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Jan

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Everything posted by Jan

  1. Louise, congratulations on your anniversary You will never know just how much you’ve helped me over the past five years, Always there for me When I need advice or a hug🤗You are a Star Jan xx
  2. Congratulations on 14 years. You are a beautiful lady inside and out.I will never be able to thank you enough for creating BTG..You have brought together so many people who need help, support, inspiration,a good moan or even better a good laugh.😀THANK YOU KAREN. A great big well done on travelling 14 years on this bumpy road that we’ve all found ourselves on. Love Jan xx
  3. It was 4 years last Friday 7th June that my brain let me down so very badly and changed my life entirely. This has been my worst year by far.I have words and their meanings in my vocabulary now that I never thought would apply to me, for example....... depression, anxiety, ptsd, fear. I have little self confidence.I have got into a rut that I need to find my way out of. This next year will be a year of change.It has to be. First step ( The BigOne ) is underway, selling the house and moving somewhere new. John and I realise now that there are only the two of us on this j
  4. Michelle, Huge congratulations on your 5yr anniversary 😀 I could almost ditto your post when I do mine later!! You are a very strong and resilient woman who keeps on doing well, I have much admiration for you. More than that You are a very caring and loving lady always happy to help or advise here on btg. Btg is a better place because you are a part of it. Wishing you an absolutely brilliant 5th year 😊 Jan xx
  5. Hi Coleen, Huge congratulations on your 10 year anniversary I hope you have a truly lovely day ? As you said. . . Keep on keeping on!! Love Jan xx
  6. Congratulations on both of your special Anniversaries Macca, you are a very special man, I can’t thank you enough for always being here for me, I love your ‘way’ with words, your understanding and showing me how to look at things from a different perspective. Thankyou, thank you thankyou Jan xx
  7. Hi Joe, Thank you for starting this topic, reading the above comments has made me realise how much my tastes have changed. I’m 3yrs post SAH. I used to love a Macdonalds or Burger king occasionally, can’t stand them now, they just taste of grease. Bizarrely, I love vegetables now, I’d eat them before but it’s like I can actually taste them now. Like Win, I don’t like tap water but a Brita water filter jug kept in the fridge fixed that !! My taste for prosecco/Pinot hasn’t altered at all !!! Like everyone has said, it’s all down to the T word (time) keep trying your o
  8. Well . . I did it!! What was I worried about? My physio Emma explained what she was doing and kept me talking to keep my mind off what she was doing. I only felt 2 of the 7 needles and they didn’t hurt.I was aware of her putting the needles in the top of my arm but only because I could feel her hand holding my arm! (I didn’t watch) until she put one in the back of my wrist I saw that one and it hurt. I’m sure it only hurt because I could see it, if you know what I mean? When it was over, I asked why I hadn’t had any needles in my shoulder considering that my shoulder
  9. I phoned N Staffs again yesterday. Switchboard couldn’t put me through to a nurse specialist as they don’t have one on their list!! She asked if I wanted to be put through to ‘the ward’ Which ward I had no idea but said ‘yes please’ As it turned out it was the ward that I was in 3 years ago. A lovely nurse answered and I asked my question re acupuncture, she seemed to understand my concerns and immediately went to find a doctor to ask. She came back to me with. . . . Yes Jan, it’s safe to have acupuncture after a bleed on the brain.??? Relief?? I can’t tell you ! So, I
  10. Clare, Thank you, I will try again, I was actually told that there was only a nurse specialist for patients with cancer!!! Odd? Yes. There was a neuro nurse specialist when I was discharged 3 years ago I will try again, Thank you. Jan xx
  11. Tinaw, I think our posts crossed! Thank you for your reply, That helps to put my mind at ease ?
  12. SM, Thank you, I have tried to phone my physio this afternoon but can’t get hold of her yet, she is aware that I’ve had a SAH so I’m sort of assuming from that it must be ok, To be honest, I think that because it’s something totally new to me I’m being over cautious. I was ok until I read the leaflet she gave me and this sentence jumped out at me . . . . . . Research shows that acupuncture stimulates the brain to produce natural pain relieving chemicals - Endorphins............... It’s the ‘stimulates the brain’ bit that had me worried. I am just being a great big Wuss!!
