I've only just found this site - I need it now more than ever it feels like!
I had a SAH in September 1990 (I was 23 and am still here!) - had it clipped then had post-operative fits then all was well and went on to have a son in 1993 and twin girls in 1995 (naturally! My Mum blames this for what happened afterwards). Having been told I'd been unlucky and to go and live my life, this is what I did (was not the same girl I had been though)
In 1997 when the girls were 18 months, had terrible eye pain headaches, double vision etc and was referred again by GP to neurosurgeon who thought it was stress. Anyway, emergency clipping surgery again ensued for another aneurysm whcih was caught just before rupture - my eye was in total ptosis by now and the pain was incredible but different from the SAH. They say this aneurysm hadn't been picked up in 1990......
Again, told I was fixed and to get on with my life. Two years later, started working full-time, as I still do.
So in 1997, I was told then I have another small one - a 'bleb' my surgeon called it. I had biannual angiograms until 2 years ago when I said 'no more' as I would be in agony and in bed for a week afterwards - the 'dye' in the angios apparently (?). I'm symtom-free and only suffer occasionally from migraines, which are frightening but I assess accordingly and have been right to date! I'll know if this one plays up and will get into A &E pronto. I
It's just my moods at the moment I get so tired, aggressive (not physically but verbally with the kids and my husband) angry and forgetful - my family is suffering. Such a long time ago but I feel so low - could it be affecting me now? My memory is shot - never really recovered from 1990.
I feel so lucky to be alive but so anxious and depressed. Is it my pituitary gland? Menopause worsened by neurosurgery?
Does this sound familiar to anyone or am I going mad?
Any reassurance gratefully received
