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weedrea last won the day on September 20

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About weedrea

  • Birthday 14/05/1976

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  1. ...I prefer to call mine Priti Patel - small and malevolent. But let's not get political here! The only thing I will say is having been brought up in Northern Ireland. the "Ulster-isation" of politics in Scotland and the UK more generally is so very depressing. Everything is becoming so polarised, it's them vs us. It makes me so sad. It wasn't until I left NI when I was 18 that I realised the psychological impact of living somewhere constantly on edge. Anyway, back to the point in question. I am quite like you in that I want to know the "why" for everything. I have arthritis in my wrists which I've had since I was a child. About 9 years ago I quit all my medication cold turkey - something I would not recommend to anyone. I was young and foolish! Anyway, I spent the next few years reading everything I could, trying to change my diet, lifestyle etc to "help" my arthritis. Whilst it hasn't "fixed" anything, I have got to the stage of not needing medication and have slowed down the degeneration of my wrists. I know many people would say I'm still being foolish by not taking the meds but I want to understand why it's happening and not just take medication to reduce rather than heal the problem. So when I had my SAH 5 years ago I approached my "research" with similar gusto. I'll say one thing, it is a rabbit hole. And 5 years on I have no real answers. Do I have any of the risk factors for a brain bleed? No Did I have high blood pressure? No - in fact I had low blood pressure! Family history? No Was I exercising too hard? Doubt it Have I always had brain aneurysms? Who knows! Did my low-protein diet in the years before my bleed have an impact? I feel yes it must have. It surely can't be good for vein health to not be eating good quality protein. Did my long-term inflammation from arthritis have an impact? This is one that I can say maybe. Inflammation can damage blood vessels so it'd be logical to think it could have an impact. https://nnjournal.net/article/view/220 And so did my "cold turkey" on the meds make a difference given I wasn't taking anti-inflammatory medication? Possible. I'd always viewed not taking painkillers as good given they can reduce blood clotting. But then I read this and again my answer is, who knows! https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4458147/ My aneurysms haven't grown or changed since my bleed. Has eating meat helped? Probably yes. Has fasting helped? Probably yes https://www.healthline.com/health-news/fasting-can-help-ease-inflammation-in-the-body and https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3695639/ So who knows anything! There's so much uncertainty about how or why brain bleeds happen and that just then that makes it feel like facts and stats are limited. I've resolved to view my bleed as a freak incident, one that will hopefully not happen again. All I can do is be aware of the risk factors and do my best to reduce them. My brother is a doctor and his advice to me was "try not to bang your head"....seriously?! 7 years of study for that wisdom!
  2. Sarah you've really cheered me up this Thursday evening. So happy you've got such a clear and positive letter from the doctor. Brilliant news. Now time to let all that stress melt away and enjoy the weekend.
  3. Money is overrated (unless you've got none!) Congratulations on the anniversary!
  4. Agree with everything Karen says. It is common to feel like this. The first one after my bleed was playing the local radio station so you could hear it during the scan. That was great, but the show was people phoning in to tell funny stories so it was very difficult to stay still and not laugh I find that closing my eyes from the second you lie down until it's all over is good as well. Be kind to yourself. Remember everything you're feeling is absolutely normal.
  5. I feel there is something about people not wanting to see the fragility of life and the realisation that we're not really in control sometimes with what happens with our bodies. I remember a colleague saying to me "but you're fine now" and I was so annoyed I couldn't put together a coherent sentence to answer them. Yes, I am fortunate that I don't have any noticeable physical issues but that doesn't mean I'm fine emotionally or mentally. Some people's reaction seems to be that it's easier to just pretend nothing ever happened.
  6. Very sound advice. I think it's a very good point to stress that it doesn't matter how small the bleed is, there is always some residual impact - whether it's physical, emotional or both. I'd love to say everything was back to where I was before my bleed but, amongst other things, my perspective on life has changed and for me I've balanced how I live and manage stress etc. (i.e. no more 30+ flights a year!). PS Pat - I've maybe said this before but I grew up desperate to go to BC. My gran's brother emigrated out there and we got sent "Beautiful British Columbia" magazine every quarter. It's the place I've wanted to visit most! Totally inspired me. I think I still have some distant family in BC.