  13. Hi Sis Thank you for your quick reply and advice. I have just spoken to my consultant s secretary ( my consultant/ surgeon is on annual leave) I explained what I wanted to ask and asked if I could perhaps talk to another consultant or nurse specialist? Short answer was NO . . Advised to ring my GP which would be a waste of time as they won’t answer anything without speaking to N. Staffs hospital first ?. Back to Dr. Google!! xx
  14. Have any of you had acupuncture since your SAH? I am currently having physiotherapy for my shoulder pain (rotator cuff damage) My physio has suggested acupuncture as the muscles surrounding my shoulder are so knotted that the manlipulation that she’s doing isn’t relieving the pain. I know that everyone is different regarding pain threshold and how far they will go with a particular treatment etc.I just wondered if anyone has had acupuncture and could share their experience? By the way, I don’t have a fear of needles!! I suppose what I’m really asking ( in typical
  15. Louise, Well Done You!!! Thank you for sharing your experiences and feelings, Like you I didn’t enjoy flying before sah but have always said since sah that I need to conquer my fears and get on a plane again.We used to go to Nerja in Spain every September.Ive just applied for a new passport (change of name to married name).so that’s the easy part done!! Just need to find my confidence and courage!!Thank you again for sharing, You are a courageous lady ? Jan xx Ps, forgot to say. . . . . . Beautiful photo xx
  16. Where do I start? The last 12 months have been more difficult than I expected, full of highs and lows. . . . The Best day , it goes without saying (but I’ll say it .anyway. Remember Jan The Rambler’s typing this!!) was my beautiful wedding day . It truly was the best day of my life so much so, I want to do it again ( with John of course!) I’m digressing already. I see things differently this year. Relationships with family and friends change.I have felt abandoned and isolated.The isolation is mainly my doing, I think my confidence went down a different path to the one I’m on.
  17. Me too ☹️ I’m 2and a half years post SAH now I watch very little TV, Same as Siper Mario, I can’t stand the noise and movement and to be honest I can’t follow a storyline, The concentration wears me out. Mad isn’t it? Jan xx
  18. Super Mario, Thank you for this information, I will definitely look into this. Jan xx
  19. Thank you so much for your replies, Who'd be female?!, I went for my ultrasound scan yesterday, whilst lying there I was so tempted to ask ' is it a boy or girl?' Ha ha!! I decided it would be better to behave like an adult so I kept my mouth firmly closed ( well there's a first time for everything !!) Saraheliza, I don't have any tips re the panic, other than take deep breaths and try to distract yourself, I wish I listened to my own advice. I too seem to have a good day then a bad one, it's like it's par for the course for now ? jan xx
  20. Have any of you lovely BTG ladies had the misfortune to go through the menopause after your SAH?If so, do you have any advice or tips on how to make it easier?!, I had a 'lightbulb' moment last Sunday, having spent the afternoon sobbing and wailing 'I can't cope with this anymore'. It dawned on me that I could be feeling so miserable because of my hormones and not my head. Am I the only one who immediately blames the aftermath of Sah for every ache, pain, feeling, mixed up emotions? Anyway, long story short,I went to my gp on Tuesday to ask for help getting through this. She w
  21. Many thanks for all your replies, As Lyn wrote its good to know it's not just me. Perhaps we haven't realised our new vocation? "And here is today's weather forecast, brought to you by BTG !!!!!" Jan xx
  22. Hi Sis, That is a great explanation thank you, You've just made it make sense for me ?We didn't get the predicted storm, just lots of rain, my head feels better now?Thank you again. Jan xx
  23. I've read posts on here in the past( can't find them now) relating to Barometer head and just wanted to ask a few questions. . . . My head has felt fuzzy and heavy today. I felt really really tired early afternoon so I had a sleep for an hour on the sofa, I Never sleep in the day.It was sunny and warm here this morning, it's cloudy now and I think we're due thunderstorms around 5pm.could my heavy head be related to the weather? If so, how does my head know that we're due a storm? I know that you can't give any medical advice, I just wanted to hear of other people's experiences/ feelings
  24. Macca Thank you, you've just had me laughing til I cried(happy cry !)Ive checked the kitchen cupboard, got a good stock of bin bags and an image ofJohn dressed like a village idiot, whoops I think you said yokel., just joking, he's only an idiot for putting up with me poor man . On a slightly more serious note Thank you for advice re medication, I will check side effects etc. Macca, you have a unique talent with your advice and humour,It never fails to lift me, Thank you Love Jan xx
  25. Where do I start?!!! Thank you all so much for taking the time and consideration to reply to my post.Because I know that you all understand, your replies have enabled me to 'look from the outside in' and that is a huge help. I think my biggest mistake since leaving hospital has been pretending that everything is ok and that I'm ok. Too much pride? Yes I think so. John and I have never been ones to ask for help, always happy to give it but perhaps too proud to ask for it., I think we asked on a couple of occasions in the early days , it wasn't forthcoming so we didn't bother asking
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