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subzero

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Everything posted by subzero

  1. Hello Phil, please don`t apologise for sharing how you are feeling. As has been said so many times, we are all here for each other, and getting support and help through the `down` moments is one of the main reasons this BTG site was formed. I was just revisiting your first post when you joined BTG in March 2017. You like many have been very fortunate to survive at all. I am sure you will agree that much of the great advice given by our members back then still applies to your situation today. Working in a high powered stressful environment and taking part in the various physical activities (your 100 mile cycle run) all seem so unachievable now, and you still having to work so hard to provide for your family post SAH is probably the main factor in your continued fatigue. Many of our members feel that fatigue and have not been able to return to work. Getting to that place where you and your family and employers can strike a balance that enables you to feel you are productive at work and also in your home life is so essential. I am sure that our members will share their experiences with you, and I hope that you can once again begin to live with accepting that life after SAH is going to need many changes by yourself and those around you. You can draw on your previous willpower to make this new life a reality so that you can find positivity in building your future again. Face these difficult decisions together and act on what you feel will be best for you. Take care and I wish you well for these challenging times ahead,. Subs
  2. Many thanks for sharing Sarah. So glad everything went well in the end and hope you wont have too long to wait for your scan results. Well done and for surviving the driving scare. 😊 Subs
  3. Hello Sallios. You have a very valid question about whether SAH survivors having an increased risk of dementia. As BTG is a support site rather than a medical advice site, your own consultant and medics will be in a better position to answer. It could well be that there are members of BTG who have had to deal with dementia at a later date and they may well comment on their experience, however the subject you raise is complex. SAH occurs in many different areas around the brain and each bleed or trauma has its own degrees of severity. Relating this to a later onset of dementia is a difficult question and only experienced medics will be able to offer qualified advice based on many studies. Subs
  4. Hello Deborah and a warm welcome to BTG. So glad you were able to find the site so soon after you SAH. While we don't give medical advice you will receive much support from our members who have 'been there's and all have their individual experiences to tell. Reading their recovery journeys in the forums will give you much reassurance for your own recovery. All brain bleeds are quite unique and it is only in the weeks and months after that you discover the challenges you have to face. Some physical and some emotional. Andrea has explained so well the importance of accepting that patience and time are essential to let your brain heal. Wishing you well as you begin your journey. Share your feelings with your family and close friends so they can understand that while you look ok, your brain has undergone trauma and needs to heal. Hope your father is okay Subs
  5. Hello and also many thanks for taking the time to share one year on. Great to hear that you feel positive with life after SAH, even though you know that there are many issues that you are still trying to figure out and come to terms with. Some perhaps improving with time, and others where you feel `is this it ?`. This site is a testament to continuing improvement over many years. Keep taking each day at a time. In SAH terms one year is still early in your journey. Be patient, positive and protective of your healing brain. It will keep reminding you of your limitations. Wishing you well as you continue to face the challenges every day. Subs
  6. Great news....thanks for sharing. You both must be so happy that your husband has passed his driving assessment. So glad you both never gave up and many thanks to Johnnie M who guided you all the way. Subs
  7. Hi Louise... also congratulations and well done 21 years on. An incredible journey for you and your 'Rock' Ronnie. Coming this far has certainly made you a stronger person with a strong will to succeed. Truly you have shown great will power to challenge your limits and refuse to accept defeat. It has been great to share some of these years with you (six since I joined BTG) . Your regular posting of support in the forums and airing your views in the Green Room make you a much valued member of our site. Take care and hope you both take time today to reflect and celebrate. Subs
  8. Hi 'Compost' ... and also a warm welcome to BTG. Great to have you with us to share your experiences, and glad you are finding the forums helpful. You are doing well with your 'new' iPad. The IT thing is something we all get better at the more we use it. Well done 7 1/2 years since your SAH. I do hope you are still enjoying gardening in your retirement. There are many of us who could use your expertise to get our own gardens in shape. As Tina mentioned...the Green Room is where we enjoy some banter and is aptly named in your case. 😊 Wishing you well in the months and years ahead. Subs
