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Gilly

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Everything posted by Gilly

  1. I had a perisemphalic sah in October 2014 and have been discharged. I was told that I have to declare this for my travel insurance. I have travelled several times and found Virgin Travel very good for this kind of sah. and easy. If you type in Subarachnoid Haemorrage in the conditions to declare it recognises it. It then asks if you have had a procedure. as I answer no to this it then asks me if I can walk unaided. The last question is have you had an epileptic fit since. The last time we travelled my husband paid 18 pounds and mine was 40 (for a week in Cyprus) which I think is very reasonable. Hey, also offer free cover for any family member under 18 travelling with a full paying adult. I do not know how they compare if you have had surgery, walking aids or epilepsy . They also send your policy details on a credit card size so easy to keep with you.
  2. Hi Broncothor. I have a 20 year old son who is into extreme fitness and he thinks your resting heart rate is very impressive. Although checking it before you eat is cheating apparently. This is my stab at humour! I think you should get it checked before it adds to the anxiety levels. Wishing you all the very best.
  3. Hi, I have had two whilst awake. I didn't have any sedative. I can honestly say it is a very strange sensation, not painful, just weird. Also, I had a collagen plug put in the wound so that they didn't have to push on it to prevent bleeding. That naturally breaks down over time. Please don't be scared. I honestly believe that fear is what changes our experience, not the procedure. Sending every good wish.
  4. Hi Greg You say your window for improvement is closing. We have probably all been told when that is, but it appears they range from weeks to years. What actually happened to us varies so much so our healing will be different to. I wish you all the very best
  5. 1. Went deaf 2. Thought somebody had shot me in back of head (bizarre) 3. Could feel blood pumping through my hole body. 4. Ambulance took me to hospital. Had ct scan. When they told me I had a sah I was pleased that I hadn't called an ambulance for no reason. Crazy? How I wish now that I could have aplogised for being a time waster!! The trouble now is because I went deaf if the sound cuts out on the telly I panic and look round to see if anybody else can hear it. If I am alone I run outside hoping to hear something, anything.
  6. Oh win, you make me smile. It sounds like you have an amazing family. reading your posts has really helped me to appreciate the good things still going on in our lives. We cannot change feeling poorly a lot but fighting the doom and gloom helps so much x
  7. Dear Clare, since my sah I have found that I am so very sensitive to people that I often misread things. Are you sure not signing your card was not your friends way of saying she doesn't want you to leave? Just a thought x
  8. Well, I have spent the last year and a half teriffied. So tonight I decided to go and greet the real world and see how disjointed I have become. Shocked. I or we, are very lucky to be alive. So that changes us? Did me the power of good. I for the first time could see the new me. Grateful and so non judgemental of people. Well, we have to have positives? Love to you all xx
  9. Hi, I have taken advise and phoned kings and a very lovely nurse called me back. She doesn't think my dizzyness, eye pressure Etc are related to my sah and suggested getting my blood pressure checked. I have had a 24hour blood pressure reading done which shows constant fairly low readings. My doctor has prescribed me with propranolol 20mg 3 x per day. He thinks that I am so anxious that I am causing the problems. So here's hoping that this will make a difference. Does anybody else that takes this take a similar dose as it seems a lot of tablets to me. Thank you x
  10. The v shaped pillow has helped me get more comfortable. Thank you. I have had a letter today from the neurology department that states that because my ct scan and lumbar puncture were negative that I do not need to see them. They have diagnosed me with migraine without even seeing me! I do not know what to do next. Any advice please. I feel like they see me as a time waster. X
  11. Are you able to recommend a site where I can buy a good quality v shaped pillow? X
  12. Dear Clare, thank you for replying. My sah was in October 2014 so just over a year ago now, I have only just posted as spent the first year just reading and not brave enough to post myself. X
  13. Thank you all for taking the time to help. I am having trouble with sleeping at the moment. I cannot get my head comfortable as it just feels like a giant bruise. I keep being woken up by extreme pressure feeling and dizzyness. I end up going down to the sofa and putting the telly on low to try and distract me and stop it turning into panic. Is this normal? I feel in limbo because my doctor is kind of the opinion that the lumbar puncture has proved I am not bleeding again so I just need to be patient until I get my appointment with the neurologist. Does this happen to anyone else.
  14. I just spoke to a lady who had a reaction to morphine, she saw huge fluffy cats sitting by her bed blowing bubbles, bizzare.
  15. My discharge note refers to it as NASAH. I remember the neurosurgeon telling me that because of the amount of blood that they were surprised to not find an aneurysm. I was cooking dinner on the dreaded day and first my hearing went, my friend was talking to me but I could only see her mouth moving. Then an unbelievable pain in the right side back of head. I thought I had been shot, don't know why. My problem at the moment is my head feels like someone is squeezing it in the exact same spot and my hand goes numb. Then I have a panic attack. The morphine in the hospital didn't agree with me. I thought they were trying to kill me. It's hard to understand why people take drugs for pleasure. Do any of you have panic attacks and how do you deal with them.
  16. Thank you for taking time to respond. It is very much appreciated. I do not as far as I remember have any contact person at Kings but was not really with it when I left. My doctor doesn't really seem to know a lot about sah. Every time I see him he asks me how my anuerysm is. I tell him every time that unless he knows something I don't I didn't have one. I asked him if he has another patient that has had a sah so I could talk to them. He told me only one other and they sadly died. I wish he had lied and told me they had moved away! I was told after my lumbar puncture that I have to go on a waiting list to see a neurologist. So hope that doesn't take too long. I work as a self employed cleaner. I cannot work anywhere near as many hours as I did as I get exhausted. Cobwebs are now my pet hate as looking up makes me very dizzy. I am starting to ramble now but would just like to add that all you lovely people have been the only source of information and comfort. You are all very wonderful positive people even though I know you have all had and still have so much to contend with. Thank you x
  17. Hi, my name is GILLY and I had a sah on 26-10-14. I spent 2 weeks in Kings had 2 angios ct and mri. There was a suspicious finding near my basiliar tip but after taking advice they decided it was an infundibulum and I was discharged. Have felt very lonely and worried since then. This site has been my only understanding friend, if you know what I mean. I have had a lumbar puncture this week as had symptoms of another bleed but it was negative. Does anybody think that this infundibulum should be checked. Do you know if it can turn into or hide an aneurysm? I would be grateful of any knowledge.
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