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Eurocracy

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About Eurocracy

  • Birthday 17/05/1967

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  • Biography
    Had stroke in Aug 2010, now walking and talking. trying to get left arm better
  • Location
    Rossendale
  • Interests
    Getting better
  • Occupation
    IT Consultant
  • SAH/Stroke Date
    18/08/10

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  1. Thank you all, your messages are wonderful. I am willing to be patient, work hard and will never stop the effort - just knowing I can "get there" is what gives me hope, just as many of you have done. I so want to be the person that can say to people, hey you'll get there in the years ahead.
  2. I think you are all very inspiring, as someone just 9 months after their stroke. I hope I am feeling so positive after 2 or 3 years. Thank you, hope you all keep on improving and get right back to your "factory default settings", Sally, Wow, no physical defects after 2 years!! Damian
  3. Thank you Louise. I am a bit of a "drama queen" so I need it telling straight Counselling? Yes, have been promised it but then nothing happens. I had a session with one community counsellor who just told me " you do know you won't recover don't you". That bucked me up no end!! I'm doing well one-handed but must now battle to get my affectedhand and arm useful. As you say, a positive mind is needed to make it happen I think it's only human nature to brace yourself for the worst and try to be happy with that - I won't be but only time and effort will tell. take care
  4. Hello everyone, thank you again. it is just so hard thinking that all of my current deficits are permanent. It chills me to the core. I can't see most of them ever improving. It's in my head now that people just never recover - it can't be true because my own mother stroked and her affected arm, after two years is a million miles ahead of mine. I just think it won't ever be me - which is probably just the stroke dragging me down I worry that this is all just blind hope against hope. It's on my mind all of the time. Damian
  5. I can't thank you all enough. It is hope that I need most of all. My physio tells me to look at how far I have come so quickly - from paralysed to a half-useful arm in just 8 months. I just keep trying to do everything I can do with it - I'm guessing that will get me there in the end. I do see improvements - I did press-ups yesterday. When I tried that in hospital 6 months ago, I just ended up kissing the floor... I am so glad I found this site. THANK YOU ALL!! Damian (Eurocracy)
  6. Thank you all so much. I so hope the physios can get me better. I'll do whatever it takes to improve. It just feels so hopeless to think I will never drink a drink without spilling it, nor never use cutlery again; just "normal stuff". I can move my hand and fingers but it is just so uncoordinated. I'm coping well with one hand but do so want that affected hand to improve. I'm just glad I've found the site, these are the toughest days of my life.
  7. No but since my stroke I startle at loud noises, nearly jumping out of my skin. After getting an ischemic stroke, I really don't want to become a stroke collector. One stroke "medal of honour" per lifetime is enough!
  8. Thank you Ladies. It is hope I am running out of.It seems so hard to imagine that this useless, uncoordinated thing on my body will ever do anything useful again. You're exactly right at my frustration with my lack of progress. By just getting on with life as best I can with one hand, it feels like I've given up on my affected hand. i can be patient but fear so much that it's the end of my recovery. My family say to me they see improvements and there is evidence it's improving too - it gets faster in physio tests. Yes, patience is key; So too is battling anxiety. Since the stroke i see only worst case scenarios, hence the title of this thread. \thank you again, Damian (Eurocracy)
  9. Hi everyone, I've been lurking these past few weeks and chatting in the ShoutBox to some of you. I stroked in August of last year -it was a clot caused by Hughes Syndrome. I have left side weakness now but stopped improving since I left rehab in December. I can walk and talkbut my left arm is useless. I'm doing really well with my right arm only but despair at the lack of improvement in 5 months- my leg is clumsy and wooden; I try running but fail badly; my left arm is uncoordinated and useless. My fingers move - I'm lucky. I can pinch, grasp and release thin objects but now fear I am disabled for life. Physio doesn't seem to be helping - I asked for a Saeboflex but was told I am too advanced for it. Will Physio get me there in the end - plus a ton of determination from me? Is there hope? Should I just get on with being one-handed and give up on it? It sends shivers down my spine thinking of being disabled for life but I am bracing for it now. i get fed up of physios saying I'm one of the best recovered they've seen and that I'm full of potential; which all counts for nothing when you see no improvement yourself:crazy: Any positive thoughts and experiences welcome - I'm running out of steam with trying to be positive. Thank you, Damian:razz:
  10. Why not have a look at Lumosity.com? It's a brain training website, developed by Neuroscientists and might help with his concentration. It remembers scores so he can see if he's improving or how he ranks globally. It can be a bit addictive; time passes quickly when you're determined to just get a better score next time. Other ideas - what about Scrabble or Monopoly- easy to learn, hard to Master. You can all play then? What about wheelchair bowling? As in 10 pin, not crown green - most centres have the ramps to roll bowls down. There might even be a league or teamnearby he could join. There is wheelchair ice-skating too. i saw this on different strokes: http://diffstrokes.webfactional.com/ds_plone/different-strokes/recovery/802013776 I hope this helps in some way?
  11. I keep going becauseI'm still alive, a husband, son and father and I owe it to myself to give me and my familythe best life I can and not drag myself/them down. Are you on antidepressants and having any form of therapy? You need to talk to your GP about this, you don't deserve to live like this. CBT therapy can be very good at helping you fight these demons - ask for it. Plan some "be good to yourself days"; go somewhere nice with friends and family, invite friends around. What you put into this you will get out. Your mood and anxiety can be managed by you. Give yourself worry time if you need it - promise yourself not to worry or think about anything negative until that worry time. I aim for 4pm each day and put all bad thoughts off until then; not easy but it does work. Make sure you are talking about worries to people who care about you and listen to their problems too. Just be you and let your inner light shine through. it's in there, I promise you!
  12. It's worth checking this with your gp or consultant. I'm no doctor but it might be a carotid bruit - it's possibly the sound of your own blood flowing that you can hear. Your GP can check and might want you doppler ultrasoundscanned - it's best to be safe than sorry here. Can you hear your pulse? Which is a different issue altogether - pulsative tinnitus. Again, ask and get it checked. Damian
  13. Hi everyone, Now that's a welcome! I do need to talk to more people about recovery - so many aspects feel permanent ( e.g clumsy hand, stiff ankle, heavy leg, tight shoulder), which is at the heart of my anxiety. I am on antidepressants - sertraline now after citilapram. I had counselling but they discharged me without reason. I was referred for CBT after a suicide attempt - never happened. We really are just "let out of rehab" once we tick enough Bartel Index boxes and left to get on with it. I'm in a whole new world I never knew existed :confused:
  14. and I'm a stroke survivor - had a clot last August while on my way on holiday to Greece. Collapsed at the airport - felt minor at first but soon rushed to A&E; woke up half-paralysed, incontinent wondering what the hell happened.Lucky to get to hospital within an hour, had tpa treatment, survived the stroke, a pulmonary embolism and then double pneumonia. Now walking, continenty,no balance problems - weak left side, useless hand (my arm and hand have been moving since the stroke, so plenty to use as a base for getting better but feeling totally plateaued at 8 months. I'm still getting physio, at home (and privately). I'm finding things hard now - so much of my life has gone and I'm not coming to terms with being disabled at all well. I've awful emotional liability and depression, both worse than the physical aspects. Look forward to getting to know you all, Damian
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