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Jan

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Everything posted by Jan

  1. Momo thank you for your message and your understanding,I,like you am a complete coward. I know that my surgeon saved my life last year, for which, I am obviously forever in his debt.Actually,I only realised this when I came home. (Whilst in hospital I had no idea of the severity of what Id been through) I do know that I hated every minute of my hospital stay. I was a terrible patient, always asking 'when can I go home? I'm sure some of the nurses (who were lovely) were pleased when I was discharged ! Love Jan xx
  2. Hi Colleen and Susan, thank you for your messages, A big thank you for thinking about little me, it means such a lot Ive had my appointment date to see my neurosurgeon 25 Oct, so I still have some thinking time. At the moment, Im thinking that Ill go for the monitoring option, get myself physically and mentally stronger. My physical recovery since Sah has been good(apart from the left sided weakness, but even that is improving slowly.Im not ready to go back to square 1 and have to start all that recovery entails again Love Jan xx
  3. Reading these posts has reduced me to tears, It is, I think easy to become wrapped up in our 'illness, fears and worries' and not give enough consideration to our partners, carers and what theyre going through. it must be hell for them to see how the person they love has changed and to watch them struggle. I have cried with John, shouted at him and been miserable around him and he's still here with a great hug when I need it and even when I don't.As you said, Win, what would we do without them? Ok, I'll sign off now before I get too soppy Love Jan xx
  4. Hi Gemma & Sharon Thank you so much for your replies what difficult, complicated lives we lead. I sometimes look at my sisters with complete envy, I just think 'you havent a care in the world' Actually, to be honest, I look at a lot of people like that Its only the people who have been through these experiences that truly understand the worries, the fears the uncertainties etc. Thank Goodness for BTG. Love Jan xx
  5. Thank you all so much for taking the time to share your experiences with me and Thank you Subs for looking after me! I started posting this at 5.30 this morning but because Id been awake since 3am, I deleted it and decided to try later. Colleen, I admire your bravery and understand totally how good it must feel to be Anni free. Sarah, how on earth have you and your husband got through the last few years? You must have an amazingly strong relationship. Susan, ill be thinking of you on the 13th, heres hoping theres no decisions to be made?And yes, I prefer th % for monitoring! , Subs, as you say, small odds maybe ( re angiogram) but not what you want to hear when your loved one is about to have an operation. Win, I will ask the surgeon what he would do if it was his wife/partner. what are the new pills/drugs that are out? I dont know about them. Thank you all again for your advice and support, I don't know where Id be without all you lovely lovely people Love Jan xx
  6. Since my SAH, decision making has not been one of my strong points so I would really welcome any advice or your experiences if you've been in a similar situation. When my surgeon said the anni had remained the same, I assumed that I would just continue to be monitored until such time that an operation was necessary, I didn't expect an operation to be mentioned yet. He has told me that if we continue to monitor it, it has a 0.7% chance of rupture for this year. And that the numbers increase every year as I get older, although he did say that I was young (so that was nice!!) Other numbers given were a 3 to 5% chance of stroke during the operation the cardiovascular radiologist seemed to think that coiling. Might work, Anni is 3mm with a wide neck Neurosurgeon would be happier clipping. I know that this is my decision, but it's a huge one, . . Monitor.. Coil.. Clip? I would love to hear about any of your experiences, good bad or indifferent. Thank you Love Jan xx
  7. Hi Chris, Win and Gemma. Thank you for your replies ? The good news is that my anni hasn't changed size or shape Thing is now, I have to decide whether to continue having it monitored or have a craniotomy to get rid.
