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debbie b

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About debbie b

  • Birthday 25/10/1960

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  • Biography
    Mother of five children and five lovely grandchildren.
  • Location
    Grimsby
  • Interests
    Walking and spending time with my grandchildren
  • Occupation
    unemployed at present.
  • SAH/Stroke Date
    29/12/10

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  1. Hi Dawn x well don't want to moan but it's about 14 months post sah/cranitomy,titanium clipped and i can honestly inform you that i have never had my blood pressure checked by any medical person, like you i do it myself. Furthermore i came out of Hull Royal on the 18th Jan 11 and never saw a medical soul except my GP until 12/10/11 and i had to insist on this appointment . Since then because i cannot get any other appointment to review my seizure meds until 4th April my GP has taken me off the tablets they were mking me ill, aggressive and so lethargic. My Gp didn't want to take me off but he had to make a decision due to my health , i'm so frustrated, like you i need to talk to a neuro staff. I have in the past spoke to the ward i was on before discharge but they are so busy and i appreciate everything they did for me during my stay I actually feel bad for complaining x so frustration is quite normal considering what we have all been through xdon't let anyone fobb you off Dawn, you have a right to aftercare but we have to stand up to the medical profession or we will be forgotton x
  2. Hi x I'm also 14 months post SAH x i get lots of vibrating around my mouth and sometimes from the souls of my feet upward .I feel as if i am vibrating on the outside but i know i'm not . I think this is related to my simple partial seizures but no-one has ever told me it is only a practice nurse thinks that it could be part of the seizures. No-one has ever taken my blood pressure or even dscussed anything to do with the meds for the seizures my G P had to make the decision to take me off the meds as it was making me aggressive because i couldn't get an appointment at Hull until 4th April, I kept complaining about a severe gripping pain in my brain but no-one was listening until a couple of weeks back . Much better in myself but still having seizures .After an SAH i think it's only natural that we panick about any headaches or brain pain after all I think we have all been through a tuff time with little aftercare.x SAH date , 29th Dec 2010 thinking of you x
  3. Hi x I'm still having seizures x been taken off my meds it was making me aggresive x i apparently had a seizure whilst in he ambulance. Sometimes i can have many throughout the day and then nothing for days. I'm suffering 2 types ,abscences or peti mal x i think and simple partial seizuresx I'm back in Hull to discuss my meds but not until 4th April.I'm 14 months into recovery and get frustrated about the seizures, My GP tries his best but as he says he is not a neurologist and i have only had one appointment to see anyone in 14 months x I'm trying hard to cope without meds and up to now i'm doing ok x thinking of all x
  4. Welcome Nicola, I suffered Terson syndrome n my left eye after my SAH x Had an op and luckly got my sight back x It's been 14 months and i still am having some seizures x Had to come off my meds as it was making me aggressive x much better x thinking of you x
  5. Hi Alison so glad to hear Chris is doing well x I must admit after reading your text it reminded me of my stay in Hull after coming off most of my tubes all but feeding tube i apparently rang my hubby and told him the nurses were trying to kill me x they said it was the meds xi saw teddy bears following one the nurses and a brown booted leg wearing a pink ra ra skirt coming out of the ceiling. lol x i remember being asked if i knew who one of the men at my bedside was i thought he was the lead singer from the pop band Fine Young Cannibals , i guess we all have some strange memories of our stay in hospital x we do get stronger x thinking of you both x
  6. hi Janet x welcome to BTG, i'm new to the ste too x i'm 14 months into recovery and getting there slowly. debbie b
  7. H i Brian, I'm a SAH survivor, I also was informed i had a bleed previously that had caked the back of my skull and that they do not know how long ago this bleed occurred. I was taken from Grimsby hospital to Hull Royal where coiling failed so i had a craniotomy and was clipped.Although i was looked after fabulously during my 3 week stay the minute i left i have had to fight for an appointment in the 14 months of recovery i have had one appointment and had to arrange this myself and insist for a review about my medication for seizures. What i find interesting is your comment on looking for warning signs. I was led to believe that unless they had accidentiatly come across it there was no warning signs, but i do not believe this for many years i suffered with terrible headaches,vomiting,sinus pain, pain in the right side of my temple and the taste of blood,ear ache, neck pain and various other problems which was always regarded as depression and i was even sent to rheumatology and diagnosed with Fibromyagia, I always had pain in my face but was told to take anti allergy tablets. A short time before the haemmorrage i told my family that i believed i had a tumour in my head and i wanted it out. So i believe if doctors listened more instead of everything being about being depressed then perhaps early diagnosis would help save more lives. thankyou debbie b
  8. Thanks Penny x i had my op at Hull x they were fab x it is scary x I hope things are better with you x thanks for reply x debbíe b
  9. Hi Dawn, Hope all is well. I should have had an angigram on the 2nd December 2011 but i cancelled, i was too scared. thinking of you x debbie b
  10. thanks Janet x struggle getting around x not good on comi x
  11. Hi Mary x the dreaded headaches, i panick each time i get one and believe or not i have had 10 headaches in the last 14 months since my SAH. For me 10 in 14 months has been a doddle i used to suffer many more than that in any given month before the SAH Facial pain, vomiting, sinus pain. earache. a throbing pulsating pain in my right temple would always render me practicaly unconcous. but with all this and other symptons pain in my kneck and in my spine i was told i was only depressed and at one time sent to rheumatolgy were i was diagnosed with FIBROMYALGIA.(how wrong they were) I too have stopped taking my anti-seizure drugs they were making me aggressive my GP decided it was for the best. Still suffereing with simple partical and abscence seizure but im coping ok at moment. I found that some of my headaches recently are due to being dehydrated so i'm trying to drink more and i think it's working x Thinking of you x
  12. Hi there, well firstly i can tell you that i have been clipped x lol x a titanium clip to te precise, after 5 hours to try to coil my aneurysm which failed i had a cranitomy right side of head about 4 inches above my ear. I have no scarring visible and they never even cut my hair on the top only underneath. After the clipping i have some numbness around the area but this has improved. You are entitled to be scared and don't worry how people look at you,WE all know and understand how you are feeling.14 months on and i'm still a little scared x As for being off work it probably is different for everyone of us x Thinking of you x
  13. Hi Alison I'm glad you found this site so early on it really is a help. i didn't find it until a few weeks ago and i had my SAH 14 months ago. I wish your partner a speedy recovery. My stay in Hull helped me recover within 3 weeks of the Cranitomy and then i had a further op to rectify a detatched retina x I am on the mend so with friends and family im sure your partner will soon be home x thinking of you both x
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