jo1970

Thanks for the replies eveyone, I think I will go to the CAB and see what I can do. I have already put my house up for sale so I hope it sells quickly. Just finishing work for the day and will have to lie down when I get in!!!! Thanks again Jo x

Hi Tina, Thanks so much for the advice, I will look at that link. I knew returning would be hard but not as bad as this. Health comes first. Jo x

Hi Everyone, I am after some advice, I have returned to work but realise its too much for me and I cant do it as I still feel terrible after my crainiotomy. Does anyone know what benefits are available and what happens with the mortgage people I am so worried about it all. Thanks Jo

Hi Yes living life is much better than worrying about work!!!! My eyebrow wont move either, my consultant recomened botox but when I went they wouldn't do it!!!!!! Hope your well Jo

Thanks Tina have a great Christmas!!!!!! Jo xx

Hi there, Aw thanks for the warm wishes all this has taken its toll on me I can tell you!!! This site has really helped me it honestly has. I hope you are well now and wish you all the best for the future. Hope to get to know you better Jo xx

Hi Sarah Thanks for that I just need to keep doing the lottery hope your well Jo x

Hi Grace, What a brave lady!!! I really dont think I could face another one. I feel a lot better since I came off the tramadol medication, it sent me so loopy!!!! Fingers crossed you are ok now and can dress up for Halloween in future. Jo x

Hi Tina Thanks for the reply hope you are well. I partly blame my stressful job for my illness and I am returning in the New Year I am really dreading it. I am only going part time but my scar twitches at the thought! I have a check up on the 10th Jan so have lots of questions for my nurosurgeon. Well I am off to wrap some presents my partner oh now husband to be (we got engaged a few weeks ago) is out doing my Christmas shopping. Have a great weekend Jo xx

Hi there, I will definately look at your journey, I have been wanting to come back on here for ages but been too busy feeling sorry for myself but I can honestly say thanks for all the support I feel so much better!!! Jo x

yes I wish I had too but was too upset. When my little boy who is 6 saw me he ran away and cried and when he pulled himself together he said "never mind mammy at least you don't need to dress up for halloween!!!!" I will look at those websites you told me about Thanks

thanks for the reply, I have my scar in the same place as yours i had 45 staples. When my family came to visit the said they had no mirrors in their bags and I could tell by their faces I looked awful. When I finally managed to look in one I nearly fainted!! My jaw has healed nicely its just the top and near to my ear that hurts I got a fringe put in to hide the scar. Did you have any problems with your eye? Some days mine is very squinty. Thanks Jo

Hi Everyone, I joined this site about 3 months ago and posted my story about my SAH 5 years ago. Since then I developed another anyersm and was waitining for a coiling procedure. To cut a long story short I ended up having to have an emergency crainiotomy and it has turned my world upside down. I was not at all prepared to understand the after effects of this operation, as to the pain and how bad I looked for weeks after it, I had it on the 19th September. I still feel really down and am wondering when the pain and sometimes eye swelling will go. I would really appreciate some advice and sharing some of your events. Thanks and hope you are all doing well Jo xx

Hi Could anybody tell me if they have had children after a SAH and what the risks are. I would really like to think I could have at least one more. Thanks Jo

Hi Liz, Your SAH is quite recent I hope your are recovering well, it's amazing how many people are suffering with them these days it just goes to show how stressful life has become. Thanks for the advice, if nothing happens next week them I will have to take it further. Take care Jox

Hi Tina, Thanks for the reply your right the stress is not good!! I think I will give them untill the end of next and then try and take it further. I know its silly but I am really scared of being by myself incase I have another SAH. Jo x

Hi Kel, I just think they are saying anything to keep me from complaining any furthur. I rang the other day and now the surgeon is off on long term sick, surely there must be more than one surgeon. My GP said he could refer me to another hospital but I cant face starting the whole procedure again. You SCH is still relatively recent I hope your angiogram goes well best of luck and why is it that so many of us have SCH in December? mayne we should cancel the stress of Christmas!! Take care Jo x

Hi Thanks for the advise, I already got in touch with the patient services who looked into it for me. They came back to say my surgeon said maybe I didn't really need the op and would need another angio to determine this. I was devastated as I find the angio a really distessing experience and I felt even more fobbed off than usual. My partner is getting very irate with it all and I feel like just giving up on it all as we can't plan or do anything. I must admit I am amazed how many people have had SAH as before I had mine I had never heard of it Jo

Hi I has my SAH back in December 2005 and had the coiling procedure. I saw my consultant in January this year who informed me that after a check up MRI that I has a second anyersm which giving my past history would need coiling in the next six weeks. Now 7 months on I am still waiting after having the procedure postponed on a few occasions due to staffing problems etc. Can anyone tell me if they have had the same problems I feel I am getting fobbed off all the time when I call to ask about progress. Jo