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weedrea

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weedrea last won the day on March 14

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About weedrea

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  • Birthday 14/05/1976

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    Female
  • Location
    Western Isles

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  1. I was a similar age to you when I had my bleed (I was 39). My advice would be: - Drink lots and lots of water - Have a lie down or nap, even for just 1/2 hr, every evening - does wonders to just give your brain a little rest for a while. I had a whole year of this and still do it when stress levels are high - Take it easy with work. I had 3 months off and then 3 months building back up to full time. I'd recommend either Fridays off to give you a long weekend or Wednesdays. Wednesdays I found particularly helpful so that I was only working 2 days at a time - Build up your own confidence regarding exercise. Whilst I can't prove it, I'm sure strenuous in the days leading up to my bleed had some effect. But that's my own thoughts. I built up slowly, maybe only managing 5 mins walking at first (I was afraid to go out of sight of the house). I have found swimming to be an excellent, low impact exercise. I've recently gone on my bike for the first time, managing ~18 miles. Wonderful to have that freedom again (with a helmet of course!!). I wish you all the best in your recovery. Andrea
  2. Very wise to cross the T's etc. I had a period of continual headaches and in the end found out it was caused by sucralose. I'd started taking some supplements to try and help with my arthritis and ended up giving me a constant headache! Fingers crossed that you find some answers.
  3. Thanks all for your kind words. I used to have to fly to Glasgow or Inverness 3 or 4 times a month with work before my bleed. Now I'm not quite so relaxed about traveling but still have to do it at least one a month. So as well as my scan, I get to distract myself with work meetings... Lucky me! I'll also hopefully get to finish my book on Edwyn Collins' recovery. It's been a tough, but inspiring read. I watched a programme last week on The Proclaimers (if you like them I'd thoroughly recommend it on iPlayer). Edwyn had been the producer on one of their albums. It was just so lovely to see him on the screen remembering, talking and laughing.
  4. 4 years today I had my bleed. Where does the time go? Been feeling pensive and a little anxious about it. I'm off to Glasgow on Monday for my 4 year check up scan. The last one I had was 2 years ago so having another scan suddenly brings the memories all back. Also, when I had my 1 year scan, I went with my mum. At that stage she had already had terminal cancer for 18 months. Those few days in Glasgow were probably the last quality time I spent with her as she was just overwhelmed by cancer during her last 6 months. So many mixed emotions about it all. Thanks guys for all the support. Andrea
  5. Welcome to the group. I live in the Western Isles and I too got the air ambulance to the central belt....though I got taken to Glasgow, so I presume you're from the east coast of Scotland. What would we do without the air ambulance? Live savers indeed. I'm just coming up on 4 years since my bleed and coiling. It definitely takes a while to get back on an even keel. As for stressing about the coil - that is normal. I had check-up scans after 6 months, 12 months, 24 months and (after none last year) I'm off in the next week for my 4-year scan. They'll keep monitoring it until they're sure everything is stable. Depending on where you are, they will likely do your scans down in Edinburgh. I had my first scan in Inverness (no MRI in Stornoway so this is closest) but I'll be honest, it was a pain to organise as it was different health boards so now I just go down to Glasgow for my check-ups. I had 3 months off work, and a further 3 months working up to full time. I am fortunate to work from home and still now 4 years later I find it hard when I have to travel for work and spend time in the office. Take it easy and sleep, sleep sleep! I think it was best part of a year before I could cope without a half-hour evening snooze. I still do it when work is stressful. Glad you've found this group. It's very encouraging speaking with others who understand what you're going through. Andrea
  6. Welcome! A Doonhamer are you? My hubby is from Dumfries and we used to live there a while back. Beautiful part of the country to live in. Andrea x
  7. For me it is like a brain fog when I can't think on my feet, take extra time to answer questions when someone's talking to me. Almost like the words are hidden. The other sign for me is grumpiness! When I loose my cool because I can't think straight, I get sent to my bed like a kid!! Half-hour eyes shut is usually enough to reset.
