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Everything posted by subzero

  1. Hello Jo-Anne and also a warm welcome to BTG from across the waters. Glad you are finding the site helpful. Headaches is one of the debilitating side effects post SAH. Everyone is affected differently by the levels of severity. You will find that increased stress, not keeping hydrate with plenty water and lack of rest throughout your day my have a baring on how you are affected. Don`t hesitate to contact your medics to get peace of mind. Looking forward to hearing more about you progress in the days ahead. Please feel welcome to visit the Green Room where you can take part in the daily banter. There is always something there to make you smile and take your mind away from living with SAH recovery. Subs
  2. Hello Perry … and also a warm welcome to BTG. It is only right that following such a dramatic and invasive operation, you are filled with anxiety, uncertainty and looking for more answers. The earlier comments explain early discharge well. Very little comment and next to no advice. But as they say …. the extremely delicate procedure has been carried out and the Medics are happy with the result or you would not be discharged. Cases of serious problems arising immediately following discharge are in a minority. However as Michelle highlighted, your brain has been subjected to serious trauma and even at discharge, no-one can tell how this will play out as you slowly recover at home. Problems such as fatigue, headaches, memory loss, frustration and irritability, personality issues, reduced sight and difficulty when in crowded noisy places, are but a few of the many post SAH issues. Everyone`s bleed is unique and everyone is affected differently. Reading the various BTG Forum threads will help you greatly in the days and weeks ahead. If you have been in employment.... do not attempt to return to full time work too soon. It is better to take these early months to recover than to return too early and be faced with failing to cope with the job you used to perform with ease. Please don`t be afraid to talk openly to your family about any fears you encounter. Remember they too are to some degree in shock, as they are so uncertain as to how best they can help you. The bottom line is that you are perfectly in order to make contact any time with your consultant to allay any fears. Best wishes to you and your family in the days and months ahead. Subs
  3. Hi Andrea and also well done 4 years after your SAH. Hope all goes well with your follow-up scan next week. Always great to read your posts throughout the year. Thanks for your valued input to BTG. Take care and best wishes as you continue living and working post SAH. Subs
  4. Karen, also a huge well done 14 years on. As a post SAH Carer of over 8 years, the support from the Mods and members of BTG were undoubtedly a major help in Mrs Subs and myself dealing positively with Mrs Sub`s recovery. We had been struggling until Winnie directed me to BTG 4 1/2 years ago. We will always be in BTG`s debt … thank you so much. With over 3,200 members and so much of value within these forums … thank you for having the vision and dedication, given your own struggles with recovery. Subs
  5. Hello Jean …. you probably have already checked the comments on the RCVS link ... https://web.behindthegray.net/search/?&q=RCVS&page=1&search_and_or=or&sortby=relevancy Subs
  6. Hello Yun, and also a very warm welcome to BTG. Glad you are feeling positive nine months after your bleed, and well done for getting back to full time employment. Always be watchful for early signs of fatigue as you go about your daily work and home life. Listen to your brain and body as stress and over work can hinder your recovery. Don`t be afraid to take that `time out`. The following links may be helpful and to find further threads concerning `itchy scalp` simply key `itchy scalp` into the search option at the top right of the welcome page. https://web.behindthegray.net/topic/5917-strange-feeling-over-my-head-3-months-out/?tab=comments#comment-109687 https://web.behindthegray.net/topic/5917-strange-feeling-over-my-head-3-months-out/?tab=comments#comment-111004 https://web.behindthegray.net/topic/6138-questions-about-head-tingling-and-eye-pain/?tab=comments#comment-113464 https://web.behindthegray.net/topic/3057-after-a-subarachnoid-haemorrhage/?tab=comments#comment-41898 Well done so far and please keep in touch about your progress. Subs
  7. Hello and a warm welcome to BTG. You are among friends who sympathise with your anxieties and concerns. It is a fact that when you are discharged from hospital, the medics can offer some general advice on how to face the future, however they simply do not know in detail how the bleed trauma has affected your brain. This only becomes apparent to you and your close friends and colleagues as you attempt to get back to 'normal' . There are so many real life experiences shared within these Forums and I am sure you will be encouraged as you face the ups and downs of recovery. Take care and please don't hesitate to share your concerns. Our members will be eager to help. Subs
