Jump to content

Winb143

Members
  • Posts

    4,798
  • Joined

  • Last visited

  • Days Won

    108

Everything posted by Winb143

  1. Winb143

    My story.

    Hi Philip, I was okay but felt tired on the day of my bleed SAH4 stayed in bed most of the day, Got up started making my Hubs tea a curry. He came home early as work had been rotten and he poured me a wine which I never got to drink as I passed out, 2009 and I woke up 2010 after shunt was fitted. So I was in cuckooland for a long while. It took me an age to get back to some normality, I knew after coming on here I wasn't alone and bang went the fear of my mortality as I never knew there were so many of us who had suffered these bleeds and it helps knowing you are not the only one. Saw my surgeon for first time after shunt check up, and I thanked him. He said to my hubby has your wife always talked a lot as if I wasn't there. So I interrupted him and said "When you are the youngest of 10 you have to speak quick as you wouldn't get a word in" !! Then he started speaking to me !! I told him my Aunt had a bleed and her 2 sons but surgeon said it was too distant it had to be immediate family ?? I still don't believe that xx lol But he must know more and he did save me after all xx Good luck xxxx
  2. Thing that helped me was the Brain talking to me.. " A Letter From Your Brain - By Stephanie St. Claire ©1996" It made sense to keep calm and it sort of explains what we've been through it is under "Inspiration" I think xxx (short term lol) https://web.behindthegray.net/articles.html/inspiration/a-letter-from-your-brain-by-stephanie-st-claire-©1996-r167/ It made me calmer to be with people who had their B.I. and the whole site helped me as I found people who could laugh again, so once again to Mods and Karen and Family a Big Thank You xxxx We are not alone xxxx
  3. Sorry I missed you Julian, Hope all is going well for you and family ~ Where would we be without them !! Seems like you are doing okay xx Regards to you and Yours Win xx 500/600 yards I can walk now it was 60yards when you came on here but back still goes lol xxx Keep Well xxxx
  4. Trust me Jean you'd need earplugs like Julian needed lol Think I sound good, then hubs says give it a rest Win ha ha that is when I realise the zzzz and buzzing I get stops me from hearing myself lol xxxx Better go to Docs about hearing xxxx Be well Swishy Jean XXXX
  5. Makes note never get around children and foil hooty tooties /blowouts :~ Julians advice. Bet the kids loved them but poor you..Still it could have been worse I could have sung a song lol. Good to hear from you Julian and apart from the blow outs all is well with you xx hasn't that year passed quickly !!! Keep them coming and letting us know how life is treating you after what You/We went through xxxx Good to hear from you again xxxx Keep em coming xxxxxx
  6. I love this post and all what you all did, for without this site us SAH'ers would be worse off but with it GREAT !!!!!
  7. I find singing happy songs and thinking how lucky I am to still be here really helps me !! I cannot take sad stories or doom and gloomers, I don't mean us on here, I mean my Sister who loves to tell me her sad stories arghhh lol. I find this site a great help, as we are told if you feel ill get in touch with your Doctor and hospital signs us off and we are in limbo. So when we know we are not alone in this and people can help us smile again, this is when Behind the gray helps xxx
  8. Hi Jo g, After I had my SAH I was waiting to die and became down in myself, but my daughter found this site and told me about it I was so pleased to know I wasn't the only one lol xx Slow but surely I realised there is a life after SAH, so I got my smile back !! Welcome and I cant tell you anything you do not already know as you had yours before mine. Being able to talk about it helps and give vent when you are on a downer etc xx. So Welcome to BTG and Good Luck to you in all you do xxxx So many of us who had bleeds xxxx It helps in itself xx
  9. Hi M~C, Sounds like you are doing okay, but try not to overdo things !! Easier said than done xxx I didn't wake up for over a year ..well I was awake but in my own little dream world (Hydrocephalus) talking to my Parents who had died, I even forgot my Dad was dead. I found this site and have never looked back it is a God send when we worry about little niggles etc as a trouble shared, as saying goes xxxx Good luck Win xxxx
  10. Well Done Karen and all your Family xxxxxxxxxxxxxxx
  11. Ahh Just seen what my Daughter put about my SAH my Sarah who called herself Bessie after our first Dog xxxx I am so glad she found this site and put me on here, even if I was a pain as I loved to sing in or out of Key. Without family I would have been lost and also this site has been such a great Help as I got my laughter back xxxx Thanks Lauren and Mum Karen xxxxx This site is a God send xxxxx
  12. Your words made me well up Sophie, it's a part of my SAH and me now !! Tears at the drop of a Hat !! We are survivors and you have done extremely well for a young girl to put it into words. I hope you have a good life and a happy one, now the world is waiting for Sophie's next instalment. On her survival adventure. Well done you for putting it so concisely as I cannot spell Succinctly lol xxxx Now remember a smile a day keeps the blues away xx All the Best, that old girl with the silly name ...Keep us updated wont you xxx Love Win xxxxxx