  9. Hello ... we appreciate you getting in touch again about your husband's progress. These four years seem to have passed so quickly since you first told us about his SAH. Well done to you both, and good news about his scan results. Wishing him well in the year ahead. Subs
  10. Hello Pat and thankyou for sharing with us four years on. As you say, you have survived, and although life for you has had its ups and downs ..... so glad that your final words are about laughter. 😊 So glad that your employment has been realigned to make work more acceptable following your brain trauma. Your kind words about the site and it`s members are much appreciated. Best wishes for the next year. Subs
  11. Hi and wishing your husband success at his driving assessment on Tuesday. On the mask question...there are so many different masks...but I opt for the common blue mask and so long as I press the top 'wire' firm to my nose and just inside the bottom of my spectacles...this works for me. Subs
  12. Hello Chris and thanks for sharing five years on. It's been great to follow your progress since you joined BTG ...the good times and the tough times too. Great to hear that you are so positive about your recovery to date. No doubt these 'covid' times are affecting your work and home life as it's affecting ours. Wishing you and your lovely family better days ahead. Take care and keep safe. Subs
  13. subzero

    Riti

    Hello Riti and a warm welcome to BTG. Thank you for sharing with us. So sorry that you have suffered the trauma of SAH at such a young age and just when you had started your new job. It must be heartbreaking to find that your years of hard studying and early dreams for the future have been dashed so cruelly. We understand your hesitancy to come forward and tell your story, but you will find that being part of a community of SAH survivors will be a great support as you try and bring some `normality` to your young life. Many of the issues you mention are well known to BTG members who have faced and yes still are challenged by them to varying degrees. The effects of SAH are so varied depending on the intensity and position of the bleed. It is good that you will have an update on one of the other aneurysms soon. The trigeminal Neuralgia must be particularly difficult for you to cope with. Two and a half years on you must have much to tell us about your highs and lows in getting this far. Please feel free to comment when you are ready. Your experiences will be important for others who face SAH at the early years of their lives. Now that you are prepared to read the various forums within BTG I assure you that you will find so much support as you identify with the very personal struggles posted by our members... and the help and advice they received by others will give you hope in your own struggles. Please take care and be strong in your will to find a new route to new objectives for your life. While everyone`s journey is different, progress does happen over time and with patience. Subs
  14. Hello Karen ... and a very warm welcome to BTG. So sorry to learn that your husband suffered from an Ischemic Stroke. While we do not give any medical advice, you will receive support from our members, as you learn how as survivors or carers they have coped with brain trauma. Your husband`s Ischemic Stroke is termed as common in as far as people being affected are concerned. The majority of our members have survived a Haemorrhagic Stroke which while being less common, the survival rate is extremely low. However, to a degree the roads of recovery will have similar issues for both your husband and yourself as his carer. No doubt your husband`s medics will have given you some advice on his discharge, however they cannot give any real accurate advice on how his recovery will progress. All trauma is unique and only during the days, weeks and months following the event will the nature of the challenges become clear. You mention some of the difficulties he is already facing. These are often difficult for you to accept as the husband you have known all these years is now behaving physically and emotionally so different. Dealing with these issues day in day out will sap your energy and drain you emotionally, and it is important that you do get support too. In these early days you are willing him to improve and see positive signs that he is recovering. With brain trauma it is important that you accept that time and patience over a long period may well be the road ahead. Time often brings recovery in some measure. His attitude towards you at the moment is something that is so difficult to acknowledge. You are trying your best and he is showing so much frustration at not being able to do what came naturally before the stroke. Again time and patience may well see signs of recovery. Your decision to continue to work is important. Your time at work will help you have another focus. No doubt you will review this over time as it becomes clearer what the lasting effects of the stroke are. Please take time to read the various forums in the site and in particular the Carers` section. There are many helpful comments which will encourage you and inform you about life after brain trauma. Please take care and I wish you good strength as you face these challenges with your husband. Subs
