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Sandi K

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About Sandi K

  • Rank
    Senior Member

Profile Information

  • Gender
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  • Biography
    I'm a positive thinking person in a happy relationship and have 2 wonderful step kids who are are now grown up.
  • Location
    Victoria, British Columbia
  • Interests
    Mexico, Hawaii, and Vegas. Warm sunshine on my face. Hugs from my dog.
  • Occupation
    I.T. Manager
  • SAH/Stroke Date
    November 10, 2010

Recent Profile Visitors

512 profile views
  1. Yes, I knew something was definitely wrong with me. I was feeling fatigue for months before the SAH. I said to people that I was exhausted and couldn't figure out why. Even vacation time and quiet weekends were not helping to refill my energy tank. I began going to the doctor a few weeks before SAH and explained I was not feeling right. We did blood tests and an ECG and even a skin biopsy on my leg thinking maybe I had cancer. Nothing was found. My doctor apologized and said she couldn't explain why I felt exhaustion and general malaise. 2 weeks later I had the SAH. A long time afterwar
  2. Iola, sustaining attention is one my problems too. The getting up and walking around every hour or so also helps me to refocus. Some days it's nearly impossible though, it depends on level of fatigue for me. Wondering if you've had a neuropsych assessment done? It will pin point any attention problems you have. Having my report is helpful for my return to work because it outlines in detail what I need. Much better than both my employer and myself trying to guess as we go along. Sandi K.
  3. I'm overdue for an update. Have been avoiding it because my new boss quit! I think it was the second week, my third shift. I was shocked and suddenly feeling very uncertain. It was such a good way to slowly dip my toes back into work and new boss really seemed to understand that I need quiet, focus, and few interruptions. I was so relieved that I wouldn't have to be advocating for myself constantly and explaining the whys of how my brain works now. Since then there still isn't a replacement, so I'm continuing on with my project and working from home as planned and trying not t
  4. Hello everyone! Sarah Lou, there is so much change for your brain. You need time, give yourself a break. Think about what you would say to one of us in the same situation and say that to yourself. Care for yourself. You are in a new routine and learning new things. That's rough for us SAH folks! Dawn, how are things now? As I read your posts I was thinking of you working with two systems side by side, old and new and no wonder you aren't keeping up. Really, you are trying to do twice the work in the same amount of time. But actually, it's more than twice the work because you a
  5. Well done you!! Good advice you are giving us, thank you. Sandi K. Xoxox
  6. Not much has changed for me yet so haven't updated for a long time. However, things are about happen! I've been volunteering same shift for some time now. Tues, weds, thurs 4 hours each day. On Fridays I take a 2 hour Coping Strategies class through the Brain Injury Society. It's been really great. 25 weeks long and half way through now. A lot of it has been validation which can be a wonderful thing. Knowing we aren't alone and that things like fatigue and attention problems that I struggle with are shared by others is comforting as we talk about our experiences and learn how to co
  7. I'm 3 years on and still figuring out who the new me is. Some new things come quite naturally now. Like grabbing my sunglasses, water, and earplugs before I leave the house. Spending anywhere from 30 minutes to 3 hours laying down every afternoon feels quite normal now. But there are many times where I have to pause with confusion because I don't know how to move forward. I wish I could stop and do a mental check in with myself but 'myself' doesn't know what all the answers are! If I'm asked to do something (like give a talk for example) after 3pm I'm really thrown off kilter. I want to
  8. Zoe, I'm so sorry this has happened. Thoughts are with you. Sandi K.
  9. Dawn, I'm just seeing this today. I hope I'm not too late to weigh in on the forms. At one point I summed everything up as fatigue. When I said I had fatigue my doctor asked me to describe it in detail. My detail included heavy arms & legs, sore muscles, sore throat, hoarse voice, tight head, head ache, and the list went on. I also include inability to concentrate, plan, organize, problem solve or make desicions and an overwhelming feeling of exhaustion. Many of you have seen me write it here as my 'weirdo symptoms'. My GP said she would sum it all up as neurological sympt
  10. Wondering how it's going for everyone who is back to work. I finally cleared my old work clothes out of my closet this past weekend. What a huge turning point! Part of 'letting go of the old me'. I'm pretty sure my neuropsych is going to recommend I start returning to work gradually again (in a different capacity and slowly) and that's exciting! And scary all at the same time. In the meantime I'm volunteering and have begun a 'coping skills' class every Friday for 2 hours and runs 25 weeks at the local brain injury society. Sandi K.
  11. I'm still finding the Dexedrine to be helpful. I don't take very much. Usually only 7.5 mgs a day. Some days I will take double that spread over several hours if I've got dinner plans or nighttime plans but that isn't very often. If I take too much it brings on a headache. If I forget to take it the fatigue slams hard and fast and includes sore arms and legs, foggy confused head, tight head, hoarse voice, and exhaustion. 20 minutes after taking the med I perk up again. I asked neuropsych if this is causing any problems for brain recovery and he didn't believe so. On November 15 a p
  12. Had 2 days of testing two years after the first testing. The first tests were done 1 year post NASAH. The second tests done at 3 years post NASAH. First time my executive functioning (planning, organizing, decision making) came out in the low 30% range compared to others my age. This time the number came in at a whopping 95%. Great improvement! Still problems with attention though. There was some improvement but not much. Neuropsych said I may continue to improve but it will be slow and I will likely always have problems in this area. Selective attentio
  13. Well done Daffodil, thank you for sharing. I like the term 'unitasker', I'm going to steal that! Sandi K.
  14. The idea of 'letting the brain injury win' is not the right way to think of it and Dawn I'm sure you blinked at that comment. We need to learn to cope with our daily challenges with brain injury and part of that is learning what our capabilities are. Everyone is different, if your quality of life will be better with fewer working hours then that is absolutely the way to go. Hopefully the info Lynne and Daffodil have provided will help get you there. Ask your friend if running on a broken leg is the way to heal it and when it gets worse is it letting the broken leg win?
  15. Susan, wow! This is such a good description of me! I can imagine your head being tight after writing that but what a fantastic piece of work you've created. Sandi K.
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