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kpaggett last won the day on February 1 2016

kpaggett had the most liked content!

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215 Excellent

About kpaggett

  • Rank
    Established Member


  • Biography
    I am a warm eared, cool headed, and fast legged person.
  • Location
    MI, USA
  • Interests
    music, outdoors, solitare, puzzles
  • Occupation
    Music Therapist/Neuroscientist/Home maker
  • SAH/Stroke Date

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  1. I felt sick for moths. It was so hard to eat. I always described myself as 'turning', but I later found out I had all the types of dizziness put together: Vertego where the room is spinning 2. Dizziness where you feel you're turning 3. Light headedness when you get up too fast 4. Disequilibrium where I felt like my head was like a balloon attached to my body with just the string and my feet felt like I was walking on pillows. Now put it all together and try and walk up right....it just made me sick. I only have fleeting feelings of one of these every so often now after 5 yea
  2. Am I the only one who voted 1 out of ten????? It's been over 5 years, though for me. I am in really good shape physically. Emotionally I feel I have become adept in dealing with the new volatile emotional me. I'm confident in my ability to deal with the tears and anxiety now. This doesn't mean I LIKE them, but I deal with them effectively. I don't need a specialized doctor, just my regular GP once/year for a check-up. ~Kris
  3. I am over 5 years into recovery and have fewer times when I feel anxious, but when it comes on...it can still get bad. And then I go back to my happy self as if nothing happened. So it is evident that it isn't about how I really feel overall. I just try and remember that this too shall pass even if I'm really caught up in it at the moment. It always does. I've noticed for me, It is often associated with something new and once I actually do the thing, I am never anxious about it again. Also, I usually meditate daily and I do notice more incidents when I don't do it.
  4. Well, I think this is a misconception we all made when SAH entered into our lives...that, 'Surely, it should be over by now!' I've only met one person that felt like they were recovering fast and it was no big deal. THAT is unusual, not that you still feel awful. If you're measuring time in weeks, then there is almost no way that anyone would feel good at this point. We've all been there on BTG. We all thought we'd be OK when we got home. Some of us felt like we should be OK after we didn't have to go back to the neurologist/rehab doc/neurosurgeon anymore. Then it was after
  5. When I was one year post SAH, I was still consumed with striving to get better. At some point that lifted and I actually started living my life again instead of trying to either bend my new brain to my old life, or bending the present to my brain injury. I was beginning to recognize that things were going to be different and starting the thought process of being really good with that. At first, there is no way I felt in anyway good about my situation...people would tell me things like, 'you are so lucky to be alive' or 'you've really had a good recovery', but those statements and
  6. The fatigue for me was unlike any other fatigue or sleepiness I had ever experienced. It lifted in stages over the years. Now I only have it when I do something out of the ordinary, either physically or mentally challenging. It is really hard to navigate it at first because you don't really know what will cause your fatigue. It could be anything and what you think it is going to be turns out not to be. Becoming aware of your personal energy patterns is the first step, so you are on the right track. Figuring how to accommodate them is the second. This one can be inconvenient and
  7. I started seeing a neuropsychologist after a few months because of the new anxiety I felt. I too noticed racing thoughts and so I started to meditate with a teacher. Both things really helped me as well as yoga. I had never done this before either and it was a really calming way to move the body without all the 'no pain, no gain' mentality. Even now 5yrs after, I still have the heightened sense of fear and anxiety, but now I've learned new skills to deal with it when it gets intense. I am able to be quiet with my thoughts and they can be either slowed or watched and not experie
  8. From what I understood, if on your brain scans they found un-ruptured aneurysms, then you'd have to be monitored. Next, if you had other things that may have contributed to the bleed like smoking, hi blood pressure, alcohol consumption, that these could increase your risk, but if they couldn't even find what caused it (as in my case), and I had a healthy lifestyle and no family history. Then the likelihood of it happening again was as Macca said, was more likely in a different random person than me. You see, we had our brains scanned. Most average people don't so they
  9. I had the neuropsych. testing done too early. If you need it to evaluate returning to work, that is one thing, but if it is just for your curiosity, I suggest you wait until 18-24 monthss. post SAH. Otherwise it can be really upsetting. We already know that we have deficits. You can feel them right now. The IQ score was crazy for me early on...it was like I was boarder line developmentally disabled. Now I am not, but at the time, it seemed devastating to get that kind of news. The other reason to go to a neuropsychologist is for brain therapy. That is so worth you
  10. Hi there, I am almost 5 years post 'Blip'. My memory was really bad for a bit and then it improved with work. It was strange to me since my bleed had been in a brain location not associated with memory. Yet, there it was. Now it is generally good with unpredictable moments of horridness. I wish I could tell when it was going to fail, but I can't so I try and just take steps to have a back up like notes or husband, etc. I used to have an above average memory, so there you go. Don't get me started with spelling! I was always a bad speller, but now I'm like back
  11. My HR was odd after my SAH for a bit. Then it evened out. Then I started having premature ventricle beets. It was never anything to be alarmed about. Keep a watchful eye on that dizziness though, no one wants to have a concussion on top of SAH already! You do know that the brainstem is where your brain regulates the heart, so that may be why it seems different after a SAH in that location. If you are walking around and running, I'm with you...watch and wait for a bit. ~Kris
  12. My aunt had knee replacement and it did take her longer. Also, for me, anything is way heightened so my pain is bigger, my allergies are longer, I am more sensitive to everything. I also just get depleted way sooner than everyone else. I wonder if this has anything to do with your recovery? Do you get worn out faster on a day to day basis now? ~Kris
  13. Sometimes professionals just can't find the exact casual location of a bleed when it is diffuse or large. Blood often causes the ventricles to enlarge, the CSF contains blood, and the blood may or may not be confined to a given space like the Subarachnoid. That's why there is all these specialized terms that doctors use to describe the best they can where it all happened. Because we want to know, the professionals try and find out what happened for us patients. In some cases, mine included, there isn't the specificity to figure it out precisely. In any case, the recovery is similar.
  14. I had two and I was awake for both. I only had a local at the groin site. The bleeding was crazy for the second one because I was on blood thinners. If you are not on these, as I was not on them for the first one, the bleeding at the insertion site stops fairly fast. You have a right to be concerned about the procedure, it is brain surgery after all and there are always risks. However, you do need clearance to get your spine surgery because they don't want you to have an aneurysm burst on the table during that procedure. It can also give you peace of mind that your brain looks good so
  15. Julian, I had what the doctors called a diffuse SAH confined mostly to the perimesensephalic region. They all told me I'd me I'd be fine. It took me 3 years, but now feel fine most of the time. However, there are still occasions when it is obvious that I am not my normal self even though anyone would consider me 'normal'. For example, I used to play my husband at chess and other games of strategy and win every single time. Now, he mostly wins and I only do occasionally. Does this impact my life? No, but it is a reminder that my brain isn't as analytical as it once was. I get dis
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