  7. This sounds quite like me other than mine was caused by an aneurysm that was coiled. But I too didn't lose consciousness and it was a fairly small bleed which had me in hospital for about 10 days. Best advice - take it easy on yourself. Think of this as like having a broken leg, healing will take a while - any blood on the brain causes some level of damage. In my case, I'm 5 1/2 years post bleed but fairly close to where I was before it. Though stress and tiredness impact me much quicker than they used to. I'm back working full time ( I know I've been very lucky!). I also have the benefit of working with a team who were with me through the bleed so have some level of understanding of the recovery process. For me I had 3 months off completely then 1 month back 3 days a week and a further month back 4 days a week. By then I'd so much leave to take that I had another couple of months with one day off a week. I'm sure others will say more but the two things I've repeated many times: Firstly, drink lots of water and secondly have a half-hour lie down every evening (not necessarily to sleep but more to turn off the outside noises etc and give your brain a rest). I did this every day for at least a year and when I have stressful days, I still do this. In answer to your question, yes it took me a couple of months to get over the noise sensitivity and around 6 months before the daily headaches were gone. Remember you're brain is recovering from an injury so doing "normal" stuff is like it trying to do it but with less than 100% capacity - your brain gets tired quicker....and when it does it can overwhelm you very quickly (my hubby says I turn into a toddler having a tantrum and I get sent to bed!). Manage your stress and manage your tiredness, but also don't expect that this will be suddenly over in days (this is like a broken leg, not a sprained ankle). Whether you get back to 100% or adapt to something different, it's a journey. But please don't be hard on yourself, continue to come and talk with us! Always remember, you may not have outward scars to prove it, but this is a major event that you've been through.
  8. Not sure if this is the right place to post this but I've been thinking about how different we can react to similar events/life challenges/lockdown. I came across this interview with Amy Callaghan, the MP who had an SAH earlier this year. It's interesting and honest perspective on dealing with serious illnesses (she's also had cancer twice). https://www.holyrood.com/inside-politics/view,battling-through-exclusive-interview-with-amy-callaghan It reminded me of a song written by Julie Matthews called "The sum of what I am". It was written for a Radio 2 program which was interviewing a number of people who had HIV/Aids. I think I heard this just after my mum first became ill and it really struck a chord with me. We've all been through a major life event, but that isn't just who we are. We're much more than that.
  9. Agree with what Karen says. I'd just add that the first year after my bleed I went for a lie down/snooze every day from 6pm to 7pm. Definitely the quiet and dark is good for resetting things.
  10. Well a bit of a fright this morning from Google Photos! Here's your photo memory of something that happened 5 years ago today....and it's a picture of me in my hospital bed! Thanks for all the support! Andrea x
  11. The song thrush was out last night in the garden....made me think of Win. x
  12. Matt I'm quite like you as well...two aneurysm, one of which bled. Though if we're taking count, I only needed 1 coil as my aneurysm was so small! I think they needed to get the microscope out to see it. As others have said, take it easy on yourself and remember that you have had brain surgery, and that is definitely not nothing. I took a little longer to get back to work than you and by then had so many holidays that I took every Wednesday off for about 3 or 4 months. I still take a couple of Fridays/half days off when things get too much. Evening snoozes, even for 30 mins, are a must if you're feeling like meeting are too much. I am also very lucky with my employer in that I work at home full time but I definitely find it very tiring still (4.5 years after my bleed) when I have to go into the office for all-day meetings. I also think after a traumatic event like this, you can get 'survivors guilt' especially when you feel that others are suffering much worse. But never forget, you're a brain surgery survivor.
  13. Daff Congratulations on 8 years. When I was in hospital my hubby came across your blog and I want to thank you for writing it. During that scary time in hospital, your blog was a real comfort. Not that you glossed over the difficult moments or made light of it all but because of your honesty at the struggle and adaption you were going through. Like many of us I had no clue how seriously ill I was, what the challenges would be or indeed what recovery (I think you say it better as "adaption") could look like. But your blog helped me know that I wasn't alone, so thanks for that. Andrea x
  14. Welcome to the forum. I'm not sure I can give you any advice here but I know others who have been in similar situations will. Just wanted to say 'hi' and thinking of you as you go through this difficult time. A x
  15. I agree with Skippy....a 'small leak' is still a bleed and any blood on the brain will cause damage, whether that's temporary or not will remain to be seen. I had a coil fitted after a small bleed. I didn't pass out at the time or have any other side effects during recovery but for me it took 3 months before I went back to work and then it was one month for 3 days, then another couple of months for 4 days. Headache was there constantly for about 6 months but have improved greatly since. Tiredness is another side effect to be aware of. I went at least a year with a 30-60 mins nap every day - definitely good to reset. I'm 4 1/2 years post op now and the only lingering change is my inability to cope with a lack of sleep...no more early morning travel with work for me. I'm also not great in long meetings or stressful situations but it's something that can be managed. I wish you well in your recovery.
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