  8. Hello Heather. I noticed that Emilia Clarke of Game of thrones fame was on our BBC Breakfast programme this morning I m sure Rebecca would identify with her having also had SAH trauma at a young age. https://www.newyorker.com/culture/personal-history/emilia-clarke-a-battle-for-my-life-brain-aneurysm-surgery-game-of-thrones Subs
  9. Hello Heather, also thanks for sharing about your daughter Rebecca 4 1/2 years on. It really is so uplifting to learn how she has adapted and done so well in her studies. Achieving her degree with 1st class honours and then getting that post at the RVI must make both of you so proud of her resolve and determination. We all know how much support she will have needed during the early years …. well done to you and your family . Wishing Rebecca every success as she settles into her working life while also coping with her SAH recovery. Subs
  10. Well done ….. never give up `fighting` to improve your quality of life. Subs
  11. Hello Mandie As we often comment …. there is a wealth of information within the various forums of BTG. The link below is from page 10 of the NASAH forum. I am sure you will identify and sympathise with much of the very detailed comments made by our members all these years ago. Apologies if you have already read this thread. Subs
  12. Hello and thanks for your comments. Relentless pain is so debilitating for your hubby and so hard for you as you feel helpless to offer any relief. As Jess comments, definitely continue to check with your medics. Also, as it seems to be worse during the night, has he tried sleeping in a more upright position. Elevating him with these longer `V` shaped pillows is worth considering. Subs
  13. Hello, and also a warm welcome to BTG Great to hear that you are already finding support from reading the various threads by our members. So glad that your hubby is now home. I am sure that your own profession will be of great benefit as you help him in his recovery. It is very early in his journey and the very nature of SAH means that only over these next few days and months will you both begin to discover the damage caused to his brain by the bleed, as the after effects begin to become apparent.. Prepare yourself for the highs and lows along the way. Please ensure that you take care of yourself too. It can be easy to overlook that your own health is beginning to suffer in your attempts to give dedicated care to your husband. Take time out and talk often to family and friends about progress. Eat and rest well. I trust that your own employers are being sympathetic in these early days and giving you the time you need to rearrange your lives. Well done for ensuring that he received the medical support he needed when you found out the decision had been made to cancel his trip to Sydney. Your desire to give hubby whatever it takes in terms of support will not go un-noticed and he will thank you in his own time. Take care and thanks for sharing. Subs
  14. Hi …. If you utilise the site `search` function at the top of the Homepage you will find the information available on sight issues post SAH. https://web.behindthegray.net/search/?q=eyesight Subs
  15. Hello and a warm welcome to BTG. You are among friends, and you will benefit from shared experiences as you read the various Forum threads. Great to hear you are feeling positive about your progress. It is always a benefit when you feel you can share what happened to you, and smile about the issues that you have to contend with when with work colleagues and friends. You say that getting plenty sleep is so important to you. Fatigue is definitely a prominent feature post SAH. Learning to pace yourself well both physically and mentally can make such a difference as you recover. Also make sure that you drink plenty water. Keeping well hydrated is so important. We look forward to hearing more from you in your SAH journey. You mentioned your sight issues. Some members experience varied problems with their sight following their brain trauma and partial and full recovery can depend on the nature of their trauma. Wishing you well over the coming months. Subs
  16. Hello Michelle ... Also a big WELL DONE five years post SAH, and thank you so much for sharing your journey with us along the way. You have shown that life doesn`t stop at SAH, and at the same time as you have to deal with recovering... there are always life issues that make these extra demands. These are tough enough for healthy people, but can be an immense challenge for all you BTG survivors. Michelle I am sure everyone of your posts help someone in some way. All of us will have known a parent, a close friend or a work colleague who has passed away. We all have plans for that holiday get-away. We all want to be able to bake or at least eat the nicest cakes in the world. Many of us are animal lovers … and most of us are in relationships with their ups and downs.... You have given us an insight into how you have faced them all and you have not given up. You have came a long way …. keep on keeping on. Subs
  17. Thank you Karen for sharing that heart felt tribute to Cassandra from her husband. Neil ... our thoughts are with you and your daughter at this difficult and emotional time. May you receive the support and encouragement from those closest to you, and strength for the future as you recall the many special and ordinary times you and your daughter have shared with Cassandra. Subs
