Jump to content
Search In
  • More options...
Find results that contain...
Find results in...


By registering with us, you'll be able to view our forums in full as well as discuss, share and private message other members of Behind The Gray. Why not join us now?


  • Content Count

  • Joined

  • Last visited

Community Reputation

262 Excellent

About Kay

  • Rank
  • Birthday 03/11/1987

Profile Information

  • Gender
  • Location
    Essex, UK
  • Interests
    I love reading, I'm currently trying to make my way through all the classics, I'm also a massive fan of anything that's slightly surreal, think Douglas Adams, Jasper Fforde, Robert Rankin and Terry Pratchett.

    I'm also slightly obsessed with 18th Century French art just lately (don't ask).

Recent Profile Visitors

733 profile views
  1. Just letting people know that it's a girl!!! so excited, still cant quite believe it really
  2. Hi Joe, Glad you have now found this place in order to get the support and understanding you need. It's funny how the doctors so involved in SAHs seem to forget that our short term memories are very impaired at first, and most of the stuff they tell us we wont remember, I feel they should really try and pass on important information to the family members as well. I think we have all been there with the 'you look fine' now so you should be 'back to normal' assumptions. What is normal pre SAH may differ wildly from what it will be post SAH, only you will be able to figure out what that is. I'ts a good idea to try and figure out your new boundaries, clearly with your holiday you needed a recovery period afterwards, it's about learning from those situations and adapting from now on. I can't do full days of activities 3 days in a row or it wipes me out for a week, I just have to take that into account now as my new normal for now. Also just try to keep in mind that most people wont have ever heard of a SAH let alone know what it is, so most people wont be able to understand, which is what makes BTG so essential for people like us. Just being able to read through other peoples experiences and knowing your not alone in this can be such a big help. Kay
  3. ? I am currently feeling quite proud of myself, just completed my first shift back at work, admittedly it was for only 4 hours, but considering its been 17 months since iv'e been there I don't think I did too badly. I'm surprised that I don't feel too knackered either, thought I'd feel like sleeping for a week afterwards.
  4. One of the best things about BTG is that you are now not alone in this. You will always have here to come to, being able to talk to people that understand what you have been through really does make a huge difference. it's a very emotional thing that you have been through, so try not to be too harsh on yourself, give yourself time to adjust and come to terms with everything first. All the best x
  5. Finding that balance between rest and building your strength back up is very trial and error. Maybe you could try and take a note of how long she can do activities before getting tired and setting that as her maximum limit for now and then have a rest period. I'm pretty sure that I really didn't do much for at least the first 3 weeks after getting out of hospital, after enforced bed rest it can take some time just to get used to being able to get up and move about again. After that I think I did things in 15-30 minute bursts with rest periods (which usually included naps) of half an hour to an hour. Obviously everyone is different though that was just my best way to go about it, again there was a lot of trail and error to get to that point. A diary is a great idea, really helped me out. I also got my fiance to help me write down everything that happened when I was in the hospital, because my memory of it all was so poor and I found it really frustrating not being able to remember and to have to keep asking him all the time about it, it was great for me to have something to refer to instead. Also as the others have said before me please make sure to look after yourself as well, these situations are just as hard on our loved ones and none of us would want them to run themselves into the ground.
  6. Thank you everyone, we are so excited. After everything that happened last year, it is so nice having this as the new main thing in our lives. Due date is boxing day, it would just be my luck if it comes a day early though, meaning another Christmas day in hospital. Here is our 12 week scan, took an hour to do, because baby decided it liked being upside down and would't budge for ages.
  7. I believe an update is long overdue. I had the appointment with my neurosurgeon on the 19th of March, everything is good, he wanted me to have an MRI and CT scan, just to double check that everything had settled back down around where the cyst was in particular. I was unable to have either scans because I found out I'M PREGNANT, we are absolutely thrilled, I'm now around 13 weeks. I had a letter from my neurosurgeon congratulating us and saying not to worry about the scans that they were in no way urgent and can wait until after the birth. ?
  8. Absolutely amazing that you managed to do the London Marathon so soon after a SAH, that is hugely positive to have achieved that. It should help to give you real belief in yourself, I'm sure you can now achieve anything you put your mind to.
  9. O' Win you do make me smile. I find this topic really interesting and no doubt like everyone else immediately went off to do some research on it and found this article that gives a brief oversight of it http://healthyeating.sfgate.com/nutrients-needed-keep-arteries-veins-strong-5002.html
  10. I was originally taken to Basildon and then likewise transferred to Queens. They were fantastic at Queens, both times, especially my neuro team who were all absolutely amazing, I could not have asked for better (I do suspect everyone must think this about there own neurosurgeons though, it's hard not to). The nurses on the Sahara wards were also fantastic, I feel very lucky to have had such great care.
  11. I am so glad you are doing so well Sophie. You have clearly embraced the experience and come out with a hugely positive outlook on life, not an easy thing to do.
  12. Hi Charlotte, just wondering if that was Queens Hospital Romford? I too got rather overwhelmed after finding out the statistics, so your definitely not alone there. For me the anxiety has certainly eased over time thankfully. You are still very early on in the recovery process, so please don't be too harsh on yourself. I know you want to be proactive and that is great, just also try to allow your brain healing time, that may help a bit with the head pains.
  13. Hi Mark and welcome to BTG. I too am just over a year after my original haemorrhage. How are you finding things now, if you don't mind me asking.
  14. I still can't believe it's now been a whole year. At first I was a bit scared of this day, but it's really not been too bad, nothing scary or dramatic happened, it turned out just like every other day.
  15. Thank you to everyone for all your understanding and encouragement. Hopefully this is just a glitch brought on by the upcoming anni-versary. Some sort of counselling I think might be a good idea at this point I really like the sound of that, I need to keep that in mind, very proactive. Something else I really need to do is make myself go out more. I did actually go out for lunch today with a friend, almost cancelled it but forced myself to go through with it, glad I did, despite the chilly weather. It's reassuring to know I'm not the only one who's freaked out a bit at this stage. I have an appointment with the neurosurgeon on March 19th and a long list of questions again, i'm hoping it will help me feel like this event is finally at an end, that it's completely over with now, absolute confirmation that there is no more aneurysm, no more surgery, just a 'go home and carry on recovering' would be nice.
  • Create New...