Jump to content

Blondie

Members
  • Posts

    122
  • Joined

  • Last visited

Everything posted by Blondie

  1. Mmmmm, marmite! After my SAH I convinced Tink to try marmite, which he duly did, and absolutely hated it. My lovely Brendan is also not a fan. My mum likes a little bit dotted about a piece of toast - to which mywonderful Nan would always say " Good grief woman, I want to taste it!!" Hmm, hungry now....!
  2. Hello Graham, welcome to the BTG site. So glad you found us, and I really hope you find the site helpful. I think it's perfectly natural to feel angry and frustrated at what you've been through, an SAH is such a life changing event. Hopefully the lovely people here can help you to feel better about it all. Good luck Blondie
  3. Hiya - only just spotted this thread... I was told I'd have to wait 18 months, and then the blood organisation wanted permission to contact my neuro and gp. My GP wasn't too keen, but the neuro was more than happy. I did feel incredibly worn out for a good 24 hours after giving blood, and I'm not sure the resulting anxiety was worth it. Strangely enough I went to give blood a couple of days prior to my SAH, and failed both of the iron tests. I sometimes wonder if it would have made things worse had I been able to donate. Sorry! Am rambling now (for a change) - the upshot is that I think you need to ask the blood org to contact your GP and Neuro to check your specific case. Good luck
  4. Hi Saffy, well done on making a decision, so glad your doctor was helpful. I can tell you about my own experience, though I'm sure it's different for everyone. My 2nd aneurysm was coiled without having ruptured - I spent a couple of days in hospital afterwards - mostly to be monitored, as I didn't feel any discomfort or anything. I did take it easy for a month or so afterwards, although compared to the coiling which was done post-SAH I didn't really feel the need to, but I'd been given some time off by work, so I made the most of it. Given that it will be your first (and hopefully only) coiling, you might well find it's a lot to get your head around (excuse the expression, it's the only one I can think of ) and you may well feel very emotional afterwards - I certainly thought an awful lot about the first one, but with the 2nd I felt mostly relieved, and quite relaxed. I used to imagine that I could feel the coils moving, but in all honesty I dont really think you know they're there afterwards. I know how scared you must be feeling though, for sure Sorry to burble on a bit, hope that all makes sense, and like I say - it's just my experience of it all. Ask away with any other questions you have, we'll all try and help to answer them. Thanks for updating us all, take care, love Blondie xxx
  5. Hi Saffy Really glad you found the site, and that you posted. I had my SAH in OCt 2004, that was a ruptured aneurysm. A few months later I was found to have a 2nd unruptured aneurysm, and I was advised to get it coiled. I was lucky enough to get booked in for one month after the diagnosis - I found that month to be a very long one! I found the 2nd coiling far les traumatic than the first, and I recovered from the op itself very quickly. It was a very different experience to the first coiling, which was done just after the SAH. If I was found to have another aneurysm, I would choose to have it coiled, as I felt reassurred afterward. I was still scared about the surgery, but I think that' only natural with any op really. Obviously you may feel differently to that. Good luck with your appointment next week, I hope it makes you feel more able to make a choice one way or the other. Best wishes Blondie xx
  6. Hi Kel Congratulations on feeling ready to return I went back to work after 3 months, sraight back into full time and I did find it very tiring initially. I was very very lucky, with a supportive employer, HR manager and colleagues. I think I would have done better with a phased return. One thing I would recommend is to think about taking each Wednesday off if you can, as opposed to a 3 day weekend - I did that after I had 2nd anneurysm coiled. I found my fatigue did not build up quite as much that way. Like Rod says, dont be afraid to say you need to rest, or stop, or finish early. Overdoing it will just make you feel poorly, and uncomfortable. I know that's easier said than done Good luck to you Kel, sounds like you did a great job with the meeting. Take care, Blondie xxx
  7. Hi Karen I was 34 when I had my SAH, and was later found to have a 2nd aneurysm: Middle cerebral artery aneurysm and PICA (both coiled) I am female
  8. Hi Mandy and a big welcome to Behind the Gray! Really pleased to hear you are recovering well, and that you're finding the site helpful - there are some fantastic people and great info here. There's one thing about SAHs - they do definitely make you appreciate life We're all here to help each other, and we'll all have a go at answering those tricky questions - there's usually someone on here who'll know the answers, and if not it's always good to know you're not alone in your experiences! I've recently given up my full time job and am now looking for part time work, because I just get too tired otherwise - so you've got my sympathy about the lack of salary!! You might find the Benefits topic helpful: viewforum.php?f=14 Looking forward to hearing more from you, take good care Blondie x
