Nita

Hi Guys Thanks for the quick replies. This started on 6th Nov and on 7th I couldn't get out of bed as my right leg wouldn't work. I got my brother to take me to A&E at teatime as I was worried that I would be worse the next morning. At first they thought it was a stroke, but CT scan showed that it wasn't. I had some physiotherepy while I was there and my leg is working a bit now, but my hand is not good either. I'm on the waiting list for home physio. I am walking with a stick now and was feeling sorry for myself, but got my fighting head back on now. One of my great friends from work came to take me into work so I wouldn't be at home on my own, wallowing in self pity. I had a great afternoon with some great, but crazy people and ready to fight back again. Love Nita xxx

After 4 years of struggling to become "almost normal" I was struck down with a viral infection that attacked my weak right hand side. Now I have another uphill battle as my right side won't work now. I was in hospital for three days, but due to lack of sleep in there, I was allowed home as I can't function without sleep. Work have been great about it, but I don't know if I will be able to go back tho.........only time will tell. Can't believe this has happened. I spent 4 years fighting a huge battle, just to be knocked straight back down again. I am finding it difficult to come to terms with. Don't know if I have any energy left to fight this too. Nita x

Mr Patel at Hallamshire..... Yeah , me too! He is not just a great neuroligist, but a lovely person too. He has really helped me, referring me to an amazing neuropsycologist when I was at my wits end, 2 years after he saved my life. I am over 4 years since my SAH and life is good now, thanks to Mr Patel. Love Nita xx

Hey there Steph After having 2 brain haemrrohages and coiling, I have another aneurysm on the opposite side too. They are keping an eye on it. It's been 4 years since the first SAH, so I just go with the flow. If it's being watched, it's safer than the people's that aren't. Love Nita xxx

Hey there Wraith Most of us on here know where you are coming from! I am 4 years post SAH and it's with me 24/7. My life changed on that day and it took a long time to accept that I will have to live with it forever. After the first couple of years I got professional help, as I couldn't imagine living with "this" for the rest of my life. Because we haven't got bandages around our heads, people think we are back to how we were before. "If only!". I have learned how to cope with things now, but please get help. Because you're worth it........ Love Nita xxx

Hiya John I was on incapacity benefit after my SAH.........until the medical. My own "doctor" was as useless as the benefits "doctor". I was given 0 points. I started to appeal, so they cut my money to a rate that I couldn't live on. At the time, I hadn't changed my doctor or had professional help and didn't know what to do. I couldn't go through with the appeal as I didn't Know what help I would get, if any. Luckily, things have changed for me now and I work, but at the time I felt that I was very let down. A good place to contact, as I am now told is D.I.A.L. Hope you sort things out. Love Nita xxx

Hi Lemonade, It is a long road, but if you get all the help you need, you will get to a better place a lot sooner than I did. Get all the help you can and if it doesn't help, ask for more. When I asked why I didn't get any help sooner than 2 years, I was told it was because I didn't ask. People who haven't walked a mile in our shoes, have no idea. But everyone on here does, so keep calling in. Love Nita xxx

Hiya Sonia and welcome to the most amazing site ever for SAH! I am 4 years down the line and this place has been a great help to me..........hope it is for you too. Love Nita xxx

Thanks Karen, but I didn't just contemplate it, I tried a few times. Thankfully I wasn't sucessful. How, I don't know? But it can be overcome if you seek help. At the time I thought I couldn't live with life after SAH, but I am living proof that it can be done. Ask for help, if not, shout for it. It can be done xxx

Hi to both of you. Welcome to BTG. I had 2 SAH's 4 years ago. For the first few months it was euphoria as I had survived them. Then came the anger, depression, anxiety and loads more. I didn't have any professional help and a doctor who knew nothing about my condition and didn't want to know. After 2 years of pain, no support and no desire to carry on with life as it was, I was suicidal! Luckily, when I was at rock bottom I had an appointment with my neurosurgeon. I "lost the plot" and he referred me to a neuropsycologist. She was so amazing, but at first I would would not have anti-depressants. I felt that was the only control I had in my life, was to say no to them. I ended up seeing a psychiatrist, pain management doctor, counciling, carry on seeing the neuro-psycologist, changing my doctor and going on anti-depressants! On the way I lost my son, my partner and nearly my mind! It's been a long hard road, but if I had the help from the beginning, maybe I wouldn't have gone through so much heartache to get where I am today! Today I am happy, but it took a lot to get here. Please take any help you can get, or ask for it. I know it's hard to when you are down, but if I had had the courage to ask for it, maybe I wouldn't have lost so much. Love Nita xxx

Hiya Kasim Sorry to hear your Mum is feeling down. She is a lovely lady and hope things get better soon. Send my love to her and my love goes out to you too. Love Nita xxx

Hi Leo I had nerve block injections for a year. The ones I had lasted for 3 months. I have stopped having them now because I felt they weren't working any more. They do work for some people, so it's worth giving them a go. Love Nita xx

It was first aired on Channel 4 in March. Had lots of response then. Got a new pen since then, so any autographs will be magnifico! lol x

It's tonight...... Sunday 13th June x

Thanks for all the good wishes. Yesterday was 4 years since my 2nd haemorrhage, I'm on Secret Millionaire tonight (More 4 @ 9pm if anyone is interested) and tomorrow is 4 years since my coiling...... loads of celebrations all in one week! Love Nita x