  8. Hi All, hope youv all enjoyed the Bank Holiday. ? I just want a little advice. I had MRI and MRA scans in June to check on my unruptured anni, I have appointment tomorrow for the results. I have to admit I'm worried I case it's changed because I have been told it cant be coiled so I would need a craniotomy and would hate to go through that again. I know I could be worrying over nothing but that doesn't stop me worrying, Anyway, more to the point, when the appointment came through a couple of weeks ago, I thought of loads of questions I wanted to ask , some about the original rupture and what it affected etc. One obviously being short term memory loss but I cant remember the other 20odd questions ! How I wish Id written them down. So if any of you have been for an appointment for results etc. can you suggest anything that I should be asking? Sorry to have waffled on so long Love Jan xx
  9. super Mario, To be honest, at the moment, Im not sure but its certainly given me something to think about. In fact all of the replies from you lovely lovely people have got me pondering ? Lets face it, housework and gardening is surely not the way forward? It may have to do for now, but I feel I have more options to explore now ? Jan xx
  10. Hi Gemma, thank you for your reply, I think I have sad before that I admire you just for teaching in a secondary school. You must really enjoy your work ?Your dedication is incredible. If I was wearing a hat, I would take my hat off to you !! Once I have my results, as mentioned above I will contact the school and see if I can help out in any way. Hi Greg, thank you for replying I hope your return to work is sucessful. I love the idea of the hearing dogs, I am very much a dogggy person. I used to foster puppies and dogs for a local Animal welfare society Jan xx??
  11. Hi Louise, thank you for your reply, It does help to answer my query know what you mean about a good day and where did it go.and its particularly good to know from you and Super Mario that I'm not the only one! Since all this happened Ive needed to know that what I do or feel is 'normal' When I was seeing my OT when I came home from hospital, I could ask him several questions every week every question ended with 'is this normal?' Every reply was 'Its not unusual' We nicknamed him Tom Jones ! ! Super Mario I have a couple of appointments coming up ;Neurosugeon end of August to discuss scan results re unruptured Anni and Neurologist in September to discuss EEG results re seizures, Hopefully, if all is ok, my confidence will return with gusto ! Jan xx
  12. Hi there, Thank you for your replies Super Mario . . .How DID you find the time to work?! , You most certainly fill your days, I do fill my days, but with housework and gardening so not very exciting, I have been thinking about perhaps helping out at our local primary school It is only just down the road from us..I think it's that 'confidence' thing that stops me from enquiring and taking it further. Maybe I need a little more adjustment time? Who knows? Andrea, how wonderful that you have such an understanding boss and even better, being able to work from home, a lot less stressful Jan xx
  13. Hi there, It has very recently occurred to me that I have been 'off work' for 14 months now (SAH June 2015). Pre Sah, I hadnt had 14 days off work in all my working life. As some of you may know, I own a old fashioned sweet shop but have been unable to return to it. So, my question is . . . . . . How many of us returned to our previous employment after Sah? second question . . For those of us that havent How do you fill your days? Looking forward to reading your replies Jan xx
  14. Hi there,Im back from the docs, got some stronger painkillers (stronger than paracetamol !) so Ill hopefully get a good nights sleep.? I'm going back later for blood tests to check phenytoin levels and Ive requested one to check my iron levels I was taking iron tablets pre SAH and have been wondering if perhaps a lack of iron is contributing to my weary feelings during the day? It could just be the dreaded fatigue of course Sarah Lou, I tried the wheat bag on my shoulder, it did ease the discomfort ? Didn't help with the night sweats! , Hey Ho, cant have everything! , Love Jan xx
  15. Hi Sis and Sarah Lou I'll definately try the tiger balm, thank you? Sis, good that your hubby is improving all the time, very scary time. Sarah Lou, I know what you mean about putting everything down to the aftermath of Sah, when I first came out of hospital,Id only have to break a nail and think it had only broken because Id had a Sah ! ! I have learnt to 'separate symptoms, pains, feelings now I think sometimes its one of those 'why me' moments, you know? Ive got 'this'pain on top of everything else I've had thrown at me ?Perhaps it just comes back to needing that 'boot up the behind' that we've mentioned before ? Love Jan xx
