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ddson

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Everything posted by ddson

  1. My wife lost her sense of both taste and smell after her SAH. 7yrs later and there's been no improvement. Funnily she still loves her chocolate. I think a lot has to do with her memory of how things used to taste as she won't try anything new.
  2. Hi Michelle Unfortunately at her last mri scan the radiologist let slip what I had suspected and tried to keep from her. There was one anneurysm, whether no12 or 13 we didn`t ask, that they hadn`t been able to get at while they had her head open. It was too deep and to get to it would have damaged the facial nerves. Also its size and shape prevented coiling. She now calls it her timebomb and seems to accept that it`s there. She appears to cope well with the knowledge and we try to keep the everyday pressures from building up too much. She is still keeping well, although she still suffers from the tiredness like most, thankfully she still appears her happy self. Dave xx
  3. Hi Doodles Not sure if this is too late. In my wifes case she had to have two crainiotomy operations. After her S/H she had coiling to stablise her while they worked out how to deal with her twelve aneurysms. Her first clipping was in a hurry, it was a bit horrific to look at, at first, but she survived with no serious complications. The second operation was scheduled to follow the first as soon as she was up for it. Once my wife got a little recovered she decided she needed time at home to gather her self before going ahead with the next op. The surgeons were unhappy but they agreed as long as she returned no later than six weeks, this she agreed to and came home. If she was worried she never showed it. In fact, come the day she returned, she all but skipped into the hospital. The wound this time was a piece of art. In both cases my wifes hair soon grew to cover the scars which unless she lifts her hair are invisible. I understand not everyone is as fortunate as my wife and she has days when she just wants to sleep it through but hope this helps to ease your worries. All our best wishes for yourself and your family. dave xx
  4. Since my wife`s brain hemorrhage over 2 yrs ago she has had no sence of smell or taste. We have to be carefull in the kitchen as she can`t smell anything burning, neither can she smell if something has cooked enough. The first few months were hard as we slowly came to realise what was going on and I literally had to plead with her to eat. We have worked out that she is OK with foods she has memory of eating but new flavours or foods are a no-no. She still enjoys the experience of going out for meals even though she can`t taste anything. At first if she asked if something was tasty I was wary of what to say as I didn`t want to upset her. I`ve come to accept that she needs to know that what she is eating is something she would enjoy if she could taste it. I know it sounds crazy but she`ll laughingly hold something up on her fork and ask if she`s enjoying whatever is on it. She also finds it funny when the staff ask if shes enjoying her meal. We are resigned to her not getting any better so treat it as our joke, as she says, its a small price to pay for still being here today. Her mother wasn`t so lucky she died instantly when hers occurred.......Dave.
  5. Hi Mary, please pass on our best wishes to your sister. We hope she makes a good recovery and continues to improve as time goes by. My wife continues to improve in slow steady steps but the fatigue still rules her life. She had an angiogram in November which confirmed what I`d suspected and had kept from her. Only 11 of her aneurysms had been treated. The last one was in to bad a position to get at from inside but not big enought to coil. Outwardly she seems to accept that she could live some years without anything happening but inside, only she knows, I just hope for the best for how ever long. Outwardly she is quite bubbly but she tires very quickly when her brain has to much information to take in. It is hard having to hold back and let her do things at her own pace. You just want to jump in and take over but to do that would possibly undermine her confidence in herself. When I get home from work I`ve to resist the urge to do everything so`s not to undermine her confidence. I usually do housework when she`s out so she doesn`t feel she`s not capable and letting things go.....Best wishes to you both for the future, Dave xx
  6. Hello Michelle My wife was 57 when she had her haemorrhage in Sept 2009, the aneurysm was part of a group of three, this was successfully coiled then clipped later. The other large aneurysms were also clipped to prevent any more blood entering them. The smaller ones were of a size that could not be clipped but could not be left untreated. These were wrapped with fabric impregnated with a hardening gel, to support the arteries and prevent the aneurysms expanding any further. They do not believe there will be any more trouble with the aneurysms treated by the clips or wraps. Between the two craniotomy ops she came home for six weeks to build her strength up. They were not happy for her to do this but she needed to come home to get her mind round what was happening to her. Alongside the tiredness and lethargy she has lost her sense of taste and smell, probably from the bleed but other than that she feels OK in herself. Because she looks well, if a bit tired looking, I think friends and ex workmates find it hard to accept what has happened to her. She can get a bit low but she says she tells her self, " get a hold of your self your still living and there are others worse off ". As to whether it is a congenital defect they could not be sure as her mother, died at 63, and others in her extended family have died of this, it could be genetic. Her twin brother and our daughter have both been scanned and both are clear. All the best for the future and hope all goes well for you, David
  7. My wife was found to have 12 aneurysms, 2 of which I believe were aneurysms on aneurysms . Her bleed was coiled then two craniotomy ops clipped and wrapped the rest. Don`t know the location or size of them, was probably told, but did not really take in everything that was said at the time.
  8. Hi Michelle, My wife suffered badly, coughing for nearly a week and bedridden for two , with flu the winter before her SAH. So when her doctor rang to say she had been flagged up for a flu injection she couldn`t wait to have it done. Dave
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