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About Wall1409

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  1. Hi everyone I haven't been on for a while. I'm having severe mobility problems, I had my perimesencephalic sah 3/11/16. I'm also slightly annoyed and not sure what to do. My gp sent me to a stroke unit who I must admit are doing things, I've already had a full MRI of lumber to thoratic spine, just awaiting results. I am struggling with severe memory loss but the consultant told me a brain angiogram was done whilst I was in hospital. I'm sure I didn't have this as I only had brain MRI as bleed didn't show on ct scan and 3 attempts at lumbar puncture was unsuccessful ( I have damaged discs already). To my knowledge they have to go through the groin for this procedure and although my memory is bad now I would have known at the time if they would have done this. I remember going into MRI scanner etc. Question is, should I query this with consultant or is brain MRI clear enough to spot any abnormalities. Would really appreciate your advice. Mine was a perimesencephalic sah and I was in a general hospital it didn't have a neurology department so they had to liaise with the neurology hospital. Wendy.
  2. Hi On the back topic. Since my perimesencephalic sah I can't stand for long if I lean forward it helps but I'm finding I need to lie on my side to relieve pain. I already have spinal stenosis due to numerous discs herniated but since November I'm housebound or if I do go out it's in a wheelchair. I see a rehab physio who is doing gentle exercises for my frozen shoulders again caused by arthritis. She has told me to use a wheelchair and just stand up occasionally to stretch as I was on a mission to lose weight and tried walking with my 4 wheeled rollator that has a seat on it. All that achieved was pain and fatigue for a week or two. My GP is asking for a follow up to ask why this is happening with a neurologist as I haven't seen one yet. The hospital I was admitted to didn't have a neurology department so they liassed with one but unfortunately even the neurology team hadn't seen this type of sah before. The joys Wendy
  3. Hi folks 4 weeks this Thursday since perimesencephalic sah and I feel dreadful. I've only had 2 days since I left hospital that I felt reasonably ok. For 3 days now headaches double vision agitation and fatique. Still waiting results of post bleed MRI but crossing fingers and toes everything is ok. I feel so agitated but I thinks it's because I have 0 energy and generally feel ill. I know you guys have all been here but considering I had no operation I was hoping I would feel a lot better by now. My head doesn't feel like it belongs to me it's too heavy for my shoulders
  4. Hi I too am 3 weeks post and have contacted the hospital today to ask the very same question as mine was a perimenci something sah (sorry I can't spell it) I had repeat brain MRI last night to check for any abnormalities now hopefully this blood has gone but getting really bad headaches tonight at the back of my head I think because I overdid it today. My husband has epilepsy and unfortunately had a seizure so I had to look after him. I think it's just time and when you feel right but be careful and try not to overdo things. I rely heavily on the information from this site and the really lovely people on here. Take care Wendy x
  5. Sammy Ann I really feel for you. Luckily for me the police arrested my violent ex hubby after he attacked both myself and my son. We went to court and they ordered him to a higher court as they wanted a longer sentence, sadly the judges at a higher court gave him community hours!! We were rehoused but in same county. I hope you can now live in peace and rebuild your lives and move on from this traumatic experience. 8 years later I met someone and remarried so it can happen. Good luck and please try and relax as stress won't help you. Wendy x
  6. Sorry for the questions but another one is I keep getting spasms in my lumber spine that hit like a bullet and make me legs weak. Is this normal please? many thanks Wendy
  7. Thank you all for your advice. I'm struggling with balance and bright lights currently. Really hoping this is short term.
  8. Hi all New here, I had a Non aneurysm sah Thursday gone, just home struggling with blurred vision , balance and bright lights. I'm in the uk and the local neurology department have never seen one of these before. Any advice welcome hence recovery time, driving etc. My car insurance is due for renewal next month and I really don't know what to do. I obviously won't drive until I get to all clear.
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