Thank you for your kind words, I knew from the beginning that university in September was unlikely but Rebecca had to realise that for herself and come to terms with what has happened. She is still keen to try to do some of her exams this year and the school has been really good, offering 1:1 sessions and home visits (even for the exams if she gets that far). I don't put pressure on her to study, she asks for her books and we read together, discussing the topics she finds interesting- I've learned a lot from her about A level psychology and sociology!
For me, her recovery is the most important but I don't want to stop her doing what she wants - her body tells her when she has done too much and she knows now that she has to have lots of rest and quiet time, I take my lead from her.
On a positive side, we have become even closer than we were before, I have taken time off work to care for her so we spend most of our time together. We have comforted each other, laughed together, cried together, she is my best friend and I only want her to be the wonderful person she is. If it was up to me I would keep her at home forever, but I know she has dreams and I will always be there to support her.
Little steps each day, we can see how much she is improving week by week, she has been out with friends a couple of times during the holidays; she knows she has to maybe do things a little differently now - parties, loud music and flashing lights are out for now, but enjoying a lazy afternoon with friends on the beach or in the park is good, as long as the sun keeps shining! Heather x