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Everything posted by Karen

  1. Thank you Sallios, that's very kind of you and donation received. x
  2. Many thanks to those members who've made a donation towards the running costs of Behind the Gray in September! It's kept the site ticking over! 馃槝 x
  3. It looks as though this video is no longer available. Sorry guys! I'm going to have to lock this thread.
  4. With many thanks to those members who are making a monthly donation towards BTG funds.....It's very much appreciated.xx
  5. Thank you, for all of your lovely messages! My aneurysm isn't totally fixed and next brain scan will be in 2020....keeping everything crossed etc ... as you do! However, it doesn't freak me out, as it would have done in my earlier years... I've been lucky! Win, just keep singing and love you lots too...xx Here's to next year and taking things a day at a time and enjoying the moment! xxx
  6. Hey Sarah! Thank you and I'm not sure how you've juggled all of the balls in the past ... hope that you're managing a little more rest and relaxation. It was so lovely to meet you at Donna's a few years ago ... time passes too quickly. Love and hugs to you too....xxx
  7. Thanks Subs, that's so lovely!! and also thank you, for all of the help that you give to me and this website. Your friendship is very much valued. Love and hugs xx
  8. Bless you Sami....xx The camera was being very kind for once! Sometimes the time seems to have passed quickly ... the first 5 years pretty slowly....just glad to be here! Thanks lovely for all of your help, support and friendship...means a lot to me and couldn't have done it without you. Love and hugs back to you. xx
  9. I hope that this gives you a little comfort and today is my 14th year after the 2nd SAH ... It was as hot as it is, today... I'm still kicking! Lots of love to you all....xx
  10. Hi Yun, I didn't have clipping, but head and scalp were tender and my hair was starting to go thin .... Brushing the hair, especially in the morning or after washing wasn't good .... I found this detangler brush a huge help and I still use one .... it's called a Tangle Teezer and the following link will give you some ideas as to what it looks like, but you can pick these up now from any supermarket or drug store. https://www.tangleteezer.com/
  11. Wow Heather, that's such fabulous news and it's given me goosebumps! Please give my congratulations to Rebecca and I wish her all the luck in the World with her next adventure! I can well imagine that it's been extremely hard work for her, but she's done it and you must feel so very proud of her! Thank you so much for letting us know .. Well done to Rebecca and Mum too! xx
  12. My thoughts are also with Neil, his children, family and friends.... I wish them love and strength over the coming months. x
  13. It's with much regret and sadness to announce that Neil's beautiful wife Cassandra sadly passed away on May 6th after an epic battle to overcome her deficits. She passed peacefully and surrounded by love. Cassandra's recovery journey was an extremely difficult one, but one faced and fought with great courage and determination. It truly saddens us when we hear that we've lost a friend from our small community and we just hope that this site was a little comfort to Cassandra in her hours of need. She will forever stay in our hearts at Behind the Gray. Written by Neil for Cassandra's funeral service: Thank you, my darling Cassandra, for: 路 Your piercing insights and your companionable silences 路 Your disrupting home truths and your unswerving loyalty 路 Your sense of fun and your sense of gravitas 路 Your push for adventure and your acceptance of introversion 路 Your advocacy of entitlement and your honouring of humility. Thank you, my beautiful Cassandra, for: 路 Your ever-present luminous beauty 路 Your welcoming smile 路 Your authentic style and poise 路 Your flaming red hair. Thank you, my wise Cassandra, for teaching me: 路 How to bring up a daughter 路 How to release my emotions and turn it into support 路 How to not accept second best and send back meals, push for better accommodation and return stuff that didn鈥檛 fit 路 How to treasure relationships and nurture friendships. Finally thank you, my wife, my friend, my confidante, my guide, my mother of our children and my inspiration for your truly amazing love鈥upport鈥race鈥umour鈥nd honesty. Thank you for being the love of my life. Banksy has observed that you die twice; once, when you stop breathing, and a second time, a bit later on, when somebody says your name for the last time. I鈥檓 determined not to let you die a second time, Cassandra 鈥 goodbye until next we talk."
  14. With many thanks to all of those members who make a monthly donation to Behind the Gray! x I'm a little bit late with the "thank you's" but it's so much appreciated and it helps us to budget for the normal bits and pieces and the unforseen stuff that arrives at BTG's door .... Thank you so much. xx
  15. I think that you need to raise the question as to whether vaping raises blood pressure? I believe that nicotine does raise blood pressure in whatever shape or form. It's perhaps better for your lungs, but may be not for your BP and it's important to keep blood pressure down after a SAH. With vaping, you're probably still taking as much nicotine, as you did, when you smoked and perhaps even more, as you don't physically put the cigarette out. Personally, I would say, that vaping is perhaps even worse than smoking post SAH, as you don't know how much nicotine you're putting into your blood stream. I'm quite shocked, that your husband's GP has said that it was okay.
