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Everything posted by subzero

  1. Hello and a warm welcome to BTG. You are among friends, and you will benefit from shared experiences as you read the various Forum threads. Great to hear you are feeling positive about your progress. It is always a benefit when you feel you can share what happened to you, and smile about the issues that you have to contend with when with work colleagues and friends. You say that getting plenty sleep is so important to you. Fatigue is definitely a prominent feature post SAH. Learning to pace yourself well both physically and mentally can make such a difference as you recover. Also make sure that you drink plenty water. Keeping well hydrated is so important. We look forward to hearing more from you in your SAH journey. You mentioned your sight issues. Some members experience varied problems with their sight following their brain trauma and partial and full recovery can depend on the nature of their trauma. Wishing you well over the coming months. Subs
  2. Hello Michelle ... Also a big WELL DONE five years post SAH, and thank you so much for sharing your journey with us along the way. You have shown that life doesn`t stop at SAH, and at the same time as you have to deal with recovering... there are always life issues that make these extra demands. These are tough enough for healthy people, but can be an immense challenge for all you BTG survivors. Michelle I am sure everyone of your posts help someone in some way. All of us will have known a parent, a close friend or a work colleague who has passed away. We all have plans for that holiday get-away. We all want to be able to bake or at least eat the nicest cakes in the world. Many of us are animal lovers … and most of us are in relationships with their ups and downs.... You have given us an insight into how you have faced them all and you have not given up. You have came a long way …. keep on keeping on. Subs
  3. Thank you Karen for sharing that heart felt tribute to Cassandra from her husband. Neil ... our thoughts are with you and your daughter at this difficult and emotional time. May you receive the support and encouragement from those closest to you, and strength for the future as you recall the many special and ordinary times you and your daughter have shared with Cassandra. Subs
  4. Hi, and thanks for your up-date. So glad you managed to get your BTG access again Please let us know how your scan results go … Keep listening to your body and do take time to rest and recharge Subs
  5. Hello Charlie, and thanks for sharing your thoughts after one year. Great to hear that you have found BTG has been a support throughout the year, and that your family and friends have been there for you too. Everyone has their own route to follow as they find ways to deal with SAH recovery ……. and whether progress is slow, steady or challenging...time does bring a measure of healing and acceptance that life has changed. Your comments will help others in their early days and keep us posted about your own journey. Subs
  6. Hello Jean, well done and congratulations two years on. Glad you are able to put these early tough days behind you, and thanks for your own input to the various issues raised on the Forums throughout the year. The BTG family are special to those who have encountered this often misunderstood trauma and the challenges it leaves in it`s wake.. Wishing you well for the future. Subs
  7. Hello Lynette … and also a warm welcome to BTG …. at a time when you are feeling such despair. You are among friends. It is so hard to watch the hand that your husband has been dealt by SAH … There are carers and families on this site who have also watched their loved ones fight for life, feeling so helpless as they too have waited anxiously for any sign that a corner had been turned. They understand your emotions and feelings of despair. While there is life there is hope … please don`t ever give up …. and be strong for your husband now and as the JFK Assessment takes place. Stay with him and talk often as he lies there. Wishing you and your children strength and courage through these difficult days. Please keep in touch Subs
  8. Hello, and also a warm welcome to BTG. Eighteen months on I trust your two teenage sons are now well familiar to the changes SAH has brought to your family unit and also your fiancée. Well done on what you have achieved so far post your SAH. Taking that initial six months off work and then a careful phased return to work was certainly the wise approach. I agree with Macca and Clare … you should definitely see this contact with OH as a positive step for them to understand where you are in terms of your health and how they can help you going forward. My wife was also an NHS employee and her OH experience was a great help in her return to work. Slightly different in as far as her first interview was before she started back to work. I also attended the interview and all subsequent follow-up appointments to give her support. In fact she was eager to get back to normal hours asap … whereas the OH urged restraint and kept her to a slow phased return. As Macca says, tell them about your fears …. and try and find out if how aware they are of what a SAH recovery requires. Treat this as a opportunity to help both you and the company get the best from your experience. Best wishes and stay positive. Subs
