Yorkie1

Hi Paul Hang on in there Paul it does get better with longer periods between your debilitating experiences. I had a subarachnoid haemorrahage 3 years ago and like you all my tests showed no aneurysm. Only last night I experienced a very traumatic night - it started with what i felt was a severe pain at the base of my skull and was followed by extreme dizziness and nausea which was really quite worrying and like you I thought " am I having another bleed into the brain ". Also like you I have made several trips to the doctors and two visits to casualty departments and on all these occasions after a barrage of tests I have been reassured I was not having another bleed. I have learnt that the best way to get through these episodes is to tell myself I,m ok - keep calm - and almost like meditate - concentrate on my breathing - slow everything down - tell myself to be gentle with my body. I am much better today. I can only describe the experience as like someone washing your head from the inside. I used to get these types of experiences every month but now they are one every 6 months - still very unsettling when they occur - but getting longer between episodes.I hope this gives you some hope Ian

Hi Jo My case was not misdiagnosis as such just significant delay in doing a ct scan. When I was admitted 3 years ago now with what turned out to be a subarachnoid haemorrhage it was 11 p.m. at night. it took doctors until almost 2 pm the following afternoon to do a scan after many hours deliberating over whether they should do a lumber puncture or not. As the accepted wisdom seemed to be that time was of the essence when dealing with brain injuries I found this delay very worrying. I suppose in the end I was so relieved i had survived the esperience I chose not to pursue the matter further and concentrate on my own recovery which with hindsight was perhaps not the best action given that unfortunately there would undoubtedly be other patients treated by these doctors Ian

Thankyou everyone for your warm welcome to the site. It is enormously reassuring to know there are so many friends out there who have been there " and got the T shirt ". Someone asked what type of SH I had and please forgive my lack of knowledge but I think from the replies to my post I had what is called a none anni SH. In fact that is one of my questions which I am not sure I have had an answer to and that is " if my SH was not caused by an anuerism - then what did cause it ". I had a scan of every blood vessel in my brain which the consultant said did not reveal an anuerism and then I had what I think is called an anigram where they put a catheter from my groin to my neck and put a number of dyes into different parts of my brain. Once i had marvelled at seeing an etchasketch picture of my brain in different colours I was told that scan had not revealed any cause and therefore there was no surgical intervention required. Except for saying occasionally small bleeds can oocur no explanation was given as to the cause so presumably it could happen again ? I went back to hospital for a full MRI scan two weeks ago so perhaps that has provided the medics with more information and my consultant will tell me more on thursday when I see him. Thank you once again to one and all for your very warm welcome and advice - I am already feeling the benefits of the 3 litres of water per day but have yet to syncronise the visits to the loo with my nights sleep !!!! Ian.

Hello everyone. I had my SH 10 weeks ago on the 3rd January 2010 and like so many others it seems left hospital without really knowing what I should be doing next or whether the symptoms I continue to experience were the normal effects of what had happened to me.Finding behind the gray and reading all your posts has provided me with enormous reassurance and answered many of the questions that were swirling around my head. If truth be told I,m still a little frightened by it all and despite my consultants reassuring words about the future not yet convinced. It is a great relief to be able to share my concerns with people who themselves have gone through the experience. I hope you will all help me on this journey. Ian