  16. Hi Sis, not just me then? that's good to know, sorry,I don't mean that it's good that you feel pain more now? After my SAH we had the bathroom 'updated' I couldn't get in or out of the bath unaided and our old shower was a trickle, and that was on a good day! Fortunately, my younger son is a builder, so he installed a lovely walk in shower for us which is fab but no muscle soak in a bath for me. what an awful time for you and your husband last year. How is he now? I think you're brave having tatoos, both my sons have them and have often said 'oh go on Mum, just have a little one ! Like you, I very rarely took painkillers before this , now I'm just a pill popper! , Love Jan xx
  17. Happy Anni versary Claudette Hope you have a fabulous holiday ? Love Jan xx
  18. Hi Tina, I'll be asking John to print that when he gets in from work (I can't remember how to work the printer!) that is a really good article Thank you ? Love Jan xx
  19. Hi Nicola. Im not sure if this will help, I sort of go through stages of having no confidence in myself and thats when I dont like to go out alone,. So I bought myself a SOS Talisman bracelet ( really pretty, Pandora style ) thinking that this would give me more confidence and Im sure it would if only I could remember to put it on before I go out ! The feelings you have now wont last for long, And you are definitely NOT alone, we are all here for you Love Jan
  20. Hi Tina and Win, Thank you for your replies. Tina -I know what you mean about everything being worse when tired! Win - re appointments with medical people,I decided at the end of last year that I was sick of looking at my calendar and only seeing appointments, like a constant reminder that 'Jan is ill' so I bought another calendar, one for appointments, one for birthdays etc.This wouldve been ok if I hadn't hung one over the other. how many belated birthday cards do you think I had to send?! And a few 'nearly missed' appointments, depending on which calender was at the front ! , Love Jan xx
  21. Hi there, I'm sorry if there's been previous posts about this, I couldn't find one. I think I have a trapped nerve in my right shoulder and pulled muscle on my right side ( sort of under my ribs) the pain can be excruciating, particularly when I turn in bed, I can't get out of bed without holding on to John. I'm sure I dealt with pain better before my SAH. This has had me in tears and squealing over the weekend. I'm shattered. Anyway, just wondered if anyone else feels pain more now. I've got an appointment at the docs on Wednesday. Love Jan xx
  22. I was just wondering if anyone else has come across this? When I came out of hospital and many many times since, I am asked 'How are you? I always reply with a polite;Not too bad thank you, or Ok thanks, because let's face it, not many people want the honest answer! so many people say 'You'll get there' or Are you getting there yet? Do any of you lovely people know where 'There' is? I'm hoping its not too far as I couldnt contemplate flying yet and Im not too good being in the car? ? Jan xx
  23. Hi, thank you again for your comments and thoughts. Win. I think I left my decision making skills in my hospital bed ! Never say never, you may just make that move. Jess Its good that you're happy and settled now. It must've been really difficult having made a move and it not being right for you. Gemma,where do I start? I admire you greatly for teaching in a secondary school, what a stressful job, but I admire more the fact that you have gone back to it ? Thank you all again Jan
  24. Thank you for all your replies, sorry it's taken so long to post my reply, Ill blame memory loss !! Sarah Lou, where do you find your stamina and positivity? You are one strong lady. I would love to take that leap of faith,who knows?I would love to move,but I'm not sure where I would find the energy!! I have always admired Richard Branson, both as a businessman and an all round decent human being, I love his saying 'screw it, let's do it', this worries John occasionally! But I dont want to look back with any 'what ifs' or 'if onlys' Jess, youve proved to me that it is possible I think once would be enough for me though! Clare, that must've been a huge decision for you I admire your guts for doing that Oh and youre so right, we do learn who the important people are and those who are there for us, no matter what. Louise, did you move within Scotland? have you ever stayed in Helmsdale? Many many years ago, the distillery and the lighthouse were for sale, we never made it up to take a look,. That's a big 'what if/if only. Jan xx
  25. Thank you so much for taking the time to reply to my post ? You have made it much clearer and given me a few options to consider. I seem to be going through a 1 step forward 2 steps back phase both physically and mentally/emotionally, or is this just normal during recovery? Im 1year post SAH? Jan xx
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