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weedrea

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weedrea last won the day on March 14 2019

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About weedrea

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  • Birthday 14/05/1976

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    Female
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    Western Isles

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  1. The song thrush was out last night in the garden....made me think of Win. x
  2. Matt I'm quite like you as well...two aneurysm, one of which bled. Though if we're taking count, I only needed 1 coil as my aneurysm was so small! I think they needed to get the microscope out to see it. As others have said, take it easy on yourself and remember that you have had brain surgery, and that is definitely not nothing. I took a little longer to get back to work than you and by then had so many holidays that I took every Wednesday off for about 3 or 4 months. I still take a couple of Fridays/half days off when things get too much. Evening snoozes, even for 30 mins, are a must if you're feeling like meeting are too much. I am also very lucky with my employer in that I work at home full time but I definitely find it very tiring still (4.5 years after my bleed) when I have to go into the office for all-day meetings. I also think after a traumatic event like this, you can get 'survivors guilt' especially when you feel that others are suffering much worse. But never forget, you're a brain surgery survivor.
  3. Daff Congratulations on 8 years. When I was in hospital my hubby came across your blog and I want to thank you for writing it. During that scary time in hospital, your blog was a real comfort. Not that you glossed over the difficult moments or made light of it all but because of your honesty at the struggle and adaption you were going through. Like many of us I had no clue how seriously ill I was, what the challenges would be or indeed what recovery (I think you say it better as "adaption") could look like. But your blog helped me know that I wasn't alone, so thanks for that. Andrea x
  4. Welcome to the forum. I'm not sure I can give you any advice here but I know others who have been in similar situations will. Just wanted to say 'hi' and thinking of you as you go through this difficult time. A x
  5. I agree with Skippy....a 'small leak' is still a bleed and any blood on the brain will cause damage, whether that's temporary or not will remain to be seen. I had a coil fitted after a small bleed. I didn't pass out at the time or have any other side effects during recovery but for me it took 3 months before I went back to work and then it was one month for 3 days, then another couple of months for 4 days. Headache was there constantly for about 6 months but have improved greatly since. Tiredness is another side effect to be aware of. I went at least a year with a 30-60 mins nap every day - definitely good to reset. I'm 4 1/2 years post op now and the only lingering change is my inability to cope with a lack of sleep...no more early morning travel with work for me. I'm also not great in long meetings or stressful situations but it's something that can be managed. I wish you well in your recovery.
  6. I had my SAH in 2015. I had an MRI after 6 months, 12 months, 2 years and 4 years. Doctor then told me he never wants to see me again So I think it varies, whether they're happy that things are stable, or low risk etc. I'm a little nervous that the doc doesn't want to see me again but I'm trying to take it as a positive sign! I'd think if they don't want to see you for another 4 years that they're happy with what they've seen over in your last scan. All the best Andrea
  7. I remember as a kid going to the optician and the whole time he called me Amanda rather than Andrea. It definitely didn't fill me with much confidence in his eyesight!!
  8. I was a similar age to you when I had my bleed (I was 39). My advice would be: - Drink lots and lots of water - Have a lie down or nap, even for just 1/2 hr, every evening - does wonders to just give your brain a little rest for a while. I had a whole year of this and still do it when stress levels are high - Take it easy with work. I had 3 months off and then 3 months building back up to full time. I'd recommend either Fridays off to give you a long weekend or Wednesdays. Wednesdays I found particularly helpful so that I was only working 2 days at a time - Build up your own confidence regarding exercise. Whilst I can't prove it, I'm sure strenuous in the days leading up to my bleed had some effect. But that's my own thoughts. I built up slowly, maybe only managing 5 mins walking at first (I was afraid to go out of sight of the house). I have found swimming to be an excellent, low impact exercise. I've recently gone on my bike for the first time, managing ~18 miles. Wonderful to have that freedom again (with a helmet of course!!). I wish you all the best in your recovery. Andrea
