Miss W

Hi Rachel I had the exact same, positive lumbar puncture but negative CTs. I didn't have an MRI or the scan where they send dye through your groin, because of my pregnancy (radiation risks to baby). I didn't receive any treatment, because there is no treatment for an un-identified bleed. I was discharged home and advised to rest. I was told that it was likely a venous bleed that was small and therefore didn't show up on CT. I was discharged and left very confused as to whether or not I had suffered an SAH. The wishy washy diagnosis has since worked in my favour, no driving restrictions, its not written down anywhere that it was a confirmed SAH, just suspected and then not treated for, which helps for things like insurance. After about 6 weeks, my headaches stopped and I felt much better. I will be reviewed later in the year. I hope you feel better soon. X

Thank you Subs, yep it's pretty tough going at times, but I have to just keep going. Looking forward to finishing work in two weeks, then I can rest on the days that my toddler is in nursery (Or prep for the baby, or finish my MSc thesis which is due in this May). I do have a lot on, I try and sleep on non working days when my toddler does, otherwise I can't get to the end of the day without being unwell, on a work day, I sleep during my lunch break in my car! Looking forward to a nice holiday in the summer, to get some earned rest! Forgot to mention about driving, I got a letter from the GP saying I could drive, sent that to DVLA and had no problem. So was Also driving after 6 weeks, albeit short journeys. Fi

Hi all, Not posted for for a while, busy with a toddler, life and work! Hope you are all well. I am doing fine, had 6 weeks of work, returned to jormal hours and have been doing fine. The tiredness was tough initially and still is, but I think the tiredness now is due to be being 8 months pregnant and having a toddler which means I don't always get a full nights sleep and are usually up by 5.30am. 8 weeks left to go, often feel anxious about the labour, but have been reassured that I will be absolutely fine, so opted for a normal delivery. Due a neuro follow up after having the baby. Fi

Hello all, Thank You for all your kind and helpful replies. This is all really useful information. As advised above I have contacted a nurse specialist at the hospital where I was treated. So hopefully they will get back to me soon. The GP was fine, but just not massively clued up on the situation, but very nice. I just wanted some firmer advice, which I hope will come from the deartment, as I get the impression that my work think 6 weeks is too long to be off work. I have never been off before (apart from the odd day), but I know that I couldn't go in right now, as I feel pretty rubbish 90% of the time. I do have to see occuptional health, which is fine, it's just that my boss has asked for a meeting with me, her, OH and HR before I even see OH on my own, which I think is a bit odd, anyhow it's for next week and I can't physically get there, so will just have to refuse to go to it and let them know I will go when I feel a bit better. Its hard juggling everything at the moment, as I have a 14 month old and also as above I am pregnant. So rest is not always possible. I do feel very lucky though that there are no other side effects or long lasting problems, just the relentless fatigue and headaches. Many Thanks for your replies and hope hat you are all as well as you can be. Fi

Hi all I am new to the forum and have joined as I wanted some advice as I am a little confused to my diagnosis. 3 weeks ago I was admitted to hospital with an SAH, the CT scan was negative therefore treatment ceased after 3 days once the headache started to settle. They decided not to do an angiogram due to me being pregnant and then discharged me, with the advice that the headaches will eventually settle and I will feel really tired. The diagnosis was made with a positive lumbar puncture and presenting symptoms. Has anybody else experienced this? I just feel a bit lost as to where I stand now with driving, working (which involves driving), general activity. I am just starting to feel a bit better and have managed to reduce the amount of painkillers I am taking, but I am still wiped out and have to sleep ALOT! I really should have asked all of these questions before I was discharged, but to be honest I felt like rubbish and did not have the energy to even think about work. My GP has signed me off work for a short period, but I am not sure how long I will need off and work have now called me in for a meeting with HR, I am not even sure if I can drive yet to get to this meeting. Any advice would be much appreciated or any one who has had a similar experience. Fiona.