  9. Hello, and also a warm welcome to BTG. Well done for achieving four days at work. Being involved in any schooling activities involving children would certainly be a challenge to your recovery, with so many different stresses, noises and demanding children affecting your work day. Six months on you will no doubt be aware that finding time to rest and recharge is vital as you build up your physical and mental strength and your brain adjusts to your bleed. As others have mentioned, eyesight is a very common after effect of brain trauma, and often time is needed to see how things settle down and give an indication of how it may be longer term. You have come to the right place for help at BTG. Within these forums there is over ten years of personal input from our members, and eyesight issues is certainly well documented. The following link will give you access to 50 pages of information. https://web.behindthegray.net/search/?q=eyes Wishing you well as you continue your recovery Subs
  10. Hello Alison and also a huge well done four years on. So glad that after these early traumatic months you are now looking forward and positive about the future. While some survivors find from their initial scans that they have other aneurysms that may require monitoring In the future,... those recovering from NASAH and those whose aneurisms have been coiled or clipped can take much comfort from knowing that the instances of a recurrence are very low indeed. Although you may reflect on the past from time to time, please take that positive approach and do not let a fear of it happening again spoil your life for years to come. Thanks for acknowledging that BTG and it`s members have been a source of encouragement to you. Wishing you well in the days ahead. Subs
  11. frmrtd many thanks for your frank post. As is often quoted ..`God grant me the serenity to accept the things I cannot change, courage to change the things I can … and the wisdom to know the difference`. Much more relevant to those recovering after SAH. Subs
  12. Hello Janet, and thanks for your positive comments about the content on this thread which have given you so much comfort about your recovery. It is human nature to try and get back to normal following a major trauma, however as you now realise.... with SAH … pressing on in these early days can be even more detrimental to `getting there` . So glad you have accepted that a much reduced working week is your way ahead. It may well be the case that in time you will be able to gradually increase your time at work. Keep taking that long term approach …. you are early days at 2 months. Work and family life do require to fall into pace with you …. and share your feelings with your son and husband who are also still adapting their thoughts and lives as they see what is happening to mum. So glad your employer is accommodating too. None of us, sufferers and Carers alike probably knew anything about `SAH` before it hit us so dramatically... and perhaps even cruelly …. those you meet need you to share what it is like with them and if they are genuine in their concern... they will be there for you. Take care … and keep positive through these early months Subs
  13. Thanks for that Greg... hope you are doing well. Subs
  14. Hello Joe … also welcome to BTG. Sorry to hear of the issues and difficult decisions you are facing two years on. You are certainly not alone when it comes to dealing with trying to get back to `work as usual`. Often the reduced quality of life caused by straining to cope with a series of full shift will eventually `force` you to make decisions which you have been trying to put off. In addition to Maccas suggestions I would add that my wife also asked her employer to provide her with much larger screen monitor. This really helped her cope following her reduced eyesight issues. While she did return to her stressful fulltime employment, she eventually reduced her hours and also transferred to less stressful work. Lifestyle and family/ financial commitments can often make this decision very challenging. I do hope you and your partner continue to talk through the realistic options for you both. Subs
  15. SM …. well done 15 years on. Your pragmatic approach has definitely been the right way forward for you. When they dished out determination and grit you definitely received a large portion. You are an inspiration in so many ways, and your health issues have certainly not curtailed your insatiable desire for `another holiday in the sun` ! I just hope Brexit doesn`t cramp your style ….. take heed...Messrs Tusk, Jonker and Barnier Subs
  16. Hello Neil... many thanks for sharing about Cassandra`s progress. Three and a half years .. and you both have been faced with immense challenges and setbacks. What comes through in your post is that there is still so much positivity in your words. I have immense admiration for you both. Those who have been on the recovery journey for many years will reassure you that there is always hope for improvement, notwithstanding the complexity of the obstacles you have already faced. Wishing you both the strength and support you need to continue. Subs
  17. Hello, and also a warm welcome to BTG. So glad you found the site so quickly. You will find great support in the days ahead as you discover that there are members who have been challenged by the hand SAH has dealt them …. and they have related in their posts about how they have tried to move on with their lives. With only 26 days since your bleed, it is so early in your recovery …. and while you say you have recovered ….. few survivors make a complete recovery. With this in mind, early advice is invariably to rest well in the early weeks and months, and don`t rush to return to work and household chores too soon. At present you feel that your feeling of guilt is your only concern, however fatigue, headaches and emotional upsets are often apparent in these early days. You are right to feel upset about what your family have witnessed. Being told you may not survive was so difficult for them to cope with at the time. They will have felt so helpless. And now you have survived … they too have emotions that are `all over the place`. For you …. as Macca mentioned... SAH can damage the emotional area of the brain, and control of emotions might not be quite as it was before. For many, time is a great healer. Reading the various threads on this site will help give you a wider understanding of SAH recovery, and your partner and family would also benefit. Being positive will be a great help, and talk regularly with your family and friends about how you are feeling. Don`t hesitate to make contact with your consultant. I too wish you well as you navigate your life post SAH. Please continue to share your progress. Subs