  15. Hello and a very warm welcome to BTG. Please don`t apologise for the length of your first post. We welcome you giving such a clear picture of the events surrounding your SAH 17 months ago and how you have progressed since then. While we do not give medical advice, you will certainly receive very genuine support and advice from our members, all of whom have their own very unique journeys of recovery. Reading their input into the various forums will help you realise that you are not alone as you deal with life post SAH, and they will try and answer any questions you may have. You certainly have had a tough time in these early months and your family , as you say, have lived through so much emotion as they have `willed` their mum and wife to show signs of recovery. We can imagine their relief and joy following your later surgery in September last year. You have indeed made a great recovery since then. The holiday in October was a brave but important step for you all. Well done as going in an aeroplane can be a very daunting prospect, not to mention the possibility of issues arising while you are far from home. You are not alone in finding that you are faced with fatigue, headaches, low morale and your family may notice that aspects of your personality have changed. Time and the great family support you are already experiencing can greatly help as you try and deal with these challenges. All of our members have faced and continue to be challenged to differing degrees by the effects of SAH. A few of our members are living with shunts and they too will be pleased to offer their help. Returning to work is also always a big step. So glad that you have understanding employers who allow you to phase your return. It is so important that you never try and over step the new limits of your body and brain. Both are going through a long healing process. Have patience and rest plenty at work and at home. Always remember to keep well hydrated which is so important. We are sorry that you have also had to deal with the loss of your dear father earlier this year. While this was a big setback for you it is good that you have challenged yourself to go on and be positive for both you and your family. You really do have so much to live for. You have been fortunate. A large percentage do not survive SAH trauma. It is good that you feel your faith has been important to you over these months. Please take time to read the various forums, and your husband would also benefit from the wealth of information they contain. Living proof of survivor journeys post SAH. I wish you well and look forward to hearing of your progress in the days, weeks and months ahead. Subs
  16. Hello Jess ... not just another day for you. Well done, 18 years post SAH is a great achievement. I hope you are taking stock tonight of how much you have achieved. The mental, physical and emotional battles you have had to face often on your own, must have unconsciously left your lads full of admiration for their mum. Often in their future lives they will draw on how they saw their mum survive and hold their family unit together despite the odds. Immense admiration for you Jess. Subs
  17. Hello Macca ...also congratulations and well done 10 years on. You're still there and have shown that it can be done. 😊 Thanks for providing your candid advice and support along the way. Also best wishes on your 8th wedding anniversary. Enjoy that Italian tonight. Subs
  18. Hello Veronica Just read your post on Carolyn's thread. Quote 'And the great end to our story, is that my husband Terry recently returned to his work as a locomotive driver, after over 12 months away from work. He spent a lot of time in his year off focussing on health, he joined a cycling group and made some great friends, and he started running. He will work a part time load to make sure he still has time to enjoy life, and pursue his fitness which he loves. ' Thanks for sharing. It is fabulous news to hear that your husband has been able to return to his train driver job albeit wisely on a part time basis. Well done to you and your family for providing that great support and protection he needed to eventually achieve his goal. Subs
  19. Hello Sarah .... thanks for sharing Winnie`s memorial. A wonderful tribute to her memory. Subs
  20. Hello Claudette and also thankyou for sharing on your 5th year post SAH. Great to hear that you have moved on during these years and come to terms with many of the lasting effects of your brain trauma. Wishing you another great year ahead where you can enjoy your work and value your new life. Subs
  21. Hi, sorry to read that you have no motivation to get back to your pre SAH fitness routine. The effects of brain trauma are so varied. We have many members who have slowly rebuilt their stamina in an effort to regain their fitness. For some the motivation is there but the body and brain are unable to deal with high levels of physical exertion. One year on is still early in recovery terms. How are other factors in your life such as work, dealing with the family and coping with inter personal relationships with family, friends and work colleagues? Perhaps you could tell us more about your SAH in the Introduce Yourself Forum. Meantime this link will provide helpful reading on exercise post SAH. https://web.behindthegray.net/search/?&q=Exercising&search_and_or=or&sortby=relevancy Please keep in touch and don't hesitate to ask any questions as all our members have faced the challenges of living after SAH. Subs
