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Karen last won the day on January 17

Karen had the most liked content!

Community Reputation

24,222 Excellent

About Karen

  • Rank
  • Birthday 26/08/1962

Profile Information

  • Gender
  • Location
    Dorset UK


  • Biography
    Where do I start? I had a Subarachnoid Haemorrhage in 2005 and life became very different!
  • Location
    Wimborne, Dorset UK
  • Interests
    James Patterson, Lynda La Plante, Cranford, Marian Keyes, Cathy Kelly The Great Outdoors, Planes, Tr
  • Occupation
    Running this site
  • SAH/Stroke Date
    25/07/05 SAH - aneurysm coiled

Recent Profile Visitors

2,290 profile views
  1. Hi Sarah and what a nightmare for you! x I would take the exact same route if I had your circumstances. I guess that the medics have to weigh up the difficulties of treating it, the outcome for you.....up against leaving it alone, especially if you're not experiencing problems at the minute. At least you know that they will keep a good eye on it for any changes etc. I'm guessing that your annual aneurysm scan will just check the aneurysms themselves, but something that you need to ask as whether the two issues can be combined into one check up scan? MRA is used to evaluate blood vessels and help identify abnormalities and it sounds like the right option to me as they will know from your last scan precisely the area that they'll be looking at to check that there aren't any changes, rather than putting you through angiography. Good luck Sarah and I wish you well .... Big hugs! xx
  2. Jenni, just keep the faith and 4 months is very early on.... you will improve over the next few months and years....you won't be stuck with this. My bleed affected my right eye/muscle ... I had double vision and other, but with the help of glasses, it's got better and better. Try to judge yourself from when you left hospital and not before you had the bleed ... try to remember that your little girl is much better with you, rather than without you ... each hug and cuddle is precious ... walking her to school is a great accomplishment and a precious moment ... you will get better......don't be hard on yourself. It's normal to want to stay in bed and rest up in the early months ... don't feel guilty for needing that rest ... fit it in, when you need to and your little girl won't mind you snuggling up on the sofa and watching the tv. Take care and be kind to yourself ...xx
  3. Mandie, I think that Macca has summed it up .... Along with the talking therapy, never worry about taking the chemical route .... I struggled for years and the first anti depressant didn't work for me ... I spent quite a few years after that, just suffering with bad anxiety and I was put onto an anti anxiety drug and it took it little while to get used to, but boy, it's truly helped my wonky brain! The menopause symptoms didn't help either, as they kind of mimic the fallout from the SAH ... Go and have a chat with your GP and don't do like I did....sit and suffer for years. There's no wonder cure, but if the first port of call doesn't work, keep going back to your GP until you find something that suits you. xx
  4. With many thanks to Catwoman23 for her very kind and generous donation! Thank you so much! xx
  5. With many thanks to all who've donated with a monthly donation to BTG in December....it's very much appreciated and you really help to keep the website functioning and the support ongoing! x With many thanks to Louise and Kathy too, for their very kind and generous donation x... I'm blown away by the kindness from you all.... Thank you so much! xx
  6. Sarah, from my own experience, I found the first two years the worse ... Coming to terms with it all and my limitations, as well as having to put up with some of the side effects from the drugs that I was on. I can honestly say, that it does get better and if there's one tip that I can give you .... and that's to measure yourself, from when you first came out of hospital and not before. I can also say, that I've had more recovery, past the 2 yr point... and that the brain does learn to re-train itself ... never give up and keep on keeping on ... well done! xx
  7. Admin note only: Content Approved/reinstated - 3/12/19
  8. Hey Jenni, you didn't make it any worse and some people have a post coital migraine head, which is nothing to do with a SAH. There are lots of different accounts on the website of peoples experiences. I wasn't operated on straight away and it wasn't straight forward. I can only say, that you're early days into recovery ... it can take 3 months for the blood to fully dissapate down the spinal cord. Keep your fluids up/hydrated and make sure that you rest up when you need to. I would say that yes, you need to let things settle - re: eyesight. They're looking after you and understand your situation. There's not many of us who've had to stop driving long term ... keep positive and even at 14 years post SAH, I'm still seeing improvement. x
  9. Hi Jenni, don't be embarrassed as you'll probably be surprised as to how many people have had a SAH after being intimate. It's any spike in blood pressure....you could have been sitting on the loo and straining, in the gym, gardening ... etc. If you've got an aneurysm lurking and about to rupture, it will do it with any spike in blood pressure....whatever you're doing at the time ... lots of people on here that have had the SAH with different circumstances and post sex is one of them and you're not alone. I've been running this site for many years and we've heard everything, so there's no need to be embarrassed...we're here to help! So, go to the Introduce Yourself forum or the SAH forum if you want help and support with a specific problem. And no, your outcome wouldn't have been any different if you had revealed to the Doc that you were intimate before the SAH ... It's as simple as that.... having a blood pressure spike could have happened whatever you were doing at the time, as the aneurysm was there ... don't feel guilty. We've had the fittest of people on here, who were in the gym, bike riding or the same as you, or on the toilet and many other examples. It honestly does and will get better for you ..... xx
  10. Hi Ami, Eye twitching can be a sign of vitamin deficiency as well as tiredness. It might be worth having a chat to your GP, considering that it's gone on for 3 weeks. I was B12 deficient for some time and also Calcium/ Vitamin D defiicient with a twitchy eyelid thrown into the mix. I would certainly go to your GP and get it checked out. Hopefully they'll be able to rule out anything with a blood test and it could be an easy fix....like mine. x
  11. Well done Colleen and Happy Anni-versary ... Recovery does keep happening and regaining your confidence with life. I feel your pain with the dental procedures ... I've been at the dentist for the last 4 - 5 months. It's not easy, but you'll get through it. xx
  12. Well done on your 5th Anni .. I found that as the years went on, I learnt a little bit more and adapted to who I am now...it honestly does get better! Lots of love...xx
  13. With many thanks to Katow for her very kind donation today! x
  14. With many thanks to Subzero for his very kind donation today! And also many thanks to those BTG members who make a monthly contribution to keep the site up and running. Your support and kindness is very much appreciated. x
  15. Bless you Louise and I really can't believe that it's been 20 years! I also know that it's a difficult time of year for you. ❤️ x Like Sami, I also feel very proud of you and all that you've achieved. It's hard to remember the early days of the website as I was literally just winging it and stumbling in the dark, needing support myself and then, you came along Louise and became part of my BTG family! .... somebody that was 6 years ahead of me .... just having your presence on the website and realising that what I was experiencing, was "normal" in the terms of SAH recovery, was a huge help to me in my recovery, so thank you! All that we've learnt over the years from each other with our own experiences....the good, the bad, we've been able to share it and pass it on to other survivors and the circle of support continues, knowing that you're not alone. It's good to talk! Louise, it's a complete pleasure to know you and to still share your journey. Sending love and hugs to you!xxx
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