  9. Very wise to cross the T's etc. I had a period of continual headaches and in the end found out it was caused by sucralose. I'd started taking some supplements to try and help with my arthritis and ended up giving me a constant headache! Fingers crossed that you find some answers.
  10. Thanks all for your kind words. I used to have to fly to Glasgow or Inverness 3 or 4 times a month with work before my bleed. Now I'm not quite so relaxed about traveling but still have to do it at least one a month. So as well as my scan, I get to distract myself with work meetings... Lucky me! I'll also hopefully get to finish my book on Edwyn Collins' recovery. It's been a tough, but inspiring read. I watched a programme last week on The Proclaimers (if you like them I'd thoroughly recommend it on iPlayer). Edwyn had been the producer on one of their albums. It was just so lovely to see him on the screen remembering, talking and laughing.
  11. 4 years today I had my bleed. Where does the time go? Been feeling pensive and a little anxious about it. I'm off to Glasgow on Monday for my 4 year check up scan. The last one I had was 2 years ago so having another scan suddenly brings the memories all back. Also, when I had my 1 year scan, I went with my mum. At that stage she had already had terminal cancer for 18 months. Those few days in Glasgow were probably the last quality time I spent with her as she was just overwhelmed by cancer during her last 6 months. So many mixed emotions about it all. Thanks guys for all the support. Andrea
  12. Welcome to the group. I live in the Western Isles and I too got the air ambulance to the central belt....though I got taken to Glasgow, so I presume you're from the east coast of Scotland. What would we do without the air ambulance? Live savers indeed. I'm just coming up on 4 years since my bleed and coiling. It definitely takes a while to get back on an even keel. As for stressing about the coil - that is normal. I had check-up scans after 6 months, 12 months, 24 months and (after none last year) I'm off in the next week for my 4-year scan. They'll keep monitoring it until they're sure everything is stable. Depending on where you are, they will likely do your scans down in Edinburgh. I had my first scan in Inverness (no MRI in Stornoway so this is closest) but I'll be honest, it was a pain to organise as it was different health boards so now I just go down to Glasgow for my check-ups. I had 3 months off work, and a further 3 months working up to full time. I am fortunate to work from home and still now 4 years later I find it hard when I have to travel for work and spend time in the office. Take it easy and sleep, sleep sleep! I think it was best part of a year before I could cope without a half-hour evening snooze. I still do it when work is stressful. Glad you've found this group. It's very encouraging speaking with others who understand what you're going through. Andrea
  13. Welcome! A Doonhamer are you? My hubby is from Dumfries and we used to live there a while back. Beautiful part of the country to live in. Andrea x
  14. For me it is like a brain fog when I can't think on my feet, take extra time to answer questions when someone's talking to me. Almost like the words are hidden. The other sign for me is grumpiness! When I loose my cool because I can't think straight, I get sent to my bed like a kid!! Half-hour eyes shut is usually enough to reset.
  15. I'm 3 1/2 years past my SAH. I went back to work 3 months after it - first month back 3 days a week, second month 4 days then full time. By the time I went back full time I had lots of annual leave allowance so I ended up taking most Friday's off for another few months. Overall I've not had any real negative impact from my SAH. I'm back working full time but I have the benefit of managing my time to fit with my energy levels. I work at home and I've never been a 9-5 worker. I have the benefit of being in control of my own work so it's no issue if I work at 9pm or 10pm if that's when I'm feeling best - as long as the work gets done on time (but no-one ever arranges for 9am meetings for me!). I have been very fortunate in my recovery but going back to work full time was still a struggle. I spent the first 8 or 9 months having a 30min nap every evening when work was finished for the day. I could still do with that sometimes! When I didn't have my nap I was the grumpiest person in the world! I still have lots of 'times out' during the day - walking the dog (well not now since my old boy left me *still sad*), making a cup of tea...whatever, to break up the day and get away from the computer screen. In my previous life I adored spreadsheets (sad, I know!!) but now an hour and it makes me feel ill and a little crazy! So I'd just suggest you be aware of your own stress levels and tiredness and take breaks as you need them. Worst thing is to try and struggle on. As a starter I'd say if you have annual leave to use up then take Wed's off or Friday's or something to break up your week. It definitely helps if that's an option for you, even in the short term. Happy to chat more or offer more advice if I can... Andrea
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