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Content Count
11,765 -
Joined
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Last visited
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Days Won
462
Karen last won the day on March 1
Karen had the most liked content!
Community Reputation
30,122 ExcellentAbout Karen

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Rank
Administrator
- Birthday 26/08/1962
Profile Information
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Gender
Female
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Location
Dorset UK
Converted
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Biography
Where do I start? I had a Subarachnoid Haemorrhage in 2005 and life became very different!
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Location
Wimborne, Dorset UK
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Interests
James Patterson, Lynda La Plante, Cranford, Marian Keyes, Cathy Kelly The Great Outdoors, Planes, Tr
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Occupation
Running this site
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SAH/Stroke Date
25/07/05 SAH - aneurysm coiled
Recent Profile Visitors
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With many thanks to Sallios for her very kind donation. x Also many thanks to all of those members who continue to donate each month. Thank you all for your kindness. x
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Clare, Happy 6 year anni-versary! Hope you manage that run this morning and it will probably feel quite cathartic! Enjoy your day Clare, you've done so well! Hears to many more years to come! xx
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MRI follow up/claustrophobia
Karen replied to Sallios's topic in Subarachnoid Haemorrhage Discussion
Bless you Sally and just glad it's all over for you now .... well done and I know how difficult it is! x Never be afraid to ask for help to work out your problems ... it's not a sign of weakness, but a sign of strength ... we worry far too much about how people will judge us, but over the years and from this website, I've seen too many people struggle and that comes first hand from my own experience. It took me a long time to ask for help...and that's my only regret. Is it common how you've felt? Yes, it is and I've always hoped that within our little online community, -
Happy 17th Anni-versary SM! Hopefully this time next year, you'll be back on your adventures again! Have a good day and well done! x
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MRI follow up/claustrophobia
Karen replied to Sallios's topic in Subarachnoid Haemorrhage Discussion
Sally, this time tomorrow, it will all be over with .... don't forget, that you always have that buzzer to press ... let us know how you get on. x -
MRI follow up/claustrophobia
Karen replied to Sallios's topic in Subarachnoid Haemorrhage Discussion
Thinking of you Sally. x -
MRI follow up/claustrophobia
Karen replied to Sallios's topic in Subarachnoid Haemorrhage Discussion
Sally, I totally understand ....promise me that you'll give the GP a call in the morning? ... You're not alone and it's not a sign of weakness ... I still have help with the scanner and flying as well (not that we can fly at the minute!) ... I waited far too long to get help ... don't be me ... x The main thing is, that you manage to get your scan done and get some peace of mind ... you'll be okay ... just pick up that phone! xx -
MRI follow up/claustrophobia
Karen replied to Sallios's topic in Subarachnoid Haemorrhage Discussion
Sally, no ... that's not right ... it's something that just keeps your head in one place whilst they take the scan pics. It's certainly not metal ...what in the earth have you read? Step away from the internet and stop searching..x There's also a mirror above your head, so that you can see the nurses who are taking your scan pics and working behind you in the window ... cool air is also blown in.... and remember that you will have a hand held squeezy button that you can press and the scanner will stop and the nurses will come running ... It's only your head that goes in ... not you -
MRI follow up/claustrophobia
Karen replied to Sallios's topic in Subarachnoid Haemorrhage Discussion
Hi Sally, you really need to get in contact with your GP.....give them a call first thing tomorrow. Tell them that you're claustrophobic and freaking out ... they may be able to help you with a sedative that takes the edge off your fear ... as long as someone is able to drive you home...I'm not a medic but your fear is really common, so get help. I've never heard about wearing a "coil" helmet and not sure where you've got this info from? Remember that you always have a buzzer in your hand when you go into the scanner ....you can press it any time, if you need to get out of the scan -
With many thanks to Compostc for his very kind donation. x
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A big thank you to Louise for her very kind and generous donation to BTG! x
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Looking for reassurance
Karen replied to Carolyn250's topic in Non-Aneurysm SAH or Perimesencephalic SAH
Jean, I agree and the best piece of advice that I was given, was to measure your progress from the day that you left hospital ... rather than before the bleed, otherwise you set yourself up to fail ... which was what I was doing for quite some time....failing and feeling utterly miserable and despondent with it. Hence why this website exists, through my own failing and falling flat... and having to come to terms with the fact that I was going to have to take baby steps forward and maybe a few steps back with it. I found that once I became a bit kinder to myself and measured my expe -
Looking for reassurance
Karen replied to Carolyn250's topic in Non-Aneurysm SAH or Perimesencephalic SAH
I agree with Andrea and yes, take time out to put your feet up ... daily....even if you can't snooze. Re-charge the battery for a little while. Again, I think that it's a case of contacting your GP and being referred. To be honest, the earlier that you can do all of this, the better. I was offered CBT (cognitive behaviour therapy and counselling) but at a really late date ... it was more my fault and lack of help, as I only accessed it when I was struggling and then a huge delay .. I never went, as I think that I had more therapy with running this website and learni -
Looking for reassurance
Karen replied to Carolyn250's topic in Non-Aneurysm SAH or Perimesencephalic SAH
Hi Carolyn, What you're experiencing and feeling is pretty normal post SAH. 5 months post NASAH is so very early in recovery terms ... your brain and body is still recovering from the bleed and you're having to come to terms with the anxiety and panic feelings too. Is it going to happen again? - It's a question and something that we've all felt and it takes quite a bit of time to restore your confidence. I know how you feel and everybody else on this site will know too! Are you pacing yourself with your activity? We've all done it, when we've gon