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Everything posted by Shobs

  1. We came here 4 years back when we were looking for resources in SAH. My husband has just finished a round of scan and they all appear okay... This site has always been a great source of comfort and love... good luck everyone
  2. Please accept our condolences. I used to read her posts for my dose of positivity! Prayers Shobs
  3. Hello Tori - very good to hear about the progress your mum is making! You are doing very well, Well done to you. The memory will slip in an out and there will be lot of relevant & irrelevant things said. - my husband had a dream of being in france and in a very technologically advanced place. LOL It took my husband a good 10 days to be reasonably stabilised with the memory and speak cogently. Re: the eye vision - with the hemorrhage that my husband had, few the blood vessels behind the eye also had burst and had aberration there too. Your mum will hopefully be referred to the in-house eye clinic, if not, please ask them to refer you to the eye hospital where they will check the eyes dye-assisted test(which will not impact kidneys) and let you know if all is well. For my husband (who had glasses already) there was a significant change in eye-power and we got a new set of glasses made. Grumpiness and annoyance is something I have faced a lot from Sandeep, because of the haemorrhage and the ischaemic stroke he had, he was not legally allowed to drive until the eye-check was complete/doctor sign-off AND the DVLA approval came through. I can tell you it was the roughest phases - he was dependant on me physically, physiologically and also in terms of memory! It was not easy. BUT it will definitely get better - listen to lots of positive stories and positive people - dont worry about cutting chords with people that darken your doorstep. You are doing very very very well - it will get better ! Prayers to you and your mum. Best regards Shobana
  4. Thanks ever so much everyone!!! We are back home too. 2 days Sandeep was in the Critical Care Unit. the First day was very drowsy and the doctor was happy with the procedure - he gave me sometime and asked me ' do you want to ask anything' i was just mumbling and asked did it go okay!!! I had a million things lined and all i could manage was is he okay? Sandeep's memory was fine, but was drowsy, he was quick chatty that day. Towards the end of the day, there was a lot of throwing up with anesthesia wearing off - they tried to give the medicine orally. Wednesday was rather a quiet day with headache, and lots of sleep/nap/resting. Thursday was quite an upbeat day where he was clear-headed and was allowed to eat too. He was quite ready to go home from the neurological point of view. then they move him to neuro ward, after 24 hrs of observation they okayed to be go on yesterday(friday around 8 oclock) to go home. So we now are only coils, no stent, as they have been able to manage just with the coils. This means there is no aspirin needed and there will be no worry about the detrimental effect on the already suffering kidneys.Apparently the remainder of the aneurysm is fully coiled and also the neck! The consultant is extremely happy with the procedure and told there is no other procedure needed if all stay the same. It was a flood of relief - i now understand 'rug pulled from under the feet' & 'flood of relief sweeping me' to the dot and the dash. Said all that there is a fear to be fully happy (i hope to shake it off soon) - we have now come to terms to our own normal and trying to find what the newer normal is, as there have been headaches and mild left side body weakness, (thats where he had the first stroke) - all again :o) And i cant believe i finish it with a smiling smiley ! We are positive and hopeful that it is going to go okay and we will see through this too. Next week its the term holidays. In the past years of parenthood, we took turns to take time off to take care of them. But probably for the first time, we are all going to be home for full 10 days, with absolutely no hectic plans or no going away or no visits. Just be together inside our home and get better together :o) Hugs Shobs xxxxxx
  5. Lovely people - good news, sandeep's aneurysm is coiled now. I am yet to speak with the consultant to get all the details,but there has been no stent needed, only the coils. Sandeep is being closely moNitoed in CCU for the fluctuating BP. Pardon the typos, at the Hosp and from my and mobile, and possibly tears filling up too Love Shobs xx
  6. Hello Jen, Welcome to BTG. Tiredness is one of the common side-effects that I see, rest and relax whilst you can. My hubby suffered a SAH one year back. Re: the noises in the ear, have you had a chance to speak with your GP yet, he will be able to refer you to the ENT specialist, that will be able to help. Re: relaxing, run a bath whenever possible - it helps to relax and generally let go too
  7. It was our first anniversary on Oct 9th. I made a big batch of brownies for those that i could share with. I pinged a message of thanks to all those came rushing to help us and to all those doctors and nurses that helped us through and through and are still doing it now. We told a prayer to all those that are going through it at the moment and wide variety of other problems. A massive hug to everyone here as you all form my community - someone that understand exactly what we are going through and more, even before I could share. In Sanskrit, we say - Loka samastha sukino bhavanthu - literally means - May everyone be happy. Love, hugs and gratitude Shobana & Sandeep.