  16. I believe that periarthritis is what's commonly known as a frozen shoulder and could possibly be down to age and wear and tear? I've never known a frozen shoulder to be linked to a SAH. I've had two frozen shoulders now, one on my right and the other on my left hand side of shoulder. I believe that the blood that dissapates from the bleed, down the spinal column can affect the nerve endings and the blood can take up to 3 months to clear. If you're worried and can't lift anything with your hand, I would suggest having a chat with your neuro team.
  17. We're looking to raise at least 拢800+ per year to keep this site running.... Hosting alone and part management with Invision, is now costing us 拢600 per year, so that doesn't include any extras that we may need to put into place ... such as paying for up to date software upgrades every couple of years and new themes/skins that support the new software. Information technology changes like the wind and in order for this site to work properly and without any glitches, we have to move with it. If we don't, it results in areas of the website becoming "broken" and the website and forums would eventually fall into decay and not usable. Everything, that is carried out on this site is voluntary and carried out to a high standard and would cost us significantly more, if we had to employ people in a professional capacity to do the same. Therefore, we rely on the goodwill of volunteers to keep this website running at the high standard that it is, for the minimum of costs. If anybody would like to give a donation to help keep us running there is a Donate button on the site .... if you would prefer to send a personal cheque, then please contact me via Private Message or the website via email. With many thanks to all who've set up a regular monthly donation with the website and you know who you are! x A regular monthy donation helps the site to budget for the following year/s and to be honest, it's a bit of a relief and less stress for me when working out our finances or if we need to consider fundraising. I'm not good or at all comfortable with asking for money to keep this site funded and it goes against the grain for me, but I can see that it's often down to some individuals who donate the one off larger amount who've floated the site funds to take BTG forward for another year, after I've appealed on the website and without these members, BTG wouldn't be here. So, it's also with many thanks to those of you, who've donated a yearly donation over the years and you also know who you are ...x Thank you all for your kindness and giving support to future survivors.
  18. Belated congratulations Super Mario and wishing you well! xx
  19. Finollie, I don't know of anyone that's had their insurance premium increased because of the SAH. I believe that insurance companies cannot increase your premium, if the DVLA has said and given the okay, that you're fit to drive ... Your insurance company may want to see the copy of the letter from the DVLA, telliing you, that you are fit to drive. It's much better to declare your situation, rather than having an insurance company not paying out, when you need it ...I would always advise for anybody to declare their medical history to their insurance company, irrespecive of having your licence revoked, as they would perhaps refuse to pay out. I never had my driving licence revoked and declared my problems voluntary to both the DVLA and Insurance company. At the time of my SAH, I had a work colleague, who unfortunately had a brain tumour, but gave sage advice. I had a third nerve palsy to my right eye and seizures during my spell in hospital...some of those seizures were the hospitals fault with their lack of due care and attention. A third nerve palsy meant that I had double vision. The DVLA were happy for me to drive, as long as I corrected the double vision with either an eye patch or glasses fitted with a prism, when driving. I believe that if you've been declared fit to drive and it's been confirmed by the DVLA and you have evidence as such, that insurance companies can't discriminate and up your premium.
  20. Hi Joe, I think that it would be worthwhile for you to make an appointment with your GP and get checked out. We often put a lot of our symptoms post SAH down to the bleed and sometimes they're aren't. I used to blame the SAH for everything and would just plod along and struggle. However, I've now got a good GP who gives me blood tests each year to make sure that I'm not deficient in any vitamins/minerals etc. At one point I was seriously low in calcium and vit D and at the point of nearly having to be put onto a drip and hospitalised. I was also low in folic acid/B12. All of these factors contributed to excess fatigue/restless legs/muscles twitches etc. Joe, please make an appointment and ask your GP to rule out any other underlying cause. It could be something that's easily fixed ... don't do what I did and keep struggling ... It will also give you peace of mind. Good luck and wishing you well. x
  21. Yep, it's a 10 minute appointment at the GP's down here too or you have to book a double appointment if you want longer....that's if you can find a double appointment available. x
  22. Hi Dee, it might be worth having some blood tests done? Not sure of your age, but certainly worth to see if you're defiecient in anything .... I was found to be be lacking in Vit D, Calcium, Iron etc ... don't give up! xx
  23. Bill, it's lovely to have you back! You shouldn't feel guilty for the decisions of others ... If somebody is going to commit suicide, they've already made up their own mind and I would doubt that you could have saved them, unless you were there at the actual time. I know of a few people who've done the same and the devastation that it causes. However, you also need to have some self preservation for yourself ... if you're not personally in a good place, then you can't help others, so be kind to yourself first and the rest will follow. Take care Bill. x
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