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weedrea last won the day on May 26

weedrea had the most liked content!

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About weedrea

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  • Birthday 14/05/1976

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  1. weedrea

    One year anniversary after SAH

    Mine has been like that since the start. I had scans at 6 months, 12 months, 24 months and now they've said not to come back until 48 months. Sometimes they settle or change shape so it means an extra coil could be put in. My has changed slightly but not enough and clearly they're not worried given they didn't want to see me for my 3rd year scan. My understanding is that most changes happen fairly early after coiling so it is probably just the coils compacting a little and settling in their place. A scan every year sounds like a good level of monitoring as if there's any additional changes then they should see it before anything untoward might happen.
  2. I had my bleed 3 years ago and for the last year I've been on a Keto diet. I've had no negative issues from it. There's lots of incorrect information out there about it being bad/unhealthy/dangerous but I haven't seen anything to convince me. There's definitely a lag between "current nutritional advice" and the latest nutritional research. I've just finished reading "The Big Fat Surprise" and "The Obesity Code" and I spend lots of time listening to talks/reading blogs on all things nutrition. Convinced this is a healthy way of eating, but clearly everyone is different! There's evidence that higher fat diets actually protect against heart disease (and that low fat diets are more dangerous for heart health). It's sugar that causes heart disease, not fat. And Keto had been a diet that's been around long before low-fat was a thing. It was (and still is) used to treat kids with epilepsy that can't be managed with meds. And glucose isn't something I need to eat to survive...the liver makes more than enough every day. I'd actually say my "brain health" feels better on keto that before (maybe less inflammation), moods more stable, much more energy and a lot less anxiety/low feelings. I'd recommend watching "The Magic Pill" on youtube (and Netflix). Really interesting look at nutrition in the widest sense. (and I'll get off my soap box now)
  3. weedrea

    1 year today!

    Congratulations! First year down, here's to many more!
  4. I have two aneurysm, one which bled and was partially coiled and a further one that is being monitored. I had scans at 6 months, 12 months and 24 months. Last year the neuro nurse phoned me and said everything was stable and so they'd ask me back for another scan next year (she said they'd do it every year "because you're young"....aww thanks!). I never got a formal letter from them confirming last year's scan and when I phoned this year they said it was actually on my file that my next scan would be next year and nothing this year. How regularly do you get scans? Thinking of speaking to my GP about this to see if I can push for one this year. Thanks Andrea
  5. weedrea

    3 years and counting....

    I'm a night-owl so had just put the kettle on for my last cuppa of the night when it happened. Problem was my local little hospital wasn't that interested in me - I didn't even see a doctor until 6am and that was only so he could send me home with some paracetamol! Still, glad someone from the dayshift thought it was worth reviewing my file! The doctor wasn't keen at the time to get the radiographer in to do a CT scan as he didn't think it necessary. But I've since learnt that due to shortages of radiographers in the UK that all our local CT scan outputs get sent to Scottish Borders Hospital to be assessed so it is a rather convoluted process!
  6. 3 years ago today at 1am I had my SAH. Sharing experiences and everyday news on here really does make me feel part of a wonderful community! I may never meet any of you but thank you none the less!
  7. weedrea

    Collagen rich food

    It just confirms we're all our own unique mix of biology!
  8. My recovery sounds a lot like yours. I'm coming up in my 3 year anniversary. It took me well over a year to stop needing a snooze after work. In fact my husband still sends me to bed for a nap when I get grumpy... Makes me feel like a toddler! Also headaches for me are a definite sign of doing too much or being stressed. Drinking enough, sleeping and getting out for a short walk are what I usually do when they strike. I have to go away with work a lot and the travel/early starts are a sure fire way of causing headaches for me. I'm fortunate that I work at home and so I have the luxury of going and sitting outside for 5 and getting away from things that way. What about maybe getting up and making cups of tea, or finding an excuse to go for a walk in the office to speak to someone. Lots of breaks, give your brain time to relax!
  9. weedrea

