Jump to content

janevo

Members
  • Posts

    58
  • Joined

  • Last visited

Everything posted by janevo

  1. Hi Olef, I too opted to have elective coiling on a 2nd anuerysm and was amazed at how different it was to the SAH. I was sitting up talking when hubby came in a few hours later with no pain and only the effects of the anaesthetic to get over. You have probably had your op by now so hope it all went well and you are feeling positive. Take care Jan
  2. I had had my gall bladder removed on the friday and they were going to send me home same day but I felt unwell and had chest pain and nose bleed. They kept me in overnight and i went home on saturday still feeling unwell. On monday evening I tried to go the loo but due to the operation and the codeine I had been taking for the pain I struggled. I had almighty pain and collapsed on the floor and tried to crawl to bedroom for my mobile but didn't make it, I must have passed out as I don't remember anything else. My daughter found me later when she came home from work and shouted for hubby who was at the lake in front of us fishing. She said I answered all the questions the paramedics asked and was conscious until my coiling the next day but I don't remember any of it thankfully. I can't help thinking that if I had not been discharged from the hospital so quickly after gall bladder op would it still have happened - suppose i'll never know?
  3. Well it's was 2 years yesterday since my SAH and I just wanted to say hi to you all. This anni -versary felt so different to last year, it was just an ordinary day which is great cause it means my life is not revolving around the SAH. I still suffer with fatique and mood swings and I have finally got an appointment to see a physiotherapist for my neck pain but I have stopped beating myself up if I'm not feeling normal. I still push myself too much some days and then have a few days when I feel as if I'm 90 but unless I stretch myself I won't know if I'm improving. I had my 4 grandsons staying with me last week and we also got a puppy ( a chipoo) so it was a very busy week and I'm paying for it now, but when I think that my family were told to say goodbye to me 2 years ago I can't help feeling proud and very emotional that I am here to remember this milestone. Love to you all and keep strong xx
  4. Hi I'm 22 months on and still can't eat chocolate or sweets although I was a chocoholic before. At first everything tasted of sewage but that has got better. I now enjoy spicy food because at least I can taste it although whether it is the right taste or not I've no idea. I usually ask hubby if it tastes ok as I can't trust my taste buds. I smoked 20/day pre sah but haven't wanted one since and the good thing about not being able to taste properly is that I don't pick between meals so haven't piled the weight on. It is improving all the time so I am looking forward to the day when I have a big helping of hot chocolate fudge cake and sit watching a film with a box of Thorntons.
  5. Hi Robert, Glad to hear all went well, I can relate to that feeling of euphoria as I had elective in June and couldn't believe how relieved I felt that it was over so quickly. Unlike you I didn't have any snags and was out in 2 days. Take it easy and remember that although it was planned you have still had surgery so be kind to yourself. Jan x
  6. Hi win, to answer your question - I used to be very jumpy when I was in the car and have now got used to it again. I started driving again after 3 months and took it slow to start with but now am driving all over the place which is a good job cause hubby had a stroke 6 weeks ago and I have to be his chauffeur now. I still have times when I don't feel up to driving. Jan x
  7. Hi Marylin, I had a period of numbness in one side of my face about 6 months after my SAH and coiling. I went for checks at the hospital but everything was okay and I was given the all clear a few days later. If you are at all worried it is worth getting it checked out as I was told by everyone "it's better to be safe than sorry" and sometimes the worry can make you feel ten times worse. Hope you get sorted. Jan x
  8. hi, i flew 9 weeks after sah and coiling last year and this year 5 weeks after elective coiling. both times I wore ear plugs (like annie) and i didn't have any problems. Enjoy yourself and don't worry.
  9. Hi, well it's 2 weeks and 3 hospitals later and still don't know what is wrong with hubby. Shrewsbury thought it was a TIA and discharged him after 5 days so we returned home to lancashire with copies of his CT scans to give to our GP. He arranged for me to take them to Walton Neuro which I did last wednesday. On thurs morning he was rushed into our local hospital and they gave him meds for epilepsy and sent us home. On thurs evening he took a turn for the worse and was admitted to aintree hosp. He is ok in himself but his speech is affected and he finds it difficult to speak. We are now waiting for him to be transferred to the neuro centre when a bed is available. Tomorrow he has a lumber puncture. He's had ct and MRI scans and they still don't know. It's our 33rd wedding anniversary tomorrow and we were hoping to spend it on a beach in the sun but hopefully we will have good news and they'll be able to give us some answers.
  10. Had a really bad night - couldn't sleep cause of numbness in my arms - i'm ok now but feel really low. Think the last few days are just catching up with me. Lin/kel - I'm not at home at the mo cause this all happened while we are down at the caravan but i have text my sister today and asked her to come over as i am struggling. I've been trying to manage on my own cause they were all really supportive when i was in hospital and I didn't want to bother them again. My daughter came down the night he was admitted and once she knew he was ok she had to go home to the children. As has been said lots on here, we look ok so everyone assumes we can cope with everything. Someone actually told me on saturday that we were attention seekers - had to sit on my hands so that I didn't hit her. Can think of easier ways to get attention. Rant over!! Just waiting for my sis to arrive. Jan x