  8. Thank you very lovely ladies I spoke with the nurse at the radiology clinic and she mentioned she got all reports about the renal function. The renal consultant has signed off the mild aspirin intake for 6 months following this procedure. The nurse told we are all set to come in and just fingers crossed that we will get a bed in the ITU on the day of the procedure, so that he can be closely monitored there for a few days. We are staying positive! :o) Love, Shobs xxxxxx
  9. Thanks Winb & Daffodil - thanks ever so much. I am keeping chin up, but there are small dips fair few times. It will all finish on a happy note hopefully, in 2 weeks time. I will keep you all posted on the progress as and when i know love Shobs xxx
  10. Thanks so much Clare, we went for the pre-assessment on wednesday and we have been given Oct17th as the procedure date. We need to go in a day early as a preparation. The doctor just told us about the low-dose aspirin that needs to be taken for 6 months and told us that he will consult with the nephrologist, if this is still okay. hoping and praying that this is all going to go well. thanks for all the positive vibes. hugs Shobana xxxxx
  11. Hello all lovely people again! Apologies for having gone away for few months now! It was the kids holidays that kept us rather on the trampoline We got an appointment with the neuro radiologist ( after 2 cancellations) and they have started looking into the options the remainder of the partially occluded aneurysm. Coiling/Coiling with stent/Clipping eventually. We are getting the pre-assessment done and the team have mentioned that they will get us a date in October. The doctor told us that the coiling and stent will need 6 months of aspirin and the renal doctor is reviewing how is it going to impact the kidney function! Sandeep and I are both nervous (about the procedure) and looking forward to it, so we can try and start moving as we'd like to. I will post here if i get more info. Hugs Shobs xxxxx
  12. Hello lovely people, I have an update to post here(but a good one!) Sandeep had to have a flexible sigmodoiscopy done last week and they found a polyp - non malignant(yay!) they removed and clipped it strightaway :o) It has been such a relief for us, as the doctors found it last year when Sandeep had the first heamorhagic stroke. We were nervous - but very thankful that it was not as bad as I had hoped. On the post-angio note, I am still chasing the neurosurgery team for a follow-up appmt. I will keep posted here too. Hugs Shobs xxx
  13. Hello Nat, welcome to this comforting place. (my husband had his first SAH, followed by a fair few mishaps back-to-back in Oct 2016) Like all of these lovely people have said, it is normal to have this fear. Baby steps at a time helps. Both my husband and I took up Yoga in April and it has been very useful. (please PM me if you need more details) Set aside a time in the day, when you will ONLY worry. If the fear crosses the mind, check the time and say that one is for my worry time. It has helped me a lot, personally. Stay close to people that wish you well and give you lots of positive vibes. Speak to people that smile and laugh a lot! Time is a big healer, for all wounds physical, emotional and physiological. Hope it gets better for you very soon. Hugs Shobs xx
  14. Thanks Sami - it is very good to know. Many account made me look back and look ahead, at the road we are on right now, with more appreciation than with fear. Love Shobs xxx
  15. I am recent reader of this book and it is fantastic; it has been aligned so well and my husband(had SAH in OCt '16) relate to what has happened to us and appreciate how far we have come! Fully recommend it! Shobs xx
  16. I agree Daffodil, I found it rather interesting (I dont know if that is the right word here) when almost all the nurses and doctors peeped into the groin area and said - Ah, that looks alright! Thanks for letting me know about your aneurysm, I will pm you to find out a little more about it. The main concern here is it is not a new aneurysm, it has already ruptured but has been coiled and partially sealed. the doctor compared it with a dormant volcane, but that erupted 10 years back, so the chances are 50-50. I will keep you posted, Love Shobana
  17. Thanks Subs & Win, The doctors told that they will get back to us within 6-8 weeks, so I guess it is waiting time. Apparently the residual aneurysm is 4mm in size. I agree Subs, time is the true healer. Although it sends a chill down my spine to think about that day, I am incredibly grateful today for all the good things. I am reading the book 'Dented Image' by Alison and there is a line that so defines the state of mind They are not well - They are not ill either. To describe the on and off days! It feels fantastic to chat to you guys Love & hugs Shobs xx
  18. UPDATE Sandeep had the follow-up angio(the dye assisted DSA) on Apr12th and the procedure itself was smooth. However, the results are a tad bit disappointing - apparently the other lobule of the ruptured aneurysm has not occluded. This leaves us with the coiling/clipping/leave it alone options. The radiologist mentioned that the consultants will send out the letter for further discussion, however, he told that he was able to see the aneurysm unchanged - which I suppose is a good new in itself, that it has not grown bigger in size or so. He was unable to see any other new aneurysms in that area either. I was extremely hopeful that they will come out and say all-clear and go-away and it will be confetti time. It is waiting time now - wait for the consultants to tell us what needs doing and then decide based on the options we are given. Oh and we celebrated completion of 6 month-anni-versary on Aprl 9th! I will keep you all posted. Love Shobs xxx
  19. Thanks missy - appears it is about the same time my husband has his SAH. He has been trying Yoga for the past 2 weeks and he is able to doze off at least for 2-3 hrs in the night, which i think is a good start! They are mostly breathing exercises and slowing down where possible. I hope you find your solution quickly too. Love Shobs xx
  20. Thank a lot Louise :o) love Shobs xx
  21. Hello Sharlau - yes, sleep is still eluding - it is quite scary that he is able to go on about day-to-day (albeit grumpy and very tired) The yoga session that we have signed up recently, i am hoping will continue to help us! Love Shobs xx
  22. Sure Tina - it is comforting to see many similar experiences, so i feel far less panicky and very much positive love Shobs xx
  23. Hello Michelle, Thanks for your lovely words. He has now slowed down a bit at the work front and properly listening to his body . It is visibly helping him a lot. We both went for a 1.5 day yoga session and it has significantly improved our state of minds. Thanks Love Shobs xxx
  24. @WinB143 Thank you for your kind words. Especially about keep away from stress. We have had a rocky relationship with his father and sibling and this has pushed it over the edge. I'd have thought this incident will help shake the ugly thing off. If anything, this incident has made me realise the real side of people! So, a big like for your 'keep the sob stories away!' Love Shobs xxx
  25. @Daffodil - thank you for the lovely tips. I have not tried the oil yet, I should give it a go, at least for the feet. Yes, 'to get back to normal' vs 'accepting the new normal' is a mega challenge as of now. That plus the setback he experienced (experiences) with the CKD, whose damage is not reversible is spiking the stress levels. Thank you again Love Shobs xxx
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