  13. That's the spirit Pat, When I get short term memory loss my Hubby and Daughter laugh, but now Tut a sure sign I am getting better. xxxx We will both get there and when down just come into Green room and have a chat with others, so many have had bleeds etc. We are like a Family who when our own get fed up we can share a problem with each other. You take care of yourself xxxx Nice typing to you lol xxx
  14. Hi Pat I have a sister named Patricia alias Patsy xx I used to get itchy head after my shunt woke me up so I decided to bathe it in warm salt water as my Mum used to swear by it. It does go but if it worries you see Doc. Sounds like you have done so well, I was told I'd never walk again but 250 yards then back aches on a good day!! I have had Epilepsy since puberty but noticed they had got stronger after SAH so Specialist upped pills and been seizure free since new pills in Feb. Touch wood !! Horrible things xx We are in it for the long haul but you will get there and some days you might feel so tired and another day you can take on the world. Then pay for it the following Day xx Keep happy and stress free as we are survivors and welcome to BTG and others might tell you to drink water listen to them xx Do not listen to others problems just be happy and think about the times you have laughed so much, it really helps. Wishing you all the best and Welcome to BTG xxxx Now a smile please xx
  15. I was afraid that I had outlived my life expectancy and was not ready for death. !!. Was so scared to be honest Think when we have a bleed it makes us think life is too short to worry about mundane things. I came on here and saw people laughing and joking about what they did weekend and it made me realize there is a life after Bleeds/Sah etc xx. So Jen and Jason welcome to the survivors club and remember we made it, all being a few drill holes short or a scar or two. We are here xxxx Have a good weekend All (That's an order lol ) xxxxx
  16. Well Done to Sophie and to Heathers Daughter look forward xxxx Never back only when you need to. Wishing both Young ones all the best for the future... And remember laughter is good for us and stress is not good xxx Thanks for update xxxx Win xxxx She who sings and drives others potty xxx
  17. Colleen, Congratulations and this site is a God send when we have our bleeds etc. Glad you are doing well xxxx Win xxxx
  18. Hi Peter J, We found this site and knowing we aren't alone in our fight to recover helps us, and it is good when worried to come on here and tell our worries. A trouble shared and so on as they say !! I find remembering good times helps me and trying not to stress, when stressed I sing, my poor family. It is a long haul so do not rush and always keep calm when possible xx Good luck and we are all in the same boat so it is good to share a nagging doubt xx Regards Winb143
  19. Good luck Shobs and may half term be a peaceful one ha ha as it never is xx Glad all is well and you can now watch hubby get better slow but sure !! Now the work begins and you will know when he is better as you get back to normal life with each other xx Wishing you all the Best for You, Sandeep and family and good you can even type a smiley xxxx Be Well xxxxxx
  20. Good luck and let tears fall as it is harder on our loved ones, as we are out of it and do not worry but our loved ones do xx Well done Shobs and Sandeep xx Keep bright and good luck both xxx Win xxxx
  21. Hi Ann, I had an SAH and I remember nothing until shunt was put in to stop hydrocephalus. Welcome to BTG and hope talking about it can help in some way as a trouble shared and so on xx I was cooking a curry when I passed out and after that it was like being in cuckoo land xx You will get there but take it easy and others say drink water, it helps our brain xxx Good luck on your recovery and keep away from sad stories, a smile is much better xx
  22. Hi Lori, No rush, get yourself better as it is a long haul, so better to be safe xx My Neuro Surgeon told me no stress so I sing when stressed, and life is full of stress !! and my dulcet tones ha xx You will make it, we all get Downer Days and then happier Days, Part and Parcel of a bleed xx Enjoy your baby and get well. Be Happy it really helps xxxxxx Regards Win xxxx
  23. Third time of trying to write post so here goes nothing xxx Clara I have a Sister who is lovely but only tells me sad stuff and I cannot take doom and gloom in life xxxx I used to love a good chin wag but since my SAH I need to be happy which is nigh on impossible lol xx So keep away from doomers and gloomers and remember we survived so a smile every now and then helps xxx Good Luck Win xxx Keep smiling xxx
  24. Sorry I am late Chris, Well Done to you xxxx Singer meee ha ha xxxx Joke there Had a lot on plate at Mo. Keep the good work up xxxx Win xx Love to you and Family, you are right we are survivors xxxx
  25. Hi Dotty, I thought I lived in my old house and my short term memory is arghhh !! My house looked different all they had done was change the fireplace, Give him time but also keep an eye open for him, make sure he has no stress and sing him songs he liked xx Happy ones. Always make sure( if he has a catheter in) that it doesn't get too full. All that others have put xx Water etc xx Good luck to you and Dad xxxxx Slow but sure is the procedure xx
×
×
  • Create New...