    Collagen rich food

    Here's another one I'd not heard of before: https://www.thefreelibrary.com/Japanese+stroke+clues%3A+are+there+risks+to+low+cholesterol%3F-a07551979 Cholesterol good Shimamoto's group suggests a mechanism to explain how low blood cholesterol increases the risk of cerebral hemorrhage. Because cholesterol plays a vital role in maintaining cell membranes, they say, a lack of cholesterol could lead to weak artery walls prone to rupture, especially when under high pressure. Researchers reported the first MRFIT findings in 1982. In a new analysis of MRFIT data reported in the April 6 NEW ENGLAND JOURNAL OF MEDICINE, scientists found a sixfold greater threat of death from cerebral hemorrhage in middleaged American men with total serum cholesterol levels lower than 160 mg/dl and elevated blood pressure above 90 mm mercury diastolic. The inverse relationship between cholesterol and hemorrhage disappeared for people with normal blood pressure and for those with cholesterol levels above 160 mg/dl. The study was led by Hiroyasu Iso of The Center for Adult Disease in Osaka, Japan, working at the University of Minnesota in Minneapolis with David R. Jacobs Jr. and colleagues. Iso was also a coauthor of the Ikawa Town study.
  10. weedrea

    Collagen rich food

    It'd help if I'd booked the actual report I copied that from! Trying to trace my surfing route.... http://stroke.ahajournals.org/content/strokeaha/46/7/1813.full.pdf https://hal.archives-ouvertes.fr/hal-00552714/document This is the one with the quote... https://helda.helsinki.fi/bitstream/handle/10138/28671/Long-Term+Excess+Mortality+after+Aneurysmal+Subarachnoid+Hemorrhage.pdf;jsessionid=B3E4B15C2C83D01AF8D9905953A9F3A2?sequence=1 Report is called "Long-Term Excess Mortality after Aneurysmal Subarachnoid Hemorrhage"
  11. weedrea

    Collagen rich food

    You got me reading medical research documents again! lol One concluding quote from one that seemed interesting: 'Therefore, aneurysmal SAH should be viewed more as one aspect of a chronic general vascular disease, and more attention should be given to treatment of risk factors and long-term follow-up of these patients.' So I'd presume having more collagen can't be bad.
  12. weedrea

    Collagen rich food

    That's an interesting discussion you had. I don't eat any meat other than fish but when I had my SAH was when I was closer to veggie than pescatarian. I've always had my own thoughts that I hadn't been eating enough collagen at the time. I've also got arthritic wrists so I've started upping my protein and taking joint supplements (I'm trying some that are for bodybuilders...the website advertising them is the scariest thing I've ever seen lol!!). Hoping it helps protect my head too! Every now and then I also get a burst vein on my finger or thumb without a trauma. Apparently it's just a random thing some people get but always makes me think my "vein health" isn't that good.
  13. weedrea

    Kay - new member

    This made me laugh...when I was in hospital the poor woman in the bed opposite me (who was immobile and couldn't really speak after a stroke) had a baked potato and cheese for lunch and dinner every day for the 10 days I was there! The nurses were always worrying that they weren't really communicating with her to understand what she really wanted. But finally her daughter put their mind at easy by saying she had baked potatoes every day before she was ill! And as for Nimodipine - uggg that was awful. I too was in during the summer and it was SOOOO warm that I was asking for ice packs at night. I suffer from v. cold hands and a constantly freezy nose (Raynauds) and the Nimodipine made all my extremities hot....and my nose itches constantly for 3 weeks. Nearly drove me mad!!! I later found out sometimes they give people with Raynauds Nimodipine as a treatment.....ahhh that'll be a no! Happy to stick with the cold nose!
  14. weedrea

    Lynn413 - New member

    Lynn congrats on your recovery and on finding us! I'm 2.5 years since my bleed and completely remember the "angry over the smallest thing" phase. It went on quite a while. I've always had a shockingly short temper and just thought it was something that had got more pronounced after my bleed (my poor husband). In the end I realised it was a sign I needed a nap....a bit like a grumpy toddler. So off to bed for 30 mins and then everything came back into balance again. Took about 9 months before I could last a whole day without my grumpiness showing up. Good luck on your continued recovery. Andrea