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weedrea

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weedrea last won the day on March 14

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About weedrea

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  • Birthday 14/05/1976

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    Western Isles

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  1. For me it is like a brain fog when I can't think on my feet, take extra time to answer questions when someone's talking to me. Almost like the words are hidden. The other sign for me is grumpiness! When I loose my cool because I can't think straight, I get sent to my bed like a kid!! Half-hour eyes shut is usually enough to reset.
  2. I'm 3 1/2 years past my SAH. I went back to work 3 months after it - first month back 3 days a week, second month 4 days then full time. By the time I went back full time I had lots of annual leave allowance so I ended up taking most Friday's off for another few months. Overall I've not had any real negative impact from my SAH. I'm back working full time but I have the benefit of managing my time to fit with my energy levels. I work at home and I've never been a 9-5 worker. I have the benefit of being in control of my own work so it's no issue if I work at 9pm or 10pm if that's when I'm feeling best - as long as the work gets done on time (but no-one ever arranges for 9am meetings for me!). I have been very fortunate in my recovery but going back to work full time was still a struggle. I spent the first 8 or 9 months having a 30min nap every evening when work was finished for the day. I could still do with that sometimes! When I didn't have my nap I was the grumpiest person in the world! I still have lots of 'times out' during the day - walking the dog (well not now since my old boy left me *still sad*), making a cup of tea...whatever, to break up the day and get away from the computer screen. In my previous life I adored spreadsheets (sad, I know!!) but now an hour and it makes me feel ill and a little crazy! So I'd just suggest you be aware of your own stress levels and tiredness and take breaks as you need them. Worst thing is to try and struggle on. As a starter I'd say if you have annual leave to use up then take Wed's off or Friday's or something to break up your week. It definitely helps if that's an option for you, even in the short term. Happy to chat more or offer more advice if I can... Andrea
  3. Mine has been like that since the start. I had scans at 6 months, 12 months, 24 months and now they've said not to come back until 48 months. Sometimes they settle or change shape so it means an extra coil could be put in. My has changed slightly but not enough and clearly they're not worried given they didn't want to see me for my 3rd year scan. My understanding is that most changes happen fairly early after coiling so it is probably just the coils compacting a little and settling in their place. A scan every year sounds like a good level of monitoring as if there's any additional changes then they should see it before anything untoward might happen.
  4. I had my bleed 3 years ago and for the last year I've been on a Keto diet. I've had no negative issues from it. There's lots of incorrect information out there about it being bad/unhealthy/dangerous but I haven't seen anything to convince me. There's definitely a lag between "current nutritional advice" and the latest nutritional research. I've just finished reading "The Big Fat Surprise" and "The Obesity Code" and I spend lots of time listening to talks/reading blogs on all things nutrition. Convinced this is a healthy way of eating, but clearly everyone is different! There's evidence that higher fat diets actually protect against heart disease (and that low fat diets are more dangerous for heart health). It's sugar that causes heart disease, not fat. And Keto had been a diet that's been around long before low-fat was a thing. It was (and still is) used to treat kids with epilepsy that can't be managed with meds. And glucose isn't something I need to eat to survive...the liver makes more than enough every day. I'd actually say my "brain health" feels better on keto that before (maybe less inflammation), moods more stable, much more energy and a lot less anxiety/low feelings. I'd recommend watching "The Magic Pill" on youtube (and Netflix). Really interesting look at nutrition in the widest sense. (and I'll get off my soap box now)
  5. Congratulations! First year down, here's to many more!
  6. I have two aneurysm, one which bled and was partially coiled and a further one that is being monitored. I had scans at 6 months, 12 months and 24 months. Last year the neuro nurse phoned me and said everything was stable and so they'd ask me back for another scan next year (she said they'd do it every year "because you're young"....aww thanks!). I never got a formal letter from them confirming last year's scan and when I phoned this year they said it was actually on my file that my next scan would be next year and nothing this year. How regularly do you get scans? Thinking of speaking to my GP about this to see if I can push for one this year. Thanks Andrea
