Jump to content

Susan

Members
  • Content Count

    52
  • Joined

  • Last visited

Community Reputation

87 Excellent

About Susan

  • Rank
    Member

Profile Information

  • Gender
    Female

Recent Profile Visitors

910 profile views
  1. I had the AstraZeneca jab 5 days ago. I had a headache on day 1 and a few sniffles and an achy arm on day 2 but that was it.
  2. Hi Dave You could try ringing up your consultant's secretary to see if you can get confirmation that you are fit to drive. If the consultant says that you have to wait on your next scan then unfortunately you are out of options. Good luck
  3. Hi Greasly Sorry you are feeling so low at the moment. Are you still working? I note that in April this year you said the company you worked for had been taken over by a large global company. It might be worth investigating if they have an Employer Assistance Programme that gives access to 6 free counselling sessions - many do. Hope things pick up for you soon. Xx
  4. Hi Andrea I know it can be a bit disconcerting when you are expecting a certain level of monitoring and then that changes. My hospital neurosurgeon suggested we scan my very small unruptured aneurysm at 6 months and then at increasing intervals of 1 year, 2 years and 3 years. He said if it had not changed in all that time (6 and a half years) we could safely forget about it. I was happy with that plan - I think mine is quite low risk because I've never had an aneurysm rupture (my bleed was non-aneurysmal). After the second scan though, I saw a different neur
  5. Hi weedrea Congrats on your 3 year anniversary. I was, and still am, a night-owl and my event also happened at 1 in the morning. Best wishes. Keep on keeping on. Xx
  6. Hi Clare Welcome to BTG. I'm 2 and a half years post non-aneurysmal SAH and I still have to lie down straight after work. I have had periods where I might just rest rather than snooze but just lately I've been feeling more tired and headachy than usual and have been having a full on 2 hour snooze after work. You said that you had not had an issue with headaches until a couple of months ago so I wonder if something in life has changed for you lately? I put my changes partly down to a change in my work environment. A couple of months ago my compan
  7. Hi Kay I've never replied to one of your posts yet, but I have been reading them all with interest - you have gone through such an extraordinary amount of uncertainty over this past year, and coped with it all so bravely. I just wanted to say I hope you get all good news on March 19th and can finally start looking forward. Xxx
  8. Hi Ian Not sure what to say on the headaches (other than the usual advice to stay hydrated and not overdo things) as I was lucky enough to be able to manage mine with just the occasional paracetamol. You are only 2 months out from your NASAH - I am sure there are other members on this site who were still having to take regular pain relief for headaches at that stage - hopefully they will chip in with their own experience of using pain relief. I think pain relief is something you should be talking over with your GP, and as Daff said maybe getting a referral to a pain clinic if neede
  9. I've never properly looked into mindfulness but I think I've probably been practising it naturally since I had my haemorrhage. For me there was something about the shock of the event and the way it forced me to slow down that made me naturally open to experiencing the world around me in the moment. I absolutely love to walk now - I can spend hours tramping around on my own in some beautiful parkland near where I live. It has become a necessary part of my recovery - I really miss it if I go too many days without a good walk somewhere tranquil. I can also spend inordinate
  10. There are lots of theories but the exact source of a non-aneurysmal PMSAH is still not known for certain. When I asked my neurosurgeon in hospital why it happened he shrugged and said ' we don't know' - because he told me it was very unlikely to happen again I accepted this. But I do like to know the why and what about everything so did a bit of research when I left hospital - I soon realized I was never going to find a definitive answer on this one and so let it go - did not even bother re-asking the question at my follow up. From what I've read I'm happiest believing
  11. Hi dbc Non-aneurysmal perimesencephalic haemorrhages (PMSAH) are generally regarded as having a benign clinical course - it is very rare that there will be any complications leading to death or severe disability for this type of haemorrhage. Rebleeds are also extremely rare - we have a member Jimble on this site who has had 2 perimesencephalic bleeds, but apart from him I have only read about one other case of a perimesencephalic rebleed and that was cited in the medical journal as a unique case. I am not sure what your neurosurgeon said is strictly true ( I think some
  12. Hi Mark It's good you've talked to your boss and alleviated some of your worries about work. Best just to have an open mind on recovery and take things as they come - to be aware that though symptoms can linger for some, a full recovery is also possible for some. Best wishes on your recovery. x
  13. Maintaining a good sleep routine has been a bit of a struggle for me post-haemorrhage. I get by but can't help feeling life could be better if only I could sleep better. I do sleep ok once I fall asleep (I do wake but generally go straight back to sleep), but my problem is the getting off to sleep in the first place - and the getting up in the morning having not had enough sleep. To snooze or not to snooze - that is the question. I think in the early months it is definitely best to listen to your body and rest whenever it tells you. If sleep problems persist then it ca
  14. Hi Mark Welcome to BTG. If you were feeling pretty good before going back to work then it sounds like maybe you are just trying to do a bit too much a bit too soon. If possible take as much time off as you can to recover and then try building up the work hours a bit more slowly. My NASAH was 2 years ago and I still only work 18 to 20 hours a week. I don't get too many bad headaches now as I generally just work what is manageable for me. Sometimes though - like the past few weeks - I do get stressed with work - trying to get too much done in too little time.
  15. Hi I was very sensitive to noise and light in the early months and remember finding my first trip to the cinema a bit of an assault on the senses. I'm 2 years post NASAH and things have improved, though I would still never dream of going to a large multiplex cinema without foam ear plugs. Most of the time I go to a small local independent cinema - the noise levels are definitely lower there and I can usually manage without the ear plugs. I have no problems watching telly (though earplugs still required when visiting the parents), but I can't ever have it on
×
×
  • Create New...