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Everything posted by Karen

  1. With many thanks to Compostc for his very kind donation. x
  2. A big thank you to Louise for her very kind and generous donation to BTG! x
  3. Jean, I agree and the best piece of advice that I was given, was to measure your progress from the day that you left hospital ... rather than before the bleed, otherwise you set yourself up to fail ... which was what I was doing for quite some time....failing and feeling utterly miserable and despondent with it. Hence why this website exists, through my own failing and falling flat... and having to come to terms with the fact that I was going to have to take baby steps forward and maybe a few steps back with it. I found that once I became a bit kinder to myself and measured my expectations from the day that I left hospital, that there was gradual improvement, baby steps they may have been, but at least those steps were starting to come together ... I was just expecting a lot more and a lot faster but the brain and body said "no".... It does get better and better ... I still experienced recovery many, many years down the line and yes, sometimes you have to push yourself to see what you can achieve to be able to move forward, but then again I've often found that I've paid the price for over doing things when I was having a good day ... and then wind up on the sofa with a blanket over me the next day ... that however, has got less and less....I've learnt how to pace myself and figure out that instead of gardening all day and end up knackered, to spreading it out over two days and finishing up way before I'm starting to feel that my battery has run out! It really is a learning curve and I can only say, that if you have a rubbish day or week in early recovery ... it's your brain telling you to rest up..... Don't dwell on it, throw it away in your mind like a piece of rubbish ... screw up a piece of paper into a ball and just chuck it .... sometimes it's good to get mad (I always used to say that I would have loved to have had one of those punch bags to let rip at) or just go have a cry....I used to take myself off to the bedroom and just sob ...my family always knew where I was heading and I felt a lot better for it!
  4. I agree with Andrea and yes, take time out to put your feet up ... daily....even if you can't snooze. Re-charge the battery for a little while. Again, I think that it's a case of contacting your GP and being referred. To be honest, the earlier that you can do all of this, the better. I was offered CBT (cognitive behaviour therapy and counselling) but at a really late date ... it was more my fault and lack of help, as I only accessed it when I was struggling and then a huge delay .. I never went, as I think that I had more therapy with running this website and learning by myself. However, if you can get access to it, please do it ... I never had the info that I have now .. 15 years on and it's been more than a learning curve. Don't struggle. xx
  5. Hi Carolyn, What you're experiencing and feeling is pretty normal post SAH. 5 months post NASAH is so very early in recovery terms ... your brain and body is still recovering from the bleed and you're having to come to terms with the anxiety and panic feelings too. Is it going to happen again? - It's a question and something that we've all felt and it takes quite a bit of time to restore your confidence. I know how you feel and everybody else on this site will know too! Are you pacing yourself with your activity? We've all done it, when we've gone completely nuts on a "good" day and then had to pick up the pieces with the dreaded fatigue for the next day or two or even more. Try not to do the same! Just ease into it and do a little extra and let the wonky brain start to heal. Keep up the fluids ... try a V pillow when you're resting. If your anxiety/depression is mounting, phone your GP .. it's common with a brain injury that things aren't working quite the same in a chemical way and we don't get the balance that we had ... it's not always long term, but don't suffer ... I did and for too long! Make the call to your GP ... I was put onto a beta blocker and also a med called Sertraline when life spiralled out of control ... plus I hit menopause too .. I wasn't sure what was causing what ... it's the best thing that I did and wish that instead of struggling, that I'd done it much earlier! I also had a Vit D deficiency and folic acid too ... both made a difference and it was an easy fix with supplements. Not the easiest of times with a brain bleed and covid too ... pick up the phone and give your GP a call ... xx
  6. Missing him ... I can't even read what I've written. Take care all and keep well. xx
  7. With a big thank you to Les' wife Sandra, to his sons, family and friends for the amazing and very generous gift of £1,100 to help support and run Behind the Gray. This amount was raised after a donation fund was set up by the family as a tribute to our dear friend Les. (Macca) With this gift it means Les (Macca) leaves a legacy of this site continuing to run for years to come allowing us all, old and new members alike, to honour the gentle kindness of our friend, moderator and fellow SAH survivor but continuing to follow his example. Les always came ready to listen, he gave hope where it was missing, kindness and understanding to all and some of the best advice this forum has known. If you ever read a post from Les you knew it came from the heart. Let’s honour that. Les knew how valuable it was to be supported and he knew instinctively to be caring and imparted the knowledge of his own recovery experience and how much it mattered to help make someone else's day that little bit easier. Les will leave his digital legacy with us ... his words of wisdom, kindness and humour will stay with us and will also bring much comfort to those who in future years come to the website for help and support. Myself and all of the staff/team at Behind the Gray hugely miss the presence of Les. x Thank you so much to all of his family and friends for helping Behind the Gray and ensuring that we can provide the help and support to future survivors. We are totally overwhelmed by your generosity. xx
  8. A big thank you to Subs and Mrs Subs for a very generous donation. It will keep BTG up and running for a further 6 months, which is just brilliant! x
  9. With many thanks to all of those members who made a monthly donation towards BTG funds in October. It's very much appreciated! x
  10. Louise, it's been a pleasure to travel with you on your journey and to look back and see how far you've come in the 14 years that I've known you. 😘 You've been encouraging, supportive and truthful with the battle you've had and a good friend to me and the members with your compassion and "knowing what it's like" to go through a brain injury... Know that you're well loved. x
  11. With many thanks to John for his monthly donation to help keep BTG running. Very much appreciated. x
  12. So very proud of you Jess! ❤️ Thank you so much, for all of your help and support over the years with the website .... and wow! look at what you've achieved!!! Lots of love xxx
  13. With many thanks to all of those members who've made a monthly donation towards BTG funds in August and September. It's very much appreciated! x
  14. Congratulations Macca! Hope that you have a very happy day celebrating! Thank you for all of your wise words, help and support over the years....it's a pleasure knowing you! Enjoy celebrating with Sandra this evening...Happy Anniversary! 🥂xx
  15. Doonhammer, I have the aura but don't have the numbness. I would go and get yourself checked out. I wish you well...x
  16. With many thanks to ann_calgary for her very kind donation. ❤️ x
  17. With many thanks to all of those members who've made a monthly donation towards BTG funds in July and August. It's very much appreciated! x
  18. Hi Michelle and congratulations on your 6th year anni-versary! x It's been lovely to hear your news and meeting up with Andrea, delivering cake! Also to hear of your future plans! It sounds as though you have a lovely spot to retreat to and take time out. I've found that recovery keeps going and I'm in a much better place than I was, this time last year ... I had my last SAH in 2005. Keep on doing what you're doing! Lots of love xx
  19. With many thanks to Katow for her very kind donation and message ❤️ x
  20. With many thanks to Daffodil for her very kind donation in memory of Win. ❤️x
  21. Thinking of you Sarah and your Dad .... more hugs from me too ... xx
  22. With many thanks to Jess, for her very kind donation. 😊 x
  23. I've clapped and rattled for the NHS and Win.... what an emotional day ... love and hugs to all....xx
  24. I've stuck a big heart on my window for Win .... It's next to a big basket of teddies and at 8pm ... I'm going to bang on a saucepan and rattle it, like no one has even seen! xx
  25. Oh my goodness Sarah, I'm just so shocked to hear that our lovely, funny and beautiful Win has passed away. Win was a big part of our little online family ....I'm going to miss her so very much Sarah and I just don't have the words .... I know how much she loved you, Al and Tilly and I send you all my love and sincere condolences .... she was one heck of a lady! ❤️ xxx
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