  9. Hi Jacqui and a big welcome to BTG! Janet's advice was spot on. My SAH was over 4 years ago, and I can honestly say that the feelings you have will diminish over time. This site is definitely the place to be for a bit of reassurance - everyone here knows what it's like, and we're all here to help Lots of love and luck to you, take good care Blondie x
  10. Good luck for the 17th Dawn, we'll be rooting for you. Take good care Blondie xxx
  11. Hi Shiree Happy 1st Anniversary! Thanks for sharing your story and progress, it was great to read. Take care Blondie x
  12. Ooops, like Sami, thought I had responded I am female, and I was 33 when I had my SAH, on 29th Oct 2004 One aneurysm ruptured, and a 2nd was found later: Middle cerebral artery aneurysm and PICA (posterior inferior cerebellar artery) - both coiled with platinum, and as far as I know the number of coils was 10+ each. Cheers Blondie
  13. So sorry Mollie, to hear what you are going through. It seems so common that people just want us to get on with it. How anyone can expect us to "close the door" amazes me. I think that with time you do leave it behind you more - I certainly think a lot less about my SAH now than I used to, but it will always be part of who I am now. Thank goodness for this site and the lovely people here. Big hugs to anyone feeling misunderstood... Blondie x
  14. Hi Kate Welcome to BTG, so glad you found us. I too was coiled after my SAH, but have not suffered any fits, so apologies there, I'm afraid I dont have any info. Hopefully there will be others here who can help you. In the meantime, welcome again, and take good care. All the best to you and yours, Blondie x
  15. Hi Anne - I was advised to have the flu jab the first winter after my SAH, but never offered one since. I do find that colds and bugs knock me for six nowadays, far more than previously. Thanks for posting - I thought it was just me! Take care Blondie
  16. Hi Jane - welcome to the site! Never worry about asking something that's already been answered - I daren't search my posts in case I find I've asked the same thing twice or more on my own...! :? After a couple of consultant appointments, I had an MRI after 2 years, and have pretty much been told to get on with it since then. Keith is right though, different hospitals seem to offer different levels of follow-up. I too would like to be monitored in the future. Good luck Blondie
  17. Hi Vivienne I was what I thought of as over-emotional before the SAH. I can be quite a toughie, but the news, a magazine story, a kids programme - all of them could make me cry whether I wanted to or not! Post-SAH I am even more emotional, and cry over the silliest things. Not sure if it's down to changes in the brain, or just having been through such a big and emotional roller coaster as the SAH Take care, hope it helps to know you're not alone Blondie x
  18. I'm fine physically unless I'm really tired, then I'm not so good - slow and wobbly! Usually means I've really overdone things - at least it means I pay more attention to my limits, for a few days anyway... I've got rubbish depth perception (and a blind spot where my hips are concerned) so I've always walked into things! Blondie
  19. Hello Apparently the airport machines are tuned not to detect certain types of metal, such as that used for coiling... I was a bit disappointed not to make the machine beep, tbh. I've never informed the airline of my SAH. I always intend to carry some relevant info with me, but invariably forget! Blondie
  20. Hi Mo And a belated welcome to the site from me! I think we have a lovely diverse range of ages on the site - and you'd never know how old anyone is from their posts. Besides which, 61? That's no age! Take care Blondie x
  21. Hi Dawn Welcome to BTG. I've had two aneurysms coiled, in 2004 and 2005 respectively. I dont remember being warned about coil compactation, but I did read about it in the vast amount of scary medical sites I checked out online. I think my neuro surgeon mentioned the risk when reviewing the results of a follow-up mri, but not in any depth, sorry. I've had the angiogram too, in between coilings. Hope you get some news soon, take care. Blondie
  22. Hi Komodo and Zoe Welcome to BTG, it's a very friendly and supportive place to be. Thanks for saying hi, and sharing your info. Best of luck to you both, Take care Blondie x
  23. Hi Caroline I get weakness and discomfort at times the leg that was used for coiling. Mostly absolutely fine by this time (SAH was 2004) I do notice it if I overdo it, or am run down. I do think at times it is a nice easy way for our bodies to remind us to rest a bit Take Care Blondie x
  24. Hi Vivienne I'm a bit like Jess I guess - as I had to check my profile here on BTG to remember where mine are: Middle cerebral artery aneurysm and PICA (both coiled). One was coiled just after the SAH, then the 2nd one discovered after that. I waited a few months to have the 2nd one coiled, and I did find that a frightening time. Nowadays I think about them far less than I used to, and I dont worry too much. Take care x
  25. Blondie

    I m helpless

    Hi Kaantay I'm so sorry to hear that your mother died earlier this week, and cannot begin to imagine how you feel. My thoughts are with you. Take care, Blondie x
×
×
  • Create New...