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Deb

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  1. Thank you all so much. I forgot how supportive this lovely group can be. I have such busy days with my daughter that I barely have time to think half the time. Now that we have the summer holidays, that means no tutors back and forth the house and hopefully less appointments, so I will make more effort to come on here. My moto since the day I left hospital has always been 'onwards and upwards' Take care all. Deb. xx
  2. Thank you for your reply. The highs? Well, I survived. I'm here to tell the tale so they say. I have accepted the 'new me' the old me has gone, replaced by one who cares less about what others think of me. Says things as they are, no beating about the bush these days haha. That is partly down to there being less of a filter and partly 'there are more important things in life to worry about' attitude. I take pleasure in little things, like half an hour in blissful peace and quiet with a cup of tea. This is something I used to take for granted, but not anymore. Appr
  3. Hi all. So I haven't been on here for quite some time. Life has been busy and stressful. This time last year I was being blue lighted to hospital having suffered a SAH. I feel very emotional today and didn't really expect that. It's been such a rollercoaster year I've barely had time to reflect on my own illness and health. I found myself with a few hours to myself today though (for the first time since leaving hospital. Seriously) and it has been very much at the forefront of my mind. I need an early night tonight as i'm pretty exhausted. Hope everyone is well.
  4. Hi all, it's been a while since I last posted. I'm a bit more of a worrier these days since my SAH, and I'm worrying a bit right now, (probably unnecessarily) I had a phone call from the hospital yesterday afternoon to say my consultant wants to see me on Wednesday morning. No other information. I had an MRI in January so thinking (hoping) it's just to discuss the results of that. My daughter planted a seed by saying if all was well wouldn't they just send a letter saying the results of scan were all clear, as is usually the case after any sort of test I've ever had..... My head
  5. Hi everyone. Things have not been so good for me. I'm doing 'ok' generally the usual niggles, but struggling with my daughter. Not her as such, but the meetings and appointments that I have to attend. I think I cope pretty well with her day to day care and needs, with the help of my husband and older children. I'm finding I can't focus in the appointments, or remember everything that has been said. I take notes sometimes but it's just not the same, it kind of ruins the flow of the meeting. I'm finding myself getting angry, frustrated and snappy. I find it difficult to find the right w
  6. Hi Jan, I feel my eyesight has also deteriorated. I was told to wait 3-6 months after SAH before having eyes tested and new glasses just in case it corrects itself. I had an appointment with an Ophthalmologist last week, all was fine. He's going to do a field of vision test in a couple of months. I need to make an appointment at the opticians though to check if I need new glasses, definitely feel like I do. If you feel your eyesight has got worse make an appointment and get it checked out, best be on the safe side Take care Jan. Deb. x
  7. So I've reached the 6 month mark since my SAH. It's good to be here Not all plain sailing obviously. Same for everyone I know, but I'm grateful to be alive. Last few weeks have been particularly stressful, which has not helped my headaches or fatigue. But I do try to just get on with it. 3 hours sleep last night so feeling decidedly rubbish today, I think an afternoon nap is called for. Haha. Take care guys. Have a good day. Deb. x
  8. Thanks for reply Daff. Well I was in hospital for 3 weeks, coils fitted, numerous CT scans and LP's but that's the extent of my knowledge really. All I know is the bleed was the ride side of my head behind my ear. I'll go to GP and see if I can get any more info I might need. I don't think I have the patience to fill out forms online these days, so will ring around. Thank you
  9. Hi all. Just wondering where people get their travel insurance from? We've booked to go to Florida in September and obviously want to make sure I'm properly covered. Problem is, I don't really have any information on my SAH, where it was, how big it was, whether there are any more aneurisms. I know absolutely nothing. Will my GP have this information? And will he give it to me if I ask? I don't know if I would even need any of this, but I want to be able to give them all the details they need. I have had a few quotes and between my daughter and myself the insurance is really expe
  10. Amy I have been going to write a post on back pain, so apologies for jumping on your thread. While in hospital I had numerous lumbar punctures which led to terrible back pain, I couldn't lean or bend forward as the pain was excruciating, when I mentioned it to the nurses they just said my pain meds will help with that,.... I am now almost 6months post SAH and my back pain is so bad at the moment. As you say Amy, it is pretty much on par with my headaches. Nothing I do or take seems to ease it. I suffered with sciatica for many years before my SAH and got quite used to the pain in lo
  11. Thank you all for your replies. It really helps to have some feedback from others who understand instead of just a bit of head nodding. There is a neuro nurse I can speak to, but I have to email her and wait for her to get back to me, which can take days or even weeks at one point, so it seems a bit pointless when I need to just know there and then. Will consider headway next time though. I tried to sleep, but between the phones ringing for appointments for my daughter and the door knocking to deliver parcels, I gave up. I took some painkilers, made myself a cuppa and sat in the quiet
  12. Hello everyone, hope everyone is doing 'ok' at the very least. Today is a bad day for me, headache wise. I think I am starting to get used to the daily headaches, and complain about them less (much to everyones delight I'm sure) However some days they are quite crippling! Today is one of those days. The pain is all down the right side of my head and behind my ear. Hasn't reached my neck yet, i'm sure it will. These are the headaches that worry me, stress me out and knock me for 6! I question them, is it normal? Should I tell someone? If I should tell someone then who? There isn't
  13. I'm also happy to have found this post. I have had terrible noises in my head since I had my SAH, pretty much from when I can remember anything about it. When I was still in hospital I asked the nurse if she could turn the radio off as the songs on there were on a loop and really annoying me. They all looked at me as if I was crazy, One male nurse actually said "Are you mad" There was no music. Now I have a variety of noises ranging from whooshing, squeaking to actual words being constantly repeated. No-one seems concerned that it's hppening but it drives me insane at times. I a
  14. Hi guys. Both times I've visited my GP there have been locums there, I've now discovered my actual GP has retired. I didn't see much of him as I rarely go to the doctors, I was always well and healthy and also was very guilty of 'just getting on with it' So there isn't a doctor there who knows me anymore. I did ask for a referral for counselling yesterday. Quite a waiting list though apparently. I will mention the fact I have had a brain haemorrhage when I make an appointment in future though, thanks for the advice. I'm off for a 40 winks now while my daughter is dozing herself. Don't
  15. Hi all. Thank you for your replies. It's good to know people not only take the time to read what's written but also take the time to reply. Yesterday was a bad day, I seem to be getting quite a lot of those lately. New day today so hoping it will be a better on, though waking with a sore throat and horrible tickly cough isn't the best start haha.... Touching on what some things in the replies. Not liking me... I didn't expect to come out of this unscathed, but I didn't expect to have changed so much, what I find odd is that no-one else sees it, to them i'm just like I was befo
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