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Greg 21.01.15

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Greg 21.01.15 last won the day on February 3 2016

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About Greg 21.01.15

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    Cambridge, UK

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  1. Greg 21.01.15

    New card from Headway

    Good luck using the badge Daff, a nice gentle prompt to folks to be thoughtful. I've not seen anyone using them though I don't get into London as often as I would like. Look forward to hearing how you get on.
  2. HI All A while since I have posted, hope you are all keeping well. Just catching up on some online reading and found some new Headway FactSheets on managing relationships post brain injury, and thought they might be helpful to folks so, here's the web link: https://www.headway.org.uk/news/national-news/headway-launches-new-relationships-after-brain-injury-pack/?utm_source=Email+newsletter+subscribers&utm_campaign=2d7cea2efe-Headway_News_Bitesize_September_2017&utm_medium=email&utm_term=0_53a38ea6e0-2d7cea2efe-433990181 All the best Greg.
  3. Greg 21.01.15

    New card from Headway

    I have one of the cards, thoroughly recommend, not had to show it yet, but can make a good talking point with friends and colleagues an easy in to talking about our often hidden issues.
  4. Greg 21.01.15

    Encouraging Thoughts & a useful book

    Well put Win, thank you!
  5. My Headway OT lent me a book that I thought it was worth sharing with folks. The aptly titled: " Head injury: a practical guide" written by Trevor Powell (Speechmark Editions/Headway) I'm only about half way through it, and though not specifically about SAH or stroke (but traumatic BI) it is an interesting read about brain injuries especially for those new to this all. Easy to read, and definitely for the non specialist. Would be helpful for both those caring for those with a brain injury or the person themselves. And in there, there was the following that I thought I would share. The last point I particularly found relevant to me: ENCOURAGING THOUGHTS 1. A person who is severely impaired never knows their inner source of strength until they are treated like a real person 2. Nothing equals the power of love. It's the only source of magic there is. 3. People who had have a brain injury do not want hand-outs, but hand ups. 4.Think positively about the gains made since your stroke, rather than comparing with how things used to be before it 5. What do you dream about? You can do anything, but you may have to do it differently. Sorry some of that is a little a soppy but some of the points I find for me are helpful at times to keep in mind, Cheers for now greg.
  6. Thanks, Win, all OK this end, onwards and upwards as they say. Hope you are keeping well Greg
  7. Thought I would share this with the BTG community (sorry should have done this sooner but only just found the weblink....). Headway Cambridgeshire are running a "Breaking down barriers" 13 week course, to help those with brain injuries return to work or to get involved in volunteering. The next course in my region (East of England), is being run in Peterborough, places are limited but I don't think it is full yet. The course is a mixture of OT rehab type activities, CV advice, interview strategies pertaining specifically to brain injury issues, and ideas and resources for volunteering (within the context of having a brain injury). I am not sure if other county Headway organisation are running this or not, but I can thoroughly recommend it, having attended the first one in my region in St. Neots. Here's a web link: https://www.headway-cambs.org.uk/whats-on/news/community-connections-breaking-down-barriers-1 It was a great opportunity not only to go over some of those important rehab / cognitive exercise / fatigue management strategies, but to do it in a small group where experiences could be shared. All of us on the course found this particularly invaluable. If you are local to Peterborough and think you would be interesting, its coming up very soon, contact the organisers and they are good at moving quickly to get the right folks enrolled. I haven't posted or visited for a while, I hope all here in BTG land are keeping well and happy. All the best Greg.
  8. Greg 21.01.15

    Exercise/running post SAH

    Same as Broncothor, I had an NASAH, and I was told if I wished to I could run, cycle etc just listening to my body and not going mad. The only suggestion made was that I leave lifting heavy weights alone (I used to weight train quite a bit pre my NASAH). Exercise is something that really seems to vary between folks post SAH, some people can run a half marathon no sweat, others me included really suffer from fatigue if I do to much. Unfortunately what is too much now is far less than I used to, and the first time I went out for a cycle ride post SAH, I flattened myself for 2 to 3 days afterwards with fatigue from doing what I thought was a light ride. Ho hum! You just have to learn where the new normal is. I train once a week with a PT who is experienced in cardiac rehab, and she uses the same exercises regimes to keep my blood pressure/heart rate low enough not to give me fatigue but I can still get a reasonable work out for half an hour, and still be standing the next day. There was a thread on here a coupe of years ago, and I recall that there was a lady who was a gym instructor (States side I think) who could still run some pretty long distances on a regular basis post SAH, but the thing that really triggered her fatigue was instructing big group classes. We all fatigue in different ways! Good luck with it Josie, Greg.
  9. Greg 21.01.15