  11. Hi, thanks for your thoughts. Hubby is doing really well. He's back to his normal self - still in hospital but not on any meds. They've taken him off his warfarin (he had a DVT and PE 10 years ago) so they have to decide tomorrow what the risks of a re-bleed are with the warfarin or a clot without. Hopefully they will let him come home as I'm really struggling with driving to and from the hospital- it's 25 miles away. Feel awful complaining about how I feel but I know you all understand where I'm coming from. Sandi - he's not been on any painkillers - he's just not had any pain at all.
  12. Hi, Am just waiting to go back to the hospital to see how my husband is. He had a mini stroke on thursday evening but we were sent home. He had another one yesterday and on the way back to the hospital he had a few more in the ambulance. They did a CT scan and have found he has had a small bleed. We are just waiting for the neuro surgeon from stoke to get back to us with regard to the treatment - if any. The weird thing is that his bleed is in the same place as mine was 15months ago. I can't believe that this is happening. He is not in any pain and is chatting away as if nothing is wrong which is great. It just affects his speech when it happens. Just going back to the hospital so fingers crossed for good news. x
  13. well done win - I don't post much but do read most days and your posts always make me chuckle. Only one thing to say " Onwards and Upwards" x
  14. Hi Jan, Been away so only just catching up with things on here. I felt exactly the same as you this time last year and I'm glad to say that it has got better. Some days I can actually forget for a few hours what has happened. I went to see my doctor and got some medication which has helped me over the low periods but I feel as if it has also diminished the highs as well so am going back to see him and hopefully stop taking them. If you were in Walton get in touch with Kath Stoneley, she is brilliant and will put your mind at rest and never makes you feel like you are bothering her. I know I've said it before but if you need to talk pm me and i'll send you my no. Jan x
  15. Hi Rhiann, Happy 1st anni versary and glad you did something nice with hubby. Sammi, I said I'm like the queen, I've got two birthdays. (didn't get the prezzies tho') and now that it's over I feel really relieved and lucky. Now that my second anni has been sorted i'm gonna sit down and do a plan of action for the next 12 months -there's all sorts hubby and I have said we want to do but keep putting it off - well no more. Our life re-starts here so watch this space. Love to all xx
  16. Hi Rhiann, well it was my 1st anni-versary today and it has been really weird. My sister took me out for the day - she took me to two cemeteries to place flowers for fathers day then drove past the hospital where I was treated then took me to an OAP home to see our mum. Fortunately, I saw the funny side, but I've told her not to arrange any suprise parties - don't think she's got the hang of it haha. Wanted to go out for a meal tonight with hubby but he went visiting his parents and didn't get in till it was too late. I woke up this morning with vertigo for the 1st time in months and panicked so have been a bit on edge all day but I'm here and everything is fine. It will be for you too, just relax, take each day as it comes and go and get some help off the doctor to help you over the wobbly days. I did, it's not a reflection on us - we've been thru hell and back and deserve all the help we can get. Take care Jan x
  17. Hi, I have had 3 MRI scans. One after original coiling, one 9 months later and one last wednesday after a second coiling on Tuesday. I was not told of any danger of the coils moving and I'm sure that I've read somewhere that the coils used will not be affected by the magnets. Hope this is right, I'll try and find the article.
  18. Hi and a BIG THANKYOU to all of you for your thoughts and good wishes. I cannot believe how well I feel and how quickly I was up and about after the op. Michelle did tell me that it was completely different and the consultant told me it would be like a walk in the park compared to the SAH but I wasn't convinced. The reality is that my op was on Tuesday at 10am and here I am on Thursday at 10pm at home. Apart from a bad head yesterday (like someone had messed with my brain - oh yeh they had) and feeling really tired which I'm sure you can all relate to, I feel really good and I can't put into words the relief I feel in knowing it's all over. All I can say is that if anyone has the opportunity to have elective coiling - go for it. Jan xxx:-D Gina, sorry Theresa's didn't go ahead but hope something has been sorted for her.
  19. Hi Leonie My untreated anni is only 3mm and I was given the option to have it coiled which I am having done next week on 31st. I'm going into the Walton Centre in Liverpool under Mr Javadpour - they were all brilliant when I had my SAH so although I am very nervous I know I'm in good hands. Good Luck next month and I'll let you know how I get on. Jan x
  20. Hi Simon. I'm not far from you and was also treated at Walton and echo your praise for them. I was fortunate that I was in North Wales when my SAH happened so I was sent to Wrexham Hosp and they recognised straight away what had happened and transfered me to Walton within hours. I think we may have met at the road to recovery course held recently in liverpool. Good luck with your claim and hope to speak soon. Jan
  21. Thanks to you all and Michelle, thanks for the advice. I will try and follow that - I've already got a holiday to look forward to and will arrange for some smaller events to look forward to after 1st June. My daughters are also really positive and keep telling me that as I did so well recovering from the SAH, this will be a doddle. And I daren't go against them - they are pretty formidable when they get together haha.
  22. Thanks for all your good vibes. Think I will have to keep busy for the next 18 days as everytime I get a quiet moment I can feel the what if's starting in my head. Keep telling myself not to be a drama queen. Jan x
  23. Finally got date for op - will be having it done on 31st May - am really nervous but staying positive. Am hoping to go abroad with the family on July 10th. Does anyone know the timescale before you can fly after elective coiling.
  24. hi Montana, Welcome to btg. I had my SAH 3 days after surgery for something unrelated so can understand that trying to recover from 1 thing is hard enough but with the SAH on top it is an uphill struggle. It will take time but you'll get there, just remember to listen to your body and rest. speak soon Jan x
×
×
  • Create New...