  7. I'm a night-owl so had just put the kettle on for my last cuppa of the night when it happened. Problem was my local little hospital wasn't that interested in me - I didn't even see a doctor until 6am and that was only so he could send me home with some paracetamol! Still, glad someone from the dayshift thought it was worth reviewing my file! The doctor wasn't keen at the time to get the radiographer in to do a CT scan as he didn't think it necessary. But I've since learnt that due to shortages of radiographers in the UK that all our local CT scan outputs get sent to Scottish Borders Hospital to be assessed so it is a rather convoluted process!
  8. 3 years ago today at 1am I had my SAH. Sharing experiences and everyday news on here really does make me feel part of a wonderful community! I may never meet any of you but thank you none the less!
  9. It just confirms we're all our own unique mix of biology!
  10. My recovery sounds a lot like yours. I'm coming up in my 3 year anniversary. It took me well over a year to stop needing a snooze after work. In fact my husband still sends me to bed for a nap when I get grumpy... Makes me feel like a toddler! Also headaches for me are a definite sign of doing too much or being stressed. Drinking enough, sleeping and getting out for a short walk are what I usually do when they strike. I have to go away with work a lot and the travel/early starts are a sure fire way of causing headaches for me. I'm fortunate that I work at home and so I have the luxury of going and sitting outside for 5 and getting away from things that way. What about maybe getting up and making cups of tea, or finding an excuse to go for a walk in the office to speak to someone. Lots of breaks, give your brain time to relax!
  11. Here's another one I'd not heard of before: https://www.thefreelibrary.com/Japanese+stroke+clues%3A+are+there+risks+to+low+cholesterol%3F-a07551979 Cholesterol good Shimamoto's group suggests a mechanism to explain how low blood cholesterol increases the risk of cerebral hemorrhage. Because cholesterol plays a vital role in maintaining cell membranes, they say, a lack of cholesterol could lead to weak artery walls prone to rupture, especially when under high pressure. Researchers reported the first MRFIT findings in 1982. In a new analysis of MRFIT data reported in the April 6 NEW ENGLAND JOURNAL OF MEDICINE, scientists found a sixfold greater threat of death from cerebral hemorrhage in middleaged American men with total serum cholesterol levels lower than 160 mg/dl and elevated blood pressure above 90 mm mercury diastolic. The inverse relationship between cholesterol and hemorrhage disappeared for people with normal blood pressure and for those with cholesterol levels above 160 mg/dl. The study was led by Hiroyasu Iso of The Center for Adult Disease in Osaka, Japan, working at the University of Minnesota in Minneapolis with David R. Jacobs Jr. and colleagues. Iso was also a coauthor of the Ikawa Town study.
  12. It'd help if I'd booked the actual report I copied that from! Trying to trace my surfing route.... http://stroke.ahajournals.org/content/strokeaha/46/7/1813.full.pdf https://hal.archives-ouvertes.fr/hal-00552714/document This is the one with the quote... https://helda.helsinki.fi/bitstream/handle/10138/28671/Long-Term+Excess+Mortality+after+Aneurysmal+Subarachnoid+Hemorrhage.pdf;jsessionid=B3E4B15C2C83D01AF8D9905953A9F3A2?sequence=1 Report is called "Long-Term Excess Mortality after Aneurysmal Subarachnoid Hemorrhage"
  13. You got me reading medical research documents again! lol One concluding quote from one that seemed interesting: 'Therefore, aneurysmal SAH should be viewed more as one aspect of a chronic general vascular disease, and more attention should be given to treatment of risk factors and long-term follow-up of these patients.' So I'd presume having more collagen can't be bad.
  14. That's an interesting discussion you had. I don't eat any meat other than fish but when I had my SAH was when I was closer to veggie than pescatarian. I've always had my own thoughts that I hadn't been eating enough collagen at the time. I've also got arthritic wrists so I've started upping my protein and taking joint supplements (I'm trying some that are for bodybuilders...the website advertising them is the scariest thing I've ever seen lol!!). Hoping it helps protect my head too! Every now and then I also get a burst vein on my finger or thumb without a trauma. Apparently it's just a random thing some people get but always makes me think my "vein health" isn't that good.
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