Jaibird

Hi I am Jai , My outlook on life changed October 25,2011. It began with a nice morning walk with my husband. I Decided to jog ahead and was struck by a thunder clap headache, thinking it was a horrible migraine! Little did I know I would suffer a whole week of these headaches, before collapsing at work with a SAH. There are two theories the doctors are working on, one is idiopathic sah the other is isolated central nervous system vasculitis. They are treating me for the latter. I have blurry vision,even with new glasses, and left side weakness. I still get headaches. All my migraines used to be on the left side of my head now they are all on the right side. I have days that I feel cloudy, like i am just in a fog, other days I have a headache or I am grumpy for no reason. The meds the neurologist gave me seem to help with most of the problems. I am so glad that these things are small,especially since they could have been far worse. I'll take the blurry vision and all the rest as long as i am here!

Hi I am new to BHG and am struggling, the rheumatologist and neurologist disagree on the cause of my SAH. Rheumi says vasculitis, neuro idiopathic . I am going to Johns Hopkins on Tuesday the 29 for a second opinion. I am glad to have found this site, my husband while fabulous still gets frustrated by the ups and downs emotionally. Today drying off in the shower I pulled a muscle in my back, adding insult to injury:( not knowing the cause, or if I could bleed again is frightening. not knowing when I can return to work is hard, well frankly this whole darn thing is hard. I appreciate all of the information in your post, it helps tremendously since the Doctors don't give you a lot resources to help. Thanks Jai bird