Clara mac

Thanks Louise. It's so true I can't do it anymore with people. And if they explain it would help. Writing everything down or I will end up over the edge now xx

That made me laugh Skippy as it's so true what you are saying as it's frustrating. It's like saying you have been to Tenerife and they have been to Elevenerife and their is no comparison. I could take a frying pan and bang it on their head and say that's what it feels like ? I'm learning now to write things down and also I'm keeping an eye and if it gets worse I will phone. I now realise if the neurosurgeons are expecting this and have passed this info to my Gp then then I must. The good thing is they explained the sore heads will get progressively worse...well I think it's a good thing in all i know it's won't be my imagination.

Honestly really thank you I do appreciate the help and quick replies as the support stops me going down the way. I now understand what everyone talks about its like the novelty has worn off and people think I'm 100% now. Last night was the first I woke up at 5am with pain in my head and neck for the firSt since last week but that could be down to cutting on meds. I keep getting pins and needles and numbness in left hand so I'm keeping a diary as I am scared of the pressure build up that they are positive I will get through a slow build up and I'm wary in case it's another lumbar puncture. I pray to God that will not be the way they take it away. I feel like I'm a moaner in her but I'm sorry I don't have anyone else to ask or all I get it ..."when I get a sore head"...that's people that have never had this xx

Awww Skippy thank you so much for all this support. What I have noticed is now I've not took any pain relief I'm slurring my words more I usually take dyhydracodeine with paracetamol so they have been masking my energy levels .. Counselling I'm glad it helped as I'm. Looking forward to help now xx

Thank you that makes sense Skippy and Louise. I've been to GP and she said I have anxiety and PTSD. She said last week I was coping to well and she knew this was coming I have to see a counsellor which I am grateful for. The scary part , they are withdrawing my strong painkillers as this is masking my pain and my surgeon is looking for me to get pressure in my brain again so they have to be safe. I'm not looking forward to this but I know it's for a reason Xx

Skippy you are so right. I am a medium also and used to meditate all the time and I am trying my hardest to get myself back to that place. This may sound a daft question but did you cut a lot of people out of your life who were in it pre op? As I feel that's where I am headed now I'm so glad you know what the palpations are like. I was such a strong independent person. I'm readinb a lot of the forums and chats here to get a better understanding and this is definitely helping me . How long did it take you to be feeling even slightly normal.? It is like taking a heart attack and even on waking I don't know why my heart starts being anxious .. Does this makes sense as it's for nothing but for something ? Xx

Finally my Internet and tv is working again...these companies and their technical errors they say.. Thank you Louise. It is so hard ...2 friends today I hung up on as they moaned and then said, oh but you are worse..it was like overload and I couldn't do it anymore. They phoned me to ask was I ok which made it worse for me. The anxiety is killing me and I'm glad I have my Gp tomorrow so I can tell her. Getting out of bed I dread as the palpation's start within half an hour and I have them all day and night until I try and sleep. Hence work I know I would freak with people, talk, talk , talking ... I'm just glad there is light at the end of the tunnel and I know I can't go on like this... I moaned to get out of hospital to be with my kids but I didn't realise how safe it was for me and I look forward to darkness with my candles and lights on .. I'm just so glad everyone is recovering and glad to be alive ... It's a massive culture change though. Xx

Thank you Clare . This is such a supportive group and it is making my life easier knowning I am not alone and everyone here is here to help one another . Clara xx

I feel so much better after reading everyone's comments now. I don't feel like I am as bad to people now with the bored feeling towards them all. Funny I saw a spider last night and I was more tolerant and just let it be. I definitely cannot cope with negative people and I understand that too as they drain me I understand the sibling thing as now need to keep my brother in small doses. Thank you so so much and I will take it slow ad I even sometimes don't realise the brain injury because I cat see it until I wobble with my words and forget what happened 5 mins ago. I have my Gp Wednesday again and will bring it up. My Dr told me last eek they are looking for me to get pressue in my head so I have to watch out for my headaches getting sorer. I will.take things slower and look at going back go work in new year, pray to God I manage as noise is now an issue and people talk too much if that makes Sorry if I'm waffling but I feel like I've found a home now as everyone has now left me to it .thank you from the bottom of my heart everyone for replying and telling me I'm not losing it xx

Hi Tina thank you so much for telling me this ..I actually thought I was becoming a basket case. I want to ring my friends as I've went 3 days without me responding to them but I don't have the ....... , I can't remember the right word,to describe what I'm saying sorry..I just don't want to speak to them. It seems like everyone who has been close to me before this happened are the ones I don't want to talk to. When you say years is it a slow progress. I'm so glad you understand me . I love this group Tina and I am so new, people are so understanding xx

Thank you subs. Sorry, I'm new to all of this stuff now x

Thank you Clare and Louise. I'm still getting used to this site and how to work the replies. When I get myself more accustomed it will be better as I do love this place and everyone is so positive with support its like a new found family xx

I'm new to this and 5 weeks post SAH what does this scale mean please...x

Thank you so much again for accepting me in this group as this is such a positive group of people and I am enjoying reading the discussions with positive support. I'm about 5 weeks now post SAH and I've found I wake up every day and the palpations start and I don't know why I am like this. Also I am intolerant to people more and more, especially face to face. I was never like this ,I always had patience and time for people but nowadays I find I just cannot listen to people. After so long it's like a drone starts in my brain and I dread people wanting to come visit me at home as I don't know what to talk about I've lost my 120mph chatting. I previously could chat on the phone for hours to friends I can't even do that after 20 mins I get bored and head drones. The OT visited and said I still have a left sided weakness , I never noticed it so I take that as a positive as I know it's not that bad then and my words turn back to front when I'm tired and my memory is still playing havoc. Does anyone feel that part of you died the day it all happened. I feel have lost the old me and it does get me down and teary at times..all I did was laugh and now I struggle to find things to laugh at. Do you get your mojo back and be your old self or is this what I need to challenge myself on being a new person?.. Sorry it's long I don't know how to make it shorter .xx

Hi everyone thank you so, so much for your kind words. I saw the Dr today who contacted my surgeon, as the pain in my head had also changed to the likeness of a heavy pressure on top of my head. My surgeon said I will get the exact same pain I had previously if I have another bleed however he is more concerned of pressure build up which he feels could be a concern for me. So if the pain keeps getting worse I have to go back for another scan to rule this out. And I have to see my own GP every week until she is satisfied with my progress.

Hi Clare Thank you so much for replying to me. It means a lot to me to have your support . I will phone them and let you know how I get on Claire xx

Hi all I am new here. I am just out of hospital 2 weeks due to taking 2 haemorrhages and they coiled my aneurysm in my forehead. I am finding it all overwhelming at how fast it all happened and don't have many people to talk to as family are used to me being the strong person. I have had shooting pains in my neck today which only happened the night of my second bleed but I don't want to phone the hospital and annoy them. Is this a normal thing to happen? Please