  8. I'm 3 1/2 years past my SAH. I went back to work 3 months after it - first month back 3 days a week, second month 4 days then full time. By the time I went back full time I had lots of annual leave allowance so I ended up taking most Friday's off for another few months. Overall I've not had any real negative impact from my SAH. I'm back working full time but I have the benefit of managing my time to fit with my energy levels. I work at home and I've never been a 9-5 worker. I have the benefit of being in control of my own work so it's no issue if I work at 9pm or 10pm if that's when I'm feeling best - as long as the work gets done on time (but no-one ever arranges for 9am meetings for me!). I have been very fortunate in my recovery but going back to work full time was still a struggle. I spent the first 8 or 9 months having a 30min nap every evening when work was finished for the day. I could still do with that sometimes! When I didn't have my nap I was the grumpiest person in the world! I still have lots of 'times out' during the day - walking the dog (well not now since my old boy left me *still sad*), making a cup of tea...whatever, to break up the day and get away from the computer screen. In my previous life I adored spreadsheets (sad, I know!!) but now an hour and it makes me feel ill and a little crazy! So I'd just suggest you be aware of your own stress levels and tiredness and take breaks as you need them. Worst thing is to try and struggle on. As a starter I'd say if you have annual leave to use up then take Wed's off or Friday's or something to break up your week. It definitely helps if that's an option for you, even in the short term. Happy to chat more or offer more advice if I can... Andrea
  9. Mine has been like that since the start. I had scans at 6 months, 12 months, 24 months and now they've said not to come back until 48 months. Sometimes they settle or change shape so it means an extra coil could be put in. My has changed slightly but not enough and clearly they're not worried given they didn't want to see me for my 3rd year scan. My understanding is that most changes happen fairly early after coiling so it is probably just the coils compacting a little and settling in their place. A scan every year sounds like a good level of monitoring as if there's any additional changes then they should see it before anything untoward might happen.
  10. I had my bleed 3 years ago and for the last year I've been on a Keto diet. I've had no negative issues from it. There's lots of incorrect information out there about it being bad/unhealthy/dangerous but I haven't seen anything to convince me. There's definitely a lag between "current nutritional advice" and the latest nutritional research. I've just finished reading "The Big Fat Surprise" and "The Obesity Code" and I spend lots of time listening to talks/reading blogs on all things nutrition. Convinced this is a healthy way of eating, but clearly everyone is different! There's evidence that higher fat diets actually protect against heart disease (and that low fat diets are more dangerous for heart health). It's sugar that causes heart disease, not fat. And Keto had been a diet that's been around long before low-fat was a thing. It was (and still is) used to treat kids with epilepsy that can't be managed with meds. And glucose isn't something I need to eat to survive...the liver makes more than enough every day. I'd actually say my "brain health" feels better on keto that before (maybe less inflammation), moods more stable, much more energy and a lot less anxiety/low feelings. I'd recommend watching "The Magic Pill" on youtube (and Netflix). Really interesting look at nutrition in the widest sense. (and I'll get off my soap box now)
  11. Congratulations! First year down, here's to many more!
  12. I have two aneurysm, one which bled and was partially coiled and a further one that is being monitored. I had scans at 6 months, 12 months and 24 months. Last year the neuro nurse phoned me and said everything was stable and so they'd ask me back for another scan next year (she said they'd do it every year "because you're young"....aww thanks!). I never got a formal letter from them confirming last year's scan and when I phoned this year they said it was actually on my file that my next scan would be next year and nothing this year. How regularly do you get scans? Thinking of speaking to my GP about this to see if I can push for one this year. Thanks Andrea
  13. I'm a night-owl so had just put the kettle on for my last cuppa of the night when it happened. Problem was my local little hospital wasn't that interested in me - I didn't even see a doctor until 6am and that was only so he could send me home with some paracetamol! Still, glad someone from the dayshift thought it was worth reviewing my file! The doctor wasn't keen at the time to get the radiographer in to do a CT scan as he didn't think it necessary. But I've since learnt that due to shortages of radiographers in the UK that all our local CT scan outputs get sent to Scottish Borders Hospital to be assessed so it is a rather convoluted process!
  14. 3 years ago today at 1am I had my SAH. Sharing experiences and everyday news on here really does make me feel part of a wonderful community! I may never meet any of you but thank you none the less!
  15. It just confirms we're all our own unique mix of biology!
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