miss things even when I look in that direction due to the blind bit following my eye movements.
  8. Hi Bev, That would be me. you're definitely not alone, I get deja vu feelings every day. I have had this for quite some time now, but only mentioned it to my doctor a few months ago after one such episode lasted longer and resulted in me finding myself flat on my hallway floor. I do believe you posted that week saying you had a seizure on the very same day! As soon as I mentioned it to the doc he arranged for me to visit the hospital where he said I would have an EEG. When the appointmenet came round I wasn't given one but they said it's almost certainly Epilepsy. I am now on 75mg of Lamotrigine daily and due to see them again in May. I do still have the deja vu regularly but they are definitely shorter. ( a split second only now) I hope you get this sorted out soon. Do tell the doctor. Good luck with thew Angio and surgery. Keep us updated with your progress. Sally xxx
  9. Hi again, sorry for the delay in replying here. Had a sickness bug the last couple of days. Penny, I haven't heard of business link, but will look it up online. I did, at one time contact the 'Business Gateway' which I guess could be the scottish version of the same thing. I didn't go ahead with things then because they talked about me having to do business plans and market research! All I had planned was to advertise my sewing services and hopefully have calls flooding in. As for the Jobseekers allowance, I worry that if I were to claim that, It would imply that I'm agreed that I have no Limited capabilites. My main grudge is that they are not recognising just how limited my working prospects are affected. ( If the shop was not owned by a family member, I am 100% certain I would not be still there.) I know I can do sewing from home ( I know I could also do it in the factory where I was learned it, but unfortunately they have no availability as yet. )as there would be absolutely no distractions there. There are not many jobs where this would be the case. Thanks for your response. sally xx
  10. I need help here! I would love to say Well Done Gill... but.. I too have appealed against failing an assesment and ( without having the added stress of having to attend tribunal) on second thoughts, they found 'in my favour' and placed me in the WRAG group. However.. it doesn't give us any financial help and I'm really really feeling it now. 6 months later I am forcing myself to keep up with a 15 hrs a week job, running a household with two attitude fuelled teenagers ( neither of whom are earning ) and trying (quite unsuccessfully) to find motivation and energy to stay positive! I now know I can do work. I really need something that I can do uninterrupted and I would manage fine. I just wish they would help me find something and allow me to manage financially during the hunt. I am certain I can sew well and alterations or curtain making would be perfect for me. I would love to start my own business doing this but am so scared of all the legal stuff that would go along with it. I can't get my head round understanding it all and thiis is seriously holding me back. Gill, I would love to say well done, but I just feel this is a 'get out ' for them to shut us up. sorry babe.
  11. Hello everyone, Just thought I should update you all on the benefit 'fight'. I gave in! They did agree I have "limited capabilities for work". However they put me in the 'wrag' group. No money for me then. That was approx 6 months ago. So why have I never heard anything about any work related activity? I have had NO correspondence at all from them since. As the money had been stopped since April and the furniture shop was closed I was feeling the pinch big style! I Did enquire about appeal and managed to up the butchers shifts from 10 hrs a week to 15. However, when I approached the local welfare rights people for help filling the forms, she informed me I cannot appeal as I am only permitted to earn £20 per week while claiming. ( on 15 hrs I am earning 90 ) They take soooo long to respond to claims that I simply cant afford not to do the 15 hrs. I am not finding it easy either. Even after a short 4 or 5 hr shift, I need to sleep for a couple of hours in order to find the energy to make meals and do chores. I have been so frustrated with the waiting times on the telephone and the fact that every time they did get in touch, they gave me as little info as possible and advised me to call if I had any more questions. I seemed to be spending all my days in the queue for hours and then being told call back later and cut off. Unacceptable! Hope you are all having better luck than me. Sally. x
  12. Hi Mary, This thread will hopefully help me out too. I have lost the upper left quadrant of the visual lfield in both my eyes. Three years down the line, I still query whether my moments of confusion are down to cognitive difficulties or just because " I didn't see that!". I often wonder if I am still in denial there. I am very very lucky in the fact that I rarely have any head pain. Reading is often difficult and I know the vision I do have is quite bad. I also have glasses for reading, distance and intermediate also. It's a nightmare having so many and I spend much of my time frantically looking for the right pair and chopping and changing them. Like Vanessa I hope to have varifocals soon. My eyes revert to double vision as my mind wanders but I can personally sort that out by just concentrating more. I've been visiting a cheap optician and as I have astigmatism now, I think there's a possibility he's not getting the angles right on my prescription, I have to permanently tilt my reading ones in order to stop the text doubling up and overlapping itself:shocked:. The only time I find lights to cause me problems is if I'm in the car in the dark and oncoming headlights ( being on the side I can see ) seem to overpower my full vision and blind me. I then have to liook further to the left in order to have the road in "front" within my field of sight. Again this will be just down to the missing area and not cos I'm " cognitively challenged". I love to read in bed. Hubby usually sleeps early and I'm not very hi tech with kindles or ipads so I have a ( don't you laugh at me now) light on an elasic which I strap round my head to point at my magazines. The family have a field day teasing me about this and I must admit It does look a bit strange. :redface: Sometimes I forget I have it on and will look around the room and "accidentally" point it in his face or at the mirror ( reflecting back all over the room).
  13. What a Perfect situation that would be! Is there someone we can approach to gather information and campaign for this ? Ps.. I nominate Penny, Michelle, Lynne and Daffodil to be the BTG commitee if there's a fight to make this happen! pps, my attempt to quote Michelle did not work out to plan. I will ask the children to show me how to do that.
  14. Carl, Thank you for posting this Poll for us. I am still not driving after 3 YEARS:frown:. Tha DVLA insist I should do my assessment in the city centre. Edinburgh or Glasgow are my only two options. Although I do agree these assessmants are neccessary, during the 22 years I held my licence I avoided driving in such places due to the discomfort and nervousness I felt on unfamiliar and overcrowded roads. I am curious to know how many others out there (with or without the added stresses of SAH) do exactly that. Do the DVLA not understand that Joe Public will not likely do something which causes such distress. How many folks who can't swim would ever jump off a boat?, but it wouldn't stop them paddling in the sea!!! A Poll of Licence holders who willingly avoid driving in certain conditions would go a long way to help me try to make them see sense and allow assessments to be carried out in the towns with everyday testing centres. Thanks again for your help. Sally xx Ps, Daff, I'd apply now. It took them over a year to refuse last time I applied!
  15. [ Fortunately for me the Co here are aware of the problems this causes & are doing telephone appointments where necessary. Sorry if I'm being stupid Gill, but can you explain who the "Co" are? Thanks Sally x
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