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DawnS last won the day on June 13 2015

DawnS had the most liked content!

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About DawnS

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    Established Member


  • Biography
    I live in Northamptonshire with my partner of 11 years. It seems that SAH runs in the family, I'm now the third person in as many generations to have one. My gran's brother 'dropped down dead' when he was 27 of a brain haemorrhage and given the rest of the family history, I'm assuming it was sah. My Mum died of sah almost 10 years ago and now I've had one. My brother has been screened and he is clear so that's a relief, we don't want the full set now do we!
    I had coiling done the day after the haemorrhage, there are 6 sets of coils in there despite only having 1 aneurysm. Something about 6 being the optimal number, I can only go by what my other half tells me that the consultant told him. My memory used to be absolutely dreadful, but it gets better all the time and now I know what I did yesterday. It's took a long time, but I know I'm lucky.
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    Reading, birdwatching
  • Occupation
    Goods In Administrator (was)
  • SAH/Stroke Date

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  1. Hi Gemma, yes I just popped into the job centre. In our town, the sessions are on a Thursday after 14:00, though I imagine this would vary x
  2. Hello everyone, I hope you are all well? I don't often post anymore, but I made an important discovery today and I feel the need to share! I've been back to work for over three years now. My initial return was very challenging and unsupported which resulted in a change of role within the business. Today, I had an appointment with EADS. It was a very interesting meeting, and I'd like to share what I learned for anyone who is currently considering a return to work. My bleed was in August 2011 and I went back to work 53 weeks later. I wasn't actually ready, but the reason for my return wa
  3. I've come to this topic a little late to be of any real use, but you may still have meetings going on for some time. Here's what I learned from my return - take notes during any meetings. If your employer sends out a letter outlining the main points of the meeting, compare this with your own notes carefully. The letters I received from HR confirming the points of our meetings missed out very important things, like the fact that due to having very sensitive hearing I would either need somewhere quiet to work or at least be allowed to wear earplugs which had been agreed upon verbally. My cog
  4. I was strongly affected by the weather in the early days. Almost 4 years on, the weather adds to my fatigue but has nowhere near the impact it once had. As everyone else suggests, it's best to check any new symptoms with your GP
  5. Food tasted awful when I got out of hospital. To be fair, food tasted awful when I was in hospital - I'm told that I refused to eat most days. I had terrible stomach problems when admitted and was actually put in a private room with barrier nursing because they thought I had an infection. It turns out I react badly to dairy products and the drip I had was some sort of creamy stuff. When they realised this, they fed me on plain boiled rice and boiled white fish. How surprising that I refused to eat! I lost over a stone in 18 days. On getting home, all I wanted was ice-cream. I was only inte
  6. I think the sleep problems may well be the worst after effects of my sah, it drives me insane. If I have a decent night, I can pay for it with several bad ones. Last night I was awake until 02:30 and then got up at 06:30 for work. This does not work for me! My GP insisted that I could not have any medication because sleep issues after sah need to settle down on their own. I saw a consultant October 2014 for the first time since the bleed. I left hospital 02.09.11. She was surprised that no medication had been prescribed and asked me to see my GP for Amitriptyline. I almost felt smug when I
  7. I used to have fantastic night vision. I could read in extremely low light and there was no need to put a light on if I got up in the night. That all vanished in the bleed. I can't even read in candle light anymore when treating myself to a long bath. During the day my eyesight is usually ok, but my right eye can get blurry and will feel like there is something in it when I am fatigued. I was told that after sah it's best to have an eye test but that is something I haven't gotten around to yet - it's only been 3.5 years
  8. About a year after my bleed, I stated to feel like I could cope with exercise again. I saw my GP and he agreed that I could go running on the condition that I start off like a complete novice with plenty of walk breaks. I started off with 30 seconds running and 90 seconds walking. I built this up very slowly because if I push too hard too soon, I become so fatigued that I cannot sleep and I can wipe out the next day and sometimes longer so it's just not worth it. Pushing can bring on headaches, dizziness, ringing in the ears and a nasty metallic taste in my mouth. I am now able to
  9. SarahLou, I hope you find a balance that is good for you. The unfortunate thing about 'reasonable adjustments' is that it's up to the employer to decide what they feel is reasonable. How about listening to what we feel we can do? I had hoped to work 4 days of 6 hours - Monday, Tuesday, Thursday, Friday. It would mean that my employer would only lose me for one hour over the week, but I would gain an entire day in the middle to rest. I was told that this could not be considered at all. If they had a good understanding of brain injury, they would realise that my performan
  10. Hi everyone, how are you all? I wonder how everyone is getting on with work? It's been a long time since I logged onto BTG as last year was rather a challenging time. Happily, things have settled down nicely. After my hospital stay last April, I ended up having 11 weeks off sick. I had lots of meetings with my manager and HR. It was decided I should have a phased return which weirdly, was a lot longer than the phased return I had after sah and 54 weeks off! My targets have been cut out from 3 different targets per hour to no targets at all. During my phased return, when I reached 25 hours
  11. I had my sah 3 years ago and my Mum died of sah 12 years ago. It seems to run in my family. However, my brother has been scanned and he got the all clear and has been told not to worry about his children. I'm sorry to hear what's happened and that you are not getting any support from your sister. How did your son's operation go? I hope all was successful x
  12. My operation was emergency surgery so there were no choices. The original diagnoses was by CT and I too have been told there was only one aneurysm. I have been checked at 6 months and 2 years with an MRI with contrast. Each time the all-clear has been given and I'm also going to have a 5 year scan. They won't just operate and leave you to it, there are further checks. I agree with the others, Google is not always useful. It's great to find out more information, but it can also give you a lot to worry about that you would otherwise have been happily oblivious to.
  13. I have a lot of neck/shoulder pain and daily headaches. The pain is much stronger when I'm at work and so Occupational Health did an assessment on my desk and computer but all was ok. I recently had 11 weeks off sick and though I still had a few headaches, they weren't daily and the neck/shoulder pain vanished completely and so I assume it's related to using my brain too much and for too long perhaps. The pain starts at the base of my neck and by the end of the working day, it has spread down my back and into both shoulders, though usually worse on the right side. It sets in and nothing sh
  14. Hi Vanessa, I'm sorry to hear you are still suffering with headaches and nausea. Being in pain is such a grind. I am almost 3 years post sah and I suffer regular headaches, I am currently on day 6 of one right now. I used to think it was my brain's way of telling me to slow down, but I've recently had 11 weeks off work and can honestly say that the headaches didn't reduce much. Being at home made them easier to cope with rather than forcing myself through the day with ibuprofen! I still see signs of progress in my recovery now, though this is more obvious when it's something measureabl
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