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Dawny

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  • Gender
    Female
  • Location
    UK
  • Interests
    The sea, painting and art, walking, eating lovely food, my dog, most things Victorian, and old films.

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  1. Hi David, I hope you have had some clarification from your doctor/consultant and are feeling more reassured. After several years of scans monitoring of my previously ruptured and coiled aneurysm where I suffered a SAH, they had recently referred to my aneurysm as ‘recurring’ - meaning in my case it had started filling with blood and was up to 30% due to the coils compacting. I have just undergone further treatment for the recurring aneurysm and am relieved to be back and recovering. But some people just have monitoring and no further treatment needed. I’m not sure if this is the case with you, that’s the aneurysm that has recurred, as they put it, as you may have experienced symptoms of a second bleed if it was the bleed that had recurred, and would have probably required urgent attention if this was the case, but is always better to clarify something like this as I can only share my own experience. I completely get the not being able to read and retain although that is improving all the time, however I am still very sensitive to noise so music is out for me!
  2. So glad to hear this Jean, and that you are feeling more like yourself now. I had read that it affects people differently and can last varying times depending on how long you were out and the amount of anaesthesia etc. It’s sound like you are going in the right direction anyway! take care x
  3. I know exactly what you mean lol! Definitely a time of mixed emotions but the relief afterwards is like a new lease of life. I’ll be keeping an eye out for your progress report! 🤓
  4. To @ann_calgary apologies I just realised I had read your previous thread about stents and blood thinners from 2020 when I was trying to find out information about mine. I saw there you were advised you wouldn’t need one. Then I just read your post about where you were told you would need clipping. You have been through so much but your positivity and attitude are so inspiring! I will be joining everyone on here in wishing you the best and thinking of you on September 13th.
  5. Yes I had my previous angiogram done through the radial artery and my mum had cardio stents this way but I understand it is usually the standard for endovascular coiling to be done via the femoral artery straight to the brain. Maybe it will be adopted more in the future but I had read somewhere that it’s a bit of a pioneering thing for brain aneurysms!
  6. Dear Ann Thanks very much for your reply and wishes. We are ACOM twins! I hadn’t heard that about the radial artery either until it was done for me. I think it must be a relatively new approach, at least in the UK. It really is amazing what these medical geniuses can achieve. Sorry to hear the stent did not work for you. When you say it didn’t push through, did they attempt to do it or was just it decided clipping was better? I have read clipping is very successful and reliable. I will be looking out for your progress and wishing you all the very best for a successful procedure and a complete recovery too. Take care and take it easy too! 💛🤞
  7. That is so true. Am indebted to them. Trying to think of a suitable thank you! Yes I’m enjoying the rest so far. Having a little gentle walk around so I don’t seize up either and drinking plenty of water.
  8. Thanks Jean. It really is. I have been reading a bit more and I can’t believe what they are capable of.
  9. Thank you Sami, it really is! My original coiling was through the femoral artery too so I couldn’t imagine that it could be done that way either. Mine was an anterior aneurysm (Anterior communicating artery, I believe). So glad yours have been successfully done too. The relief is unbelievable. Thank you again for your wishes. xx
  10. Hi again everyone, Thank you for again for all your comments and wishes. I am feeling stronger every day and I can echo other’s experiences when they say that the recoiling recovery is no way as bad as after the original bleed. I am tired as expected and some missing words but I know this time not to push myself unnecessarily. Yes, I think I can agree that the worry was worse than the op! Although I was of course out for the op but it was nerve wracking in the run up and on the table, especially before, when the risks were being explained! But I did have confidence in the amazing medical teams whose regular scans and ongoing monitoring made sure it was picked up on. So I now have extra coils and a stent flow diverter fitted by/in front of the neck of the aneurysm, in the artery/vessel. Apparently my aneurysm, despite being small, had a wide neck and was refilling with blood. I must admit I was too woozy to ask any questions when I came round and the next day, but I just have to wait until the MRI or consultant appointment in 6 months. I do know that the operation took longer than originally thought as the stent was a bit tricky to position but I didn’t ask any more about that as I was just relieved it was there! I think the idea is that the stent eventually grows a skin(?) over the artery and closes the aneurysm from the blood, and in the meantime any blood that flows in is diverted away, but anyone who has any better understanding may be able to correct me. I do have to take blood thinners for 6 months and aspirin for life but I know everyone’s situation is different. I think it’s a small price to pay. I am amazed at what these skilled and brilliant special people can achieve, which is why I trusted them to do the procedure (despite the nerves and initial reluctance!). I was surprised and amazed when they said they were going through the radial artery in the wrist. I did have an angiogram through there once but didn’t imagine this could be done that way. I hope this has been helpful or useful to read in some way, as I have found other posts on here. I haven’t googled anything or read too much as I believe the medics are the experts and sometimes reading too much can make me worry unnecessarily! If anyone has any questions or wants to know more please just let me know and I’ll be happy to see if I can answer. Thanks again for reading and for all the support and encouragement!
  11. Thank you all! I will write more if people are interested but as they went in via the wrist, radial artery, which is amazing, I am limiting my online clicking! Looks to be healing nicely so far though. 🤞 The relief is unbelievable. Slight cough and sore throat from the anaesthetic tube I understand but that is getting better already.
  12. Hi everyone thank you so much for your wishes! Just a quick message to say I will write more soon but the brilliant medical team successfully performed the recoiling and stent yesterday and I am currently waiting to go home! More details to follow in case it’s helpful but just wanted to let you know! I feel very positive and like a weight has lifted. Just need to recuperate and heal now. Thanks again for your support.
  13. Thank you so much Tina! Very grateful for your wishes ❤️🤗xxx
  14. Thanks so much Skippy and Jess! Your kind words and wishes are much appreciated. 🤗❤️🤞 xx
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