  18. Hello Clive …. also thank you for sharing how you have fared post SAH. You gave a return to full employment your best shot, and well done for trying, and also accepting that continuing full time was not in your health`s best interests. Glad you are positive about how you are moving on, and are enjoying your `retirement`. Having lived with Mrs Sub`s recovery for almost eight years now, I can tell you that even at this stage I am still witnessing these small improvements which maybe others don`t see. Keep up that positive attitude even when SAH has left life frustrating …. and you are right …. later in life we all begin to feel less able to remember …. and our tolerance levels have their moments !! Take care and keep on going Subs
  19. Thanks for sharing now that you are one year post SAH. Great to hear that you are positively facing the challenges before you and you can be confident that your medics will assess these results and offer you the best advice on the treatment required Well done for challenging your brain with these games. One year is the first milestone on your journey and time does bring progress in your healing. The next two months will be an anxious time for you and I wish you every strength to face these procedures. Subs
  20. Hello Ruth … and also a warm welcome to BTG. While we do not give medical advice, there is so much helpful information within this site for you to consider. Knowing that you are not alone is a tremendous encouragement in itself. To help you in your quest for information.. please key `perimesencephalic` in the search box at the top right hand corner of the Home Page and you will find many threads of interest. You mention returning to work in your busy employment. This is always a challenge for everyone. It is so important that you stay within the realms of what your brain and body allow. No doubt you have found out the consequences of pushing yourself too soon and too hard. How are you finding work at this point ? Always rest well and keep yourself hydrated by drinking plenty water. Others will share their experiences with you … and please continue to share any doubts and concerns you have with your recovery. I hope you have good support from your family, friends and work colleagues. The road to recovery is different for everyone and those around you do not always appreciate the seriousness of what has happened to you. Subs
  21. subzero


    Hello Lorna ,,, and also a warm welcome to BTG. As Daffodil says, you will find much help from reading the various forum threads. Rebuilding your life after SAH definitely takes time. While it is great to have a positive attitude when recovering from an illness or accident …. SAH recovery also means accepting that your damaged brain needs time to repair. Pushing too hard to reach goals can have a real detrimental effect on your recovery and indeed you are likely to suffer disappointing set-backs such as increased fatigue, headaches and a general sense of frustration and yes anxiety. Always keep well hydrated by drinking water often. It is important that you set realistic aims as you return to work. Much depends on the nature of your work, however a phased return where you work reduced hours and reduced days in your working week will allow you to gauge how your brain and body are coping. Please don`t push yourself too hard to impress. Be open with your colleagues about your SAH trauma as few understand how hard it is for you to make a return to work. No doubt your anxieties are impacting on your family and personal friendships. What form of support do you have as you recover ? I wish you well in your efforts to rebuild your life and please continue to share your progress with the members of BTG. Subs
  22. Hello Colleen Many thanks for keeping in touch at BTG and a BIG well done on ten years post SAH. A great milestone. Hope your recent anxiety attack was only a `blip` on the road, and best wishes as you continue on the journey. You enjoyed your dog Annie`s presence all these years ago..... how is your latest 4 legged friend settling down one year on? Best wishes in the days ahead and continue to keep in touch. Subs
  23. Hello Julian, and many thanks for getting in touch four years post your bleed. Great to hear that you continue to do well. Best wishes for you and your family . Subs
  24. Hello Pat, and also congratulations two years post SAH. You sound as if you have adjusted your life to cope with the effects of your SAH and well done for your positive attitude. Thank you for your kind comments about BTG and it`s members. It is encouraging to know that the site has played a part in your recovery journey. Subs
  25. Hello DeeDee and a warm welcome to BTG. Thank you for posting. While we offer no medical advice, you will find much support from the information within the various forums, and I am sure others will share their experiences of the many highs and lows of life post SAH. As the years pass, it can be challenging to diagnose what symptoms are a result of SAH and what is simply due to ageing and lifestyle. Please feel free to share in the Introduce Yourself section, about how SAH has affected you from the initial trauma of seven years ago. Also pay a visit to the Green Room where members share in daily `light` banter about whatever is on their minds Subs
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