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Greg 21.01.15

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Greg 21.01.15 last won the day on February 3 2016

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About Greg 21.01.15

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    Cambridge, UK

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  1. Just in case there was any further interest in this there is a third session being run next week, again online. Here’s a link to the invite and further information: https://www.brainmic.nihr.ac.uk/an-introduction-to-patient-involvement-in-brain-injury-research-virtual-drop-in-session-3
  2. Thanks Louise, I appreciate probably not for everyone which is a shame. We should be aiming for high levels of inclusion in these kind of things. Hope you are keeping well. All the best Greg.
  3. I thought I would share this with you all, as it hopefully might be of interest to some folks. Sorry this is slightly, short notice...... The NIHR Brain Injury MedTech Co-operative is one of the eleven MedTech and In Vitro Diagnostic Co-operatives (MICs) funded by the National Institute for Health Research (NIHR) across the UK. https://www.brainmic.nihr.ac.uk The invite is to an online briefing session from the NIHR Brain Injury MedTech Cooperative. The session will focus on the opportunities that this group has for acquired brain injury survivors to get involved in res
  4. Daff, Thanks for your words and thoughts. Interesting to hear what you said about the swimming. Fitness was a big thing for me pre SAH, though I never was a good enough swimmer to train hard, but I thought it might be good for me now. Boy I was wrong, I did a short 20 minute session, felt lousy for a couple of days afterwards. Not really sure what triggered the fatigue so badly, as in terms of cardio load I had taken it easy compared to other exercise I was doing. Ticked as tried and moved on. I have found the same, walking is the one thing I can do to a reasonable leve
  5. Gemma, lovely to hear from you, nice to know I'm not the only intermittent visitor here! Fatigue, and whether it is improving is something I do wonder about quite a bit. I try to reflect to the anniversary points and think have things changed? I think the progress is so gradual that it is hard to judge within oneself if things are getting better. My brother in law had an Ischemic stroke, about 12 years ago now, and the last time we spoke about this he felt that his fatigue had albeit gradually still improved over all those years. I know its slightly different but I do
  6. Clare, life pre-bleed does seem a long way away, I too can't really remember what it felt like to be able to do what I could then, I know I could do more, but I guess slowly the acceptance of the new life post bleed, becomes the norm. The highs and lows of life are framed within the new context of life post bleed (well most of the time, I still do throw my toys out of the pram at times if I'm honest when things get a bit too frustrating!) You are right, life is short and there are so many things to do, places to go and amazing people to meet, even post bleed there is a whole world
  7. Thanks, as you are probably finding out this is a great place to come, and share with people that understand where you are coming from. No judgement just kind support. It has been invaluable for the last five year!
  8. Hi Daff, Lovely to hear from you. Describing things year by years is a good way of looking at it. Year one for me was definitely, wow what happened there! I really felt I had dodged a bullet, and even to quite late on in year one thought I'd get back to work in some shape or form. It really felt like quite a positive time once the initial shock was out of the way. Year two was attempt at return to work year, which quickly became apparent wasn't going too well at all. I also spent some time that year on a Headway Rehab course, and that time spent with a small number of f
  9. Thanks Macca, good to hear from you. More wise words indeed. Yep throw the joys of getting older in there too! 😁 Cheers Greg.
  10. Thanks Casey. How many times have I done that, ploughing ahead regardless and then paying the price later, one day I'll learn!
  11. Thanks your advice is much appreciated. All very wise words indeed! Have managed to get my head around the idea of doing things in small more bite size pieces for something. For many of the jobs around the house, its a tactic I use a lot. For others likely driving, travelling etc. I can't seem to work a compromise so easily. The volunteering is slightly frustrating one for me. I have been successful ish with doing an hour a week at an after school science club. But that's been rather too intermittent in frequency, and not quite as I hoped. However, I have managed that
  12. Dear All, I haven't visited BTG for a while now, not sure why, I always get such great support and understanding. I think perhaps having found things getting harder over the past year or two, I have wanted to give less "air time" to SAH related problems as they were already taking up more of life than I would wish. This time five years ago, I was just getting started in the gym, a normal session, just a tad late out of work and getting going on the session. Then as we are all familiar with, that thundering pain at the top of my neck. Really thought I'd just messed up a
  13. Cheers Subs, same old same here thanks (in other words not too bad could be worse!)
  14. Good morning All. Just seen this survey request from Headway on Fatigue and thought I would share it. For those that haven't come across Headway they support anyone with a brain injury (they have regional UK branches in all counties I think) and also campaign hard to raise awareness. If you suffer from fatigue post brain injury and have a few minutes to spare, please have a look at the survey, link below: https://www.headway.org.uk/get-involved/campaigns/brain-drain-wake-up-to-fatigue/ All the best Greg.
  15. Evening Vicky, You have my sympathy I live out of the city and relying on busses was not fun, infrequent and unreliable. One thing though if the DVLA have suspended your driving licence then you are eligible for a bus pass. Small conciliation I know, but might as well save a few £'s . There are a few message threads on here re the DVLA and getting licenses back. Yes internet shopping my saviour! I don't like busy shopping places, they drain my energy and bring on headaches, so I venture there only when I really need to, or choose my times carefully! Couldn't live witho
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