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Karen

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Everything posted by Karen

  1. Many thanks to all of those members who continue to donate each month....your kindness and support is very much appreciated. x
  2. Hi Josie, I'm literally 16 years on today, since my SAH and the coiling of my aneurysm. My aneurysm still isn't 100% "fixed" as it has a small neck to it ... but I'll take that! I'm still monitored. My aneurysm wasn't suitable for clipping and probably 30+ years ago I would have died, as there wasn't the medical technology with brain surgery re:coiling. I'm just very grateful that I've had another 16 years to be honest.... Clipping is pretty invasive and a longer recovery period ... it brings with it, a lot of other recovery problems. If I was asked now, as to what I would prefer coiling or clipping? I would go down the coiling route for sure. Josie, we tend to blame everything on the SAH and I had a lady contacting me today and wondering whether it's the SAH, which she had last year or perhaps menopause symptoms. I'm not sure what age you are, but it can be a double whammy with the fallout from the SAH and believe you me, it can be a tough ride. I wish you well and all good things. x
  3. Brenda, I'm so very sorry to hear about John and also being diagnosed with Alzheimer's ... My father in law had Alzheimer's and it's a cruel condition and think that it's even harder for their partners and what they have to put up with. My father in law became quite abusive too. Life's certainly not fair .... Just remember, that you're doing as good as you can with his care ... Please remember to look after yourself too .... if you can get some respite care, take it ... take all the help that you can and if you need to sound off ....just post here... xx
  4. With many thanks to Catwoman and Clive for their very kind donations. x šŸ™‚ Many thanks to all of those members who continue to donate each month....your kindness and support is very much appreciated. x
  5. With many thanks to Julie for her very kind donation. x šŸ™‚ Many thanks to all of those members who continue to donate each month....your kindness and support is very much appreciated. x
  6. Sarah, that's completely normal post SAH and recovery .... If you can get a good friend or a family member to help you out with any important phone calls, then please do ... I know what it's like and many on here will tell you the same. Don't ever be worried to ask for help from family and friends ....you can pay this help back, when you're in a better position to do so. Be honest with family and friends and let them know as to your present circumstances and that you need help ... don't ever feel bad for asking, as I'm guessing that you would help out with the same, if someone that you loved was stuck in the same position? Just tell them .... good friends and family will rally round ...just have the conversation with them. I can only say, that I haven't lost any friends or family members due to the SAH. We still have the same conversation, meet up and have a laugh! I've also been able to pay it forward, when family or friends have needed it and I'm very grateful for their support. Don't carry this alone and give your friends and family a SHOUT...as I'm sure that they will be happy to help. xxx
  7. I had to buy a copy of my scans on CD (we're talking 15 yrs ago) ... It's quite interesting to view and I was fascinated with the images ... but it won't give you any answers. To be honest Daniel, I was looking for the same as you are now .... A lot of the stuff that I researched was pretty ambiguous ... it still is now. Even with medical papers, the data differs.... and I've read a lot trying to make sense of what had happened to me, especially in my first years of recovery. The stats with the ratio of women to men, who suffer a SAH is quite interesting to look at. Pregnancy hormones can also come into play. Even babies can be born with a SAH with the trauma and going up to teenage years and beyond when something, such as playing a sport can cause a rise of BP ... If a weakness is already there in the brain, it can kick off. There isn't an answer. I've looked high and low for an answer ... For myself, I questioned my own family history on my Dad's side about 5 years ago as they had a medical history of "stroke" .... Stroke is an interruption of supply of blood to the brain....caused by either a clot or bleed. Looking at the the death certificates, the strokes were caused by cerebral haemorrhage. My Grandpa, two Uncles and my Aunt all died because of cerebral haemorrhage. So, I'm guessing that this is perhaps genes/familial. I also developed migraines in my early teenage years... I still don't have my answer .... but it was something that I searched for and I wasted so much time with thinking that I could find it, rather than living life for today.....guess that it's the healing process .... but it honestly does get better. x
  8. Daniel, I can only say that "stats" vary .... It took me quite some years of searching and looking for the same as you. I literally researched everything, including medical papers and these didn't give me the answers either. As a forum/website, we've taken part in quite a few requests for research post SAH. I can understand that you want answers....I did too ... but I've never got them. The only thing that I did explore a couple of years down the line, was my own family medical history and that my Grandfather, his two sons and his daughter all had a brain haemorrhage/stroke on their death certificate. My Dad is the only survivor from his family....so I'm guessing that genetics come in to play too. x
  9. Jennifer, let us know how your Mom gets on. x
  10. Hi Jennifer, I agree with both Susan's and Super Mario's replies. UTI's/kidney infection can cause the problems that your Mom is experiencing....confusion as well. Defintely get her a Docs appointment as it's something that can possibly be easily fixed with a course of antibiotics. A lot of the elderly don't drink enough fluids which can lead to a UTI because of dehydration ... so make sure that she keeps hydrated in the meanwhile. I had a UTI a couple of years ago .... I'm 58 and thought that I was going a bit doolally with it .... it was sorted with some antibiotics. https://www.uhs.nhs.uk/Media/UHS-website-2019/Patientinformation/Generalmedicine/Urinary-tract-infection-patient-information.pdf
  11. With many thanks to Haymcc for her very kind donation. x Many thanks to all of those members who continue to donate each month....your kindness and support is very much appreciated. x
  12. Hi Dan and glad that you're finding the site helpful. Thank you for your question and I would probably advise to post separate subject matter on the SAH medical forums as more use to others who are searching for answers to the same. You would probably get a much greater response from other members as well. Good luck.
