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Magal

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About Magal

  • Birthday 02/06/1953

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  • Biography
    Female, Married, Two grown up children.
  • Location
    Hornsea, East Riding of Yorkshire
  • Interests
    Walking, Cycling, Playing Electric Keyboard
  • Occupation
    Can't work!!
  • SAH/Stroke Date
    13th April 2010

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  1. Hi all Maggie here. Sorry to have left it nearly 12 months to come back after joining but I've been trying hard to forget what happened & put it behind me but it just won't go!! To bring things up to date - following my SAH last April I had a fairly reasonable recovery period during that lovely warm summer. However, following a scheduled MRI in September, it was decided I needed more coiling because the neck of my aneurysm was pretty big & the blood was trying to force it's way past the coils. I went back into Frenchay in November for about four days and since then I've felt worse than ever! Whilst I'm lucky enough not to have any visible physical disabilities I suffer from almost permanent chronic head pains. For almost 12 months I tried to fight it with paracetamol & codeine but nothing seemed to work. Things got so bad that I just wanted to end it all and my GP started to treat me for depression but the side effects from the pills made me feel so bad that she stopped them again. I returned to Frenchay a couple of months ago to see my consultant & he says the head pains are coming from damaged nerve ends on the membrane surrounding the brain. Because I had such a large bleed, and blood is an irritant when out of the veins, the nerve ends are giving out the wrong signals. I've now started on a course of Gabapentin which is supposed to work on damaged nerve ends but again I'm struggling to see the benefit past the side effects. Some days are worse than others but I'm getting really uncomfortable joint pains & backache (all of which are listed on the leaflet with the tablets) and at times the head pain seems to get worse. The only time I have no pain is when I'm sleeping!! Everybody keeps telling me it's early days yet but just how long is this going to last? I'm trying so hard to get on with life but I'm beginning to think that it's never going to go away. I've been put on the waiting list to see a neurologist for some counselling but I can't see how talking about it is going to help. I know the physiology is all OK (I've had five MRI scans so far including one just last Thursday) but it's little consolation with the pain! Is there anbody out there in a similar situation this far down the line??? Maggie
  2. Hi Maggie (great name!), Liz & Bogbrush (another great name!!!), Thanks for getting in touch. It seems I'm doing the right things. I've been to my GP twice since leaving hospital for blood pressure checks & general chit chat about my situation. He suggested the same as you Liz - don't wait for the pain to hit hard but take paracetamol as a matter of course for a few weeks to give me some respite and help me sleep. As for the water, well - I'm drinking gallons at the moment (good job we live in a bungalow & the loo is close)!!!! Can't seem to get enough of the stuff so I'm definately hydrated. I realise it's early days and I'm probably getting frustrated because I've always been a fit, active & healthy person so these last few weeks have been really hard to accept. But ...... it's happened and I can't change that so I've just got to look forward to the future. Life is for living and I won't let it beat me - I just need to adjust I guess!
  3. Hi all My name is Maggie Chapman, I live in Yeovil, Somerset and today is my 57th birthday! Although I haven't written my story yet I will give you a brief background as to why I've joined. I suffered an SAH on the morning of Tuesday April 13th this year and thanks to the speedy reaction of my work colleagues, the local ambulance service and the fantastic neuro department at Frenchay Hospital, Bristol I survived to see this birthday!! My aneurism was fixed by endovascular coiling on the Wednesday and 17 days later I was released home to the care of my husband (what a nurse!!) along with a pile of painkillers etc. Apart from periods of real tiredness the one thing I am finding hard to contend with are the headaches. Whilst I don't get them all the time when they do arrive they really get me down. Paracetamols help to a degree and I have the backup of codeine if I feel they're really necessary but what I want to ask you all is - how long am I likely to be like this? I can tell from your posts that I'm not going to ever really get over this thing completely but I hope this headache thing will pass. Please let me know how you all got on and what I'm likely to expect. I realise everyone is different but I want to have a positive outlook on the rest of my life. After-all, I've been given a second chance and I want to make the most of it! I am really pleased to have discovered this site; my one real concern was not having people who have suffered similar to me to talk to. There doesn't seem to be any local groups that I can find and I suppose the power of the web will let me speak to a much wider audience. I look forward to hearing from you and will write my whole story when I feel more up to it. Maggie
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