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Susan

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  1. It would also be worth having a review of her medications - has she started something new recently? My dear old mam was hypersensitive to lots of drugs and antidepressants in particular would cause confusion/delusions.
  2. I would contact your GP first and get her checked out for a urinary tract infection. UTIs can cause confusion in older people and do not always present with the same symptoms as younger people.
  3. I had the AstraZeneca jab 5 days ago. I had a headache on day 1 and a few sniffles and an achy arm on day 2 but that was it.
  4. Hi Dave You could try ringing up your consultant's secretary to see if you can get confirmation that you are fit to drive. If the consultant says that you have to wait on your next scan then unfortunately you are out of options. Good luck
  5. Hi Greasly Sorry you are feeling so low at the moment. Are you still working? I note that in April this year you said the company you worked for had been taken over by a large global company. It might be worth investigating if they have an Employer Assistance Programme that gives access to 6 free counselling sessions - many do. Hope things pick up for you soon. Xx
  6. Hi Clare Welcome to BTG. I'm 2 and a half years post non-aneurysmal SAH and I still have to lie down straight after work. I have had periods where I might just rest rather than snooze but just lately I've been feeling more tired and headachy than usual and have been having a full on 2 hour snooze after work. You said that you had not had an issue with headaches until a couple of months ago so I wonder if something in life has changed for you lately? I put my changes partly down to a change in my work environment. A couple of months ago my company moved premises to a big bright brand new shiny building. Whilst this was delightful for everyone else I've found it a bit overwhelming - I honestly felt quite tearful the first morning I sat at my new desk. I'm now smack bang in the middle of a big open plan office whereas I used to work in a little cubbyhole off the main office. There is just way too much noise and light distraction - I wear ear plugs/ear defenders most of the time now whereas I had been using them less and less, and I've also taken to occasionally wearing my sunglasses indoors too. I agree with weedrea and Daff about the value of lots of small breaks. In my old building there was a wonderfully dark quiet windowless room that I used to escape to for regular 5 minute brain rests. I've done a recce of the new building but there seems to be nowhere similar to escape to - most of the rooms have automatic lighting that switches on when you enter with no switch to override it. I miss my dark quiet room! Replying to your post has made me realise I must speak to someone at work next week to try to sort somewhere out for taking breaks. I know what you mean about the effects of stress - I very quickly start to feel disorientated, fuzzy and heavy headed when I am confronted with a stressful situation. I follow Win's advice and try to avoid stress at all costs, but as Daff says, with major unavoidable stress, I acknowledge that it will have an impact and allow myself extra time and space to get over it. Another trigger for me for fatigue, headaches and fuzziness is overexertion in exercise. I'm only a very moderate exerciser since my bleed - mainly walking and a bit of swimming and pilates - but if I accidentally overexert even a little (it's very difficult to gauge at the time until it is too late) then it can take a couple of days for my head to recover. You've done well to be working full time for 8 months - I still only work part time. Take it easy and look after yourself. Best wishes xx.
  7. Hi Rachel Sorry to hear what has happened to you and all the worry it has caused. I would not worry too much about the journal article you linked to - it is specifically is talking about early warning bleeds in the context of aneurysmal rupture - once an aneurysm has bled it is likely to rebleed in the next month if not dealt with. Your MRA should have indicated whether you had an aneurysm (ruptured or unruptured) and you said it came back with no abnormalities. Although the diagnosis of a bleed by CT scan or MRI/MRA would become less reliable over time, I think an MRA should be able to identify an aneurysm at any time. It may not identify all very small aneurysms but I think the resolution is usually pretty good - my 2mm unruptured aneurysm can be seen by MRA. I would feel reassured that you are going to see a neurosurgeon who specialises in SAH. They will be able to advise you if any further investigation is needed. Unfortunately as your lumbar puncture was not conclusive I am guessing that you may never find out for definite whether you had a bleed or not, but they should at least be able to confirm that you have no aneurysms. I hope you get to see the neurosurgeon soon. As Michelle said, please seek medical advice if you have any new or worsening symptoms. Best wishes Susie x
  8. Hi Graham I would be interested to know if the doctors' statement of "overwhelming medical evidence" was based on a large scale research sample or just an individual opinion based on their own experience. More to the point though, even if the majority of NASAH patients do make a full recovery, which may or may not be true, I do not see why that should automatically negate the claims of those that don't. It also depends on the nature of your job - some jobs may be easier to return to than others after a haemorrhage. Good luck. Susie
  9. Hi Heather I've met you and Rebecca at the support group too back in January, and Rebecca and her dad last November. It's great that Rebecca still attends the group to give advice and support to others. I had my non-aneurysmal SAH back in January 2016 but unfortunately no-one informed me of the support group when I was discharged. I only found out it existed by chance (through an old BTG post!) so did not get to my first meeting until 10 months on from the haemorrhage. It was helpful though as I was really struggling with work at the time and needed to talk to people who understood. I work Tuesdays now so don't get much chance to attend but hope to make it back to a meeting sometime when I have some time off. Missy67 maybe I've met you too? Love Susie xx