  18. Hi, and thanks for your up-date. So glad you managed to get your BTG access again Please let us know how your scan results go … Keep listening to your body and do take time to rest and recharge Subs
  19. Hello Charlie, and thanks for sharing your thoughts after one year. Great to hear that you have found BTG has been a support throughout the year, and that your family and friends have been there for you too. Everyone has their own route to follow as they find ways to deal with SAH recovery ……. and whether progress is slow, steady or challenging...time does bring a measure of healing and acceptance that life has changed. Your comments will help others in their early days and keep us posted about your own journey. Subs
  20. Hello Jean, well done and congratulations two years on. Glad you are able to put these early tough days behind you, and thanks for your own input to the various issues raised on the Forums throughout the year. The BTG family are special to those who have encountered this often misunderstood trauma and the challenges it leaves in it`s wake.. Wishing you well for the future. Subs
  21. Hello Lynette … and also a warm welcome to BTG …. at a time when you are feeling such despair. You are among friends. It is so hard to watch the hand that your husband has been dealt by SAH … There are carers and families on this site who have also watched their loved ones fight for life, feeling so helpless as they too have waited anxiously for any sign that a corner had been turned. They understand your emotions and feelings of despair. While there is life there is hope … please don`t ever give up …. and be strong for your husband now and as the JFK Assessment takes place. Stay with him and talk often as he lies there. Wishing you and your children strength and courage through these difficult days. Please keep in touch Subs
  22. Hello, and also a warm welcome to BTG. Eighteen months on I trust your two teenage sons are now well familiar to the changes SAH has brought to your family unit and also your fiancée. Well done on what you have achieved so far post your SAH. Taking that initial six months off work and then a careful phased return to work was certainly the wise approach. I agree with Macca and Clare … you should definitely see this contact with OH as a positive step for them to understand where you are in terms of your health and how they can help you going forward. My wife was also an NHS employee and her OH experience was a great help in her return to work. Slightly different in as far as her first interview was before she started back to work. I also attended the interview and all subsequent follow-up appointments to give her support. In fact she was eager to get back to normal hours asap … whereas the OH urged restraint and kept her to a slow phased return. As Macca says, tell them about your fears …. and try and find out if how aware they are of what a SAH recovery requires. Treat this as a opportunity to help both you and the company get the best from your experience. Best wishes and stay positive. Subs
  23. Hello, and also a warm welcome to BTG. Well done for achieving four days at work. Being involved in any schooling activities involving children would certainly be a challenge to your recovery, with so many different stresses, noises and demanding children affecting your work day. Six months on you will no doubt be aware that finding time to rest and recharge is vital as you build up your physical and mental strength and your brain adjusts to your bleed. As others have mentioned, eyesight is a very common after effect of brain trauma, and often time is needed to see how things settle down and give an indication of how it may be longer term. You have come to the right place for help at BTG. Within these forums there is over ten years of personal input from our members, and eyesight issues is certainly well documented. The following link will give you access to 50 pages of information. https://web.behindthegray.net/search/?q=eyes Wishing you well as you continue your recovery Subs
  24. Hello Alison and also a huge well done four years on. So glad that after these early traumatic months you are now looking forward and positive about the future. While some survivors find from their initial scans that they have other aneurysms that may require monitoring In the future,... those recovering from NASAH and those whose aneurisms have been coiled or clipped can take much comfort from knowing that the instances of a recurrence are very low indeed. Although you may reflect on the past from time to time, please take that positive approach and do not let a fear of it happening again spoil your life for years to come. Thanks for acknowledging that BTG and it`s members have been a source of encouragement to you. Wishing you well in the days ahead. Subs
  25. frmrtd many thanks for your frank post. As is often quoted ..`God grant me the serenity to accept the things I cannot change, courage to change the things I can … and the wisdom to know the difference`. Much more relevant to those recovering after SAH. Subs
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