  22. Hello and also well done 12 months post SAH. Thankyou for sharing. The first year is so challenging as you try and make sense of all that has happened to you following your brain trauma. Discovering and dealing with all that confronts you is daunting and you are not alone as you feel nervous about a recurrence of your bleed. Please take heart from the facts that this is very rare. Time will help you begin to put this to the back of your mind. Wishing you well as you face another year and hopefully progress in recovery journey. Subs
  23. Well done Andrea 5 years on. Don`t these years fly past. So much will have happened along the way but it is great to know you are enjoying life out there in the west coast. Those panoramic scenes which are part of your everyday life must be so exilarating (when it`s not raining ! 😊), and you seem to be enjoying being part of the team at work. Many thanks for your valued contribution to BTG over the years. Take care Subs
  24. Hello Majella and thank you for giving such a comprehensive update six months after your NASAH. As Casey mentions, your post will be most helpful for others in their early recovery journeys. Again, six months is still very early in `recovery` terms. The physical and emotional aspects only become apparent in these early post bleed weeks and months. Given time.... and the acceptance that trying too hard to return to `normal`can be detrimental to progress ...... many of the issues you mention do indeed show varying degrees of improvement. Your decision to give up your work has already been made. Is this something that can be looked at again when you are in a better position to judge how your body and mind will cope. Many survivors only begin to think about returning to work after 3-6 months post bleed. It is good that in making records as you have done, you can look back and see how things have changed. It is good that you are now listening to the physical signs from your body and brain and realising that rest and patience are needed. Pushing the boundaries can do more harm than good at times. However as we keep commenting .... everyone is different and choosing the advice that suits you is important. Fatigue can be so debiliting and so misunderstood by those around you. You find yourself in a battle that the outside world is oblivious to. Again it is so mportant that those you really care about are helped to understand the significance of life with brain trauma. So thanks for highlighting the challenges you are facing. You finish by saying `you look well so you must be well`. It is one of the toughest misconceptions. Concentrate on the things and people that matter to you. Time does heal and for most, progress is continuous. Coping with the pace of healing and the issues that leave you different from the `old you` are not easy but you will emerge from this and be your own person. I do hope you keep coming back and are able to share these improvements with us. Subs
  25. Hello Packcuz and also a warm welcome to BTG. You will find so much support and helpful information within this site as you browse the forums relating to your condition. The personal experiences from our members offer great insight into how they have individually dealt with their recovery challenges. You will read often that each person has a unique journey ahead depending on the extent of their brain damage, their own family circumstances, and often the need to to make serious employment decisions for the future. You certainly are not new to healths challenges. To recover from your massive LAD blockage two years ago must have been quite an emotional time too. (Am I right that it can be known as the `widow maker` !!) You indicate that you have always exercised well. Again you will find that many of our members have been fit and healthy and have also been faced with NASAH/ SAH while working out. Brain trauma leaves the survivor with varied issues to face depending on the nature and site of the bleed. These only become apparent in the early months of your `recovery` and many can be so debilitating. It is not unusual to have feelings of depression following your bleed. Please monitor your feelings closely and do not hesitate to get additional medical advice if it persists. You are not alone here. Keeping well hydrated and not allowing too much physical or mental stress can help greatly. Often the return to work is best considered following a three month recovery and even then a slow phased return can prevent the disappointment of having to take time off again because you are finding it difficult to cope Please also feel free to tell us more about yourself in the Introduce Yourself forum. Our members will be happy to try and answer any questions you may have. Meantime I also wish you well in your `journey`. It is a challenging time for you and your close family and friends. Take care Subs
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