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Posts posted by Kay
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I too had no information given to me about what really happened or what to expect, this seems to be a common occurrence. Thankfully this forum is great for filling in the gaps, fatigue and headaches appear to be something we've all experienced.
Recovery times are different for everyone, looking back I've made a lot of progress, but it's so gradual that I hadn't really noticed, I rarely need to nap in the middle of the day now, and reading is getting much easier. I'm about 6 months post SAH now.
One of the main things to remember is don't push yourself to much, rest is key
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I've recently found out that my aneurysm (which was partially clipped after it ruptured) has three blood vessels coming out of it. I can't really find much information about this and was wondering if anyone else on here had a similar problem with their aneurysm, or if anyone could point me in the right direction to find out more about this.
Thanks
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Hi,
Yes the lack of information available about SAH is very noticeable and frustrating at times. My SAH was in March and I've personally found it really useful looking over a lot of the old discussions on here.
Some really good advice given to me when I first came on here was to make sure you don't become dehydrated, I've noticed my bad days tend to be the days I've forgotten to drink enough.
Kay
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Hi Sairah,
I'm 4 months post clipping now, I used to get a lot of weird sensations too, now it's mainly the tight feeling and its still a bit numb on the top of my head. Sharp pains are also an occurrence that seems to be less frequent now, I think mine are mainly caused by tiredness.
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Hi Ricky,
I was just wondering if you were still on the nimodipine, because one of the common side effects of that is dizziness. Most of the time when I was in hospital and for the first few weeks at home I slept most of the time as well. Just try and take it easy, time and patience are the key things at the moment.
Kay x
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I actually found my way to this site because of this very book, having recently suffered from a SAH and being sent home from the hospital with no information what so ever, I had a lot of questions and it was so frustrating being completely in the dark about everything.
My partner found this book for me and it's amazing, I honestly can't speak highly enough of it, it has helped me so much reading about other peoples experiences in such a constructive way. The layout of the book is great as well, having it divided up into small manageable chunks has made all the difference for me as my concentration comes and goes. I also just wanted to say thank you to all of the people who contributed to this book, it's been such a great help to me, thank you.
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Hi Kathie
Well mine happened on the 6th of March this year, so 3 months ago now. I think the fatigue is something that all of us share, I've yet to come across anyone's account of their SAH in which tiredness and fatigue are not mentioned, it's seemingly very normal for us.
Kay x
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On 6/2/2017 at 15:08, Kathie said:
you think you're doing ok then do something fairly simple but that really has an after effect.
That is so true. I too am a recent sufferer of a SAH and so often think "that's easy, I'll be fine doing that", followed by doing about a quarter of what I intended to do, followed by a 3 hour nap.
I'm slowly learning that I must take it easier, which is admittedly hard when life is still carrying on at the same pace as before, you just have to make allowances for yourself, it's going to take time and patience (or so I've been told).
I also get the sharp headaches when i'm stressed, everything's still settling down in there really, so I suppose these things will still be happening
all the best,
Kay
Child birth after AVM
in Cerebral AVM's - Arteriovenous Malformations
Posted
Hello, I know I'm a bit late to the conversation here but I too have had a child after having two SAH's. My neurosurgeon said I was fine to have her naturally and so that's exactly what I did,
Hope all is going well.