Aww thank you so much everyone for your replies! It is so good to hear about the experiences of others as it will give Bob some hope that the pain will lessen eventually. He is due to have another lumbar puncture before his next angiogram so hopefully the doctors will know a little bit more after these procedures.
I am hoping Bob will join the forum as I'm sure communicating with you all will be so good for him. He has a busy household with 1 son, 3 daughters and a granddaughter all living at home so he is coming to say with us for a while to convalesce as we have a big quiet spare room, and all the family can visit whenever they want.
I will certainly pass on your messages to Bob, he will be amazed and delighted that this forum even exists!
Many, many thanks everyone.
All the best to you all
Jackie (and Bob!)
xx