  13. Thinking of Sarah and Al. x The sun's shining outside and Win always had a sunny personality....so I hope that she's looking down at us today and singing a song. Truly missed and a much loved member. ā¤ļø x
  14. With many thanks to Super Mario for her very kind donation. x Many thanks to all of those members who continue to donate each month....your kindness is very much appreciated. x
  15. Hugs and love Daff! I enjoyed reading your blog! xx
  16. With many thanks to Sallios for her very kind donation. x Also many thanks to all of those members who continue to donate each month. Thank you all for your kindness. x
  17. Clare, Happy 6 year anni-versary! Hope you manage that run this morning and it will probably feel quite cathartic! Enjoy your day Clare, you've done so well! Hears to many more years to come! xx
  18. Bless you Sally and just glad it's all over for you now .... well done and I know how difficult it is! x Never be afraid to ask for help to work out your problems ... it's not a sign of weakness, but a sign of strength ... we worry far too much about how people will judge us, but over the years and from this website, I've seen too many people struggle and that comes first hand from my own experience. It took me a long time to ask for help...and that's my only regret. Is it common how you've felt? Yes, it is and I've always hoped that within our little online community, that people are honest with their posts and fears too ... Well done Sally, you've helped another person in future weeks, months and years to realise that they're pretty normal! Sleep well. x
  19. Happy 17th Anni-versary SM! Hopefully this time next year, you'll be back on your adventures again! Have a good day and well done! x
  20. Sally, this time tomorrow, it will all be over with .... don't forget, that you always have that buzzer to press ... let us know how you get on. x
  21. Sally, I totally understand ....promise me that you'll give the GP a call in the morning? ... You're not alone and it's not a sign of weakness ... I still have help with the scanner and flying as well (not that we can fly at the minute!) ... I waited far too long to get help ... don't be me ... x The main thing is, that you manage to get your scan done and get some peace of mind ... you'll be okay ... just pick up that phone! xx
  22. Sally, no ... that's not right ... it's something that just keeps your head in one place whilst they take the scan pics. It's certainly not metal ...what in the earth have you read? Step away from the internet and stop searching..x There's also a mirror above your head, so that you can see the nurses who are taking your scan pics and working behind you in the window ... cool air is also blown in.... and remember that you will have a hand held squeezy button that you can press and the scanner will stop and the nurses will come running ... It's only your head that goes in ... not your whole body. I can't answer about the length of time ... give the hospital a ring and they'll be able to help with the length of the scan, as they will have others booked in after you ... How long do you think it will be? Get some peace of mind and call the Doc in the morning. Please just be honest with the Doc ... it's more common than you believe, but there's help out there ... so don't panic or struggle when you don't have to ... Hugs lovely...I know where you're coming from ... xx
  23. Hi Sally, you really need to get in contact with your GP.....give them a call first thing tomorrow. Tell them that you're claustrophobic and freaking out ... they may be able to help you with a sedative that takes the edge off your fear ... as long as someone is able to drive you home...I'm not a medic but your fear is really common, so get help. I've never heard about wearing a "coil" helmet and not sure where you've got this info from? Remember that you always have a buzzer in your hand when you go into the scanner ....you can press it any time, if you need to get out of the scanner and the staff will come running. Be honest with your GP and phone them tomorrow...you need this scan, but you also need to make sure that you're as relaxed as possible ... also tell the nurses that you have a phobia, before you go in ... they're normally pretty lovely, but you need to let them know. I also don't like the scanner .... I know how you're feeling, but step away from the internet and don't search. Put that call into your GP tomorrow.....be honest and make your life easier. You don't have to do the "brave" thing ... most of us truly don't like the scanner and we've been there ... Hugs lovely. xx
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