jac

Wow Clare, you are like superwoman! Cant believe you ran 8 miles.....just a year and a half after a NASAH. Go girl, be really proud. ?

I use to run but can't anymore, i dont like the sensation of my head bouncing about, probably coz i get vertigo. 

I can walk miles though but a day at work and im fit for nothing in the evenings so i know  what you mean about mental tiredness.  ?

Did they ever find a reason for your bleed? Was it traumatic? Did the hydrocephalus self resolve or did you end up with a shunt? Although i had my first bleed on 19th January i got diagnosed on 12th February just two days after you- thats when i had the seizure in ED. I had my coiling on Friday 13th lol. 

Homelife has really settled down the past 3-4weeks and im really hoping to marry my gorgeous man next year...so everything is looking rosey

It sounds like your husband has been supportive to you. 

Im feeling a bit better today, the eye pain is quite mild now. Feeling a bit of a fraud but actually also feel a million miles away from normal, feel guilty laying on sofa and not being at work :/ 

Have you ever had to have time off? Do you get any symptoms now?

Thank you for your well wishes. 

Best wishes

Jac. Xx

You are both so warm and welcoming.

Its brilliant talking to people who get this prolonged illness, or at least its side effects.  

I always wear a smile, sometimes i think thats why nobody understands the pain of the fatigue, they just dont see it. 

Ive been having vertigo and pins and needles with eye pain this week which is scarey i know theres no point going to Drs they'll just say its part ot it......so ive phoned in sick at work ( only my second time in the 16 months ive been back) 

Im not going to feel guilty. Im done with dragging myself through this. This week im going to be kind to myself. 

Its ok to drink wine, isnt it? I use it medicinal to combat the pain of the tiredness. 

Have a lovely day and enjoy the sunshine . Thanks for the support. 

Love Jac. Xx

Thank you Winb143. 

It certainly makes me realise how lucky i was. I never needed OT or physio..

How amazing you are getting there, you must be so strong and brave

I've had nothing but stress since my bleed and find it hard to avoid. How do you steer clear of it. 

Water is the answer to everything. I always feel better after a good drink. 

Best wishes. 

Jac. Xx

Thank you Tina. This site looks amazing. People have so little understanding of this kind of insult to the brain. 

It is a great way to share our experiences together. 

I'm really hopeful things will settle down now. Take care you too. 

Jac xx