    Frequent Headaches

    Hi Sam, I am two years out post my NASAH, and headaches are a daily part of life, some days you hardly notice them others days, they can be debilitating. As graham mentioned above, doing too much, is a common trigger, so the best advice is to find where your limits are for now. They for many of us this will improve, and as the months progress you will be able to do more, without triggering headaches, but it can be a bit of a battle of wanting to do more and then suffering the consequences. Some things are instant triggers, noise, large groups, over work, too much exercise but it varies for everyone what triggers the headaches and fatigue. Good luck, you are still really at early days with it all, plenty of time for things to improve and plenty of time to learn how to balance things to accommodate! All the best Greg.
  10. Greg 21.01.15

    Plateau in recovery

    Jan, Sorry a late reply to this thread, but thought I would share a conversation I had recently. I had been feeling similar to yourself, that I had plateaued somewhat in my recovery, and I am 23 months post NASAH. Even over periods of months I don't feel there are great differences both in what I can do and the level of fatigue. If anything fatigue is worse as I am trying to do a bit more at times I was somewhat heartened recently after talking with my sister in law and her husband. He had a rather large stroke 9 years ago, and took some fairly big cognitive hits, and suffers from fatigue. From the outside in the early days we could see stepwise improvements in his recovery but as time went on it was less apparent. However they were both adamant that in the last 5 to 6 years, so up to 9 years out he still is making some significant (and useful) gains. He is now more able to sustain work like activities for longer, and not suffer with fatigue quite so badly. He'll never (as neither will I) get back to where he was but he is doing more of what makes life good for him. My thoughts for the future are that improvement will come from two sources. One naturally our minds heal (albeit slowly) and secondly we learn how to better live with our conditions such that we can learn to maximise the energy we have, avoid what does our heads in, and allows us to do more of what we want. Anyway that's my plan! Good luck with it all, ride those ups and downs, its all character building (so I'm told!) Greg
  11. Greg 21.01.15

    Perimesencephalic sah

    Welcome to BTG, as many others will say it say great place to get answers and not feel alone in what you are going through. Four weeks out is no time at all, I was only home 1 week at the point, and I don't think I ventured out of the house or far up off of the sofa at that point. The tiredness and fatigue was ridiculous at that point. I can remember having to split the smallest of jobs down into really bite size pieces so I could feel like I was achieving something with the small amount of energy I had. You have been laid up in hospital, that in itself without your SAH will weaken you. It does get better, in the early days, weeks and months of recovery typically folks can make good gains quite quickly. The brain is a remarkable thing and recovery carries on for many years. So be gentle on yourself, give it time and things should improve. Good luck with the post bleed MRI, and if you re concerned about symptoms speak to your consultant or your GP. Greg.
  12. Greg 21.01.15

    3 SAHs and still going strong

    Wow that is some journey, welcome to BTG, there's a great bunch of very supportive people here who have helped get me through the last (almost) two years since my NASAH. Great re the fundraising for Headway, they are an amazing organisation who I can't praise enough. Cheers Greg
  13. Greg 21.01.15

    NASAH What's Normal 1 Year On?

    Thanks Daff for sharing that visual, I've just found their FB page, worth a visit, (and I shared that one on) Cheers
  14. Greg 21.01.15

    NASAH What's Normal 1 Year On?

    Hi Graham, Welcome to BTG. I am only a little ahead of you having my NASAH Jan 2015. What you describe is really quite normal, and bearing in mind that we are different, the fact you are working 20 to 25 hours a week is pretty good going. As Macca said you are early in your recovery, I was advised by my OT not to try my return to work till 12 months after my NASAH, to maximise my chances of success, and the hours I am doing are far less then what you are achieving. So don't be too hard on yourself, your NASAH was a traumatic event for your brain, and neuro recovery takes TIME. Recovery is on a completely different timescale to almost anything else that could have happened to you. So as I have been told (correctly) repeatedly by folks here, patience is the key. The other thing that is so important in working with fatigue, is finding the right balance in how much you attempt. If you do too much you will know about it, knowing to listen to the signs your body gives and stop before you do too much. The analogy that someone told me was that if you represent the energy we have do things both cognitive and physical as a battery, then post SAH, everything we do takes more energy to do and it takes longer to recharge that battery after use. Good luck, give it time, Regards greg.
  15. Glad folks find it useful, Macca. I like the idea of laminating and sticking it up on the fridge...... Have a good weekend Greg.
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