  10. Hi Graham Sorry to hear that your claim was rejected. I do agree with the first doctor's statement that support sites are not representative samples as patients who make a complete recovery are less likely to contribute, however I don't agree with the other doctors' statement that there is "overwhelming medical evidence" that people who have suffered a NASAH make a full recovery and go back to the same jobs working the same hours. I don't think that there is enough research information to support this statement. I'm not sure medical professionals know the true long term effects of an NASAH - they rarely do any follow up on us! I can imagine that there are lots of NASAH patients who get discharged and make a good enough recovery that they never have to be referred back to a neurologist but that does not necessarily equate to making a full recovery. I know my own neurosurgeon, lovely though he is, seemed very surprised that I was not feeling better than I was at my 2 month NASAH follow up. That was why it was so good to find BTG, just to realise that I wasn't that unusual, otherwise I think I would have been constantly plagued with worries that there was still something medically wrong with me that needed investigating. It was nice to be reassured that actually I was just making a fairly normal recovery. I get regular follow ups because I have an unruptured aneurysm so I think I'll make a point at my next appointment (September) to inform them if symptoms are ongoing - not because I'm worried about them but just so they know!!!!!! At my last appointment in September (8 months post NASAH) I saw my neurosurgeon's junior. When I mentioned that I still suffered headaches and fatigue he did at least acknowledge that "these things take time". When I said that I was still sensitive to noise and light and asked if this was likely to improve he just said "probably". To be honest I wasn't really expecting much else as I know that it is difficult for doctors to give definite answers on these issues but I suppose I was just hoping for a little more interest. I don't know if you have seen this research - it has some studies on PM- NASAH. It is a very limited sample but acknowledges that there is a need for further reasearch in this area. https://www.researchgate.net/publication/303848012_Long-term_fatigue_after_perimesencephalic_subarachnoid_haemorrhage_in_relation_to_cognitive_functioning_mood_and_comorbidity Regards Susie
  11. Hi Macca There is some evidence for a hereditary link for brain aneurysms. Colleen posted something about it last month. I'm not sure how you post a link but if you search on Google with the words "Mischer Institute gene mutation brain aneurysm" articles should come up. Regards Susie
  12. Hi Phil Welcome to BTG. Sounds like you had a pretty traumatic holiday! I wanted to reply with particular reference to your questions on stress. I am 51 and had a non-aneurysmal SAH 14 months ago. I also have a very small untreated unruptured aneurysm. Pre haemorrhage I would have described myself as a very stressy person, but I always managed to handle the stress. Post haemorrhage I rarely get stressed out but I do not have the same resilience to handle stress anymore. 6 weeks after my haemorrhage I remember watching the film Castaway. It has a very traumatic plane crash scene at the beginning and I couldn't believe the reaction I had to it - my head started to pound so much I had to stop watching and lie down for an hour. This really worried me and I wondered if this would be my stress reaction from now on - I had visions of myself sat at my desk at work, being given a tight deadline and suddenly having this pounding in my head. I mentioned the experience to my consultant at my 2 month follow up and he said my symptoms sounded similar to that of someone with PTSD. I think he was right - it was a very specific reaction to a simulation of a life/death situation and I've never experienced it again to that extent. I do however have a very definite reaction to stress. Sadly not all life's stresses are avoidable and I recently had some family related stress that completely wiped me out for a couple of weeks - I had headaches, fatigue, nausea and insomnia reminiscent of my early days of recovery. My consultant told me that the two most important factors for me post haemorrhage were to continue to control my blood pressure (I take medication for borderline hypertension and nocturnal hypertension, and did so before the haemorrhage) and not to smoke (I gave up being a regular smoker a long time before the haemorrhage). He did not specifically mention stress and I have read that stress is not a contributing factor, but I can't help but think that regular exposure to stressful situations over long periods of time can't be good for anyone as it can contribute to high blood pressure. I am still phasing back into work - I only work 17 hours over 4 days (Wednesday off). I do expect to add on more hours, but really have no idea if I will ever get back to full time hours - I haven't ruled it out yet. At the moment I have decided to start trying to add more social activities into my life, to see how I manage that, before adding on more work hours. I am unsure what will happen in the long run if I am unable to add on more hours but I don't see the point in worrying about it - I can only do what feels manageable. My own experience has been that after suffering the initial trauma of the haemorrhage I have mostly found that it has benefited my emotional well being. I really don't want to throw all these positives away by putting myself into a position where life just becomes work and sleep. I hope you continue to make a good recovery. Best wishes Susie
  13. Yes it is a scary experience. You might find yourself rerunning the events in your mind a lot in the early weeks - I know I did - still do sometimes more than a year later. Try to take it easy and don't worry too much about getting back to work - wait until you are sure you are up to it - that could be months rather than weeks. Xx
  14. Hi Smeg I phoned the DVLA about a month after my NASAH to inform them, and they sent out the forms. I was told it was ok for me to drive while they carried out their investigations as long as my consultant agreed I was ok to drive. I phoned my consultant's secretary the next day and she got back to me within 10 minutes to say he said it was fine. It was actually 5 and a half months before the DVLA completed all their investigations and gave me the formal ok to drive but I was able to drive during this time. I would contact your consultant to ask if you can drive, and then contact the DVLA again if your consultant says it is ok.
  15. Hi Graham As Clare said it is clear that many people do suffer from a reduced capacity for work after a haemorrhage. I have never had any neuro- psychological assessments myself but don't really understand how relatively short duration testing could evaluate your capacity for work. Surely testing can only assess your capability for work. Good luck with your appeal.
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